Guest guest Posted February 18, 2003 Report Share Posted February 18, 2003 Hi Can you please send me instructions on how to receive as a daily digest I have gone to the .com and pulled down my Groups but only my acct with sunshine is there?? Thanks a bunch F. Waterloo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 Hello , Late response sorry. Not sure if you still need help or not. If so you can e-mail me personally, I would gladly help! Hope you're doing good! Love & Hugs... Bert. > BlankHi > Can you please send me instructions on how to receive as a daily digest I have gone to the .com and pulled down my Groups but only my acct with sunshine is there?? > Thanks a bunch > F. Waterloo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 - Holy information overload, Batman!! > Joe, > I take 2 Ultracet every six hours, Skelaxin as needed and at night > 2mg Lorazepam and 50mg Amitriptylin. If I need to drive myself > somewhere, I skip those drugs, take 2 Aleve, and wear my TENs unit. > I get a full hour+ massage weekly and gentle chiropractic > adjustments as needed. I take one Vicodin every 8 hours, I use Celebrex so nothing but a baby aspirin for my heart. I take Elavil (Amitriptylin). I'm allergic to skelaxin. >I normally do about 1.5 hrs of stretching > and strengthening exercises daily after a hot shower - unless I'm > feeling really sorry for myself. I normally walk about 45min a day - > pretty darned slowly at first, but it has been way too cold here > for the past month. I nap about 1-2 hours daily - on my side with > legs drawn up. I already had 6 weeks of PT, so I know what > exercises help and what not to do. Also had the epidural series > which resulted in a blessed 4 weeks of no pain, and then back to > reality. Sitting is awful - 40 min in the car is about all I can > handle and usually end up kneeling in front of the computer. Mostly We have a few different symptoms here. A suggestion at night. If you lay on your back, put a pillow under your knees. It removes the strain on your lower back. I went to the healthy back store and picked up a professional grade leg lifter. It's funky, but only took one night to get used to. I'm going to go back to the gym as soon as I get the ESI. I don't have a TENS unit. I do get a massage about every 2 weeks. I work 12 hours a day, so sometimes I just shut my office door and get down on the floor for lunch. > I try to accept the pain as just another feeling and not fight it. > I listen to Dr. Weil's CD " Sound Body, Sound Mind " fairly > regularily -very soothing and you find yourself drifing off. I use > a couple of other meditative CD's as well, but being a Christian am > pretty selective about what I'm listening to. I'm glad you still have faith. I am doubting any that I had because the last 6 months have been hell on earth. >A nurse told me that > my beloved recliner was the worst for lower back injuries - guess it > puts a lot of force on the lower spine, so now I lay on a love seat > with my legs draped up over the arm when I watch TV. I really try > to stay busy and moving as best as I can - stay intellectually > involved with something other than the pain. I do have to admit > that I still find myself gritting my teeth and not breathing! I think that's true, but I have a lumbar pillow for my recliner that really makes it comfortable. Concentrating on my work makes me forget about the pain most of the day. Also, I went to 2 movies with a friend last Saturday. I noticed that I didn't even think about the pain while I was there. Coincidentally, his wife is about to have her second back surgery. Go figure. >I am > also on two different antidepressants (not normal for me). I go > back to my GP next week to discuss upping or changing the daytime > pain medication - pretty gritty lately. > > I think the AMit(elavil) and Neurontin are also used for depression, so I'm on 2 also, they do double duty. Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 - Holy information overload, Batman!! > Joe, > I take 2 Ultracet every six hours, Skelaxin as needed and at night > 2mg Lorazepam and 50mg Amitriptylin. If I need to drive myself > somewhere, I skip those drugs, take 2 Aleve, and wear my TENs unit. > I get a full hour+ massage weekly and gentle chiropractic > adjustments as needed. I take one Vicodin every 8 hours, I use Celebrex so nothing but a baby aspirin for my heart. I take Elavil (Amitriptylin). I'm allergic to skelaxin. >I normally do about 1.5 hrs of stretching > and strengthening exercises daily after a hot shower - unless I'm > feeling really sorry for myself. I normally walk about 45min a day - > pretty darned slowly at first, but it has been way too cold here > for the past month. I nap about 1-2 hours daily - on my side with > legs drawn up. I already had 6 weeks of PT, so I know what > exercises help and what not to do. Also had the epidural series > which resulted in a blessed 4 weeks of no pain, and then back to > reality. Sitting is awful - 40 min in the car is about all I can > handle and usually end up kneeling in front of the computer. Mostly We have a few different symptoms here. A suggestion at night. If you lay on your