Methadone

[Guest guest]

Hi,

Do you think because pain was helped that mood and energy were also helped,

or because the fatigue was reduced? And how were you dx;ed with over

active immune system? Did you have any autoantibodies in blood? I would

like to know more about methadone and its effects, although I have seen it

discussed here. Does anyone have a URL? I'm glad this WORKED!!

Take care,

Christie

> From: 2276@...

>

>>>.Apparently there is a very integral relation between opioid receptors and

>immune system expression that is very complex.

>>>Hud

>

>I can testify to this. My fatigue was severe when I was first diagnosed.

>Taking 10 mg of methadone gave me HUGE improvements in my energy and mood

>level. I believe the reason it helped so much was because it modulated my

>hyper-active immune system. I have Dr Goldstein to thank for that; he's the

>only one who would have tried it on me since I wasn't in severe pain. I

>remember it so clearly; being down in the bowels of a CFS body and suicidal

>depression; then WHAMO!! I take this pill and in 3 hours I'm a good 50%

>better with all symptoms. I had to really restrain myself from kissing Dr

>Goldstein. -

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 12

> Date: Sat, 10 Jun 2000 02:37:16 -0400

> From: " C.Tab. " <tab@...>

>Subject: 4life transer factor,immunopro, lupus

>

>Hi,

>

>I have been dx'ed with lupus( although I don't fit exactly) among other

>things. The LEF supplements didn't seem to make a difference, and have not

>tried 4life. With my lupus dx came an automatic dx of CFSFMS, and RHEUM

>thought CFS was causing more problems - although she could not define CFS or

>how it was hurting me.

>

>Are you on any lupus lists? If you would like info on these, please write me!

>

>Take care,

>Christie

>----------------------

> From: lbinujrsy@...

>

>>I have Lupus and CFS(first CFS and then developed Lupus). I have been using

>>Immunopro and 4life transfer factor (the regular one ,not the plus). I have

>>been on them for about 3 weeks straight and I feel absolutely terrible!! I

>>feel so sick. All of my symptoms got worse, much worse. Are you supposed to

>>get worse with 4life before you get better? I know you get worse first with

>>immunopro but what about 4life transfer factor? I feel like all my Lupus

>>symptoms are worsened. Does anyone have immunorop number so I can call them

>>and ask them about this? I would also like 4life's number if anyone has it??

>>----Does anyone on here also have Lupus and feel worse on these things?

>>

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 13

> Date: Sat, 10 Jun 2000 02:51:44 -0400

> From: " C.Tab. " <tab@...>

>Subject: Summary of " CFIDS " Bacterium and Coagulation/Vascular Literature >

>

>> From: " Ken Lassesen " <KenL@...>

>>Subject:

>>[re: CFSFM_Antibiotics: People are encourage to do summary postings like

>>this one - the purpose is to gather appropriate links on a >>specific topic

>>which may not be easy to find<<, obtain new URLs and articles that you are

>>unaware of, etc... in short sharing useful information]

>

>

>Thank you for all this research! I have not been able to access the sites

>tho - has anyone else had this problem? Could be my PC - frustrating

>because it is important to learn as much as possible - or at least as much

>as will fit into post-intelligent brain!

>

>Take care,

>Christie

>

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>Message: 14

> Date: Sat, 10 Jun 2000 03:02:02 EDT

> From: DaaisyDog@...

>Subject: Re:IP6/Blood coag

>

>jane_doe_press@... writes:

>> Can anyone follow how IP6 would help with blood coag problems? Also, in

>> Mark Konlee's latest issue he recommends IP6 for CFIDS. I thought it was

>> more like an anti-cancer type thing? Don't know it well, obviously.

>There is alot of connection w/cancer etc on the pubmed seach? yrs ago, I

>noticed that on the mycoregistry questionare that one of the supps that were

>listed as to taking or how long taking it, I became curious... I started

>taking it, last year noticed that some vit. co's new lists of supps.

>IP6 from what the grapevine says, helps with natural Killer cell function

>same ingredient in brown rice? maybe lower cholestral, I thought I had a

>paper on that fact.

>If all this has merit it would help with blood , thickness of blood &

>infections?

>

>

>________________________________________________________________________

>________________________________________________________________________

>

>

>

>

>

[Guest guest]

essage: 13 Date: Sun, 11 Jun 2000 01:28:08 -0400 From: " C.Tab. "

<tab@...>Subject: Re:MethadoneHi,Do you think because pain was helped

that mood and energy were also helped,or because the fatigue was reduced?

