New to this site, information please

[Guest guest]

Hello, my name is louisa. I am trying to find out more about LDN and persuade a doctor to let me try it. I have had a year and a half of difficulty walking, stiff, hard to extend stride, bit of a limp at times, a bit slow to move at times. Am totally fed up! Had tons of tests, the usual neurological ones and other ones beside. All normal but I still suffer!!

I have read that LDN really helps MS symptoms which is what I think may be the problem, in spite of tests. Do you think it is worth a try for me?I need a little hope...

ThanksLouisa.

[Guest guest]

LDN is cheap and safe. LDN is safe at 300 mg dosages so at 3 mg you know it is safe. I do not see anything to lose, everything to win. Crystal has a list of doctors that prescribe.angelindisguiseldn@....If that does not work for you, you can order on line and mix it yourself. Quite easySterlingFrom: Louise <louiseacourtney@...>Subject: [low dose naltrexone] New to this site, information pleaselow dose naltrexone Date: Wednesday, March 16, 2011, 4:07 PM

Hello, my name is louisa. I am trying to find out more about LDN and persuade a doctor to let me try it. I have had a year and a half of difficulty walking, stiff, hard to extend stride, bit of a limp at times, a bit slow to move at times. Am totally fed up! Had tons of tests, the usual neurological ones and other ones beside. All normal but I still suffer!!

I have read that LDN really helps MS symptoms which is what I think may be the problem, in spite of tests. Do you think it is worth a try for me?I need a little hope...

ThanksLouisa.

[Guest guest]

Hi Louise, I have had spms for 15 years and LDN is the only thing that has helped. After 7 months on LDN I had numerous improvements in different areas: 1 Flexibility of leg, first improvement which started after 2 weeks on LDN (3.00mg), the other improvements followed gradually, at first only in the middle of the night (after taking LDN after 9pm) now all day as well – I can kneel for the first time in 15 years2 Improved strength and balance of left leg, can stand balanced on both legs for the first time in many years (not very well). Combination of improved flexibility, strength & balance has lead to improvement in mobility3 Regained 80-90% of smell and taste which I lost nearly completely for 3 years4 Improved co-ordination of left hand. When I first regained it a few months after I started taking LDN I could type perfectly. Then I lost it due to allergic reaction to LDN & now I have the improved co-ordination but weakness of hand negatively impacts on the co-ordination. Little & ring finger were the weakest now they are stronger but index and middle are more stiff.5 I totally regained normal speaking - I had been gradually losing both the strength/projection of my voice for the last 2 years. Raising my voice and even talking was often an effort – now I am told not to talk so loud!6 Choking – much, much improved none in last few months7 No Pins & needles 8 No colds/flu & no bouts of sinus (which used to be a constant problem & lead to exacerbation of MS – LDN definitely boosts immune system)9 No flares of pain like being jabbed with a needle – none in last five months10 Feel really good/cheerful Also 3 new benefits - bladder has improved enough for me to be able to stop taking medication or herbs. Though it is still not great especially if I drink coffee or tea. Also there is a more normal movement when I walk. I am able to throw a ball for my dog hard and straight again as opposed to wondering where it might land. These improvements even though I am only taking 3mg every 2 days at the moment because of allergic reaction to other drugs which affected my tolerance of LDN. LDN has been truly magical for me. You are only just starting with a possible problem. Why would you NOT take LDN. Do not delay start today and you are likely to see huge, if not total, improvement.Good Luck Hello, my name is louisa. I am trying to find out more about LDN and persuade a doctor to let me try it. I have had a year and a half of difficulty walking, stiff, hard to extend stride, bit of a limp at times, a bit slow to move at times. Am totally fed up! Had tons of tests, the usual neurological ones and other ones beside. All normal but I still suffer!! I have read that LDN really helps MS symptoms which is what I think may be the problem, in spite of tests. Do you think it is worth a try for me? I need a little hope... Thanks Louisa.

[Guest guest]

hi trish, very interesting read, me 4th month into ldn and now 4.5mg

do you still take your dose at 9pm as this has always been a subject that i find so different in us ms'ers

regards/peter/ppms/london

From: Trish Kerbel <pmkerbel@...>low dose naltrexone Sent: Friday, 18 March 2011, 7:45Subject: RE: [low dose naltrexone] New to this site, information please

Hi Louise,

I have had spms for 15 years and LDN is the only thing that has helped. After 7 months on LDN I had numerous improvements in different areas:

1 Flexibility of leg, first improvement which started after 2 weeks on LDN (3.00mg), the other improvements followed gradually, at first only in the middle of the night (after taking LDN after 9pm) now all day as well – I can kneel for the first time in 15 years

2 Improved strength and balance of left leg, can stand balanced on both legs for the first time in many years (not very well). Combination of improved flexibility, strength & balance has lead to improvement in mobility

3 Regained 80-90% of smell and taste which I lost nearly completely for 3 years

4 Improved co-ordination of left hand. When I first regained it a few months after I started taking LDN I could type perfectly. Then I lost it due to allergic reaction to LDN & now I have the improved co-ordination but weakness of hand negatively impacts on the co-ordination. Little & ring finger were the weakest now they are stronger but index and middle are more stiff.

