hair loss

[Guest guest]

,

Do you also get small bumps on your scalp? I have them off and on, almost

like hives, but they come and go. I'm noticing them more now that my hair

is falling out. Can't figure out why it's falling out so much this time.

It's worse than it's ever been, even when I was taking considerably more

Prednisone. When I'm fixing my hair it nearly rains from my head and gets

all over everything, besides filling the comb.

I'd assumed that inflammation with AIH is mostly limited to the liver, but

I wonder if other parts of the body also become inflamed? You already know

that I have that nagging fear that I might have undiagnosed Lupus, which

incidentally, my Hepatologists are NOT going to test for. They'll just

refer me to a Rheumatologist and anyhow, I continue to test negative

despite having several of the primary symptoms for years now.

Take care,

Geri

[Guest guest]

I have really bad thyroid problems. They say my thyroid hardly produces

anything at all. It too is auto immune. I have also gotten irritable bowl

syndrom from all the meds I have taken. But if it is worth a healthy liver

I guess I have to do it.

>From: Kirk & Lori <climber@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] Hair loss

>Date: Sat, 29 May 1999 11:06:10 -0700

>

>From: Kirk & Lori <climber@...>

>

>You might want to have your thyroid checked, too. I know from experience

>hair

>loss is one of the major symptoms of thryoid problems

>

>

> L wrote:

>

> > From: L <tcarter@...>

> >

> > On Fri, 28 May 1999, Geri Spang wrote:

> > >My hair is also falling out right now but for some strange reason it

> > >doesn't show. I'm almost afraid to run a comb through it. A few

>months

> > >ago we had white ceramic tile laid on the bathroom floor. If I'd

>realized

> > >that every hair would show on it, I'd never have done it. But, I've

>gone

> > >through the fallout thing before and it grew back beautifully so I'm

> > >assuming it's going to come back again, At least I don't have bald

>spots.

> >

> > A quick comment on the hair loss - when I have a lupus flare, the first

> > sign I usually have is hair loss, all over, and lots of it.

>Fortunately,

> > I have extremely thick hair, so most people don't notice, and I've never

> > actually had any bald spots.

> >

> > Anyway..... I asked the rheum about it and his take on the hair loss is

> > that the hair follicles are also affected by inflammation, hence they

>get

> > damaged and fall out. I'm assuming this would also apply to AIH.

> >

> > L. tlcarter@...

> > ville (near Knoxville), Tennessee, USA

> > " We are the music makers, and we are the dreamers of dreams. "

> >

> > ------------------------------------------------------------------------

> > Having difficulty getting " in synch " with list members?

> >

> > Try ONElist's Shared Calendar to organize events, meetings and more!

> > ------------------------------------------------------------------------

> > Please support the American Liver Foundation!

> >

> > 1.) To subscribe send e-mail to -subscribeonelist

> > 2.) To UNsubscribe send to -unsubscribeonelist

> > 3.) Digest e-mail format send to -digestonelist

> > 4.) Normal e-mail format send to -normalonelist

>

>

>------------------------------------------------------------------------

>ONElist: bringing the world together.

>

>Join a new list today!

>------------------------------------------------------------------------

>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

_______________________________________________________________

Get Free Email and Do More On The Web. Visit http://www.msn.com

[Guest guest]

You might want to have your thyroid checked, too. I know from experience hair

loss is one of the major symptoms of thryoid problems

L wrote:

> From: L <tcarter@...>

>

> On Fri, 28 May 1999, Geri Spang wrote:

> >My hair is also falling out right now but for some strange reason it

> >doesn't show. I'm almost afraid to run a comb through it. A few months

> >ago we had white ceramic tile laid on the bathroom floor. If I'd realized

> >that every hair would show on it, I'd never have done it. But, I've gone

> >through the fallout thing before and it grew back beautifully so I'm

> >assuming it's going to come back again, At least I don't have bald spots.

>

> A quick comment on the hair loss - when I have a lupus flare, the first

> sign I usually have is hair loss, all over, and lots of it. Fortunately,

> I have extremely thick hair, so most people don't notice, and I've never

> actually had any bald spots.

>

> Anyway..... I asked the rheum about it and his take on the hair loss is

> that the hair follicles are also affected by inflammation, hence they get

> damaged and fall out. I'm assuming this would also apply to AIH.

>

> L. tlcarter@...

> ville (near Knoxville), Tennessee, USA

> " We are the music makers, and we are the dreamers of dreams. "

>

> ------------------------------------------------------------------------

> Having difficulty getting " in synch " with list members?

>

> Try ONElist's Shared Calendar to organize events, meetings and more!

