Do you know anyone with CONSTANT VERTIGO

[Guest guest]

My friend has been diagnosed with lyme, bartonella & babesia but she has

constant vertigo

that is SO severe she can't even get up off her back EVER. She has been pinned

to a bed

for over 2 years now.

DOES ANYONE KNOW OR HAS ANYONE EVER EVEN HEARD OF THIS?!

Sure there are a lot of people with lyme who get vertigo but hers is different.

She DOES

NOT get migraines. She DOES NOT get nauseated with the vertigo. She DOES NOT

have

pain in her joints or body. JUST CONSTANT VERTIGO.

Her world spins night and day. She suffers but endures until she gets what she

calls an

" attack " . Then she literally wales and cries and needs someone to hold on to.

If anyone has heard of this or has had this please respond. If you have not

heard of this

please DO NOT respond as I don't want to be inundated with too much email.

They have tried a lot of treatments including antibiotics which only seem to

make it worse.

It seems no matter what they do she just gets worse.

PLEASE HELP IF YOU KNOW OF OR HAVE EXPERIENCED ANYTHING LIKE THIS BEFORE!

If you have not, with all due respect, please do not reply.

Thank you.

[Guest guest]

,

Unfortunately, I think, all of us with Lyme has a battle of one sort

or another with Vertigo, including me. Lyme affects all people

differently and seems that your friend's, unfortunately, is the

Vertigo. Mine just happens to be the " brain fog " ..

You don't say what kind of medications have been tried to alleviate

it, if any, but the " bouts " of Vertigo that I have had have been

helped, so far, by Anitivert (meclizine).

Though mine have only been occasional, I live daily with being

off-balance and get dizzy very easily sometimes with any kind of

motion, so I can sympathize with her.

If she gets worse with antibiotics it is most likely due to a

" Herxheimer reaction " or " Herx " for short. It is common for the body

to react when antibiotics are introduced when Lyme or Lyme

coinfections are involved.

Unfortunately, I don't have any real answers, but wanted you to know

that your friend is not alone. I admire you standing by your friend

and trying to help.

Thanks

Ellen

>

> My friend has been diagnosed with lyme, bartonella & babesia but she

has constant vertigo

> that is SO severe she can't even get up off her back EVER. She has

been pinned to a bed

> for over 2 years now.

>

> DOES ANYONE KNOW OR HAS ANYONE EVER EVEN HEARD OF THIS?!

>

> Sure there are a lot of people with lyme who get vertigo but hers is

different. She DOES

> NOT get migraines. She DOES NOT get nauseated with the vertigo.

She DOES NOT have

> pain in her joints or body. JUST CONSTANT VERTIGO.

>

> Her world spins night and day. She suffers but endures until she

gets what she calls an

> " attack " . Then she literally wales and cries and needs someone to

hold on to.

>

> If anyone has heard of this or has had this please respond. If you

have not heard of this

> please DO NOT respond as I don't want to be inundated with too much

email.

>

> They have tried a lot of treatments including antibiotics which only

seem to make it worse.

> It seems no matter what they do she just gets worse.

>

> PLEASE HELP IF YOU KNOW OF OR HAVE EXPERIENCED ANYTHING LIKE THIS

BEFORE!

>

> If you have not, with all due respect, please do not reply.

>

> Thank you.

>

>

>

[Guest guest]

I recently read that Vitamin A will help many with vertigo. Give it a try,

but realize that many people can not absorb Vitamin A from plants, and has to

be an animal source, such as cod liver oil. There are a few other animal

sources, and I think people use mycelized Vitamin A to also get the A to

absorb. I also read that Vitamin C and the B vitamins (1, 12) are also

essential.

Thus, also make sure she is getting these in an absorbable form. Not all B

vitamins will absorb through the intestines due to many reasons. Thus, study

inner ear and vitamins and each's ability to absorb in ill people. Many

people take B vitamins that dissolve in the mouth and many take buffered

Vitamin

C to get those to absorb.

Heidi N

**************Start the year off right. Easy ways to stay in shape.

http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489

[Guest guest]

,

I have had bouts of vertigo occasionally through my Lyme saga as well.

Lyme can cause many other conditions as well that often times are treated

symptomatically.

My vertigo was diagnosed as " Menieres Disease " . Thankfully I only have these

episodes occasionally because they are severe when I do have them.