5 I totally regained normal speaking - I had been gradually losing both the strength/projection of my voice for the last 2 years. Raising my voice and even talking was often an effort – now I am told not to talk so loud!

6 Choking – much, much improved none in last few months

7 No Pins & needles

8 No colds/flu & no bouts of sinus (which used to be a constant problem & lead to exacerbation of MS – LDN definitely boosts immune system)

9 No flares of pain like being jabbed with a needle – none in last five months

10 Feel really good/cheerful

Also 3 new benefits - bladder has improved enough for me to be able to stop taking medication or herbs. Though it is still not great especially if I drink coffee or tea. Also there is a more normal movement when I walk. I am able to throw a ball for my dog hard and straight again as opposed to wondering where it might land. These improvements even though I am only taking 3mg every 2 days at the moment because of allergic reaction to other drugs which affected my tolerance of LDN.

LDN has been truly magical for me. You are only just starting with a possible problem. Why would you NOT take LDN. Do not delay start today and you are likely to see huge, if not total, improvement.

Good Luck

Hello, my name is louisa. I am trying to find out more about LDN and persuade a doctor to let me try it. I have had a year and a half of difficulty walking, stiff, hard to extend stride, bit of a limp at times, a bit slow to move at times. Am totally fed up! Had tons of tests, the usual neurological ones and other ones beside. All normal but I still suffer!!

I have read that LDN really helps MS symptoms which is what I think may be the problem, in spite of tests. Do you think it is worth a try for me?

I need a little hope...

Thanks

Louisa.

[Guest guest]

Hi ,I take 3.00ml transdermally between 10.30 & 11.30 every second nightTrish From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of NichollsSent: Friday, 18 March 2011 10:35 PMTrish Kerbel; low dose naltrexone Subject: Re: [low dose naltrexone] New to this site, information please hi trish, very interesting read, me 4th month into ldn and now 4.5mg do you still take your dose at 9pm as this has always been a subject that i find so different in us ms'ers regards/peter/ppms/london From: Trish Kerbel <pmkerbel@...>low dose naltrexone Sent: Friday, 18 March 2011, 7:45Subject: RE: [low dose naltrexone] New to this site, information please Hi Louise, I have had spms for 15 years and LDN is the only thing that has helped. After 7 months on LDN I had numerous improvements in different areas: 1 Flexibility of leg, first improvement which started after 2 weeks on LDN (3.00mg), the other improvements followed gradually, at first only in the middle of the night (after taking LDN after 9pm) now all day as well – I can kneel for the first time in 15 years2 Improved strength and balance of left leg, can stand balanced on both legs for the first time in many years (not very well). Combination of improved flexibility, strength & balance has lead to improvement in mobility3 Regained 80-90% of smell and taste which I lost nearly completely for 3 years4 Improved co-ordination of left hand. When I first regained it a few months after I started taking LDN I could type perfectly. Then I lost it due to allergic reaction to LDN & now I have the improved co-ordination but weakness of hand negatively impacts on the co-ordination. Little & ring finger were the weakest now they are stronger but index and middle are more stiff.5 I totally regained normal speaking - I had been gradually losing both the strength/projection of my voice for the last 2 years. Raising my voice and even talking was often an effort – now I am told not to talk so loud!6 Choking – much, much improved none in last few months7 No Pins & needles 8 No colds/flu & no bouts of sinus (which used to be a constant problem & lead to exacerbation of MS – LDN definitely boosts immune system)9 No flares of pain like being jabbed with a needle – none in last five months10 Feel really good/cheerful Also 3 new benefits - bladder has improved enough for me to be able to stop taking medication or herbs. Though it is still not great especially if I drink coffee or tea. Also there is a more normal movement when I walk. I am able to throw a ball for my dog hard and straight again as opposed to wondering where it might land. These improvements even though I am only taking 3mg every 2 days at the moment because of allergic reaction to other drugs which affected my tolerance of LDN. LDN has been truly magical for me. You are only just starting with a possible problem. Why would you NOT take LDN. Do not delay start today and you are likely to see huge, if not total, improvement.Good Luck Hello, my name is louisa. I am trying to find out more about LDN and persuade a doctor to let me try it. I have had a year and a half of difficulty walking, stiff, hard to extend stride, bit of a limp at times, a bit slow to move at times. Am totally fed up! Had tons of tests, the usual neurological ones and other ones beside. All normal but I still suffer!! I have read that LDN really helps MS symptoms which is what I think may be the problem, in spite of tests. Do you think it is worth a try for me? I need a little hope... Thanks Louisa.