And how were you dx;ed with overactive immune system? Did you have any

autoantibodies in blood? I wouldlike to know more about methadone and its

effects, although I have seen itdiscussed here. Does anyone have a URL? I'm

glad this WORKED!!Take care,Christie>

Hi Christie, When I tried the methadone my pain was at a good level from

guaifenesin; so fatigue and depression were helped independently of the pain.

I was dx simply with fibromyalgia; but dr Goldstein said I also have CFS.

The huge mystery is that I dont crash if I push it; and everyone crashes I've

ever talked to; so maybe I have some one in a million dissorder and they just

call it fibro;

Not sure about the last question; I took lots of tests to rule out arthritis

and other diseases and everything came out negative. I think they tested for

autoantibodies and all results were negative.

best wishes.

[Guest guest]

At 2:19 PM -0400 on 6/11/00 the esteemed 2276@... wrote:

RE: methadone:

[snip]

>I wouldlike to know more about methadone and its effects

Source:

Handbook Of Psychiatric Drugs: 2001 - 2002 Current Clinical Strategies

http://ucsdbkst.ucsd.edu/cgi-bin/TitleView?1-881528-94-4 $ 10.50

Methadone (Dolophine)

Category: Synthetic opioid

Mechanism: Opioid receptor agonist

Indications: Detoxification and maintenance treatment of opioid addiction.

Methadone can only be prescribed in a federally approved treatment center. The

drug may be continued if the patient is hospitalized for another reason.

Preparations: 5, 10, 40 mg tablets; 5 mg/5 mL solution, 10 mg/5 mL solution,

10 mg/mL solution. (PO); 10 mg/mL solution. (IV, IM)

Dosage:

Detoxification: Short term use (21 days maximum). Initial dosage, 10-20 mg

po on the first day. Increase by 5-10 mg per day over the next few days, up

to 40 mg per day in a single or divided dosage. Maintain at this dosage for 2-5

days and then decrease by 5 mg qod.

Maintenance: Treatment with methadone after 21 days is considered

maintenance. A dosage of 60-80 mg is usually effective in preventing relapse.

Half-life: 24-36 hr.

Adverse Drug Reactions:

A. Methadone produces tolerance along with physiological and psychological

dependence. Tolerance to the euphoric effects may lead to overdose.

Overdose can lead to respiratory and cardiovascular depression, coma,

and death.

B. The most common adverse reactions include sedation, nausea, emesis,

dizziness, sweating, constipation, euphoria or dysphoria, dry mouth,

urinary retention, and depression.

Drug Interactions:

A. CNS Depressants can potentiate the effects of alcohol, sedative/hypnotics,

other narcotics, general anesthetics, tricyclic antidepressants.

B. Desipramine may increase desipramine plasma concentrations.

C. Carbamazepine may lower plasma levels of methadone.

D. MAOIs: The combination of an MAOI and the opiates meperidine and

fentanyl have led to fatalities.

Clinical Guidelines

A. Use caution in patients with a history of respiratory disease, hepatic or

renal abnormalities, seizure disorder, or head injury.

84 Substance Dependence

B. Women who conceive while on methadone should continue taking the

drug; however, the newborn will require medical care for withdrawal

symptoms.

[Guest guest]

Is methadone naltrexone?

Re:IP6/Blood coag

> >

> >jane_doe_press@... writes:

> >> Can anyone follow how IP6 would help with blood coag problems? Also,

in

> >> Mark Konlee's latest issue he recommends IP6 for CFIDS. I thought it

was

> >> more like an anti-cancer type thing? Don't know it well, obviously.

> >There is alot of connection w/cancer etc on the pubmed seach? yrs ago, I

> >noticed that on the mycoregistry questionare that one of the supps that

were

> >listed as to taking or how long taking it, I became curious... I

started

> >taking it, last year noticed that some vit. co's new lists of supps.

> >IP6 from what the grapevine says, helps with natural Killer cell function

> >same ingredient in brown rice? maybe lower cholestral, I thought I had a

> >paper on that fact.

> >If all this has merit it would help with blood , thickness of blood &

> >infections?