I dont have migraines with my episodes. But the nause is unbearable. I am

unable to walk or coordinate movement. At times it has gotten so bad that I

could not lift my head at all (it seemed the muscles in my neck would not work).

The nausea would often times cause me to vomit. This became problematic because

most often I was in bed...and could not lift my head. (I wont elaborate

further, but drowning was not the way I wanted to die!)

One time in particular my husband had to carry me to the shower to clean me up

and then took me to the hospital. (this was prior to my Lyme dx). They did cat

scans, etc...and all they could come up with to make a dx was " sinusitis " . Give

me a break!

It was another 2 years before I got a Lyme dx.

So my heart goes out to your friend.

Meclizine worked for me. I believe it is OTC now and you just need to ask the

pharmacist for it because htey keep it behind the counter.

Dawn

[Guest guest]

,

Yes, this is something that I experienced since I first took ill (i.e. when my

'flu' hit and the start of my many symptoms) back in December 2000. As someone

who grew up sailing... this was very odd / strange for me to experience. It was

essentially 24/7 until summer 2007 when I noticed much improvement after

treatment started for a co-infection of Lyme Disease.

To rule other things out I:

* Had my hearing / inner ears checked to see if there was an infection as this

can cause a 'vertigo' type of reaction

* Had my spinal column, esp. near the base of the skull checked as there is a

small joint that can cause dizziness / vertigo

* Tested positive for Lyme (Igenex) in late 2005

* Tested positive for 2-strains of Bartonella (LLT-Melisa) in late 2006

* Tested positive for Babesia (Igenex FISH RNA) in May and October 2007

I started Babesia treatment in June 2007 with Mepron and Azithromycin and

noticed both improvement from the vertigo / balance around week 10 of treatment.

I became more steady in my walk and footing... and am almost ready to fold my

cane and keep it in my bag instead of walking with it constantly! I think I am

still afraid of the sudden wobbles, like when I'm walking on concrete and it

suddenly feels like I'm on a wobbly dock or set foot on a sponge slab instead of

something solid. Thank goodness its been a while since I have fallen from these

sudden experiences...

One main suggestion is to make sure that your friends log / journal of

symptoms is kept up to date to see if there is a pattern of any flair (i.e.

increase) in symptoms. If it is Lyme related, the spirochete reproduces every

28-days, which is similar to a woman's monthly cycle.

I have also found much improvement in having 'Reflexology / Shiatsu' sessions

done in my local Chinatown... as I have found the experience different from a

'Western' clinics technique. Also, it is cheaper (i.e. almost half the price) so

I can afford to go more often. Actually, I am on disability so I can't really

afford it... but find that when I don't go then my Herx cycles / increase in

symptoms are worse. Again, by looking at my journal it is very obvious what is

happening to me when certain symptoms flare. I can almost set my watch by it and

now look for warning signs to tell me its time for a treatment!

Reflexology is not very well understood by 'Western' or Doctors of allopathic

medicine... but they are starting to. Recent MRI studies were able to pinpoint

different areas of the brain control centers when stimulated by the feet.

Actually, I was pleased to see that even Oprah has a segment on this with Dr.

Oz. back in May 2007: http://www.reflexology-research.com/oprah.html and here

is a summary from her site:

http://www.oprah.com/search/search_results.jsp?querystring=Reflexology & fromSearc\

hPage=yes

Basic information can be found at the following site where there is even an

inter-active map for the feet and hands that shows you what the pressure points

are related to: http://www.reflexology-research.com/whatis.htm

You may find that after doing a salt + mineral foot soak and then (gently)

massaging on foot cream to be of help... especially with the Lymph nodes!

Detoxing is VERY important to ensure that the toxins / die-off is removed from

the body. Dry heat sauna's; special diet; drinking lots of filtered/spring water

with lemon; etc. to help the body heal. Also, incorporating vitamins and

minerals is important to help rebuild our bodies. Being under the care of a good

Nat. Doctor who understands Lyme and other Tick Borne Infections is good... as

well as Dr. Burrascanno's 2005 guidelines:

http://www.ilads.org/burrascano_0905.html

Lastly, I'd like to thank YOU for looking into this on behalf of your friend.

