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> side effect lasts 6 months, most doctors recommend no pregnancy for 1 year.

> then there is no increased chance of birth defects.

Is that only if the woman is taking it or does it still cause birth defects if

the father is taking it? What kind of birth

defects?

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Dear Group,

My brother Terry is at a crossroads. The side effects of combo are doing him

in. He is not able to work, etc. It doesn't seem to be getting much better

and he has been taking the treatments for about 5 weeks. In goes in next week

for his blood tests. He is considering stopping the treatments and trying

some of the alternative approaches that we have been finding out about. But

at the same time, for a certain number of people the treatments get rid of

the c. I guess my question is, when he gets the results of his blood tests,

if his enzyme levels have not improved (actually, they were never that high

in the first place) does this mean the treatment not only hasn't worked but

will not work even with further treatments. In other words, if improvements

will come about due to the treatments, will that be evident now, or does he

have to do the entire 6 months. Please, any and all information you can

provide will be truly appreciated. I feel like I always have more questions

than answers for all you wonderful, supportive souls. I hope to be more

helpful to you in the future, as we find out more about this horrible

disease. My thoughts and prayers are with each and everyone of you. Thank

you. Love, Sandy

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Sandy,

I understand what your brother is going through. I am in my fourth

month of the combo and some days are very difficult. I have been told

that if the combo is going to work, you will be undectable by 3 months.

Liver function tests cannot tell you if the virus has been reduced, only

a test for viral load (pcr) will do that. I know many people who

cannot tolerate the combo, your brother might be one of them. I'm glad

your brother is looking at alternate ways of keeping the dragon at bay.

Healing hugs to you and your brother.

Judy M

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Hi Rowena,

Glad to hear about the good results with your blood tests. I'm on

interferon only, also. I'm just starting my 5th week, and my liver enzymes

are now normal. Mine weren't as high as yours, and I'm encouraged by your

good report. I am taking other vitamin supplements and things like Milk

Thistle and Dandelion Root. I'm glad this is working, because I'd rather

not be on the combo treatment.

Take care and keep well,

Marie

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Sandy:

This is all my personal experience. Took the interferon only. My dr likes to

start with that by itself cause the combo is so hard on the system. My numbers

were very high viral load of 1.3 Million and the enzymes were in the 200's .

Did

blood work at the 4th week of just interferon and it is all good. viral load is

24,000 and the enzymes are all down and the plateletts are holding. just found

out about the viral load info late friday....was shocked at such a good

result,.....but I don't smoke or drink and that really makes a difference

especially cigarettes. And other than the tired still going on the side effects

are at a minimum at the middle of the 7th week. So if that is of any help, i

also take a regimen of c, e, folic acid. and asprin and campazine with the

shots.. hope this info is of help. Rowena

SandyHorne@... wrote:

> From: SandyHorne@...

>

> Dear Group,

> My brother Terry is at a crossroads. The side effects of combo are doing him

> in. He is not able to work, etc. It doesn't seem to be getting much better

> and he has been taking the treatments for about 5 weeks. In goes in next week

> for his blood tests. He is considering stopping the treatments and trying

> some of the alternative approaches that we have been finding out about. But

> at the same time, for a certain number of people the treatments get rid of

> the c. I guess my question is, when he gets the results of his blood tests,

> if his enzyme levels have not improved (actually, they were never that high

> in the first place) does this mean the treatment not only hasn't worked but

> will not work even with further treatments. In other words, if improvements

> will come about due to the treatments, will that be evident now, or does he

> have to do the entire 6 months. Please, any and all information you can

> provide will be truly appreciated. I feel like I always have more questions

> than answers for all you wonderful, supportive souls. I hope to be more

> helpful to you in the future, as we find out more about this horrible

> disease. My thoughts and prayers are with each and everyone of you. Thank

> you. Love, Sandy

>

> ------------------------------------------------------------------------

> Campaign 2000 is here!