> >

> >

> >________________________________________________________________________

> >________________________________________________________________________

> >

> >

> >

> >

> >

>

>

> ------------------------------------------------------------------------

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> Dad Only Has One

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> ------------------------------------------------------------------------

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

[Guest guest]

At 8:51 AM -0400 on 6/12/00 the esteemed hudecz wrote:

Re: Re:Methadone:

>Is methadone naltrexone?

>

Naltrexone (ReVia)

Category: Opioid antagonist

Mechanism: Antagonist of opioid receptors

Indications: Alcohol dependence (reduce craving), opioid dependence (blocks

euphoric effects of alcohol).

Preparations: 50 mg tablets

Dosage:

Alcohol craving: 50 mg/day

Opioid abuse: Start with 25 mg on first day; then 50 mg/day.

Half-life: 13 hrs (including active metabolite)

Adverse Drug Reactions

A. Naltrexone may precipitate acute opiate withdrawal in patients who are still

using opiates. Nausea is the most common adverse effect, which is

minimized by starting with 25 mg qd or administering with food. Other

adverse effects include insomnia, headache, anxiety, fatigue, dizziness,

weight loss, and joint and muscle pain.

B. Naltrexone may cause hepatocellular injury when given in excessive

dosages. It is contraindicated in patients with significant liver disease.

Liver enzymes should be monitored.

Drug Interactions

A. Patients who are currently using opioids will experience withdrawal due to

the antagonist effect of naltrexone. If continued opioid use is suspected,

a naloxone challenge may be used, and the patient is observed for signs

of opiate withdrawal. Patients should be opioid free for at least 14 days

before initiation of naltrexone.

B. Naltrexone will block the analgesic effects of opioids, and higher than

average doses of analgesics may be needed for pain relief.

C. Disulfiram and naltrexone should not be combined because of the

hepatotoxic potential of both of these agents.

Clinical Guidelines

A. Naltrexone decreases the euphoria associated with alcohol consumption

when used in combination with an alcohol treatment program. It reduces

craving, and there are fewer relapses. Naltrexone also lowers consumption

of alcohol when a patient does relapse.

B. Naltrexone's utility in opiate dependent patients is more controversial.

Some heroin dependent patients will attempt to use high dose of heroin in

order to overcome the Mu receptor blockade. This can lead to accidental

overdose and death by respiratory depression.

Source:

Handbook Of Psychiatric Drugs: 2001 - 2002 Current Clinical Strategies

http://ucsdbkst.ucsd.edu/cgi-bin/TitleView?1-881528-94-4 $ 10.50

[Guest guest]

>>>>If methadone worked so well then why did you quit. I think that I will

stick

with talwin but I would like to start taking it more regularly. Unless

something curative comes along I'll take what I need to get out of bed.

Steve>>>>

I quit because I've been doing well with my naturopath doctor. My system is

stronger and at some point around new years I got to a point where I was

better off without it. All we've been doing is a strict cave man type diet

and supplements and some detox. Oh and 4 electro-acuscope treatments. It's

been slow-going; I feel about 30-40% better after 14 months. I've no idea

how far this is gonna go. Good health still seems very far away.

[Guest guest]

A couple of people have asked about this recently so I thought I'd briefly

tell my experience with it again. Methadone helped me a lot; with pain but

especially with my severe lethargy; the kind you get from a flu where you

just want to lay in bed all day. It really gave me a better quality of life

for just under 3 years. I got it from dr Goldstein; and I remember being so

jazzed about my results that I asked dozens of other people who tried it how

it worked for them; for most it didnt help at all. I started going off of it

in August 2000 and was off it completely by New years; my system had finally

gotten strong enough be without it with a naturopath who uses a lot of

Standard Process supplements. Physically it was not difficult, but

emotionally it has been very difficult; it really threw my brain out of

whack. From what I know of methadone it raises seratonin levels A LOT and

when I went off it my seratonin was in the gutter; (causing severe depression

and in my case a mild case of obsessive compulsive dissorder because my brain

is still bad off from the CFS). its better now but I'm still recovering.

Always be carefull; for me 10 mg per monring was the right dosage; but I

tried 20 mg once at home and the room was spinning, had shallow breathing,

nausia, etc. A good doctor will have you try a quarter of a pill (2.5mg)

every 45 minutes to get to the right dosage. From what I know it is pretty

toxic to the body but if it helps enough its up to the patient to decide if

the benefits outweigh the bad stuff.