The more 'non-infected' people who become educated about this illness the more

advancement in public knowledge I feel we as a society can make. You might find

the following link of use in understanding the " Psychological Aspects of Lyme

Disease " when your friend might present some of the odder symptoms:

http://www.drsallyduffy.com/psych_aspects_lyme_disease.htm

/ Charolette :-)

---------------------------------

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[Guest guest]

Hi Jerimiah,

I have had vertigo on and off for years. Not everyday but I have

gone to the emergeny room a few times. It can really be hard on

you. I would get sick to my tummy just walking across the room. I

have to be careful not to turn my head quickly or even get up out of

bed too fast. I am so sorry to hear about your friend. Has she gone

to a specialist? They have places that just help with veritgo.

Sincerely, Kathleen

<bradshawjeremiah@...> wrote:

>

> My friend has been diagnosed with lyme, bartonella & babesia but

she has constant vertigo

> that is SO severe she can't even get up off her back EVER. She has

been pinned to a bed

> for over 2 years now.

>

> DOES ANYONE KNOW OR HAS ANYONE EVER EVEN HEARD OF THIS?!

>

> Sure there are a lot of people with lyme who get vertigo but hers

is different. She DOES

> NOT get migraines. She DOES NOT get nauseated with the vertigo.

She DOES NOT have

> pain in her joints or body. JUST CONSTANT VERTIGO.

>

> Her world spins night and day. She suffers but endures until she

gets what she calls an

> " attack " . Then she literally wales and cries and needs someone to

hold on to.

>

> If anyone has heard of this or has had this please respond. If you

have not heard of this

> please DO NOT respond as I don't want to be inundated with too much

email.

>

> They have tried a lot of treatments including antibiotics which

only seem to make it worse.

> It seems no matter what they do she just gets worse.

>

> PLEASE HELP IF YOU KNOW OF OR HAVE EXPERIENCED ANYTHING LIKE THIS

BEFORE!

>

> If you have not, with all due respect, please do not reply.

>

> Thank you.

>

>

>

[Guest guest]

I have experienced vertigo for over 2 years, but mine is not nearly

as debilitating. Mine feels like I'm on a slide, teeter totter or in

a fun house. I oftentimes feel like things are higher or lower than

they really are. My dr. recently prescribed an anti-anxiety med. for

me. It has helped A LOT. I'm also wondering if your friend has seen

an ENT. That was the first thing my dr. had me do.

> >

> > My friend has been diagnosed with lyme, bartonella & babesia but

> she has constant vertigo

> > that is SO severe she can't even get up off her back EVER. She

has

> been pinned to a bed

> > for over 2 years now.

> >

> > DOES ANYONE KNOW OR HAS ANYONE EVER EVEN HEARD OF THIS?!

> >

> > Sure there are a lot of people with lyme who get vertigo but hers

> is different. She DOES

> > NOT get migraines. She DOES NOT get nauseated with the vertigo.

> She DOES NOT have

> > pain in her joints or body. JUST CONSTANT VERTIGO.

> >

> > Her world spins night and day. She suffers but endures until she

> gets what she calls an

> > " attack " . Then she literally wales and cries and needs someone

to

> hold on to.

> >

> > If anyone has heard of this or has had this please respond. If

you

> have not heard of this

> > please DO NOT respond as I don't want to be inundated with too

much

> email.

> >

> > They have tried a lot of treatments including antibiotics which

> only seem to make it worse.

> > It seems no matter what they do she just gets worse.

> >

> > PLEASE HELP IF YOU KNOW OF OR HAVE EXPERIENCED ANYTHING LIKE THIS

> BEFORE!

> >

> > If you have not, with all due respect, please do not reply.

> >

> > Thank you.

> >

> >

> >

>

[Guest guest]

Did you get nauseated from your vertigo? What was the name of the

anti-anxiety drug they prescribed you?

On Jan 25, 2008, at 8:02 AM, vukovichjennifer wrote:

> I have experienced vertigo for over 2 years, but mine is not nearly

> as debilitating. Mine feels like I'm on a slide, teeter totter or in

> a fun house. I oftentimes feel like things are higher or lower than

> they really are. My dr. recently prescribed an anti-anxiety med. for

> me. It has helped A LOT. I'm also wondering if your friend has seen

> an ENT. That was the first thing my dr. had me do.

>