back, put a pillow under your knees. It removes the strain on your lower back. I went to the healthy back store and picked up a professional grade leg lifter. It's funky, but only took one night to get used to. I'm going to go back to the gym as soon as I get the ESI. I don't have a TENS unit. I do get a massage about every 2 weeks. I work 12 hours a day, so sometimes I just shut my office door and get down on the floor for lunch. > I try to accept the pain as just another feeling and not fight it. > I listen to Dr. Weil's CD " Sound Body, Sound Mind " fairly > regularily -very soothing and you find yourself drifing off. I use > a couple of other meditative CD's as well, but being a Christian am > pretty selective about what I'm listening to. I'm glad you still have faith. I am doubting any that I had because the last 6 months have been hell on earth. >A nurse told me that > my beloved recliner was the worst for lower back injuries - guess it > puts a lot of force on the lower spine, so now I lay on a love seat > with my legs draped up over the arm when I watch TV. I really try > to stay busy and moving as best as I can - stay intellectually > involved with something other than the pain. I do have to admit > that I still find myself gritting my teeth and not breathing! I think that's true, but I have a lumbar pillow for my recliner that really makes it comfortable. Concentrating on my work makes me forget about the pain most of the day. Also, I went to 2 movies with a friend last Saturday. I noticed that I didn't even think about the pain while I was there. Coincidentally, his wife is about to have her second back surgery. Go figure. >I am > also on two different antidepressants (not normal for me). I go > back to my GP next week to discuss upping or changing the daytime > pain medication - pretty gritty lately. > > I think the AMit(elavil) and Neurontin are also used for depression, so I'm on 2 also, they do double duty. Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Hey Nick, Personally pain mgmt didnt work for me but some swear by them, I would too if it had helped. They show you how to manage your pain in different ways, like breathing techniques, changing your way of life (tho I have nothing that could change, I cant/dont work), how to not let the pain take over your life and for you to control it in your mind... honestly in my opinion it was a bunch of mind playing games that I didnt like at all and I know I have a problem, changing my life or anything was not going to change the fact that I am in pain.. sorry it all makes me mad b/c I was forced to go thru the program, tried to keep an open mind but all I could think of was " this is a load of shit " . Just My experience tho. The doctor did want me to go thru a procedure (thankfully I was allowed to say no to it tho) where I would be awake, they'd go thru my... anyhow, go in and scrape away as much scar tissue as possible but 1- Very painful procedure and 2- scar tissue could grow back and I'd be in the same position as I am now, so it was not worth it, and he even said it was an option and didn't blame me for saying no. He was also the doc that put me on this duragisic patch which if my family doc had known b4 he put me on it, she'd not have had him go that route... he was in control tho and I had to go thru the program. Sorry I can't give you more of a plus on it, but I'm still mad that I was made to go thru something I knew wasn't for me so I'm not a positive person about pain mgmt at all, but again, some swear by it. So, it's a 50/50 thing on if it works or not from my experience. Connie Pain management > Ok so as I wait for the next neurosurgeon to see me Walter > Medical center would like me to go to Pain Management. What are > these places like? How can they help? I was told no epidural shots > in the neck it is to risky. What else can they do? Thanks. > > -Nick ) > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Is there a list of these clinics in different areas? joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2003 Report Share Posted June 2, 2003 Mine started in the hospital then transferred to the hospitals pain center across the street from the hospital. Re: Pain management > Is there a list of these clinics in different areas? > > joe > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 hi my name is Larry and its rather odd to read your post cause i was told by 5 doctors that sugery would do no good for me even with the pain im in i could have the surgery but it would do nothing for my pain , i have the very same thing ( the same thing ) wrong with me, that i would have the pain for the rest of my natural life, well i read your post of having surgery back in july of last year and i suppose my doctors was right so i guess you can say i have the same problem as you . they told me they would take a graph from my hip since all the disc was gone. and i really don't know how to word this so please don't take this the wrong way . now i know surgery won't do no good since your still in pain and you did have surgery. now i know but i am sorry that you are still having great pain. so i guess you can say yeah i know exactly what your talking about... pain management > I have never been on a chat line before. I am trying to find out if > and when after having spine-fusion does the pain stop. I had surgury > in July last year and am still having pain in my back. The Surgeon > operated from the back first, placing pins, then from the front a few > days later, placing more pins. Also he took a graft from hip to > replace the disks I no longer had. That area also is still in pain. > Does anyone have the same problem? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 > I am trying to find out if and when after having spine-fusion does the pain stop < I am still not totally pain free after my L4/5 fusion last May, but the pain is more manageable with pain meds and I am off the narcotics except for really bad days. I do find if I am on my feet to much I get really bad left leg pain. It wasn't until a few weeks ago I realized that I was getting around pretty good...finally! You have had major surgery, and a report I read the other day says fusions can take up to 2 years to heal. So don't over-do things and allow your body to heal. Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 did your dr ever tell you that surgery would not do anything for the pain , because 9 times out of 10 they won't tell you do to a money issue , meaning if they told you they would not get money for doing surgery mine told me why go under a kneif it won't do no good the pain will always and forever be present.. i was just wondering if he had told you or not !!! pain management > I have never been on a chat line before. I am trying to find out if > and when after having spine-fusion does the pain stop. I had surgury > in July last year and am still having pain in my back. The Surgeon > operated from the back first, placing pins, then from the front a few > days later, placing more pins. Also he took a graft from hip to > replace the disks I no longer had. That area also is still in pain. > Does anyone have the same problem? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 > How dodoes anyone mange this to go from being able to do anything to hardly nothing because of pain? < You adjust because you have to. I fought things and was so angry about my life changes that I did end up in counseling over it...learning to accept and adjust, as well as learning to ignore peoples attitudes. Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Unfortunately, I am having the same experience with pain. My first surgery - spinal fusion - occipital thru c-5 was in august of 2003, the second surgery - replacement of t8 vertabrae and fusion t8-t10 was end of oct 2003. I still have lots of pain : neck and back. Basically any physical activity walking, bending, stretching results in pain after about 20 minutes. I am on heavy duty narcotics now I use fentanyl (i've tried lots of others before this). The pain would be much worse without the meds, but is still barely tolerable even withit. I have breakthru medication, but in order to stop pain or minimize it, i'd have to take such a high dose that I would be sleepy or really out of it within a few minutes. Unfortunately, my understanding is that the pain from a fusion surgery is permanent b/c the muscles are shortened as a result of the surgery. any approach to relieve the pain meds, accupuncture, etc is purely temporary. if anyone else has had more success with this problem, please post! -- In spinaldisorderssupport , " galek61 " <galek61@y...> wrote: > I have never been on a chat line before. I am trying to find out if > and when after having spine-fusion does the pain stop. I had surgury > in July last year and am still having pain in my back. The Surgeon > operated from the back first, placing pins, then from the front a few > days later, placing more pins. Also he took a graft from hip to > replace the disks I no longer had. That area also is still in pain. > Does anyone have the same problem? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 I ask myself that question everyday. With my first suregery in my back I learned to live with it. I even learned to walk diferently because one step wrong and I was in bed for a week. Then I had the second surgery diagnosed with degenerative disc disease and acute facet syndrom, and still I learned to live with it, but now after my 3rd surgery and this time on my neck and was told there was more to come, im losing it. I always said that I would not let it get me down, but these days with all the rain comes extra pain. I don't even get pain meds for my pain. For some reason Memphis doctors do not like giving pain pills, so I am left to suffer. I know i sound real negative, But i guess people who are told they have to feel this way forever and can no longer enjoy the life they used to have, well it does make a person negative. Feel lucky you get the pain meds at least where your from they try to ease your pain the best that they can. Good luck Alisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 In a message dated 4/25/2004 7:28:26 PM Eastern Standard Time, alisaeck@... writes: For some reason Memphis doctors do not like giving pain Alisa, That is horrible! Do they give a reason as to why they won't? With all that is out there no one should have to suffer like that. I admit I am not fond of medications but when the pain gets as bad as it has for me I am glad to be out of it for a brief period. Right now the Vicoprofen is helping me somewhat, not completely but at least I am not in tears right now. Alisa, I hope and pray that someone will help you soon so you don't have to suffer. Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Thank-you Bruce, much is appriciated by all of us that are in pain as we know where you are coming from. > hello there > im bruce and im not a long term pain sufferer like most of you here. > i was fine till late last june. when a glass handicaped door fell on my head > it destroyed my > c4/5-6/7 disc's that's not to say i didnt know what cronic pain was i went > for a year with > my right rotator cuff torn almost in half and when i was younger i was a pro > bull rider > so i know pain. > becouse i was hurt on the job i have had to deal with workmans comp. and in > the beginning they were fine , you need pain meds no problem here's some > mephregan or oxicotin. > i went from june 7th the date of injury till nov 4th with anything that > worked. > after surgery acdf to c 4/5-6/7 with plating too you dont need the meds > anymore. > it dosent' matter if you still have all the pain you had before surgicaly > your at maximum medical benifit so you must be fixed. > befor surgery i had sevear pain and numbness radating down both arms and to > the small of my back ,my legs would go numb if i stood or sit more than 5 > min at a time the only relife i got was laying down, and guess what the pain > didnt go away even then so i had the surgery > and to begin with every thing was fine or so i thought pain level in the > neck was way down , > tingeling and numbness in the legs was gone ,numbness in the arms way down . > still had surgical pain in the hip and neck but hey getting better right, > wrong > im, 6 monthes out of surgery now all the pain iv lived with now for a year > is still there > the only differance is i have NO MEDS becouse my surgen say's im all past > maximum surgical benifit and oh yeah you've reached maximum surgical > benifit so you don't need ttd > anymore you can't work becouse now you'r 62% disabaled but you should be > able to make you'r own way and oh buy the way you cant go back to your old > job becouse you'r 62% disabled we'll have to retrain you but till we go to > court you'r on your own and pain managment you just might if your lucky get > that from the court's if your lucky . > I do'nt know whats gonna happen all i know is im 44 years old i was befor > the accident > a master plumber and a UA journeyman HVAC THECH i know that dont mean a lot > to you folks but to me that was two major fields of study that i had > mastered i made 21.85 an hour now im on walfare or rather the walfare of my > frindes and family becouse im not qualified for unemployment or food stamps > or anything . > so i go thru every day hurting and wondering if and when it will get better > and im not alone in all this my fiance has gone thru this all with me and to > say it's a strain on us is downplaying it a lot pain it's a big part of > everyday but it's just a fraction of what you go thru. > am i just a bit bitter you bet will they win noway jhose i went thru abuse > as a kid and drugs as a teen (not me my brother ) i wont even take asprin if > im not pushed but i went to the top of my chosen feild and i wont quit now > but yeah its hard i dont post here much but i read evevrything and i needed > to say this tonight so thanks to all > and i'll be your partner in pain for now my best and my prayer's to all of > you goodnight > > > > BRUCE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 hello there im bruce and im not a long term pain sufferer like most of you here. i was fine till late last june. when a glass handicaped door fell on my head it destroyed my c4/5-6/7 disc's that's not to say i didnt know what cronic pain was i went for a year with my right rotator cuff torn almost in half and when i was younger i was a pro bull rider so i know pain. becouse i was hurt on the job i have had to deal with workmans comp. and in the beginning they were fine , you need pain meds no problem here's some mephregan or oxicotin. i went from june 7th the date of injury till nov 4th with anything that worked. after surgery acdf to c 4/5-6/7 with plating too you dont need the meds anymore. it dosent' matter if you still have all the pain you had before surgicaly your at maximum medical benifit so you must be fixed. befor surgery i had sevear pain and numbness radating down both arms and to the small of my back ,my legs would go numb if i stood or sit more than 5 min at a time the only relife i got was laying down, and guess what the pain didnt go away even then so i had the surgery and to begin with every thing was fine or so i thought pain level in the neck was way down , tingeling and numbness in the legs was gone ,numbness in the arms way down . still had surgical pain in the hip and neck but hey getting better right, wrong