[Guest guest]

>has any of you had any dealings with methadone the new dr has put

me on 10 mg 3 t ime a day and one or two lortabs max dose

No, I think you should report this to your doctor, it doesn't seem right. I

don't feel that way on methadone.

meg

[Guest guest]

Steve, the other guy on this list is only taking 10 mg/day.

I think you started your dose too high. Maybe start with 5 mg

per day and then work up to 10. You are not a drug addict and are

therefore taking it for an entirely different reason.

Mike

> I have been on methadone about 6 days the first three days were

good. But on

> the night of day 4 I had some dry heaves and on day 5 when I awoke

I figured

> it was mid morning but it was actually 3:30 in the afternoon.

Today, day 6,

> I feel better than I felt yesterday with only a little stomach

upset. I was

> told to take 10 -15 mg a day (a low dose considering drug addicts

take about

> 120 mg a day). Has anyone had this experience with methadone? Did

you get a

> beneficial effect once you got past the initial adjustment phase.?

>

> Any suggestions would be greatly appreciated.

>

> Steve

>

>

>

[Guest guest]

Are you taking ANY kind of other opiods or did you a day or two

before the M? If so, it could have been withdrawal type symptoms

since Methadone is an opiate antagonist.

Mike

> I am trying to figure out why I had such a terrible reaction to

such a low

> does of methadone. Could it be a drug interaction. I am wondering

if it is a

> reaction to Klonopin, Neurontin, or Ambien. I was only taking 10mgs

of

> methadone a day. I understand it builds up in your liver. But still

with

> such a low dose.

>

> Steve

>

>

>

[Guest guest]

WHEN I first started taking methadone it made me sick, nausea. I then

started taking it at night. The nausea and sickness soon went away. like

many other drugs, those were side effects that eventually go away with time,

for me, at least.

erik

Re: methadone

> Are you taking ANY kind of other opiods or did you a day or two

> before the M? If so, it could have been withdrawal type symptoms

> since Methadone is an opiate antagonist.

>

> Mike

>

>

>

> > I am trying to figure out why I had such a terrible reaction to

> such a low

> > does of methadone. Could it be a drug interaction. I am wondering

> if it is a

> > reaction to Klonopin, Neurontin, or Ambien. I was only taking 10mgs

> of

> > methadone a day. I understand it builds up in your liver. But still

> with

> > such a low dose.

> >

> > Steve

> >

> >

> >

[Guest guest]

for pain control and the flu like symptoms. I take adderal for fatigue.

constipation has been a problem in the past. drink lots of water, eat many

(5)small meals intead of 3 large ones, use senocot or metimucil. exercise.

methadone

> Are you taking methadone just for pain control. Does it provide any other

> benefits. What do you do about constipation?

> Steve

>

>

>

> This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

>

>

[Guest guest]

In a message dated 9/14/01 4:18:28 AM Eastern Daylight Time,

writes:

<< Message: 4

Date: Thu, 13 Sep 2001 11:32:29 -0500

From: " " <moores@...>

Subject: methadone

Are you taking methadone just for pain control. Does it provide any other

benefits. What do you do about constipation?

Steve

>>

Steve

How are your Magnesium levels? Maybe your body needs more Mg than the

'norm'

[Guest guest]

Steve or anyone my Dr. just gve me a scrip for Duragesic smallest dose as you

know it is a three day patch for chronic daily pain.Have it but haven't tried

it yet. Anyone else on it?

Regards,

H.

[Guest guest]

I'm not spamming, but someone on another group was asking about an

easy way to wen themselves off meth. I had heard about this place a

couple years ago & their success stories. You might check them out.

Good luck.

rc

http://www.opiates.com/rapid-detox.html

> Message: 1

> Date: Tue, 23 Mar 2004 10:51:19 -0000

> From: " floorpro33 " <floorpro33@y...>

> Subject: Methadone Anyone???

>

> I've been asking about this subject and still have not heard back

> from anyone.I'm on Methadone maintanace for my opiate addiction

and

> also have hepc. Can any one offer any advice, Please???

>

> ~~~~~~~~~~~~~~~~~~~~

>

> Hi floorpro....... you can do treatment on Methadone but you can't

get a transplant until you are at least 6 months free of Methadone

(possible longer). Since Methadone itself is an addictive drug

why don't you take this opportunity to wean yourself off ;-) Just

a suggestion.