>

> Discuss your thoughts; get informed at ONElist. See our homepage.

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Thanks to you all for sharing info with me. Not sure what Terry will decide

to do about continuing with combo treatment yet. He will probably wait and

see how his tests turn out. Sandy

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  • 1 year later...

Hi Dana, I suspect the Luvox dose change too. *Anytime* I change something

about an SSRI, anything that happens in the next couple of weeks gets blamed

on that, usually correctly. Eating and sleeping changes/disturbances always

lead the list it seems. I bet these problems fizzle in the next couple of

weeks or so, if not you can move on to other " suspects. "

Kathy R in Indiana

----- Original Message -----

From: " dana carvalho " <danacar@...>

> Ava is now taking 300mg of Luvox. I've noticed she is not so hungry at

> dinner as she usually has been. I don't know whether she's taking money

> to school and buying candy and eating it before dinner or if this is a

> side effect of Luvox. She denies the candy thing and I asked her if she

> was dieting and she said no. She has also had a few headaches lately,

> which is rare for her, and a few times she's woken up at night and

> couldn't get back to sleep. It's hard to know if she's just showing

> some anxiety in physical ways due to the court stress/tension, if

> something OCD is going on, or if it's a reaction to the Luvox. She just

> got to the 300mg dose last week.

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Dana:

Those are definitely side effects of the increased dose. It's

possible that she may acclimate to it, or she may have to go back down

to a lower dose. I would report what you're seeing to the prescribing

doc.

Jule

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Ava,

My Devon is on 200mg of Luvox a day. His appetitite has decreased some.

He is overweight, so that symptom doesn't worry me as much as it might worry

you. In fact Devon's weight is all out of proportion to the amount of food

he consumes. I am very worried about his big tummy and the fact that his

face (jowels) are puffy. He was never what you'd call a slim child, but

since the start of meds (all of them) he has begun to look like Santa Claus!

Anyway, back to the Luvox. Has your child ever accidentally missed a

dose? If she does, do you notice an effect? Luvox is helping Devon but it

certainly has not been a magical improvement. Let me know how it goes with

you.

Elaine

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Elaine,

Did you mean to reply to me -Dana? I think so and this is so funny

because lots of people accidentally call me Ava. I always thought

it was because we look alike and our voices sound similar and we gesture

the same way and we're both kinda intense (!). But you've never seen

us! This is where the twilight zone theme song plays................

Anyway, Ava is a string bean so I don't want her to lose weight due

to a poor appetite. Actually she's not "skinny", she's very muscular

and "just right". She's 5'4 and weighs about 105-110. I think

she craves sweets and secretly eats them, which affects her at meal time,

and I think she also has some appetite suppression from the Luvox.

I think it will go away, though. Ava really does love to eat and

she loves my cooking.

DnEBrock@... wrote:

Ava,

My Devon is on 200mg of Luvox a day. His appetitite

has decreased some.

He is overweight, so that symptom doesn't worry me as much as it might

worry

you. In fact Devon's weight is all out of proportion to the amount

of food

he consumes. I am very worried about his big tummy and the fact

that his

face (jowels) are puffy. He was never what you'd call a slim

child, but

since the start of meds (all of them) he has begun to look like Santa

Claus!

Anyway, back to the Luvox. Has your

child ever accidentally missed a

dose? If she does, do you notice an effect? Luvox is helping

Devon but it

certainly has not been a magical improvement. Let me know how

it goes with

you.

Elaine

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  • 4 years later...
Guest guest

Hi Kathy

I have had the bleeds from hemorrhoids and it happended

once when I was off Pred and still am but they never increased Imuran

not sure if it is related I did and do have pain in my bones.