im, 6 monthes out of surgery now all the pain iv lived with now for a year is still there the only differance is i have NO MEDS becouse my surgen say's im all past maximum surgical benifit and oh yeah you've reached maximum surgical benifit so you don't need ttd anymore you can't work becouse now you'r 62% disabaled but you should be able to make you'r own way and oh buy the way you cant go back to your old job becouse you'r 62% disabled we'll have to retrain you but till we go to court you'r on your own and pain managment you just might if your lucky get that from the court's if your lucky . I do'nt know whats gonna happen all i know is im 44 years old i was befor the accident a master plumber and a UA journeyman HVAC THECH i know that dont mean a lot to you folks but to me that was two major fields of study that i had mastered i made 21.85 an hour now im on walfare or rather the walfare of my frindes and family becouse im not qualified for unemployment or food stamps or anything . so i go thru every day hurting and wondering if and when it will get better and im not alone in all this my fiance has gone thru this all with me and to say it's a strain on us is downplaying it a lot pain it's a big part of everyday but it's just a fraction of what you go thru. am i just a bit bitter you bet will they win noway jhose i went thru abuse as a kid and drugs as a teen (not me my brother ) i wont even take asprin if im not pushed but i went to the top of my chosen feild and i wont quit now but yeah its hard i dont post here much but i read evevrything and i needed to say this tonight so thanks to all and i'll be your partner in pain for now my best and my prayer's to all of you goodnight BRUCE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Hi Bruce...you are not alone...in pain or with dealing with workers comp. I am also a workers comp reject and have had to hire an attorney to fight for my rights. Over 2 years have gone by since my accident and I am at the " in 9-12 months we might get a hearing! " stage. Oh joy! Have you applied for social security disability? That can also take time, but doing nothing gets you nothing. Good luck...and I hope the best for you and your fiance " . It is a rough road to follow...but you don't have to walk it alone. Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Tahnks Joy. I called my neurologist yesterday and talk to the nurse , I told her I was in extreme pain. She told me the doctor would not give me anymore pain meds.So I asked well is this a disease im gonna get worse from? She said yes so I said well what am I suppose to do suffer for the rest of my life? I said do yall have a pain management clinic? She said yes so I said well what is the hold up? So she called me in two weeks worth of darvocet and I go to the pain management this thursday, in the meantime sunday I believe I blew a disc in between my shoulders where I have been telling them that I hurt, so here I am in agony, asking God Why me? What did I do that was so bad that he would cause me all this pain plus all the trauma I have gone through in the past 2 years. I know yall don't know but I was raped 2 years ago so I have been having to deal with the emotional problems I suffer from that. Well I got his response to my question today. My doctors called me and told me that my ultrasound results came back and that my liver has some fatty changes and that they believe I have lymphoma.(cancer). So I told God thank you for my answer. I guess my purpose on this earth is to see how much I can take before I just totally lose it. I'm sorry don't mean to dump all this on you just needed some let it out. As far as the letters I sent out I still have not received anything back from anyone. not even a phone call. I just don't believe anyone cares about us. I get ssi because I didn't qualify for ssd. because I didn't work 5 straight years out of ten well most of those years i have been dealing with back pain and trying to get ssi, so i can't afford to see a dentist event though I need to and I have to pay for my eye exam and glasses. Like I said I just don't think anyone cares. I'm sorry I am so negative tonight. I hope things get better for you and sorry to hear you are in more pain. Just doesn't seem fair. If you are like me, im good to everyone, and I get nothing for it. So what is the point huh? Well take care. Love you all. Alisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 In a message dated 4/28/2004 7:13:40 AM Eastern Standard Time, sweetdreamsk9@... writes: My doctors called me and told me that my ultrasound results came back and that my liver has some fatty changes and that they believe I have lymphoma.(cancer). < Alisha, I am so sorry for your news. Do a lot of research for there is so much out there that can help you. also http://www.chemoangels.com/ go sign up here they offer you a lot of support. My mom has lung cancer that just went to the brain and these people write her all the time offering her hope. Always remember don't give up! I am here if you need someone to talk too. I agree with Virginia though they should not have told you that on the phone. Do not waste time and make sure you get seen right away by an Oncologist. With my mom they spent three weeks before she was ever seen! Take care and hugs to you. Many people beat cancer remember that! Hugs, Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > My doctors called me and told me that my ultrasound results came back and that my liver has some fatty changes and that they believe I have lymphoma.