Guest guest Posted July 14, 2007 Report Share Posted July 14, 2007 Dear Nil I certainly do Regards R Re: Fw: Sensory overload > > >> Dear Nil >> Sensory overload precedes exhaustion and is magnified by it in my case. >> Regards >> R > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 THis is the way I was 12 to 15 years ago. The phone rining would also cause BODY pain increase. I turned all the phone ringers off and relied on the computer based phone answering system to take msgs. I was so sensitive that in walking outside, the different densities of air could be detected. This followed the sudden onset with extreme fatigue, pain, cognitive dysfuntion. mjh Posted by: " zonaanbidster tot en met " _zonaanbidster@... _ (mailto:zonaanbidster@...?Subject= Re:Fw:%20Sensory%20overload) _esmerande _ (esmerande) Sun Jul 15, 2007 1:54 am (PST) Off Course Nil! Very known be me. But I have to say, it was more in my past, much more. In the past I was on that level of yours, even worse. Felt like I have to throw up, totally dizzy, feeling exhausted and feeling like dying if there was too long noice. Same for the light, but the noice made me really ill. I also was not able to watch tv for a few minuts, became completely ill from watching and hearin. If I tried it was without the speaker!!!!! Telephone, it was not possible. And the ring made me feel like it was at least 100 times so loud. When people spoke to me, no more than 10 minuts and even then I was very ill. A ticking clock was so loud etc etc. Was not able to sit behind a computer at all. Soon I was not able to go on street, because of all noices. For the light I wore sunglasses for years, also insite. In the evening I did not put on lamps much, just 1. But I also was not able to read later, in a normal book. During the night was the same, even with earplugs, I woke up su much if the tyniest noice. One day a doctor told me, it happens a lot with ME patients, it is close to epileptic forms. Too much sensors. He prescibed me an anti-epileptica for nights and it dml I was treated for bacteria etc.. Now I do not have that overload anymore, only when I am very tired. But it was really not liveble! No it is such a relieve.... greetings!!!g ************************************** Get a sneak peak of the all-new AOL at http://discover.aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Than this definitely is different than my case and it is an important differance.Are there any others who had important sensory overload symptoms starting before exhaustion? R Do you have Lyme? best wishes. Nil Re: Fw: Sensory overload > Dear Nil > I certainly do > Regards > R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Dear Nil I first became ill after a tick bite, I tested Lyme positive in 1992. Regards R Re: Fw: Sensory overload > > >> Dear Nil >> I certainly do >> Regards >> R > > > > > This list is intended for patients to share personal experiences with each > other, not to give medical advice. If you are interested in any treatment > discussed here, please consult your doctor. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2007 Report Share Posted July 15, 2007 Off Course Nil! Very known be me. But I have to say, it was more in my past, much more. In the past I was on that level of yours, even worse. Felt like I have to throw up, totally dizzy, feeling exhausted and feeling like dying if there was too long noice. Same for the light, but the noice made me really ill. I also was not able to watch tv for a few minuts, became completely ill from watching and hearin. If I tried it was without the speaker!!!!! Telephone, it was not possible. And the ring made me feel like it was at least 100 times so loud. When people spoke to me, no more than 10 minuts and even then I was very ill. A ticking clock was so loud etc etc. Was not able to sit behind a computer at all. Soon I was not able to go on street, because of all noices. For the light I wore sunglasses for years, also insite. In the evening I did not put on lamps much, just 1. But I also was not able to read later, in a normal book. During the night was the same, even with earplugs, I woke up su much if the tyniest noice. One day a doctor told me, it happens a lot with ME patients, it is close to epileptic forms. Too much sensors. He prescibed me an anti-epileptica for nights and it dml I was treated for bacteria etc.. Now I do not have that overload anymore, only when I am very tired. But it was really not liveble! No it is such a relieve.... greetings!