Hope this helps

~*~The Savelio Aiga ~*~ <KMSavelio@...> wrote:

Hi Everyone, I wanted to ask a question..to the ones who are off the prednisone ann taking imuran.When you were coming off the prednisone and increasing the imuran..did any of you ever experience diarrhea, lower abdominal cramps, sorta like menstrual cramps, pain in your hips and bleeding from your rectum because of hemorrhoids? I mean bright red blood too..sorry to be so explicit but I don't know any other way to put it...· ´¨¨)) -:¦:- ¸.·´ .·´¨¨)) Take Care,((¸¸.·´ .·´ Kathy -:¦:- -:¦:- ((¸¸.·´* May your troubles be less, your blessings more, and nothing but happiness comes through your door! §«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§ Our loved ones never truly leave us...they live on in the kindness they showed, the love they gave, and the memories we have of

them.~~~~~~~~~~~~~~~~~~~~~~~~~KeeslerAFBRelocationAssistance-subscribe http://kmsavelio.tripod.com/chinookwindssiberianhuskiesSiberianHuskyDogBreeders-subscribe MilitaryWeatherWives-subscribe On Mon, 13 Jun 2005 13:37 , nancy godin nancygodin19562003@...> sent:>>>>Hi Trish> >Sorry about Kel's going back on meds>but she is a strong kid and it won't get>her down for long, what a week her fish>dies also a pet is a pet no matter what>and she will miss that fish it seems that>it was her sounding board. Well have a>good week and give Kels a big hug from me> > >> >PS>What was the email about a member being let go about?__________________________________________________>

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Kathy,

No I didn't have any problems other than some joint pain -mild - when coming off the predisone and increasing the Imuran. I have done this several times over the past 3 years as they don't have me a doses to keep my levels from going up. After about 3 months off the Pred my levels start climbing again. That would be my only problem. Of course as the levels climb so does the joint pain, fatigue, and muscle and tissue pain, but, I have never had anything like that. You really should call the doctor I would think especially with the hemorrhoids bleeding so badly. Hope you are feeling better by the time you get this email. Jennie AIH-2002 from MI

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I bleed from my hemorrhoids because the diarrhea gets so bad but I have those symptoms and my Imuran hasn't been increased.

Maybe someone else knows more.'

Sorry

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Thanks Jennie,

I have an appt. this afternoon with my regular Dr. the bleeding stopped last

night so I don't think its

anything but just irritated hemorrhoids but will go to make sure. My joint pain

has increased more and

more as my prednisone is lowered. My liver enzymes last they checked were in

normal range though. My

best friends is " mineral ice " for all my joint and muscle pain right now..lol

...· ´¨¨)) -:¦:-

¸.·´ .·´¨¨)) Take Care,

((¸¸.·´ .·´ Kathy -:¦:-

-:¦:- ((¸¸.·´*

May your troubles be less, your blessings more, and nothing but happiness comes

through your door!

§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§

Our loved ones never truly leave us...they live on in the kindness they showed,

the love they gave, and

the memories we have of them.

~~~~~~~~~~~~~~~~~~~~~~~~~

KeeslerAFBRelocationAssistance-subscribe

http://kmsavelio.tripod.com/chinookwindssiberianhuskies

SiberianHuskyDogBreeders-subscribe

MilitaryWeatherWives-subscribe

On Tue, 14 Jun 2005 06:26:20 EDT , rjbrgmn@... sent:

>

>

>

>

>

>

>

>Kathy,

> 

>No I didn't have any problems other than some joint pain -mild - when

>coming off the predisone and increasing the Imuran.  I have done this

>several times over the past 3 years as they don't have me a doses to keep my

>levels from going up.  After about 3 months off the Pred my levels start

>climbing again.  That would be my only problem.  Of course as the

>levels climb so does the joint pain, fatigue, and muscle and tissue pain, but,

I

>have never had anything like that.  You really should call the doctor I

>would think especially with the hemorrhoids bleeding so badly.  Hope you

>are feeling better by the time you get this

>email.                                                                    

>Jennie AIH-2002 from MI

>

>

>

>

>

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Thanks for your email. I am sorry your having the diarreah...do you

take anything to bind yourself? I try and eat bananas etc..lol..though

sometimes it just doesn't help..lol..but at least I know now that its not

just me..

...· ´¨¨)) -:¦:-

¸.·´ .·´¨¨)) Take Care,

((¸¸.·´ .·´ Kathy -:¦:-

-:¦:- ((¸¸.·´*

May your troubles be less, your blessings more, and nothing but happiness

comes through your door!

§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§«¤»¥«¤»«¤»¥«¤»§

Our loved ones never truly leave us...they live on in the kindness they

showed, the love they gave, and the memories we have of them.

