Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 No, I have not been taking Acidophilus with the med's. I have been on for 6 weeks. I always took them with my IV med's, but my previous dr. did not instruct me to take them with the current med's I am on. So thank you!!!!!!! Just went to see a LLMD in NJ and he said that I have a major yeast issue going on. Just what I need. Here is some info. I received on a lyme clinic in Lancaster County, PA. Hope it helps. There is a Lyme clinic in Lancaster County that is a little bit out of the ordinary. Most of the patient contact is with a nurse-practitioner, although the patient will meet with a MD early in the process. They focus on nutrition as much as antibiotics, and the supplements they recommend (and sell) are expensive and generally not covered by insurance. But if these things are not a problem for you, this facility has generated good reports from patients. Call Rita Rhoades, NP at 717-468-7491 for more information. They are located in Quarryville. From: dlkh223@... <dlkh223@...> Subject: [ ] Re:Newbie ------- seeking best dr. in Philly/NJ & anyone on med called Date: Sunday, October 5, 2008, 4:53 AM K. Bentz, Not familiar with your meds, but are you taking acidophilus supplements to counteract the effect of all the antibiotics? That seams to be happening a lot that IV treatment only gives a temporary fic and you get sicker afterwards. I have been on IV three times and never got a long term cure. I am still shopping for a good doctor myself, I got some referrals, but I am really looking for a Lyme clinic of some type in PA, NJ, NY area. I heard of one at one of the larger teaching hospitals, but of course I cannot remember where that was. Dagmar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2008 Report Share Posted October 7, 2008 Keri, You need 45 billion organisms of probiotics per day while you are on Lyme antibiotics. Make sure to take the probiotics several hours away from the antibiotics. Take care, On Tue, Oct 7, 2008 at 1:15 PM, Keri Bentz <keri.bentz@...> wrote: > > No, I have not been taking Acidophilus with the med's. I have been on for 6 > weeks. I always took them with my IV med's, but my previous dr. did not > instruct me to take them with the current med's I am on. So thank > you!!!!!!! Just went to see a LLMD in NJ and he said that I have a major > yeast issue going on. Just what I need. > > Here is some info. I received on a lyme clinic in Lancaster County, PA. > Hope it helps. > > There is a Lyme clinic in Lancaster County that is a little bit out of the > ordinary. Most of the patient contact is with a nurse-practitioner, although > the patient will meet with a MD early in the process. They focus on > nutrition as much as antibiotics, and the supplements they recommend (and > sell) are expensive and generally not covered by insurance. But if these > things are not a problem for you, this facility has generated good reports > from patients. Call Rita Rhoades, NP at 717-468-7491 for more information. > They are located in Quarryville. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2008 Report Share Posted October 29, 2008 Please post their complete lab results and be sure to include ranges. Luck, PS: Am I sounding like a broken record today??? [ggg] .. .. > > Posted by: " " nmorgan12@... > <mailto:nmorgan12@...?Subject=%20Re%3ANewbie> nmorgan12 > <nmorgan12> > > > Tue Oct 28, 2008 9:37 pm (PDT) > > Hi, > > I have just joined the group with the hopes of getting some help for > my son and daughter who have had initial TSH tests that have come out > at 6.6 and 3.8 respectively. > They both have quite a few hypothyroid symptoms, but the doctors here > are reluctant to pursue treatment and/or to request further testing. > We are in SE Iowa and are looking for a doctor who will consider all > the possibilities in terms of testing and prescribing. I would really > appreciate any feedback anyone from the groups might have. > > Thanks so much, and I am very thankful to be a member of this group. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2008 Report Share Posted November 4, 2008 hi have you investigated iodine? http://www.optimox.com http://www.armourthyroid.com your children's symptoms need to be treated. I went through a lifetime of hell b/c I never got proper treatment. you might want to join iodine group on b/c the owner there has 2 kids on iodine and Armour. Gracia 100mg Iodoral 240mg Armour Hi, I have just joined the group with the hopes of getting some help for my son and daughter who have had initial TSH tests that have come out at 6.6 and 3.8 respectively. They both have quite a few hypothyroid symptoms, but the doctors here are reluctant to pursue treatment and/or to request further testing. We are in SE Iowa and are looking for a doctor who will consider all the possibilities in terms of testing and prescribing. I would really appreciate any feedback anyone from the groups might have. Thanks so much, and I am very thankful to be a member of this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 I don't have spina bifida, but I DO have chronic pain from my back..for 16 years now. I want to welcome you to the group and I hope that you find the help you are looking for...if nothing else I know you will find support and caring people! --- in RI From: teecyemp <teecyemp@...