Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Hi , Has your doctor considered keeping her on one medication longer than 4 to 6 weeks. I begged my dr. to change me when I felt so bad, but he said I was getting better and he was right. There was a patient long time ago who was at the 1993 Senate hearings who didn't show any change until 6 months on meds. The last time I saw him, he was speaking at a rally and was in college. Just a thought. Connie, michigan Re: [ ] New to you but not LD: Chronic Lyme in TX > Dear , > > Your story is amazing and I'm glad to hear the miracle news that > you feel great. You have been through so much. I cry every day to > see my daughter suffer at 22 years old. She has not walked in over 1 > 1/2 years from the non-stop spinning. you said it was so important > to have a good doctor and ours is Dr. Bernard Raxlen from NY even we > live in Salt Lake. 6 weeks on Zithromax and Mepron left heer > spinning worse. For the last 4 weeks she has been on IV Rafamptin > and now with no symptom change she is being changed to a more broad > spectrum. I'm very confused about why not one thing touches the non- > stop vertigo. She lays there all day in her bed not even being to > move. Do you know if rifing helps at all? > > Thanks > > > > On Jan 4, 2008, at 7:45 AM, Doyle-Torrey wrote: > >> - >> >> I, too, am a fellow Texan, a transplant to the Dallas area, who >> travels out of state for care.I have been sick for 39 years. >> My symptoms started as the usual Lyme problems...chronic fatigue, >> fibro, irritable bowel, bladder problems, vertigo, etc... >> Then after the birth of my second child I went into straight MS. In >> late 2004 and all of 2005 I was using a walker and wheelchair. >> Once I got to a doctor who fully understood the complexities of >> these infections I started to get well. >> I saw very small gains in the beginning, but I continued to >> improve. Once I got past the 18 month mark I got to the point where >> I felt really well. Now at two years I feel great and live a very >> busy full life. If I can get well, then there is hope for all. >> My advice is research doctor choices...which doctor is getting >> people well in higher numbers, and which doctors have the most >> experience. >> >> Best Wishes- >> > > > For free up to date information about Lyme disease and the known > co-infections delivered to your email address see: > Robynns_Lyme_List/ > > > Quote Link to comment Share on other sites More sharing options...
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