~~~~~~~~~~~~~~~~~~~~~~~~~

KeeslerAFBRelocationAssistance-subscribe

http://kmsavelio.tripod.com/chinookwindssiberianhuskies

SiberianHuskyDogBreeders-subscribe

MilitaryWeatherWives-subscribe

On Tue, 14 Jun 2005 12:59:26 EDT , bsmyers3999@... sent:

>

>

>I bleed from my hemorrhoids because the diarrhea gets so bad but I have

those symptoms and my Imuran hasn't been increased.

>

>Maybe someone else knows more.'

>

>Sorry

>

>

>

>

>

>

>

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  • 1 year later...
Guest guest

At 04:19 PM 4/6/2007 -0000, you wrote:

>Hello group I am fairly new here I dont post much but I read and learn

>alot from this group.I have vaccinated 4 children up to this point in

>their lives,not knowing much about the dangers.Recently my 6 yr old

>son was diagnosed with an Autism spectrum disorder and it has been

>more apparent to me that vaccines could be the cause.My 1 year old

>son was vaccinated in febuary and I was afraid.When I let the Dr in

>on my concerns she blew me off,acted as if she didnt want to talk

>about it.

>Ever since he was vaccinated on Feb.26th he has had a diaper rash and

>it will look like it is starting to go away then as soon as he goes

>in his diaper again its back full force every where that the urine or

>bm touches.He has been waking nightly screeching and arching his back

>like something is hurting him....but only at night.during the day he

>hits himself in the head when he is angry.This all started within 1

>day of the vaccines.He has also been increasingly clingy.Could this

>all be from the vaccines? What should I do besides never let them

>vaccinate any of my kids again?I havent called the Dr because I feel

>it will be pointless and she will just blow me off again if I suggest

>that it is from the vaccines.I have heard tons of stories that Dr's

>will sometimes refuse to treat your child if you refuse vaccines.Any

>info would be great.I just am not sure if these are side effects or

>if I should call the DR. Thanks,

Yes, most certainly can be from the vaccines. The head banging is very

concerning - part of the neurological picture, often, of vaccine injury.

Where do you live?

You need to see someone who is not an allopath who caused the damage to

begin with.

Sheri>

--------------------------------------------------------

Sheri Nakken, R.N., MA, Hahnemannian Homeopath

Vaccination Information & Choice Network, Nevada City CA & Wales UK

$$ Donations to help in the work - accepted by Paypal account

earthmysteriestours@... voicemail US 530-740-0561

(go to http://www.paypal.com) or by mail

Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm

Reality of the Diseases & Treatment -

http://www.nccn.net/~wwithin/vaccineclass.htm

Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

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Guest guest

Hi Sheri,Thanks for the reply I live in Illinois about 1 hour south

of Chicago.

> Yes, most certainly can be from the vaccines. The head banging is

very

> concerning - part of the neurological picture, often, of vaccine

injury.

> Where do you live?

> You need to see someone who is not an allopath who caused the

damage to

> begin with.

