Thyroid Cancer

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Luci, I wanted to say that your daughter is so fortunate to have you at her side researching all this. I hope you find answers and that she quickly heals !Blessings,Janet iodine From: lutenenbaum@...Date: Sat, 23 Jul 2011 17:24:54 +0000Subject: Re: Thyroid Cancer

Could use your input on the latest with my 20 yr old daughter. Background: she was diagnosed Hypo in Summer 2010, Hashimoto's fall 2010, December 2010 found to have a malignant nodule on left side of isthmus onto left lobe of thyroid. In Dec 2010 went gluten free and on anti-fungal diet. TPO antibodies went from 332 to 91 over several months. In March 2011 started supplements and in May started iodine (up to 62.5 mg) and LDN.

Her May ultrasound showed that the nodule grew and became vascular. She had thyroid surgery on 7/5, removing the 1.2 cm tumor, isthmus, left lobe of thyroid, and 6 lymph nodes – 3 of which had metastatic carcinoma. The pathology report states: margins are uninvolved. Distance of invasive carcinoma from nearest margin: 1 mm. The lymph nodes surprised me because the ultrasound in May showed no suspicious lymphs. Now this. 1 node was found to have metastatic papillary carcinoma, 1 with psammatous calcifications – no definite tumor identified. Nothing on the 3rd nodule. I e-mailed the surgeon to ask if any micro nodules were found in the left lobe. My thinking is if there was nothing in the left lobe then why jump to the conclusion that it is in the right lobe. Again, the lymph nodes threw us.

The surgeon had recommended standard procedure of removing the entire thyroid but we requested partial. After surgery the surgeon pressed us to see an endo to discuss taking out the entire thyroid and RAI.(all because of the 3 lymphs) We have gone through 5 endos already. We will try another, I am concerned -most endos will just say take it all out and use RAI. And it is so hard to tell how much of their talk is really valid and how much is just fueled by fear and standard procedure. I really don't know and this is my child's life.

Right before surgery she was on 120 mg ERFA (NDT) and feeling pretty good, not great. Now she is exhausted again, She is on 180 mg of ERFA now.

Any suggestions?

Thanks

Luci>> My GYN found my first thyca by palpation. I had a tota thyroidectomy in> 1965. My endo suspected thyca 17 years later when my calcium level shot to> 18.4 (normal range is 8.5-10.4). I have hypoparathyroisism. At that time, I> was given bovine TSH to stimulate my TSH so I could have a thyroid scan> and I was given 176 mCi of RAI, RadioActiveIodine.> > > >