>

>

>

> Peace and Love

>

> (`'·.¸(`'·.¸ ¸.·'´) ¸.·'´)

> «´¨ *Pam* ¨`»

> (¸.·'´(¸.·'´ `'·.¸)`' ·.¸)

> ¸.·´

> ( `·.¸

> `·.¸ )

> ¸.·)´

> (.·´

> `*.

> *.

>

> " There are two means of refuge from the miseries of life: music

and cats. " - Albert Schweitzer

>

>

>

>

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[Guest guest]

HELLO PAUL,METHADONE IS A SYNTHETIC NARCOTIC THAT IS VERY

ADDICTIVE,BUT THEN AREN'T THEY ALL. IF IT WERE ME I WOULD BE VERY

CAUTIOUS ABOUT USING IT ,BUT ,AND LET ME STRESS THIS ,THAT IS ONLY

ME.IF YOU WOULD LIKE TO DISCUSS THIS FURTHER YOU CAN CONTACT ME OFF

THE GROUP SITE AT MY PRIVATE EMAIL ADDRESS. YOU MAY BE ABLE TO

TOLERTE IT BETER THAN WHAT YOU ARE TAKING NOW. MAY YOU HAVE A BETTER

DAY TODAY THAN YOU HAD YESTERDAY AND NOT AS GOOD A DAY AS YOU WILL

HAVE TOMORROW. TAKE AS BEST CARE AS YOU CAN.

LARRY--

In neck pain , " " <and456@y...>

wrote:

> Hi Group

> My dr wants to put me on methadone after her weans me off the

> painkiller I'm on now.

>

> Does anybody now the pros and cons of this painkiller. I didn't

even

> know it was a painkiller. I've never been addicted to any drugs,

so

> I don't understand his reasons.

>

> I really don't want to go on it but I don't think I'm going to have

> a choice.

>

> I should mention I had Fusion surgery two months ago.

>

> Any thoughts?

>

> Thanks

>

>

[Guest guest]

HELLO PAUL,METHADONE IS A SYNTHETIC NARCOTIC THAT IS VERY

ADDICTIVE,BUT THEN AREN'T THEY ALL. IF IT WERE ME I WOULD BE VERY

CAUTIOUS ABOUT USING IT ,BUT ,AND LET ME STRESS THIS ,THAT IS ONLY

ME.IF YOU WOULD LIKE TO DISCUSS THIS FURTHER YOU CAN CONTACT ME OFF

THE GROUP SITE AT MY PRIVATE EMAIL ADDRESS. YOU MAY BE ABLE TO

TOLERTE IT BETER THAN WHAT YOU ARE TAKING NOW. MAY YOU HAVE A BETTER

DAY TODAY THAN YOU HAD YESTERDAY AND NOT AS GOOD A DAY AS YOU WILL

HAVE TOMORROW. TAKE AS BEST CARE AS YOU CAN.

LARRY--

In neck pain , " " <and456@y...>

wrote:

> Hi Group

> My dr wants to put me on methadone after her weans me off the

> painkiller I'm on now.

>

> Does anybody now the pros and cons of this painkiller. I didn't

even

> know it was a painkiller. I've never been addicted to any drugs,

so

> I don't understand his reasons.

>

> I really don't want to go on it but I don't think I'm going to have

> a choice.

>

> I should mention I had Fusion surgery two months ago.

>

> Any thoughts?

>

> Thanks

>

>

[Guest guest]

hi ken, Larry here i was sure hoping to get some insight on that med, i

was seriously thinking of asking my Dr about some. ya know think i will

hold off a bit. i had those reactions with neurontin wow bad stuff in my

opinion. outside of me sleeping 12 - 15 hours. A DAY. and then ellavile

on top of that so you can almost see what my days & nites were like.. but

ya know i have tried numerous meds since 1987 and for me theres only

about 2 things that work for me . ultram and Ibuprofen. together, one

without the other is kinds sorta a helpless drug but them together make a

profound couple. unfortunately they have to be taken at least 3 times a

day well for me anyway. i really wish i could help you with methadone

however im seriously still thinking in-line of trying that type of pain

killer and see what it does. i will!!,,, take your word for it , but

some times this pain is so damned unbearable at times all i want to do is

stay in bed and wait for the lords return man i hurt that much at

times......anyway i wished i could shed some lite on methadone but i

can't. you do your best and remember your in my thoughts as far as meds

go. take care. ...Larry

On Sun, 15 Aug 2004 06:39:42 -0000 " wb5uyj1 " <wb5uyj1@...> writes:

