anyone here with Lyme on LDN ?

[Guest guest]

Here you can find the experience of some

https://ldndatabase.dabbledb.com/page/other/tbdgPxzK#

[Guest guest]

Yes, there are LYMIES out here on LDN, I am a LYMIE on LDN since October 2009, and update for the LYMIES that may be following is below.

Diagnosed with MS summer of 2007, 4th LYME test IGENEX Western Blot said LYME December 2009, have done oral antibiotics 10 months of 2010. Stopped antibiotics 10/31/10, but "relapsed" December 2010 (stress event OR wasn't all gone yet OR maybe both!). Did IV Rocephin the month of January 2011 and feel like back in "remission".

Doing oral Azithromycin now, until I can get a PICC LINE and IV antibiotics. Working through my Lyme Literate Medical Doctor (LLMD) while trying to deal with all the local doctors who don't believe in LYME but which are back in "network". Just got results from a second IGENEX Western Blot, which still shows me positive on the IGM side of the test after the month of IV Rocephin. LDN might be making me feel much much better than I really am?

DOSAGE: I went up to 251 lbs at one point, now back down to 231 lbs. Have taken 3 mg all the way through because that is what the Neuroligist I found to prescribe it gave to all his MS patients. I am still on 3 mg. My LLMD knew of LDN, didn't feel the need to change from 3 mg if it is still helping. I do skip LDN 1 night a week.

SYMPTOMS: Once the LDN kicked in, lost the fatigue and brain fog. After "exacerbation 4 weeks in on LDN, in addition to the varying monthly oral antibiotics of 2010, all other symptoms seemed to clear-up, the balance problems, and the numbness in the right arm and leg. Several months in on antibiotics, I stopped the LDN, felt worse in just 2 days, once started back on LDN felt better in just 2 days.

I also take NYSTATIN daily while on ORAL antibiotics! Some Vitamin C and Vitamin D as well more recently.

I AM CONVINCED LDN HAS HELPED ME THROUGH THE LYME, AND I HAVE STILL BEEN WORKING THROUGH OUT, HAVE NOT HAD TO TAKE ANY TIME OFF FOR DISABILITY! THE ANTIBIOTICS ARE CRITICAL AS WELL, LDN WON'T FIX THE LYME BY ITSELF! There were some days that were rougher than others.

All my other old posts, look up my ID at the LDN blog page, OR email me direct for ANY other specific questions.

I am not a doctor, just an angry engineer, and I can only tell you my story....WISH EVERYBODY THE BEST ON LDN!

I get my LDN through Dr. Skip, don't know how the others compare.

ALWAYS open to corrections or suggestions as to what is REALLY happening to me, but still taking the LYME-Antibiotic/LDN path right now............

BRAD

MS 07/2007

LYME 12/2009

LDN, 3 mg, since October 2009

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of idesign50Sent: Thursday, March 03, 2011 8:02 AMlow dose naltrexone Subject: [low dose naltrexone] anyone here with Lyme on LDN ?Importance: High

If so, I would love to know your experience with ti, and what dosage you are on, and what, if any, symptoms it has helped you with. Thank you.

[Guest guest]

Hi,

Reportedly, Saventaro (TOA free - very important), (Cat's Claw), will cure

Lyme. If you will google this one, there is much information out there.

Jean

************************

> From: SirR <alrightguy123@...>

> Date: Sat, 05 Mar 2011 16:19:04 -0000

> <low dose naltrexone >

> Subject: [low dose naltrexone] Re: anyone here with Lyme on LDN ?

>

> I have Lyme Disease (neuroborreliosis) that was diagnosed as multiple

> sclerosis (MS) April 2004. I took Rebif, which darn near killed me.

>

> While I was still really confused as to what was going on inside of me, this

> group helped me escape the medical-industrial-complex MS cult. Carefully

> following the procedure of 1.5 mg/day at 10pm, for 30 days, 3.0 mg/day, and

> experimented with 4.5 mg/day in 2006. I was still getting sick, so I switched

> to the German Intravenous Calcium Ethyl amino Phosphate (EAP)in 2007 for one

> year.

>

> FINALLY, hired a Lyme Literate Medical Doctor (LLMD), was diagnosed with Lyme

> and started antibiotics in 2008. Had to switch LLMDs in 2010. My new LLMD

> was keen on trying LDN, so I restarted my LDN.

>

> So far, I feel that I'm so sick that my current script of LDN is not helping

> me as much as hoped. The past three of four nights I have been remiss on

> taking my LDN.

>

> Today, I am using a four wheel walker to move through the house. Beginning to

> think that the yeast in my intestines is my major set challenge. To combat

> the yeast, I have changed my diet in an effort to starve the yeast, and also

> taking 2 Nystatin tablets four times per day.

>

>