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 I wrote some tools that help me w/sensory overload to Amy backchannel, becasue I'm not sure how to fit into the " new treatment " rule. But one thing I will post here. The last time I got glasses, I found out that with the diagnosis of photosensitivity...or phototobia??, I qualified to get glasses with special treatment that turns them darker in bright lights. Including inside and florescent lights. And the sunglasses that are wide on the sides of the eyes, with a little window in them... have really helped me in the bright sun. Without shutting out all periphial vision. I think they are experimenting with different things in glasses, for people with brain abnormalities Different tints and things. So, we could watch for that, try them and report here. What Amy is talking about is very common for ME/CFS. The advances in brain science can sometimes help us, even if it is not directed to CFIDS specifically. Meaning the kind that does not lean toward the Psychological as being the main problem (and solution.) That gets kind of mixed up with the Neurological these days, so you have to pay attention to the focus and intent. Katrina > > ps to add to my last sensory overload post > > I also cannot watch any tv. a movie is also no fun, as I get a > headache from the effort to process it and cannot remember the plot or > characters. > > I cannot even follow the news or weather, this is not just cognitive > but sensory. > > I am a musician and can still enjoy listening to music but it is also > overload and hard to recall even what I hear or following the > structure of it. > > I also cannot have a conversation wiht background music on in a > restaurant or wiht lots of talking in the background. > > I also can have alot of trouble shopping in grocery store aisles,or > walmart this is visual sensory overload, lighting? and inability to > make a decision, and visual /spatial/locational. > > are there any successful treatments or strategies for these? amy > > amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2007 Report Share Posted July 17, 2007 One of the model for Sensory overload is that it is an indicator of acquired brain trauma (typically ascribed to infections that have made it to the brain). This presents a double challenge: A) the blood-brain barrier may results in the infection being in the brain but not in the blood (see http://en.wikipedia.org/wiki/Blood-brain_barrier for more information about the barrier). The infections would typically have crossed at a time in the past that the barrier was ineffectual. There is little material on aggressive treatment, most of the literature is on surviving or support for it, with 'letting nature take it course'. I did toss out recently a spice that may be of assistance, " the spice 'Brahmi rasayana' you read that it helps cognitive items (see http://tinyurl.com/2twyce) " Which you find is use in Ayurveda medicine. It can be obtained from places such as: http://www.ayurveda-herbs.com/15b.htm On this case, there's a study [ http://tinyurl.com/2twyce ] that has demonstrated it has some potential benefits. Interestingly, it has NOT EVER been raised on this list prior. > > ps to add to my last sensory overload post > > I also cannot watch any tv. a movie is also no fun, as I get a > headache from the effort to process it and cannot remember the plot or > characters. > > I cannot even follow the news or weather, this is not just cognitive > but sensory. > > I am a musician and can still enjoy listening to music but it is also > overload and hard to recall even what I hear or following the > structure of it. > > I also cannot have a conversation wiht background music on in a > restaurant or wiht lots of talking in the background. > > I also can have alot of trouble shopping in grocery store aisles,or > walmart this is visual sensory overload, lighting? and inability to > make a decision, and visual /spatial/locational. > > are there any successful treatments or strategies for these? amy > > amy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 I would like to point out that this product is a compound of herbs, and there is no reason to suppose that each manufacturer compounds it in the same proportions, so that we are faced with the necessity of discovering which brand the testers used, or testing different brands ourselves. On the other hand, I have learned that this compound is one of the mainstays of Ayurvedic medicine, so, really all that testing has been done over time, in a sense. Adrienne Re: Sensory overload One of the model for Sensory overload is that it is an indicator of acquired brain trauma (typically ascribed to infections that have made it to the brain). This presents a double challenge: A) the blood-brain barrier may results in the infection being in the brain but not in the blood (see http://en.wikipedia.org/wiki/Blood-brain_barrier for more information about the barrier). The infections would typically have crossed at a time in the past that the barrier was ineffectual. There is little material on aggressive treatment, most of the literature is on surviving or support for