> ------------------------------------------------------------------------

> Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

[Guest guest]

Lori,

My Hepatologist has never mentioned the possibility of thyroid problems to

me but an Endocrinologist did test me for it a couple of months ago. She

said I'm okay. I know that thyroid problems do go with liver problems - or

is it that they go with Prednisone therapy? Aren't there some other

significant symptoms, like skin changes? I don't know much about it. I

imagine that just because someone tests okay one day doesn't mean that

nothing will develop later.

Take care,

Geri

[Guest guest]

On Sat, 29 May 1999, Geri Spang wrote:

>From: Geri Spang <spangs@...>

>Do you also get small bumps on your scalp? I have them off and on, almost

>like hives, but they come and go. I'm noticing them more now that my hair

>is falling out. Can't figure out why it's falling out so much this time.

>It's worse than it's ever been, even when I was taking considerably more

>Prednisone. When I'm fixing my hair it nearly rains from my head and gets

>all over everything, besides filling the comb.

Well, the bumps could be from the pred, although for some strange reason

my " acne " got better on pred. I have switched shampoos this week in an

attempt to help my itchy, bumpy, grossly flakey, thinning head. Switched

to one of the Neutrogena shampoos for dandruff, to see if it will help.

I have another GI appt in 2 weeks and am going to tell him to go ahead and

do a biopsy, as I'm tired of my counts going up, my lupus flare getting

worse, and can't go on any meds until the liver stuff gets resolved one

way or another. He's wanting to see if weight loss has any effects on my

labs (which it hasn't) and my rheum agrees that the weight loss theory is

bull. I'm actually willing at this point to go back on pred just to feel

better, although I'm sure my family will vehemently disagree with my med

choice <g>. I'm due for a phone " appt " with my rheum the same day, so

perhaps something will get worked out.

>I'd assumed that inflammation with AIH is mostly limited to the liver, but

>I wonder if other parts of the body also become inflamed? You already know

>that I have that nagging fear that I might have undiagnosed Lupus, which

>incidentally, my Hepatologists are NOT going to test for. They'll just

>refer me to a Rheumatologist and anyhow, I continue to test negative

>despite having several of the primary symptoms for years now.

Is a sed rate (Westergreen or otherwise) a normal part of the AIH workup?

Elevated sed rate = inflammation. You might see if you can get them to

slip it in your next bloodwork if they don't normally do one.

And as a sort of support for your frustration of a lack of diagnosis - the

average time for folks with lupus to get an accurate diagnosis is 6 years!

Also, there are soooooo many autoimmune diseases and so many overlaps you

may never have an actual diagnosis but just have to get a doctor who is

willing to treat the parts and pieces, as ineffectual as that may sound.

L. tlcarter@...

ville (near Knoxville), Tennessee, USA

" We are the music makers, and we are the dreamers of dreams. "

[Guest guest]

There is an interesting article about hair loss in the

http://www.miningco.com

thyroid newsletter:

Stop Hair Loss with Thyroid Disease

Thyroid disease doesn't have to mean that you lose your hair, your hair

thins, or that your hair becomes dry, coarse and unmanageable. I just

finally slowed down my own bout with hair loss. Find out what I did,

plus other ideas to keep your hair full and healthy, despite your

thyroid problems.

http://thyroid.about.com/library/weekly/aa061099.htm

I went to Trader Joe's and got two bottles of EPO for $4 each and will

give it a go. I have some lysine too which I think it mentions.

Interestingly enough wheat is missing goodly amounts of lysine and

tryptophan. J.

[Guest guest]

Hi Lori,

I didn't know that AIH could be the source of hair loss. I've had a couple

of sessions, but each time the loss was temporary and never severe enough

so anyone could notice it but me. I assumed it was caused by Imuran

because I'd read that it does cause loss. I haven't had a problem with

acne but maybe I'm just so old acne doesn't bother to torment me. I didn't

have acne problems when I was a teen either, so I suppose that could mean

something - I don't know what.

I just recently went through a bout of hair loss. I was afraid to run my

fingers through my hair when I washed it. It happened when I'd already

been in remission for months and my Prednisone dosage had been down to

under 10 mgs. for awhile. However, I've been on 50 mgs. of Imuran for a

year and a half. I still can't figure out what made it happen, but no

matter. It's stopped now and is growing back thicker than ever, which is

great. I have never had a thick head of hair so I need all the help I can get.

