Guest guest Posted December 24, 1999 Report Share Posted December 24, 1999 what was the result of the dulfican IV. Did it relieve your symptoms? LOL STEVE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 1999 Report Share Posted December 24, 1999 The Diflucan was strictly for the fungus and I would have to say it did take away symptoms assuming that the fungus was causing my headaches because I have not had a bad headache since. What I was wondering is if I have to worry about regrowth. I dont think the fungus was causing the spasms, I think the spasms are a different problem entirely, just a guess here but maybe some of the MS symptoms Dr Nicholson talks about??? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 1999 Report Share Posted December 27, 1999 Muscle spasms have a lot of possible causes. But, in ME the one thing I'd tend to first suspect, after also discussing this with my doc, is magnesium deficiency/metabolism disorder, which doesn't usually show up on a routine serum magnesium test. There is the rbc mag test and also a cellular test, not covered by most insurances, at Intracellular labs (or is it " Spectracel " ) in california. But since mag is safe unless you have compromised renal function, just adding a mag supplement, slowly, to bowel tolerance (don't let it give you diarrhea) and see if it helps after a short bit. Though there has been much discussion about the best oral form, a leading mag researcher now uses mag oxide, though some swear by mag chloride, mag citrate, and mag glycinate. I've taken them all and now find the mag-ox fine, though I have to supplement with IM mag also. Judith Wisdom > here but maybe some of the MS symptoms Dr Nicholson talks about??? > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Dear , I have been having problems with muscle spasms and joint pain in my neck, shoulders, and upper back for 5-6 years now. Sometimes the spasms are so bad just taking a breath can set one off. Usually they are not that bad, but it has been a problem. I tested positive for rheumatoid arthritis, but apparently many people with HCV have false positives. My GI insisted I see a rheumatologist, and sure enough, I did not have it, but X-rays showed inflammatory arthritis. I take Celebrex on a fairly regular basis. I often find myself having to take muscle relaxers too. I prefer Norflex because they don't make me too sleepy. My new PCP also had me start taking amitriptalyn, which is for chronic pain. (It's also an antidepressant) She thought I might be taking too much tylenol. I also spent almost 6 months in physical therapy. It helped with everything but my neck. I don't know what to do about that. Sometimes it feels like the vertebrae there are just burning! I have come to believe that this is somehow related to the HCV. I read somewhere that 87% of people with HCV complain of spinal pain. That's an awful high percentage to just be coincidence. I joined a gym and try to keep those upper body muscles in shape the best I can. It helps. Good luck, Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Dear , I have been having problems with muscle spasms and joint pain in my neck, shoulders, and upper back for 5-6 years now. Sometimes the spasms are so bad just taking a breath can set one off. Usually they are not that bad, but it has been a problem. I tested positive for rheumatoid arthritis, but apparently many people with HCV have false positives. My GI insisted I see a rheumatologist, and sure enough, I did not have it, but X-rays showed inflammatory arthritis. I take Celebrex on a fairly regular basis. I often find myself having to take muscle relaxers too. I prefer Norflex because they don't make me too sleepy. My new PCP also had me start taking amitriptalyn, which is for chronic pain. (It's also an antidepressant) She thought I might be taking too much tylenol. I also spent almost 6 months in physical therapy. It helped with everything but my neck. I don't know what to do about that. Sometimes it feels like the vertebrae there are just burning! I have come to believe that this is somehow related to the HCV. I read somewhere that 87% of people with HCV complain of spinal pain. That's an awful high percentage to just be coincidence. I joined a gym and try to keep those upper body muscles in shape the best I can. It helps. Good luck, Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Dear , I have been having problems with muscle spasms and joint pain in my neck, shoulders, and upper back for 5-6 years now. Sometimes the spasms are so bad just taking a breath can set one off. Usually they are not that bad, but it has been a problem. I tested positive for rheumatoid arthritis, but apparently many people with HCV have false positives. My GI insisted I see a rheumatologist, and sure enough, I did not have it, but X-rays showed inflammatory arthritis. I take Celebrex on a fairly regular basis. I often find myself having to take muscle relaxers too. I prefer Norflex because they don't make me too sleepy. My new PCP also had me start taking amitriptalyn, which is for chronic pain. (It's also an antidepressant) She thought I might be taking too much tylenol. I also spent almost 6 months in physical therapy. It helped with everything but my neck. I don't know what to do about that. Sometimes it feels like the vertebrae there are just burning! I have come to believe that this is somehow related to the HCV. I read somewhere that 87% of people with HCV complain of spinal pain. That's an awful high percentage to just be coincidence. I joined a gym and try to keep those upper body muscles in shape the best I can. It helps. Good luck, Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2000 Report Share Posted February 6, 2000 Dear , I have been having problems with muscle spasms and joint pain in my neck, shoulders, and upper