> Subject: newbie spinal problems Date: Thursday, March 5, 2009, 4:23 PM hi im new to the group i have spina bifida and i just realised how uneducated i am about my condition and living with my pain i know that its not fixable and that my dr's like to throw around the phrase " monitor deteriation " not an encouraging statement! but i think they tend to dumb things down and possibly skimmed over details because i have seen them since i was a kid and they never discussed things with me and still dont despite the fact i am now 25 which brings me to my question i dont know anyone of a similar age who suffers from chronic pain or spina bifida and was wondering if anyone out there was and how they have learned to deal with it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Hi newbie, I also have spina bifida and am still learning to cope with the pain/problems daily after having had a laminectomy in 2006 to repair a tethered cord and a cervical fusion in 2007. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 thats what I had a laminectomy in 1998 thank you people regularly ask me but I always have a blank moment and forget what it was I do hope it turns out to be successful for you mine held up for about 8 years till they realised there was nerve damage and possibly a similar thing happening again unfortunately due to scar tissue and remnants of whatever they where doing in their an mri is now unable to give a clear image and determine if it is a similar thing and since noone is keen on just going in to your spine for a quick look about I'm in rather an uninformed position. Anyway its nice to know they're are people out there in a similar situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 I have the same problmes with MRIs and other imaging devices. My NS did a discogram to see what was going on. Lexie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2009 Report Share Posted March 6, 2009 Yes I have quite a bit of nerve damage and pain also. My latest MRI from last year shows that I may be tethered again. I am just learning to deal with the pain because that surgery was so horrid I don't know if I can stand it again. > > thats what I had a laminectomy in 1998 thank you people regularly ask me but I always have a blank moment and forget what it was I do hope it turns out to be successful for you mine held up for about 8 years till they realised there was nerve damage and possibly a similar thing happening again unfortunately due to scar tissue and remnants of whatever they where doing in their an mri is now unable to give a clear image and determine if it is a similar thing and since noone is keen on just going in to your spine for a quick look about I'm in rather an uninformed position. Anyway its nice to know they're are people out there in a similar situation. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 teecyemp, You need to have an MRI with and without contrast, that will help differentiate between scar tissue and disk. Also having a CT as well helps to see different things and you can compare them. From: teecyemp <teecyemp@...> Subject: Re:newbie spinal problems Date: Friday, March 6, 2009, 12:48 PM thats what I had a laminectomy in 1998 thank you people regularly ask me but I always have a blank moment and forget what it was I do hope it turns out to be successful for you mine held up for about 8 years till they realised there was nerve damage and possibly a similar thing happening again unfortunately due to scar tissue and remnants of whatever they where doing in their an mri is now unable to give a clear image and determine if it is a similar thing and since noone is keen on just going in to your spine for a quick look about I'm in rather an uninformed position. Anyway its nice to know they're are people out there in a similar situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 You need to have a fast spin or STIR MRI. It is so much clearer & can see thru the scar tissue & fatty tissue. That's how they found the fragment on my nerve root. The regular MRI didn't. Hugs Kathy/Kady L2-L3 There is mild decrease in height & signal intensity of intervertebral disk w/mild diffuse bulging of the disk annulus. L-3-L4 Norjal disk & facet joints. L4-L5 The disk maintains normal height & signal intensity but a small disk fragment has extruded on the left disk & has migrated superiorly into the left neural foramen compressing the left l4 nerve root. L5-S1 Marked decrease in height & signal intensity of the intervertebral disk w/mild diffuse bulging of the disk annulus & mild fatty replacement of the adjacent bone marrow. The facet joints are normal. Then down lower on the paper it says Impression: Disk herniation at L4- L5 on the left with a small extruded fragment which has migrated superiorly into the neural foramen & is compressing the left L4 nerve root. spinal problems From: tpowell1977@... Date: Tue, 10 Mar 2009 15:42:59 -0700 Subject: Re: Re:newbie teecyemp, You need to have an MRI with and without contrast, that will help differentiate between scar tissue and disk. Also having a CT as well helps to see different things and you can compare them. From: teecyemp <teecyemp@...