Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 Hi Sara, I started suffering from migraines in the lest few months and was diagnosed with c-toma about a month ago. I'm quite sure that in my case the two are related, although I haven't seen any information that states that the 2 things can be related. Garry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 Hi Sara, I've suffered with migraines all of my life, but I found when my ctoma was getting really bad and I guess almost into my brain last march/2001 I was getting them even worse and every day. I also was getting really bad dizzy spells where I would be sitting here & the whole room would start spinning. When I told my ENT those two symptoms he pushed up my operation date, so I guess that was a bad sign. Also lately I get this stabbing pain in my ear like someone is taking a knife and twisting it around inside my ear. Getting that checked out next Thursday thank goodness!!! Please keep us posted!!! Sincerely Kim > I was wondering how many of us cholesteatoma sufferers get migranes? I get > them pretty badly, and I can't figure out why. Has anyone heard of migranes > being connected with cholesteatoma? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 I was wondering how many of us cholesteatoma sufferers get migranes? Hello Sara I'm not sure if you using migraine in a specific sense. However it's fairly common that the c-toma desruction the pressure in the tiny compartments of the ear and on the cranial nerves can cause intense reflected pain all around the head and face. At first I even began to wonder if it might be the start of a dreaded brain abcess but was assured that intercranial complications would always be accompanied by a soaring temperature. It's also possible to find that aching teeth, jaw pain and a stiff, swollen neck can result from an advancing c-toma. Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 At first I even began to wonder if it might be the start of a dreaded brain abcess but was assured that intercranial complications would always be accompanied by a soaring temperature. It's also possible to find that aching teeth, jaw pain and a stiff, swollen neck can result from an advancing c-toma. Aha!!!! I did not really associate my stiff jaw, neck pain or swolleness with ctoma. I've been suffering in pain the last month or so with headaches everyday, some worse then others, jaw pain but I also have temporomandibular joint sydrome as well.....anyone else with that? So intercranial complications are also accompanied by a fever?? You mention soaring fever.....well a few days I've noticed a low grade fever but not right now. I'm fearing the worse this Thursday, but i'm sure it's probably just a small re-occurence. KimPost your free ad now! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 It's funny you mentioned that. I just went through workup for headaches and actually found out they weren't migraines but tension headaches. They've tried me on multiple meds for migraines, but none worked. I'm now on Desipramine, which is an antidepressant, but was told by the neurologist that it works more in relaxing the muscles in the head and neck. I'm hoping this will work, so far so good. I'm also going to a chiropractor and massage therapist for them, too. I had surgery initially back in 1977 (7 yrs old) and another when I was 18. That's a really good question, though. I. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 In a message dated 10/25/2002 5:47:02 AM Pacific Standard Time, ctoma_owner@... writes: jaw pain but I also have temporomandibular joint sydrome as well.....anyone else with that? I also have jaw stiffness and tightness -- not officially diagnosed with TMJ, though. I. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 ......well a few days I've noticed a low grade fever.. Hello Kim I forgot to add low grade fever to the list. It's also something I experience from time to time along with the other symptoms from my current c-toma. They were all more intense and constant before I had the CWD. The doctor actually told me that with a brain abcess "you'd have a massive temperature" Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2002 Report Share Posted October 25, 2002 My son (age 11) had frequent migranes before his surgery. They would be so bad that he would get sick to his stomach. He hasn't had any headaches since his surgery September 18, 2002. He still has slight facial paralysis, but no worse than before the surgery. His hearing is coming back so the prothesis is starting to work. I'm thrilled. Kathy- Ohio >From: " Kim Dawn " <kiekeboe4you@...> >Reply-cholesteatoma >cholesteatoma >Subject: Re: migranes >Date: Fri, 25 Oct 2002 10:59:04 -0000 > >Hi Sara, > I've suffered with migraines all of my life, but I found when my >ctoma was getting really bad and I guess almost into my brain last >march/2001 I was getting them even worse and every day. I also was >getting really bad dizzy spells where I would be sitting here & the >whole room would start spinning. When I told my ENT those two >symptoms he pushed up my operation date, so I guess that was a bad >sign. > Also lately I get this stabbing pain in my ear like someone is >taking a knife and twisting it around inside my ear. Getting that >checked out next Thursday thank goodness!!! > Please keep us posted!!! >Sincerely Kim > > > > I was wondering how many of us cholesteatoma sufferers get >migranes? I get > > them pretty badly, and I can't figure out why. Has anyone heard >of migranes > > being connected with cholesteatoma? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 Sara, I have had migraines all of my life, I had the C-toma for many years too. As I got older I started suffering with sinus headaches as well. Then I developed another type of headache which I do not know what kind it was, it was migraine like, but not a migraine. I started having that kind of headache when I started feeling the symptoms of the C-toma, with the pressure and fullness in the ear, drainage, and occasional dizziness. It has been 4 days since my surgery, and I am currently disease free. I guess time will tell whether or not the C-toma was responsible for part or all of the headaches I was experiencing. G. > Hi everyone, > I was wondering how many of us cholesteatoma sufferers get migranes? I get > them pretty badly, and I can't figure out why. Has anyone heard of migranes > being connected with cholesteatoma? I had surgery for removal about 10 > years ago, coincidentally I went to the doctor today and was told it might be > back...yeechh... > Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 Hi Sara, I have been getting headaches all my life; sometimes they are migraines (I get scotomas... that word is very similar to c-toma isn't it!) and I don't know how long I had c-toma, but since the c-toma is gone, I seem to get fewer headaches. I can't see the 2 are related though. I noticed a big difference in decreased frequency/severity of my headaches after having a hysterectomy for fibroids. There are so many cause for headaches... who knows. Lynn migranes > Hi everyone, > I was wondering how many of us cholesteatoma sufferers get migranes? I get > them pretty badly, and I can't figure out why. Has anyone heard of migranes > being connected with cholesteatoma? I had surgery for removal about 10 > years ago, coincidentally I went to the doctor today and was told it might be > back...yeechh... > Sara > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 Cholesteatoma does not spread this way... ----- Original Message ----- From: " richard " <drastician@...> > had some control in this, too. like, for instance, i decided to sleep on > my right side so it wouldn't spread to my ctoma ear. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 I use Cz monopolar SMR with some success. My thought is that with its effectiveness in epilepsy, that it may inhibit the slow cortical activity that creeps across tha cortex in migraine. From a behavioral poit of view, it is training focus without motor activity/muscular tension, thereby reducing muscle tension as a contributing factor. I start all on deep breathing and handwarming for 1 week, BID. I add on SMR, alpha/theta paired with autogenic training and imagery. Most have good control by the 6th visit. Lisette Markham, MA, BCIAC-EEG Fellow >From: " BConder " <bconder@...> >Reply- > >Subject: Migranes >Date: Wed, 30 Oct 2002 21:46:15 -0000 > >-We are working with a very high achieving 14 yo female (very driven >and achievement oriented)who has developed severe migranes. Has been >hospitalized twice for DHE IV treatment. Am trying the Menninger >Migrane program with EMG, Temp and EDR, but wonder abt EEG protocols, >eg, would alpha-theta training work? Any recommendations appreciated/ >Thanks, > Bob > _________________________________________________________________ Get faster connections -- switch to MSN Internet Access! http://resourcecenter.msn.com/access/plans/default.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Bob, I have usually found migraines (which are parasympathetic rebounds) related to excessive tone in the autonomic nervous system. Does this client have any anxiety or depression in her make-up? Is there any history of trauma or abuse? I usually work with T3/T4 SMR, often somewhat slower than 12-15Hz, which tends to re-balance the limbic system and often gets the left and right hippocampus communicating. I would certainly do anything I could (some of the things you mentioned) to reduce stress or teach her to handle her drive a little more smoothly. I would NOT do alpha-theta training until you had worked in some other areas first. Have you looked at her alpha/theta ratios in the parietal lobes? If there is an eyes-closed ratio of alpha/theta less than 1.5, then you might look at some alpha training, though you need to be careful (as with your relaxation training) not to trigger a sympathetic rebound (e.g. panic attack). Hope this is helpful. Pete Migranes -We are working with a very high achieving 14 yo female (very driven and achievement oriented)who has developed severe migranes. Has been hospitalized twice for DHE IV treatment. Am trying the Menninger Migrane program with EMG, Temp and EDR, but wonder abt EEG protocols, eg, would alpha-theta training work? Any recommendations appreciated/ Thanks, Bob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 My 30 yo daughter is having severe migraines. Has anyone had success with LDN and migraines? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2011 Report Share Posted March 31, 2011 I don't take LDN specifically for migraines but I used to have significant multiple a week migraines and since LDN (and I do take other supps) I now have one or less a month. It may be that LDN helps the body in addressing the root cause of the migraines. Jaxi On Wed, Mar 30, 2011 at 11:34 PM, ginny.dudek@... <ginny.dudek@...> wrote: My 30 yo daughter is having severe migraines. Has anyone had success with LDN and migraines? Quote Link to comment Share on other sites More sharing options...
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