back for 5-6 years now. Sometimes the spasms are so bad just taking a breath can set one off. Usually they are not that bad, but it has been a problem. I tested positive for rheumatoid arthritis, but apparently many people with HCV have false positives. My GI insisted I see a rheumatologist, and sure enough, I did not have it, but X-rays showed inflammatory arthritis. I take Celebrex on a fairly regular basis. I often find myself having to take muscle relaxers too. I prefer Norflex because they don't make me too sleepy. My new PCP also had me start taking amitriptalyn, which is for chronic pain. (It's also an antidepressant) She thought I might be taking too much tylenol. I also spent almost 6 months in physical therapy. It helped with everything but my neck. I don't know what to do about that. Sometimes it feels like the vertebrae there are just burning! I have come to believe that this is somehow related to the HCV. I read somewhere that 87% of people with HCV complain of spinal pain. That's an awful high percentage to just be coincidence. I joined a gym and try to keep those upper body muscles in shape the best I can. It helps. Good luck, Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Hi , Are you on Interferon , for that may cause muscle pains. Or else electrolyte imbalance in Cirrhosis can also be one of the cause .. You must eat a protein rich diet with adequate calories and electrolytes. And do not push yourself hard. Cirrhosis does produce fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Hi , Are you on Interferon , for that may cause muscle pains. Or else electrolyte imbalance in Cirrhosis can also be one of the cause .. You must eat a protein rich diet with adequate calories and electrolytes. And do not push yourself hard. Cirrhosis does produce fatigue. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Hi Doc, I am not on any treatment, because of low platelet count. I have cut back on my protein because of the cirrhosis. I will start to substitute other types of protein and see if that helps. Thanks for being here, Sue suejacks@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 Hi Doc, I am not on any treatment, because of low platelet count. I have cut back on my protein because of the cirrhosis. I will start to substitute other types of protein and see if that helps. Thanks for being here, Sue suejacks@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Veg proteins to the tune of 0.5-0.75 g / kg( 2.2 lb) body wt is permitted in Cirrhosis. Dr SCM re:muscle spasms > Hi Doc, > I am not on any treatment, because of low platelet count. I have cut back > on my protein because of the cirrhosis. > I will start to substitute other types of protein and see if that helps. > Thanks for being here, > Sue > suejacks@... > > > > ---------------------------------------------------------------------- ---------- > > > > ---------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2000 Report Share Posted April 19, 2000 Veg proteins to the tune of 0.5-0.75 g / kg( 2.2 lb) body wt is permitted in Cirrhosis. Dr SCM re:muscle spasms > Hi Doc, > I am not on any treatment, because of low platelet count. I have cut back > on my protein because of the cirrhosis. > I will start to substitute other types of protein and see if that helps. > Thanks for being here, > Sue > suejacks@... > > > > ---------------------------------------------------------------------- ---------- > > > > ---------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 That happens to me sometimes. It definitely seems to be related to heavy lifting. Usually it's my quad that goes. Sometimes a tricep. It's mildly annoying, and sort of entertaining. Kind of like having the hiccups. I never worried about it. Although, I did consider charging co-workers a quarter to see it. muscle spasms Okay, I've been sitting here at work for over an hour and my right shoulder will not stop spasming. It's driving me nuts! I've never had this before. Little eye twitches, sure. But never a shoulder. I can look down at it and see it moving under my shirt. I did upper body on Monday, so I wouldn't think it has anything to do with my workouts. Any one have any ideas?? Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2002 Report Share Posted August 29, 2002 Not too worried about it either, but it is annoying! I did have a very heavy upper body workout on Monday. Thought I was gonna die! Maybe my shoulder is just realizing now how much I tormented it. I was planning on doing a lighter upper workout this afternoon. Maybe that will knock the spasms out of it. Marci > That happens to me sometimes. It definitely seems to be related to heavy > lifting. Usually it's my quad that goes. Sometimes a tricep. It's mildly > annoying, and sort of entertaining. Kind of like having the hiccups. I never > worried about it. Although, I did consider charging co-workers a quarter to see > it. > > > > > muscle spasms > > > Okay, I've been sitting here at work for over an hour and my right > shoulder will not stop spasming. It's driving me nuts! I've never > had this before. Little eye twitches, sure. But never a shoulder. > I can look down at it and see it moving under my shirt. I did upper > body on Monday, so I wouldn't think it has anything to do with my > workouts. Any one have any ideas?? > > Marci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Kay, sorry to hear that you are experiencing more muscular spasms. I find that the higher the pain level the higher the muscle spasms. I take Flexeril (cyclobenzaprine). If I don't take it I can a tremendous increase in spasms. I have also found that taking Klonopin 0.5 mg at least once a day also reduces the spasms and reduces my anxiety about them and the pain. There is always a period of adjustment. If you have difficulty taking such medications on an as needed