> Subject: Re:newbie spinal problems Date: Friday, March 6, 2009, 12:48 PM thats what I had a laminectomy in 1998 thank you people regularly ask me but I always have a blank moment and forget what it was I do hope it turns out to be successful for you mine held up for about 8 years till they realised there was nerve damage and possibly a similar thing happening again unfortunately due to scar tissue and remnants of whatever they where doing in their an mri is now unable to give a clear image and determine if it is a similar thing and since noone is keen on just going in to your spine for a quick look about I'm in rather an uninformed position. Anyway its nice to know they're are people out there in a similar situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2009 Report Share Posted April 3, 2009 Ce Anne, a " yeast-free " diet to combat candida is a myth. Yeast is used in " anti-candida " probiotics because the yeast outcompetes, and is not used by, candida. I think the anti-yeast proponents are confused by " yeast products " i.e. bread; in this case it's the carbohydrate feeding the candida, not the yeast, which even if dead and totally broken down and usable comprises only about 1/2 tsp- 1 tsp of the total loaf. Make sure the Garden of Life probiotic does not contain bacillus licheniformis or derivatives, a big problem with one of the company's products that has been associated with cancer starts. Duncan > > Hi all, > > About two years ago I went on the pH Miracle diet and lost about 20 lbs and thought I was getting a handle on my candida. I do foot baths about every two months and still eat some what a yeast/sugar free diet. Lately and right at this moment I've been getting what are like cold symptoms yet not homeopathy fits it, and I don't have all the cold symptoms. If I eat sugar my throat feels like it swells and my head gets stuffed up. I've been taking a Garden of Life probiotic which helps a bit but I'm still having issues. Any suggestions? > > Thanks, > CeAnne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Hi Pam, sorry to hear of your recent dx but thankful they figured out what was making you sick! I have never done the treatment so I can not answer those questions but yes, the hep c can cause the pain. I have had years of fatigue and ab pain. Do you think the exposure was recent or do you suspect this has been lurking for many years? I found out in 95 that I had hep C and suspected it was from a blood transfusion 20 years earlier. Glad you are here. Hugs, Cheri > > Hi everyone, found out I have hep c in Nov 2008, between all the test and the darn liver biopsey I just had 3 weeks ago still trying to catch my breathe and swallow what is to come.My liver biopsey also revealed I have stage 2 fibrosis,fatty liver and a bunch of cysts.I'm going to Hopkins for treatment.I talked to them this morning, they have all my lab work.I've only had 1 panic attack thru this in which they gave me adavan, been sober 22yrs and that just put me out like a light.Is the treatment really horrible? I'm type 3 which I'm thankfull for.I did meet someone going to hopkins for her treatment,she'll be done in June and only now she said the dry skin is buggin her.I have felt like I " ve had the flu for 2yrs now so I can deal with that. Does anyones liver ever hurt,or when you breath does it hurt? pam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2009 Report Share Posted April 21, 2009 Welcome Pam, I found out in Nov of 2007 that I had Hept C-1A. I had no real idea what that ment but the look on the Dr. face was enough to scare me. I had all the blood work, cat scans, MRI and the wonderful Liver biopsey. Like you I have fatty liver, NASH and stage 2 fibrosis. In regards to the " liver " pain. I do understand. My liver was so enlarged it was pressing against my rib cage. So, yes it hurt like a bugger at times. Enough to take my breath away. My upper adomain is enlarged and tender also. For me it is the inflamation that just won't go away. I am hopeful that it will in time. During treatment just take it easy and deal with any side effects one at a time. Everyone responds differently and have ranges from very few side effects to the whole rainbow. I am now into my 45 week of 48 so I am almost done this part. It was not an easy adventure but I was non-resposive at 12 weeks which I am very thankful for. In regards to my NASH and Fatty Liver Disease. I have lost 50lbs due to treatment. My Dr. wants me to lose another 80 lbs. Yes, I am a large woman and right now at my lowest at 240 lbs. I have made a lot of diet changes. Taking it slow and adding more fresh fruits, veggies, whole grains,beans, lentels and olive oil is my main fat. Mostly home cooked meals, no processed foods very little sugar and I have cut way back on red meats. Basicly, I am starting to take care of me and get as healthy as possible go support my liver and inmune system during this battle. As you travel down this road you will find a wealth of information on different foods, diets and supplements that are liver friendly. There are a lot of wonderful support groups like this one that offer a wealth of information and a great place to ask questions, vent, cry and laugh. Hugs for you. Peg > > Hi everyone, found out I have hep c in Nov 2008, between all the test and the darn liver biopsey I just had 3 weeks ago still trying to catch my breathe and swallow what is to come. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2009 Report Share Posted April 24, 2009 > > i went to the doctor and found out that i was going threw menopause, i have had many recurring vaginal infections, yeast,bacterial,and uti.i know menopause can cause this and many other changes in which i have, the main problem is the yeast infections, i do take acidophilus which does help me. my question is what kind of foods or a list of foods that i can eat that helps with menopause and control my yeast infections at the same time? i have spent hours of searching on internet, but i get different answers to which foods that i can eat. so im pretty confused,lol. so im hoping that people in this group that has gone threw this can really help me out. any info would be greatly appreciated. thanks +++Hi there. Welcome to our group. Is your name ? You don't have to treat your menopause since it isn't a disease or illness - it is a normal bodily function like our periods are. Your body is well equipped to produce hormones it needs during and after menopause if you are healthy. This program is more than just a candida program, since it would improve anyone's health. It is definitely a healing program! See these many Success Stories by members of this group: http://www.healingnaturallybybee.com/success/index.php The best place to start is by reading and learning what you need to do, and why, which includes diet and supplements - read these two important article first: -How to Successfully Overcome Candida -Curing Candida, How to Get Started http://www.healingnaturallybybee.com/candida/index.php After that you will find Candida Diet and Supplements Lists on my website for handy reference. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2009 Report Share Posted May 4, 2009 Hi nice to meet you, I have had it from a very young age, my family was always telling me to stand up straight. I couldn't or it would hurt, last year when I started seeing a rheumatolgist thefirst thing he did was check my Vit-D levels and they were so low he couldn't believe it. You see if your vit D levels are low then your not absorbing calcium the way you should. I have many spine and arthritis problems and having scoliosis doesn't help, but mine is not severe, but it will get worse_ I am 57. Having your vit d levels checked could help slow it down if you are deficient. Sorry I couldn't help more! Have a nice day~~~~Donna from PA In a message dated 5/4/09 1:55:18 AM Eastern Daylight Time, beetee42@... writes: > > > Hi, > I have scoliosis, have had from birth and would like to correspond through > this group, with others who may also have scoliosis. Most information I > find relates to children who are afflicted but I am now in my 60's. I have > just been told my curvature has worsened in the past year (as if it wasn't > already bad enough) and am wondering just where I go from here. It would be > so nice to talk to someone else who " would know where I am at " . Heres > hoping. > > Beetee42 > > Enjoy a safer web experience. Upgrade to the new Internet Explorer 8 > > > > > ************** 2009 3 Free CREDIT SCORES: See Your 3 Credit Scores from All 3 Bureaus FREE! (http://pr.atwola.com/promoclk/100126575x1221797372x1201397989/aol?redir=https:%\ 2F%2Fwww.freescore.com%2FOffers%2FStart%2FFreeCreditRepor tAndScore.aspx%3FID%3D91831F371F138345B53A153F49D4D872%26siteid%3De927580bf7 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2009 Report Share Posted May 6, 2009 Mystic Maiden, Thank you so much for your reply; like you I was always being told to " stand up straight, sit up straight " etc., I could never understand why they didn't realise I was doing the best I could! Physio during my childhood did nothing; I was strapped into a weird device for sleeping when just a youngster (these days it would be called child abuse) and that did nothing either. My neurologist has now ordered complete bone density scannning, this takes place May 29th. Where we go after that, who knows? I wouldn't wish this affliction on my worst enemy but it is so good to hear from someone who knows what it's like. Best wishes, From: MysticMaidenxx@... <MysticMaidenxx@...