> hi everone

> has any of you had any dealings with methadone the new dr has put

> me on 10 mg 3 t ime a day and one or two lortabs max dose

> i had trouble with reactions with other pain med in the past when

> then give me something that do some good i have a bad reaction

> i v;e been on it 4 days st sat nit i had sever iching blurred

> vison ,hard to breath rapid heart nausa going to sleep or just

> ablank i wood be setting at my computer and all of a sudden i woukd

>

> be aware that an hr or 2 had passed

> hard to put thaoughts on paper

> anyy input will be really appreciated i quite taking them and

> flushed them

> thanks

> ken in longview texas

>

>

>

>

>

[Guest guest]

-------------- Original message ----------------------

From: " E. Zehr " <mikezehr@...>

Hi Mike, I have been on methadone (40mgs. x 4 daily) for the past 6 yrs. and

can only say good things about it. But that is not unusal same drug often

effects 2 people differently. I'm glad that you've been able to stop, I think

I'll be able to do the same someday. It's a good thing that you have your

diluded to fight your pain and have you ever thought maybe the methadone +

diluded was what caused your problems, you might have been over medicated?

H. ReA, Fibro

[Guest guest]

Hi , What do you mean when you say " Methadone ruined your life

mentally " ? I've been on a very small dose of methadone (5 mg. once a day) for

a couple of years. I have not noticed any negative side effects. The benefits

are quite subtle--some increased energy and reduced pain. When I don't take it

I get sleepy in the afternoon. Sounds like you've managed to get through the

worst of the withdrawal symptoms. How much were you taking?

Kay

[Guest guest]

Hello Mike,

I've also been taking Methadone 80 mg 3 times daily for about 5 years

now with very good results. In fact, I first heard of Methadone from a post of

yours, when I was looking for a " cheap " replacement for Oxycontin. I have

bone damage in both feet, hence the large dose. I wish you well, Harv/

I'm 50/ Reiters 26 years

[Guest guest]

This is to H, Kay Braddock, and Harv. Sorry it took so long to

get back to you but thought it would be easier to reply to all three

emails at one time.

,

40MG of Methadone 4 times a day is an awful lot of Methadone, if you can

handle that and not have the side effects that I was suffering my hat is

off to you. My Methadone was upped from 30MG Tabs to 40MG Diskettes.

The 40MG at 3 times a day was making me wacko. I was goofy (I usually

am anyway but this made it worse), dropped things a lot, dizzy all the

time, deja vu feeling, state of unreality, and with having Epilepsy

these were the last side effects in the world that I wanted. I promise

you quite a few times I honestly thought I was dying, it made me that

bad. I slowly started downsizing from 40 to 30 right away, then to

25MG, then to 20MG at 3 times a day then it was 20MG at 2 times a day to

NONE. I have not had any Methadone now for one whole week and my head

feels so much clearer, like a fog has been lifted, and a sense of relief

has come over me at last. If you ever read the side effects of this

medication, I suffered them all. What is so odd is that I have been on

the medication for probably 15 years and I wonder if I have felt like

that this whole time and never knew. That is why I made the comment

about Methadone stealing my life away because I can't remember how long

I have been suffering from these effects but it has caused me anxiety

and panic attacks that I take Valium to help me get through the rough

spots. I am happy for you that it is working, I don't think the doctor

can put me on any other medication because I am under the impression

that Methadone is the top pain killer. I tried Morphine and all that

did was turn me into a walking Zombie with no pain relief. I think my

only option and I am afraid to say this is to have total hip

replacements for both hips which means I will be laid up in a hospital

for about six months recovery time plus from what I have been told, hip

replacement surgery is one of the bloodiest surgerys to have.

Kay,

I can't believe you only take 5MG a day, that is such a low dose.

Methadone is also what they give heroine addicts to kick the habit and

it also works for pain. I said Methadone ruined my life mentally

because it really did mess me up in the head, with confusion, deja vu,

dream like state, rapid heart beat, dizzy, etc. If you read the side

effects from Methadone I have suffered almost all of them. I just don't

know how far back it's gone because I have been taking it for so long.