(cancer). < Oh Alisa...I am sorry that the load you bear keeps getting heavier. I never understood why a doctor has to call you over the phone with news like that. In 1996, after my 6 week post-partum check-up, my ob called with similar news about my cervix. I am home alone with a new baby and falling apart. News like that should be given in person and with a support system in place...friends, family, etc. > Just doesn't seem fair. If you are like me, im good to everyone, and I get nothing for it. So what is the point huh? < That is what I have always thought...I spent 20 years saving lives and this is my reward??? Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 > I agree with Virginia though they should not have told you that on the phone. < Virginia?? That was me...Vivian...LOL Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2005 Report Share Posted August 14, 2005 Good question, I live here too! Sally > I was wondering if anyone knows of any good pain management physicians in > the Tampa, Florida area > > Thanks in advance > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 > > I never see anyone mention it, but is anyone else in severe pain > from Lyme? What do you take for the pain? I've not had the best care > from drs in regards to pain. However what little I have been > prescribed either never worked, worked briefly or made me ill. I'm > currently taken voltaren 100mg ER which works some days, but get > breakthrough pain and is messing with my stomach. Salsalate, Darvon, > Percodan all quit working. Hydrocodone makes me vomit for 36 hrs > from one dose. Elavil makes me dizzy at the smallest dose made. > Tramadol taken in tiny doses alternates between keeping me wide > awake or so drowsy I pass out at work, so its unpredictability makes > it hard to take and only half way works on pain. Flexril helps a > little but if I take it more than 3 times a week it loses > effectiveness. Wellbutrin taken in hopes of stopping nerve pain > causes seizures and severe eye pain. Relafen is like eating candy- > doesn't work at all. Cannot take anything with tylenol because of > already elevated liver enzymes. > > So anyone have any suggestions? My dr thought about putting me on > Duragesic patches, but wanted to wait till I tried out Relafen. I'm > apprehensive to take narcotics because I can't afford to get sick or > drowsy at work and can't just stay home in bed. I've read the > Duragesic patches can cause vomiting, drowsiness and cause major > withdrawl symptoms if you run out. I'm also allergic to adhesives in > bandages so not sure my skin could handle it. ( I reacted to > hypoallergenic paper tape so bad the dermatologist told me I got a > staph infection from it!) Am I alone in pain and in all these > dilemias? > > > The only pain killer that works for me is hydrocodne. I have heard it makes others sick, but I am glad it works for me. Have you heard of neurotin? Many lymies take that for pain also Mobic is good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 , PAIN has been my main sympton since 1989. My heart goes out to you. No, you are not alone. I have very painful contractions, vasospasm, and burning pains, which started in a local place and spread to all parts of my body over the years. One of my early diagnosis was mild RSD and I was treated for that with stellate blocks. I used to have gnawing pains and a lot of muscle twitchings. Over the 16 years I've tried many allopathic meds listing just a few without any resolution: Tylenol, many NSASD's, TENS unit, Volteren, Flexeril, Tegretol, Beckolfen, Elavil (couldn't stay on it for more than 2 months. I also tried many alternative and complimentary approaches: Accupuncture, moxibustion, Chinese herbs, and homeopathy, merridian stress assesment, NAET- (his treats alllergies if any), microcurrent therapy. While trying many homeopathic remedies I learned to listen to my body since nothing was masking my painful contractions and nerv pain. Homeopathic remedies did not help me but I learened that my pains could completely go away if I avoided the triggers. Air- conditioning is lethal for me, cold drafts, cold surfaces and changes of temperature. I am at my best when I am moving, hiking, walking, biking in a constant warm temperature. I have lived in a very controlled environement since I discovered this. It is hard,and I don't always succeed. I have the hardest time driving in the car. I live near Washington, D.C., where air-conditioning is used almost6 months out of the year in commercial and office bldg. I had to be on Percocet this September and part of October after the acute Lyme infection this August. When I went to rule out polymyalgia rheumatica this Octoberthe rheumatologist saud I did not have it, because the Doxy wouldn't have knocked down the