> Subject: Re: Newbie spinal problems Received: Monday, 4 May, 2009, 11:54 PM Hi nice to meet you, I have had it from a very young age, my family was always telling me to stand up straight. I couldn't or it would hurt, last year when I started seeing a rheumatolgist thefirst thing he did was check my Vit-D levels and they were so low he couldn't believe it. You see if your vit D levels are low then your not absorbing calcium the way you should. I have many spine and arthritis problems and having scoliosis doesn't help, but mine is not severe, but it will get worse_ I am 57. Having your vit d levels checked could help slow it down if you are deficient. Sorry I couldn't help more! Have a nice day~~~~Donna from PA In a message dated 5/4/09 1:55:18 AM Eastern Daylight Time, beetee42 (DOT) com.au writes: > > > Hi, > I have scoliosis, have had from birth and would like to correspond through > this group, with others who may also have scoliosis. Most information I > find relates to children who are afflicted but I am now in my 60's. I have > just been told my curvature has worsened in the past year (as if it wasn't > already bad enough) and am wondering just where I go from here. It would be > so nice to talk to someone else who " would know where I am at " . Heres > hoping. > > Beetee42 > > Enjoy a safer web experience. Upgrade to the new Internet Explorer 8 > > > > > ************ ** 2009 3 Free CREDIT SCORES: See Your 3 Credit Scores from All 3 Bureaus FREE! (http://pr.atwola. com/promoclk/ 100126575x122179 7372x1201397989/ aol?redir= https:%2F% 2Fwww.freescore. com%2FOffers% 2FStart%2FFreeCr editRepor tAndScore.aspx% 3FID%3D91831F371 F138345B53A153F4 9D4D872%26siteid %3De927580bf7 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2009 Report Share Posted June 12, 2009 Kefir grains love raw milk!!! If you don't find anyone I could send you some on Monday. I will be sending out to 2 other families...they travel well! Just email me personally. Blessings, > > Hi all, I'm new to this group and to it's topic but have already found alot of good info here. I have just bought " The Perfect Pickler " from http://www.perfectpickler.com/. I'll let you know how it works for me. > > I live in So Calfornia. Does anyone have kefir milk grains available. I'd also like to ask the group if anyone has had any problems with using raw milk for their kefir? > > Thanks alot, > Gordon > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2009 Report Share Posted June 13, 2009 Hi Gordon; I'm brand new to this group too, and am very impressed. I came to sustainable agriculture through aquaponics[1], and to fermentation through the book Nourishing Traditions[2]. I'm currently making kefir with the powder for sale at my co-op. Interestingly, the kefir made from pasteurized whole milk is delicious, and the kefir I've made from raw whole milk has just tasted sour. I'm hoping once I get grains the raw will be delicious, too! - [1] http://www.treehugger.com/files/2007/12/aquaponics_the.php [2] http://www.newtrendspublishing.com/SallyFallon/index.html > > Hi all, I'm new to this group and to it's topic but have already found alot of good info here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2010 Report Share Posted January 14, 2010 > > Hi, > > I am new hear and have suspected a candida problem for awhile. I originally was tested for b12 deficiency and multiple sclerosis. My b12 was 300 so that could have been a problem, but the test for MS were all good so docs said they didn't know what was wrong with me. Anyway,my question is can candida attack the central nervous system causing symptoms of pins and needles, vibration and internal shaking? I am not fatigued nor do i get colds or the flu. In fact haven't had one in a long time. +++Hi Sue. Welcome to our group. The reason you are getting nervous system problems is because of toxins, and candida also produces a lot of toxins, and it is also known to cause MS and other neurological symptoms and malfunctions. > > I started to do your program cause of one huge indicator-oral thrush. I took the test and i scored a 140 which is good-I think. +++This program isn't just for candida since it has proved to improve anyone's health as these Success Stories indicate: http://www.healingnaturallybybee.com/success/index.php +++So whether you have candida or not, this program will be great for you. That is because there are Four Causes of Failing Health: 1. Lack of proper nutrition and oxygen. 2. Accumulation of toxins, poisons, and waste. 3. Lowered vitality due to stress, shock, injury, emotional upsets, relationship or financial worries and concerns, etc. 4. Nutritional status inherited from your parents upon conception (can be corrected with " proper nutrition " ). +++Therefore, health is only improved by building up the immune system, which is done by: 1) Consuming " proper nutrients " (diet plus supplements), 2) Eliminating toxins and foods that feed candida (they also feed bacteria and cancer), 3) Eliminating damaging foods, and 4) Eliminating toxins in general. +++I suggest you start by reading two important articles so you understand what you need to do and why: 1) How to Successfully Overcome Candida http://www.healingnaturallybybee.com/articles/intro2.php 2) Curing Candida, How to Get Started http://www.healingnaturallybybee.com/articles/intro1.php > AWhile ago-3 years to be exact I got a bladder infection that took 2 rounds of antibiotics and then a month. But the first symptoms of pins and needles started before that. +++There are natural antibiotics for bladder infection, which is fresh parsley tea. > > I've already switched to natural cleaning products. I buy seventh generation or products from trador joes. Are these ok? or would Melalucca be better? +++I don't know what Melalucca is, but Seventh Generation are good. > > And any advice on products to buy for the skin