it, with 'letting nature take it course'. I did toss out recently a spice that may be of assistance, " the spice 'Brahmi rasayana' you read that it helps cognitive items (see http://tinyurl.com/2twyce) " Which you find is use in Ayurveda medicine. It can be obtained from places such as: http://www.ayurveda-herbs.com/15b.htm On this case, there's a study [ http://tinyurl.com/2twyce ] that has demonstrated it has some potential benefits. Interestingly, it has NOT EVER been raised on this list prior. > > ps to add to my last sensory overload post > > I also cannot watch any tv. a movie is also no fun, as I get a > headache from the effort to process it and cannot remember the plot or > characters. > > I cannot even follow the news or weather, this is not just cognitive > but sensory. > > I am a musician and can still enjoy listening to music but it is also > overload and hard to recall even what I hear or following the > structure of it. > > I also cannot have a conversation wiht background music on in a > restaurant or wiht lots of talking in the background. > > I also can have alot of trouble shopping in grocery store aisles,or > walmart this is visual sensory overload, lighting? and inability to > make a decision, and visual /spatial/locational. > > are there any successful treatments or strategies for these? amy > > amy > This list is intended for patients to share personal experiences with each other, not to give medical advice. If you are interested in any treatment discussed here, please consult your doctor. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Possible problems with applicability of this study: 1) the study was on mice 2) the dose was 100 and 200 mg/kg - for a 150 lb person this would be doses of 6.8 or 13.6 *grams* per day. 3) Scopalamine was used to induce the condition to simulate memory problems, which may or may not have anything to do with our issues. On 7/17/07, Ken <ken.lassesen@...> wrote: > > I did toss out recently a spice that may be of assistance, > > " the spice 'Brahmi rasayana' you read that it helps cognitive items > (see http://tinyurl.com/2twyce) " > > Which you find is use in Ayurveda medicine. It can be obtained from > places such as: > http://www.ayurveda-herbs.com/15b.htm > > On this case, there's a study [ http://tinyurl.com/2twyce ] that has > demonstrated it has some potential benefits. Interestingly, it has > NOT EVER been raised on this list prior. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2007 Report Share Posted August 7, 2007 Yes, I've had CFS since 1994, and the sensory overload with sounds started about 10 years later in 2004, with lights bothering me more since 2006. Having an overload means that I as well can't stand to watch TV (haven't for years unless with family, and then I have to leave the room after 2 rounds of commercials), or go to clubs/bars/busy restaurants. Even loud laughter and lively conversation I steer clear from. Sorry to say even the sounds of kids being silly affects me on my bad days Sorry you have to go through this too. I've heard that sometimes on a detox protocol people can become especially sensitive to stimuli. I'm not sure if this is true for everyone, but worth considering. Best, Nik > > > > Hi all > > > > I have severe sensory overload problem.Actually it is so much in these > > days that I am afraid of going crazy.Fan of my PC,sound of the laundry > > washer,telephone rings bother me. Can not watch TV much. Can not make > > telephone conversations for more than 15-20 minutes.(I start to be > > bothered at 5th minute but can handle it up to 15 minutes. After 15 to 20 > > minutes I collapse.) Can not stay in the same room with others for more > > than 30 minutes.I need total darkness at about 60 percent of my awaken > > time. Slightest light beam stops me from sleeping and makes me extremely > > bothered. My question will be to the ones who have this problem at this > > level. How many years it took you to come to this level after the start > > of the illness? Mine took 11 years. During the first 11 year I was > > bothered by noise and light more than normal people do but it did not > > affect my daily life much.Also what was your functionality level when you > > reached that state. Mine was about 10-20 percent.Do you also have feeling > > of brain swelling? > > Thank you. > > > > Nil > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2011 Report Share Posted March 26, 2011 I have had this feeling on LDN too, in the beginning. I am no an expert, but I would think it might have to do with the body adjusting to the increase, and change in the endorphins. When the hightened sensitivity went away, it was most likely the body adjusting to these new levels. Quote Link to comment Share on other sites More sharing options...
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