Geri

[Guest guest]

Ana, thanks for this info. I'd really like to know whether you are also

taking thyroid medication, or are you relying on natural remedies for your

thyroid problem? - Sharon

>hi- just wanted to share what really helped me. I had really horrible hair

>loss before I got diagnosed and my hair wasn't super thick to begin with so

>I panicked and did tons of research and experimenting with different viamins

>and herbs and this is what ended up working the best for me: a good

>multivitamin/mineral supplement, extra B vitamins, and the most important

>liquid silica, or colloidal silica, or horsetail herb. Then I also used (and

>still use) the nioxin line of hair care products. Since then my hair has

>totally grown back thicker and longer than ever, except after I had surgery

>I noticed it start to fall out again a little but then it was fine. Also,

>if I start to slack off on taking my vites and stuff after a couple weeks

>I'll notice more hair on my brush and pillow. But as long as I keep up this

>regimen, it stays great. Anyway, best of luck and it will get better! Mine

>got so fine that you could actually see little patches of scalp and I had to

>dab mascara on the scalp so you couldn't tell, and like I said its really

>thick and healthy now so there is definitely hope!--ana

>

[Guest guest]

Suzi: i had thinning on top only and it never came back till now!! 3 years

later i have cancer & have just finished my treatments & my hair is comming

back thicker on top! this is not the way to go thou! i don't think it would

of ever came back . Mog

[Guest guest]

I am also experiancing hair loss last month

and I have candida. It started after I was not very

strict on the diat because I have lost a lot of

weight. I have lost my period too so I am wondering

that this is in my case because of the hormonal

inbalance at the moment.

3 years ago when the symptomes of candida infection

arrived I have also notices loosing hair and lost of

other common candida infection symptoms like CSF,

brain fog, concentration problems etc

I would also like to hear some more informations on

this topic.

Thanks for help

Ana

I dont know how to stop it

--- Suzi McCullagh <sooze444@...> wrote:

> Greetings to everyone

>

> Just wondered if any women on the list have

> experienced hair loss attributed to candida - and if

> so have they had success in reversing the problem? I

> think MSM has been mentioned as an aid in this

> situation - is there anything else?

>

> I have had various blood tests for thyroid, hormone

> inbalance etc but they haven't shown any problems.

> I'm

> wondering if candida could be the cause as I have

> other symptoms (IBS, fatigue, skin rashes etc).

>

> Any suggestions would be most gratefully received.

>

> Thanks

>

> Suzi

>

>

_______________________________________________________________

>

[Guest guest]

I am going through the same thing...all the tests for thyroid etc. it showed

nothing. That is when I decided to try and build my immune system and get

rid of the yeasties to get my hair back.

Lately, I am getting some tiny little hairs coming on top and am thrilled. I

don't want to jinx it. What I have been doing lately is my new product

called Advanced Greens and the past three days Spirulina.

moons

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.273 / Virus Database: 143 - Release Date: 8/16/2001

[Guest guest]

Suzi, If your thyroid is in the LOW NORMAL range you

could be having many of the symptoms from low thyroid.

I was put on a small dose and it helped me out so greatly.

Also my progesterone was low. This causes hair to fall

out also. Using Natural progesterone cream called Pro-Gest

is very good. Look for a book written by Dr. Lee.

" What your doctor may not tell you about premenapause "

This book targets PMS symptoms too. It is a condition

called " Estrogen Dominance " and you feel like hell.

LIZ D

Hair loss

Greetings to everyone

Just wondered if any women on the list have

experienced hair loss attributed to candida - and if

so have they had success in reversing the problem? I

think MSM has been mentioned as an aid in this

situation - is there anything else?

I have had various blood tests for thyroid, hormone

inbalance etc but they haven't shown any problems. I'm

wondering if candida could be the cause as I have

other symptoms (IBS, fatigue, skin rashes etc).

Any suggestions would be most gratefully received.

Thanks

Suzi

_______________________________________________________________

--- rabbitbrain@...

--- EarthLink: It's your Internet.

[Guest guest]

I have tried several things to normalize my hormones and I am beginning to

think that is not my problem. I figured I am just not absorbing the

nutrients from my food...that is why I am trying spirulina, etc. green

foods...maybe that will help. I know the MSM helps keep it from falling out.

moons

>

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.273 / Virus Database: 143 - Release Date: 8/16/2001

[Guest guest]

Cyndi,

I noticed within the first week or so...but I am not saying that it made my

hair grow back in...I know the MSM is keeping it from falling as much, but

my nails are really snapping back!. I noticed part of my problem is I am

allergic to many shampoos. I am using a shampoo I buy from Sally Beauty...it

is the generic of Nioxin...and I add a little jojoba oil it. With many

people MSM completely helped the problem...and like Ruth said silica...that

didn't help so much.

moons

>

> Hi Moons,

> I saw your post on MSM and falling hair. How long and how much did you

take

> before you noticed a difference. I have a BIG problem with my hair

falling

> out (not patches but all over my head).

> Cyndi

>

>

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.273 / Virus Database: 143 - Release Date: 8/16/2001

[Guest guest]

In a message dated 11/27/01 5:44:50 PM Pacific Standard Time, tdcc2000@... writes:

HELP! I need some info here. The past few days, my hair is falling out and I am wondering if it could be the prednisone. I don't want to call the doctor yet....thought I would ask all of you first.

debby

Most of us find that we lose some hair when we begin Prednisone. Usually the loss stops or reverses itself later on.