>

> Sheri>

>

> --------------------------------------------------------

> Sheri Nakken, R.N., MA, Hahnemannian Homeopath

> Vaccination Information & Choice Network, Nevada City CA & Wales UK

> $$ Donations to help in the work - accepted by Paypal account

> earthmysteriestours@... voicemail US 530-740-0561

> (go to http://www.paypal.com) or by mail

> Vaccines - http://www.nccn.net/~wwithin/vaccine.htm

> Vaccine Dangers On-Line course -

http://www.nccn.net/~wwithin/vaccineclass.htm

> Reality of the Diseases & Treatment -

> http://www.nccn.net/~wwithin/vaccineclass.htm

> Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm

>

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  • 1 year later...
Guest guest

Hi all,

It´s been a while since I posted on this board. I have some questions. Last July

I was put on 10 mg of Lipitor daily, my total Chol was 203( I quit taking it

after one box).  I cannot recall my HDL or LDL, but it was just numbers off if

any.  I have hypoglycemia and see my Endo a few times a year. Last year I

started to feel a sudden numbness in right leg above my knee, it would come and

go.  I went on a trip in May and walked a lot for 3 weeks, and I noticed my

right leg became more numb and would start to feel a burning sensation there

after all the walking. While resting, it got much better and most of the time

went away. Well, I thought right away it was PAD.  3 weeks ago I saw my Endo,

and he had me take lab tests.  my Glucose was fine =71, my Total Chol was 196,

my HDL and LDL were Ok, one was a little worse than the other but it was no big

deal. He out me on 20 Mg's of Lipitor a day, and it scares me. I am taking again

Omega #, 3 times a

day, 3,000 Mg's of Vitamin C , coQ10= 120 Mg's a day, Vitamin B complex 3 times

a day and one aspirin a day. Since being home now for almost 3 weeks my leg

feels better, but I am not walking that much either.  I wanted to ask if Lipitor

can cause depression?  I really have never had depression before starting to

take this Statin. Oh, the Dr also out me on Doxium 500 mg  2 times a day for

blood circulation. I am a female and 49 years old.

Thanks,

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Hi all,

It´s been a while since I posted on this board. I have some questions. Last July

I was put on 10 mg of Lipitor daily, my total Chol was 203( I quit taking it

after one box).  I cannot recall my HDL or LDL, but it was just numbers off if

any.  I have hypoglycemia and see my Endo a few times a year. Last year I

started to feel a sudden numbness in right leg above my knee, it would come and

go.  I went on a trip in May and walked a lot for 3 weeks, and I noticed my

right leg became more numb and would start to feel a burning sensation there

after all the walking. While resting, it got much better and most of the time

went away. Well, I thought right away it was PAD.  3 weeks ago I saw my Endo,

and he had me take lab tests.  my Glucose was fine =71, my Total Chol was 196,

my HDL and LDL were Ok, one was a little worse than the other but it was no big

deal. He out me on 20 Mg's of Lipitor a day, and it scares me. I am taking again

Omega #, 3 times a

day, 3,000 Mg's of Vitamin C , coQ10= 120 Mg's a day, Vitamin B complex 3 times

a day and one aspirin a day. Since being home now for almost 3 weeks my leg

feels better, but I am not walking that much either.  I wanted to ask if Lipitor

can cause depression?  I really have never had depression before starting to

take this Statin. Oh, the Dr also out me on Doxium 500 mg  2 times a day for

blood circulation. I am a female and 49 years old.

Thanks,

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Guest guest

Yes, Survivors is the best word. And yes, poisoning is correct.

>

> After my latest doctor's appointment a couple of days ago, while he

and I were discussing the health problems I've had to endure both

while on Lipitor and after, at one point when he used the term " side

effects, " I immediately corrected him--I said, " No, not side effects;

how about poisoning?! "

>

> We've had some discussion here lately about whether we're victims

or survivors. Obviously each word applies in some sense, but I prefer

to think we are survivors. However, I do want to suggest that we all

stop calling what has been done to us as " side effects, " and from now

on refer it by the much more accurate term " poisoning! "

>

>

>

>

> -----Fight back spam! Download the Blue

Frog.http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D

>

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Guest guest

Yes, Survivors is the best word. And yes, poisoning is correct.

