CALL TO ACTION #4 (From Pat , LDA)

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From: LYMELITERaol (DOT) com

CALL TO ACTION #4

from Pat , President, Lyme Disease Association, Inc. (LDA)

NEW ACTION!

1. Individuals can send the LDA statement about the new guidelines

Historic Move by CT Attorney General to Investigate IDSA Guidelines

Process to your local media with a note saying how the guidelines

have impacted you and your family if they have done so. (See gray

box on homepage www.LymeDiseaseAssociation.org )

2. Groups carry a lot of weight, so sending this statement with a

cover note from your group saying you agree with it is desirable.

UPDATE From Lyme Rights Protest Rally Group

1. Details for this protest on Nov. 30 can be found at,

www.Lymenews.org. The site is changing periodically so please

continue to check it for updates.

2. The Lyme Rights Group is looking for people who are interested in

doing interviews at this protest. Contact them if you are attending

the protest and the IDSA guidelines have adversely affected you as

follows:

Were you recently denied treatment based on negative laboratory

testing, and subsequently clinically or lab retested positive?

- Has your treatment been cut off by your insurance company?

- Has your pharmacy refused to fill your prescription?

- Has your disability insurance been denied?

- Have your children been denied accommodations in school?

Go to www.Lymenews.org and submit a brief summary of your situation

with your phone number so they can call you to discuss your story in

more detail.

ONGOING ACTIONS!

1. Continue to get signers onto the LDA petition. We have over

16,000, keep it up! All signatures must be entered online to be

accepted. If you are entering someone's signature, they must have

first physically signed a hard copy which you then send to LDA for

its files with a note that you have entered it online already. We

will not enter any un-entered names that are mailed to us, we do not

have the staff to do that unfortunately.

www.lymediseaseassociation.org

2. Continue-VERY IMPORTANT STILL

Contact (phone/email) all of your FEDERAL legislators: your own US

Congressman and your two US Senators by November 30 at Washington,

DC office only . The contact should be with current legislator, NOT

any newly elected who do not take office until new year (actions may

take this session still so need support of current legislators).

Groups should contact all Congressmen within their range (area they

cover).

US Reps. & Senators DC contact information

http://www.visi.com/juan/congress/

.. Tell them how Guidelines impact you/family/friends.

.. Tell them CDC has essentially adopted the Guidelines (on their

website)

4. Those patients already impacted by new guidelines, a form was

sent out online for you to fill out. Thanks to those who have

already responded, and if you still want to respond, please email

Lymeliter@.... for the form. You must have been denied

services after Oct 2, 2006 with the Guidelines used as basis.

Keep up the actions please. Thanks!

Pat , President

Lyme Disease Association, Inc.

PO Box 1438

, NJ 08527

888-366-6611 information line

732 938-7215 fax

www.LymeDiseaseAssociation.org