Harper

[Guest guest]

Debby,

Yes the prednisone causes your hair to fall out. I have long hair and when I had my transplant after my hair fell out in clumps really scared me I like hair. Another drug I took they were watching to see if I would lose my hearing. My hearing is going very low. These are just a few of the side effects you learn to live with. Cheer up your hair will stop falling out once your body changes with the drugs.

gayle trans/6-99 ^oo^

galye@...

[Guest guest]

I have been on this stuff for 4 months now and just now am beginning to lose more hair...I give up! Annoying isn't it!!!!!

debby

Re: [ ] Hair loss

In a message dated 11/27/01 5:44:50 PM Pacific Standard Time, tdcc2000@... writes:

HELP! I need some info here. The past few days, my hair is falling out and I am wondering if it could be the prednisone. I don't want to call the doctor yet....thought I would ask all of you first. debby Most of us find that we lose some hair when we begin Prednisone. Usually the loss stops or reverses itself later on. Harper

[Guest guest]

I read that Imuran can cause that, but since you quit

taking it maybe it is some type of withdrawal symptom?

Wish I knew more for you.

Bethanne

__________________________________________________

[Guest guest]

You can count me in on hair loss. Mine is due to Imuran, at first I lost almost all my body hair except for the few I have on my head (thank god!) :-) I lost almost everything from my eyebrows to my toes! It was nice not having to shave my face for about a month. After a few months I started getting most of my hair back, but I'm still missing it in some places.

-Clyde

[ ] hair loss

hi I've had hair loss for about 3-4 yrs now. I thinkits a combination of the meds and the disease itself.My daughter has juvenile rheumatoid arthritis, whichis considered an autoimmune dis. and her dr. told usthat it does cause hair loss. Thank God we have a lotof hair and new hair does keep growing. It isembarrassing when i go to my hair stylist though. Dontdespair! Judy/pens. fl.__________________________________________________

[Guest guest]

Shireen,

I have a question for you. Since you have COPD. Have you been tested with the lung function tests? My last test is now 48% lung function. What is yours? And what is your treatment plan?

gayle/trans.6-99

galye@... bmb

[Guest guest]

Hi Gayle,

My COPD has advanced to pulmonary hypertension. Though I have been

prescribed combivent and pulmacort metered dose inhalers, they dont have

much effect. I take norvasc for the pulmonary hypertension and use a cpap

at night with oxygen. I have had all the lung test, but dont know the

numbers.

Shireen

>From: galye@...

>Reply-

>

>Subject: Re: [ ] hair loss

>Date: Tue, 12 Feb 2002 01:48:52 EST

>

>Shireen,

>I have a question for you. Since you have COPD. Have you been tested with

>the

>lung function tests? My last test is now 48% lung function. What is yours?

>And what is your treatment plan?

>

>gayle/trans.6-99

>galye@... bmb

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Shireen, I had a hair loss one time, lasted about three months. I freaked

out every time I washed my hair, it came out in clumps. I am one of those

people who naturally has 4x as much hair as the ave person so it was not

noticeable. In general aside from that one episode I found prednisone to

make my hair huge & thick & healthy. I don't know what happened that one

time.

Hang in there hopefiully yours will be temporary also.

Patty

[ ] hair loss

Have any of you not on prednisone find you are losing your hair?

Shireen

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

[Guest guest]

If anybody who has hair loss is on progestogens to control menstrual

difficulties, or the birth control pill or so-called hormone replacement

therapy, it's the progestogen (which is in fact structurally more like

testosterone than bodily progesterone) which causes both patchy hair and hair

thinning and loss of scalp hair.

These synthetic steroids only " replace " natural hormones in that they

suppress the production of bodily progesterone which is also needed for the

adrenal gland where the body's natural steroids, estrogen, testosterone and

natural corticosteroids are produced.

The synthetic steroids also deplete the body of vitamins and minerals, as

well as a whole raft of other possible symptoms dependent on the individual

reaction to them.

[Guest guest]

I was diagnosed with hypothyroidism and started taking Synthroid on

July 24th of this year. After about one week of taking the medication

my hair has been falling out. My doctor says it is because of my

condition not the drug. Can anyone help me? Will my hair grow back?

Did your hair fall out before? I actually got worse taking the synthroid. I

need a T-3/T-4 combo. Jules

[Guest guest]

Yeah it is caused by your condition! But proper medical care will treat

the problem--enough T3 and T4. My hair was falling out and it's not now

(on Armour).

Gracia

> I was diagnosed with hypothyroidism and started taking Synthroid on

> July 24th of this year. After about one week of taking the medication

> my hair has been falling out. My doctor says it is because of my

> condition not the drug. Can anyone help me? Will my hair grow back?

>

>