elevated sed rate. He went over my whole med. history and afdter a month of thinking he recommendedneuropathy modulating meds: Neurontin, Gabitril or Lyrica...with the caveat given my sensitivity level. (I am extremely sensetive to allopathic meds, they make me worse.) Next day I was diagnosed with acute Lyme disease on top of my chronic pains. My Lyme treatments kept getting delayed because of the initial misdiagnosis and not being tested till I requested it mid Sept. I havn't tried these meds because I started antibiotics. What is the nature of your pains and how long have you had them? I don't hold a regular job. I am a portrait artist and work by comissions. I take photographs and then I paint at home. I would not be able to spend hours in an uncontrolled bldg. I have a very difficult time going to doctor's offices that are known to have air- cont. that they cannot turn off or down. I am so glad I could do the Rocephin at home. Are you a nurse? Hospitals are lethal for me, too cold inside there! Sorry I can only share my story without being unable to point you in the right direction to get an effective relief. I did learn one thing that more I took meds worse I felt. Hugs -- Lida > > I never see anyone mention it, but is anyone else in severe pain > from Lyme? What do you take for the pain? I've not had the best care > from drs in regards to pain. However what little I have been > prescribed either never worked, worked briefly or made me ill. I'm > currently taken voltaren 100mg ER which works some days, but get > breakthrough pain and is messing with my stomach. Salsalate, Darvon, > Percodan all quit working. Hydrocodone makes me vomit for 36 hrs > from one dose. Elavil makes me dizzy at the smallest dose made. > Tramadol taken in tiny doses alternates between keeping me wide > awake or so drowsy I pass out at work, so its unpredictability makes > it hard to take and only half way works on pain. Flexril helps a > little but if I take it more than 3 times a week it loses > effectiveness. Wellbutrin taken in hopes of stopping nerve pain > causes seizures and severe eye pain. Relafen is like eating candy- > doesn't work at all. Cannot take anything with tylenol because of > already elevated liver enzymes. > > So anyone have any suggestions? My dr thought about putting me on > Duragesic patches, but wanted to wait till I tried out Relafen. I'm > apprehensive to take narcotics because I can't afford to get sick or > drowsy at work and can't just stay home in bed. I've read the > Duragesic patches can cause vomiting, drowsiness and cause major > withdrawl symptoms if you run out. I'm also allergic to adhesives in > bandages so not sure my skin could handle it. ( I reacted to > hypoallergenic paper tape so bad the dermatologist told me I got a > staph infection from it!) Am I alone in pain and in all these > dilemias? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Yes, I have heard that about codine. It is a natural reaction to the substance. It will make you throw up or sick to your stomach if you are sensative. Like you are really in touch with your body and react to meds real well. Or bad, however you want to look at it. I think as you get used to the med it does this less and less. Just what I have heard and I am not a Doctor so don't take this as gospel. Just thought I'd throw in my two cents worth. Millie <betneal@...> wrote: > > I never see anyone mention it, but is anyone else in severe pain > from Lyme? What do you take for the pain? I've not had the best care > from drs in regards to pain. However what little I have been > prescribed either never worked, worked briefly or made me ill. I'm > currently taken voltaren 100mg ER which works some days, but get > breakthrough pain and is messing with my stomach. Salsalate, Darvon, > Percodan all quit working. Hydrocodone makes me vomit for 36 hrs > from one dose. Elavil makes me dizzy at the smallest dose made. > Tramadol taken in tiny doses alternates between keeping me wide > awake or so drowsy I pass out at work, so its unpredictability makes > it hard to take and only half way works on pain. Flexril helps a > little but if I take it more than 3 times a week it loses > effectiveness. Wellbutrin taken in hopes of stopping nerve pain > causes seizures and severe eye pain. Relafen is like eating candy- > doesn't work at all. Cannot take anything with tylenol because of > already elevated liver enzymes. > > So anyone have any suggestions? My dr thought about putting me on > Duragesic patches, but wanted to wait till I tried out Relafen. I'm > apprehensive to take narcotics because I can't afford to get sick or > drowsy at work and can't just stay home in bed. I've read the > Duragesic patches can cause vomiting, drowsiness and cause major > withdrawl symptoms if you run out. I'm also allergic to adhesives in > bandages so not sure my skin could handle it. ( I reacted to > hypoallergenic paper tape so bad the dermatologist told me I got a > staph infection from it!) Am I alone in pain and in all these > dilemias? > > > Quote Link to comment Share on other sites More sharing options...
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