and hair? I don't want to get wrinkles and don't think i could but coconut oil all over my body every morning. Plus I have a strict budget-dang economy!! +++It is so much more important what you eat and consume than what you put on your skin, since healing and health comes from within. So you need to pick your battles as to where you decided to spend your money. I suggest you read first and decide later. We can also help you with that. > > Thanks for any answers in advance. Im so depressed over my condition and the diet is sooo hard for me!!! +++It becomes easier and easier as you do it, since it opens up a whole new array of foods and recipes, and you can be secure that you are doing what you need to in order to get healthy. Your taste buds also change. So hang in there. You too can get healthy like many people of this group have. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2010 Report Share Posted February 24, 2010 OH sure glad you clarified that as I was just going to ask.As far as I'm concerned, I got my HepC from an ear piercing back in the 80's. Also I was a 1B. I've done both types of treatment!! The first one was in 2004/2005 and I didn't get concerned about the side affects because they only lasted for the time I was on treatment. However, at the end of the 48 weeks, I ended as a Non-Responder and that was devastating.Then, here in 2009, I was on a clinical trial with the 3D combo. It's still Interferon/Ribivirin and they have added a Protease Inhibitor. This time it did work for me and so far I have achieved Sustained Viral Response; but, the clinic etc. are not going to openingly declare that until at least June!!The only reason that I would suggest waiting is because, you certainly don't want to be doing 48 weeks of treatment, have it not work, and then flip right over the 48 weeks of the new combo. However, as I've tried to repeatly point out!! The figures for SVR that we are hearing about right now on that new combo, have still not been broken out between the various geno types. Who knows, when the dust all settles in the next 2 or 3 years, we may learn that the SVR rates were still actually inflated because it worked so well on the geno type 3's. I certainly hope not, we geno type 1's need to hear some good news and hope again.Gloria OOps Liver biopsy Not transplant. I am just very tired. Sorry Ask a question on any topic and get answers from real people. Go to Answers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Hi back DrownFirst of all, pleased don't be freaked and only a little scared!!! Do you have another supportive person in the home to help with the 2 small children?? Or at least, someone that would be willing to help out?? You may or may not need it!!!Fortunately, you are very young and therefore, your body is not all aged like a good many of us others. Treatment should be a whole lot easier. Some of us oldtimers here, were already in the age group where some other small health issues were bound to show up anyway.Personally, I have done treatment twice now and because of my age, could not have faced two children on top of it. But, I'm also at the age where, as much as I love hearing children's laughter etc., it tires me out very quickly. Please, remember every day, even when those little ones are annoying you or that you are not feeling really on top of your game, that you are willing to go through anything for your children!!! During my first treatment, I developed a goal/dream from very early into it. For me, that was to come through it and be able to take the travel trailer out when it was over and camp in at least on of the numerous sites that are all around me. Therefore, every weekend that the interferon took the energy out of me, I'd lay in bed, dreaming of that day that I could go. Did it too, even if it was only for a couple of days.Plan something, in your head, that would inspire you every time you think of it - to keep you positive and forward looking. You are now in a position to fight this dragon, before it's had much time to damage your body. Believe and continue to believe that no matter what, the end result is the absolute most important thing.However, I really believe that at your age, you will likely not feel many affects of the treatment!!!Keep coming here and telling us how you are!! Always remember, we are here and we CARE....Gloria Hello all, I am 30 and have hep c. I will be starting pegasys in about 2 weeks, im a little freaked out and scared, I have 2 small children and dont know how well I will hold up. I would love to hear how anyone did during this treatment, my doc says I have gyno type 1a and will do this for 11 months. Thanks The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Get it Now for Free! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Hi D The worst part of any disease is all the 'stories' of the maybes, one hears. These stories scare us. Like Gloria says, you may breeze right through your treatment. We are all different, and react differently too. D, granted treatment is scarey, and is not fun, but it is something most of us can get through. I encourage you to put your fear aside as best you can, and focus on the final result. CLEARING. Your babies need you, if there is no other reason. I havent had to do treatment yet, [thank you God], but I have been working with folks who have, for over a year now in these HCV groups. I try my best to provide info and support, because I can see that everyone is suffering, and my heart goes out to each person. In return, everybody supports and infoms me, of which I am so very thankful. When I was diagnosed, I about crapped, I was so scared. I didnt even know what my liver was, or where it was located, and had never heard of HCV. I had no clue, except that, yes, I had a liver. lol Everyone, even though they too were suffering, gave me the strength to carry on. Without each persons help, Im not sure I would even be here. One important thing I have come to learn is this. We have enough to carry on our backs, without breaking our backs with a load of maybes. Awareness is good, but fear is a killer. So, again, I encourage you to focus on the positive and good. I know its hard, my friend, but tell yourself over and over, everything will be ok. I personally believe that we all have the power to speak our futures into being, and making them manifest. It is our hidden strength, and gift. We are all here for you D, each in our own way. You are not alone, we are right beside you all the way. We can help each other through all this mess. love don in ks From: dbrown715907 <dbrown715907@...>Subject: [ ] Newbie Date: Sunday, March 7, 2010, 7:02 PM Hello all, I am 30 and have hep c. I will be starting pegasys in about 2 weeks, im a little freaked out and scared, I have 2 small children and dont know how well I will hold up. I would love to hear how anyone did during this treatment, my doc says I have gyno type 1a and will do this for 11 months. Thanks------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Hi D brown, You need to learn ALL about Hep C BEFORE you start treatment. DO NOT LET A DOCTOR MAKE A DECISION FOR YOU !!!! This does not mean the doctor is wrong---BUT---the treatment can be very hard on some people and Most need some help while going thru treatment. Everyone is different. You need to be prepared for this long term treatment !!!If you find you cannot finish treatment, partial treatment MAY cause additional problems. Do not go into this without learning all you can FIRST. There is an excellent online book called CHOICES at www.hepcchallenges.com website. You can read it on the website. You don't need to buy it. Hep C is generally very slow moving in most people ( I'm 75, had it 43+ years, and have little liver damage). It is MY belief that no one should go into ANY long term treatment without FULL knowledge of what the treatment entails and FULL knowledge of the disease that is being treated. Emergency treatment is different. Treatment for Hep C is NOT emergency. There are MANY new treatments on the horizon that are much shorter and more effective against genotype 1. Are you aware that the odds are only around 50% or less that the current treatment will be successful for genotype 1? They are currently doing trials on new meds that will be 80% effective against geno 1 and are shorter and have less side effects. > > Go onto several websites and learn ALL you can. Don't let a doctor scare you into treating until you have learned all you can and are prepared for the side effects. From my time on various forums, I have seen that those who are fully prepared for treatment do much better. It is long term and requires full commitment. Hep C is a long term disease. Have you had a biopsy? Do you know what stage your disease is in? Again, Hep C is a slow moving disease and is not something you will die from tomorrow--or ever. There is no need to rush to treatment. Spend time learning everything you can first--and THEN make your own decision. Them's are my thoughts--my doctors feel that my Hep C just needs to be monitored--not treated. SuziQ > > > > From: dbrown715907 <dbrown715907@...> > Subject: [ ] Newbie > > Date: Sunday, March 7, 2010, 7:02 PM > > > Hello all, I am 30 and have hep c. I will be starting pegasys in about 2 weeks, im a little freaked out and scared, I have 2 small children and dont know how well I will hold up. I would love to hear how anyone did during this treatment, my doc says I have gyno type 1a and will do this for 11 months. Thanks > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2010 Report Share Posted March 8, 2010 Thank you everyone for your kind words, it made my day. I have had a byopsy 5 years ago, and he said my liver was perfect, now Ihave a new doc, cuz of my insurance and he says I should treat, Im confused , but a litle less scared.Thanks > > > > > > From: dbrown715907 <dbrown715907@> > > Subject: [ ] Newbie > > > > Date: Sunday, March 7, 2010, 7:02 PM > > > > > > Hello all, I am 30 and have hep c. I will be starting pegasys in about 2 weeks, im a little freaked out and scared, I have 2 small children and dont know how well I will hold up. I would love to hear how anyone did during this treatment, my doc says I have gyno type 1a and will do this for 11 months. Thanks > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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