It's like being in a drug induced coma. You life flies by, you wake up

one day and realize 15 years have passed so quickly that you hardly have

a memory of what happened in all that time, Methadone for me just

doesn't cut it anymore, I am too afraid to take it. I was taking 40MG

three times a day, then dropped to 30MG three times a day, then dropped

to 25MG three times a day, then 20MG three times a day, then 20MG two

times a day and then I just quit taking it. My doctor told me it takes

a total of 36 hours for all the Methadone to clear your body.

Harv,

80MGs of Methadone 3 times a day? WOW, you must have a strong body

system, I can't imagine taking that much Methadone, I would think for a

person like me that I would overdose on it. That is a huge amount. I

was surprised at the amount told me but I think you have all of

us beat combined. If you don't mind me asking, how can you take so much

Methadone and be sane? I know each persons body is different and I am

not at all insulting you, I am actually praising you that you can take

that much Methadone. That to me is amazing. I am glad it works for you

and glad you don't suffer all the side effects that I did. I guess

after taking Methadone for 15 years I just built up some type of

reaction to it, that is all I can think of. I suffer from AS and have

had it for 25 plus years. My hips are shot and give me the most pain.

I still take my Dilaudid or Hydromorphone as it's also known by. If it

weren't for this medication I would be coconuts. For Dilaudid I take a

high amount, I take 28MG four times a day which means about every five

hours. The normal dosage starts out at only 2MG and the highest amount

pill they have is 4MG so I take them like candy, six to seven at a

time. That along with Aspirin and Valium have helped me make it through

the night (parody on an old country song).

Thank you all for writing, caring, and sharing of information. I am

happy that Methadone works for you all but please be aware, keep a

journal if you can of the days and times that you take the medication

like I do so you can look back and see if and when side effects start

popping up. For you I hope they don't but another reason I keep a log

of all the medications I take and at what time each day is so that if

god forbid the paramedics come to me someone can tell them what

medications, dosage, and times I took my medicine that day, I highly

recommend this action.

Peace to all,

E. Zehr

mikezehr@...

Arizona

[Guest guest]

Dear Sunny:

Regarding chronic pain: I have had 2 interesting

experiences last week regarding chronic pain and MD's.

The first was a new patient with stage 4 metastatic

breast cancer, at least a 40 degree scoliosis,

degenerated joints, and terrible pain into her right

leg that the MD's sid wasn't currently caused by her

breast cancer. She was on pain meds which she said

didn't alter her pain at all. I didn't make any

promises to her other than providing a very gentle

treatment. Her external hip rotators weren't

activated and her right hamstring was very fibrotic

and adhered to her upper femor. After my treatment I

showed he how to do the clam shell exercise to turn

her external hip rotators on. When she came back for

her second treatment she said she had had one day

where she was free of pain. She told this to her

doctors nurse who told her that was just a delayed

effect of the pain medication. When I examined her I

found that external hip rotators were now working.

This week I sent her off to gentle strengthen her

lumbar multifidi muscles. Who knows where this will

lead to but it is not hard to imagine my process is a

lot gentler than the 10 level fusion which is the only

thing that the orthopedists could think to do (I have

to give him credit because he didn't want to do it)

The second case was a friend of mine who had had a

stroke, uncontrolled diabetes, only a third of her

kidney functioning and a foot shaped like no foot

shape that I had ever scene before. I sent her back

to her MD to get a foot x-ray and to rule out gout.

The radiologist called her foot problem neurogenic

which I assume to mean that she is walking on a numb

foot with out motor control. She had severe

degeneration, marked swelling and edema and I could

tell that her navicular bone had subluxed medially so

much it was barely articulating with the other bones.

In my physical exam I noted marked pelvic instability

and myofascial restriction around the area of the

hilous of the kidney. I pushed her pelvis back

together, did the tiniest fascial strain/counterstrain

release of kidney, did a tiny cranial release and

pushed her distal tibia and fibula together and pushed

her navicular back into her foot. To our grateful

surprise the swelling came down in her foot. She went

back to her MD who then told her that chiropractors

only work on backs and not feet and he proceeded to

manually dislocate her talus under the premise of

checking for gout.

I don't think there is much willingness of the MD's to

talk yet but often results talk louder than words.

Judith Boothby

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[Guest guest]

Hi Group members.

How long do I have to be off methadone, does anyone know, before I can take LDN

again?

Thanks, C.