>

> After my latest doctor's appointment a couple of days ago, while he

and I were discussing the health problems I've had to endure both

while on Lipitor and after, at one point when he used the term " side

effects, " I immediately corrected him--I said, " No, not side effects;

how about poisoning?! "

>

> We've had some discussion here lately about whether we're victims

or survivors. Obviously each word applies in some sense, but I prefer

to think we are survivors. However, I do want to suggest that we all

stop calling what has been done to us as " side effects, " and from now

on refer it by the much more accurate term " poisoning! "

>

>

>

>

> -----Fight back spam! Download the Blue

Frog.http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D

>

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Guest guest

It hit me today while driving. Statinsurvivors.org is best. Its a more

positive name. People don't want to be in a group of " victims " .

Anybody want to run with that? If its available, and well managed, it

could have the potential to make a huge impact. Something like this

would be perfect for a group of retired statin " survivors " to run.

Non-commercial. No sales. Just humanitarian help for those who have

been vctimized by the system.

Bobby

>

> After my latest doctor's appointment a couple of days ago, while he

and I were discussing the health problems I've had to endure both

while on Lipitor and after, at one point when he used the term " side

effects, " I immediately corrected him--I said, " No, not side effects;

how about poisoning?! "

>

> We've had some discussion here lately about whether we're victims

or survivors. Obviously each word applies in some sense, but I prefer

to think we are survivors. However, I do want to suggest that we all

stop calling what has been done to us as " side effects, " and from now

on refer it by the much more accurate term " poisoning! "

>

>

>

>

> -----Fight back spam! Download the Blue

Frog.http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D

>

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Guest guest

It hit me today while driving. Statinsurvivors.org is best. Its a more

positive name. People don't want to be in a group of " victims " .

Anybody want to run with that? If its available, and well managed, it

could have the potential to make a huge impact. Something like this

would be perfect for a group of retired statin " survivors " to run.

Non-commercial. No sales. Just humanitarian help for those who have

been vctimized by the system.

Bobby

>

> After my latest doctor's appointment a couple of days ago, while he

and I were discussing the health problems I've had to endure both

while on Lipitor and after, at one point when he used the term " side

effects, " I immediately corrected him--I said, " No, not side effects;

how about poisoning?! "

>

> We've had some discussion here lately about whether we're victims

or survivors. Obviously each word applies in some sense, but I prefer

to think we are survivors. However, I do want to suggest that we all

stop calling what has been done to us as " side effects, " and from now

on refer it by the much more accurate term " poisoning! "

>

>

>

>

> -----Fight back spam! Download the Blue

Frog.http://www.bluesecurity.com/register/s?user=bmFuY2FybDIwNzQ%3D

>

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I just cant help but mentioning again how outrageous it is that one statin manufacturer actually had coenzymeq10 in the formula, and took it out when no other companies did the same. They knew all along how devastating this poison is. With the way they list the dozens of other "side effects" in their ads and product information, I guess depleting the most important enzyme in your body does not qualify?

Kip

From: Carlisle <nancarl@...>Subject: Side effects?Lipitor Date: Friday, June 27, 2008, 9:33 AM

After my latest doctor's appointment a couple of days ago, while he and I were discussing the health problems I've had to endure both while on Lipitor and after, at one point when he used the term "side effects," I immediately corrected him--I said, "No, not side effects; how about poisoning?!"

We've had some discussion here lately about whether we're victims or survivors. Obviously each word applies in some sense, but I prefer to think we are survivors. However, I do want to suggest that we all stop calling what has been done to us as "side effects," and from now on refer it by the much more accurate term "poisoning!"

----- Fight back spam! Download the Blue Frog. http://www.bluesecu rity.com/ register/ s?user=bmFuY2Fyb DIwNzQ%3D

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