LDN & PPMS

[Guest guest]

Have been taking LDN for about 2 1/2 weeks - do not feel any change yet - still

stiff and heavy/tired.

I have PPMS. Does anyone have this type of MS who has seen good results?

Thanks, in advance.

Jane

[Guest guest]

Hi Jane. I don't have ur diagnosis but have read of many that do and def see results. So def keep taking. It'll happen where the bigger issues will show improvement and smaller annoyances will subside w/o u noticing. For me, like most every1 saw a slight increase of symps which is scary as hell. But after that improvement. While I've read that sum do notice sum improvement immediately, I think 2 weeks is too soon to gauge. Just consider that it does 2 things (well more obviously) stop disease progression and altho not guaranteed, relieve symps. I don't know for sure but it makes sense to me that it wud cease progression 1st then work on cleaning up those messy symptoms. Stay at it. HUGS.

From:

Cimini <dcimini3@...>;

To:

<low dose naltrexone >;

Subject:

[low dose naltrexone] LDN PPMS

Sent:

Sat, Mar 12, 2011 7:46:42 PM

Have been taking LDN for about 2 1/2 weeks - do not feel any change yet - still stiff and heavy/tired.I have PPMS. Does anyone have this type of MS who has seen good results?Thanks, in advance. Jane------------------------------------

[Guest guest]

Jane

What happens with people with MS is usually no further progression. So you may not feel any different! That would be good! SOME people get some symptom relief but not all - really the idea is not to get any worse.

Good luck and stick with it.Bev

low dose naltrexone From: dcimini3@...Date: Sat, 12 Mar 2011 14:46:42 -0500Subject: [low dose naltrexone] LDN & PPMS

Have been taking LDN for about 2 1/2 weeks - do not feel any change yet - still stiff and heavy/tired.I have PPMS. Does anyone have this type of MS who has seen good results?Thanks, in advance.Jane

[Guest guest]

This would be a good read for you:

Topic: U may get increased symptoms in 1st months on LDN

http://ldn.proboards.com/index.cgi?board=forum & action=display & thread=148

I had increased stiffness (tonic spasm) in the first month on LDN. Later LDN

increased clonic spasm when I tried to raise the dose. It helps to know that

others have also experienced this.

At 9 months on LDN, I rarely have any spasms at all. I suggest hanging in there

for the long run and hope for the benefits.

K.C.

>

> Have been taking LDN for about 2 1/2 weeks - do not feel any change yet -

still stiff and heavy/tired.

> I have PPMS. Does anyone have this type of MS who has seen good results?

> Thanks, in advance.

> Jane

>

[Guest guest]

229 experiences of ms with ldn

https://ldndatabase.dabbledb.com/page/cancer-researchcopy/ddXxiaHj#

also ppms

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[Guest guest]

hi jane, me to primary progressive and lucky can now get scrip from doc/nhs that i mail to dicksons

started low 1ml[solution] and now on 4th month on 4.5ml [capsules]

after approx 3 months improvement in fatque, bladder, bowels, brain fog, depression

mistake i made was coming off the baclofen as i suffer from severe legs stiffness, cramps, spasms

stick with it as long term gain

regards/peter

Have been taking LDN for about 2 1/2 weeks - do not feel any change yet - still stiff and heavy/tired.I have PPMS. Does anyone have this type of MS who has seen good results?Thanks, in advance.Jane