basis, you may try taking them on a daily basis and see if the side-effects decrease as your body adjusts to their continued presence. I now take the cyclobenzaprine 3 times a day with a double dose on the third time before bedtime. I was taking the Klonopin on an as needed basis, without any significant difficulties. I hope that is what will happen now that I will be taking Klonopin again beginning tomorrow. Good luck, Kay. I do understand. Ray Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 My spasms and cramps seem to lessen when I am sure to get the right amount of minerals for me. It's different for each person. Since we are stressed all of the time with an autoimmune disease, we probably need more than our all knowing government says that we need. I suggest you experiment with it. When my hand cramps were their worst, I read that large doses of B-6 are often helpful. I found that time released B-6 was best and I used 400 whatever the measurement is(mg., I think) a day--way past what is the 'recommended' amount.. I'd say that you are going to have to do some experiemtning to see what works best for you. I have to be sure to get enough calcium.. I went to one of those mall bone density testing things recently. The woman there said until me she'd never heard of anyone on more than 1500mg of calcium per day. My doc in GA recommended to me 10 years ago that I take 2 grams a day--not to even count the calcium I eat in the 2 grams--that's purely supplementation. She also told me that calcium in the diet is poorly absorbed. BUT I also know that I have to eat dairy products rich in calcium in addtion to the supplements. I have found that only certain brands of calcium work for me--my body likes the cheap stuff --the expensive name brand stuff hasn't worked for me. Good luck in your pursuit of relief. I hope I said something that might help you. It's difficult enough to get the groceries, etc. when we are well, but doing it and fighting pain and contoritons from spasms makes it a fight. After the groceries run we deserve to eat out, don't we, fellow cooks? GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 Herring wrote: > After the groceries run we deserve to eat out, don't we, fellow cooks? > > GA > Couldn't agree with you more, better yet - skip the grocery run!!! G -- kjg@... Canberra, ACT Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 Marcy..... I was thinking of you just last night.....wondering where you have been.. Other than what you just reported are you all right? You haven't posted in a while.. I was getting a little worried. Let me see if I can research this condition for you. I hear from my mom's TV downstairs that the war may have begun and W is going to speak in a half hour so I'm getting off to see whats what before it is over. love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 When my hubby had liver disease he used to cramp up all the time. Ask your doc for potassium pills. Otherwise, it could be gout in your toes which then causes the muscles to spasm. Hope this helps. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 I also complained about muscle spasms. With blood work we found I was low in potassium. One pill a day and I'm no longer bothered. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hmmm...I'm 32, with SMA 2, and in the past few years, I have had occasional bouts of muscle twitching, usually in the middle of the night. I wouldn't describe it as painful, but it makes it virtually impossible to sleep. I find that getting really warm seems to help. If I can eventually fall asleep, it always is gone when I awaken. I never had this when I was younger, so it is new to me, also. Bethany In a message dated 3/9/2006 9:18:41 PM Eastern Standard Time, tarheelmom55@... writes: My son (21 - SMA Type 2) has started experiencing muscle spasms in his neck and and shoulder area - only one side. This usually happens late in the evening after being on the computer most of the day. It makes his head twitch/jerk and becomes painful after a while. I wondered if anyone else has had this problem, how long did it last and what did you do for it. If this issue has been dealt with before and I missed it, just e-mail me. Thanks - Cheryl --------------------------------- Bring photos to life! New PhotoMail makes sharing a breeze. [Non-text portions of this message have been removed] A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Hi, I have bouts of twitching toes/fingers, sometime my abdominal muscles tighten and release for several minutes when I am lying down. It's annoying but not painful. I do get painful toe crossing sensation during the night and that hurts!! I'm curious how many of you experience mild tremors/shaking when you are doing anything stressful or fatiguing? I really notice after I have been on the phone for a while that my hand will shake. Take care Bye for now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Not me, sorry. Angie 41-SMA II On Thursday 09 March 2006 21:16, Cheryl Pruitt wrote: > My son (21 - SMA Type 2) has started experiencing muscle spasms in his neck > and and shoulder area - only one side. This usually happens late in the > evening after being on the computer most of the day. It makes his head > twitch/jerk and becomes painful after a while. I wondered if anyone else > has had this problem, how long did it last and what did you do for it. If > this issue has been dealt with before and I missed it, just e-mail me. > Thanks - Cheryl > > --------------------------------- > > Bring photos to life! New PhotoMail makes sharing a breeze. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Cheryl, The pain your son is having sounds similar to repetitive stress injuries caused by too much time doing whatever. I have shoulder and neck pain from being at the computer too long, and I get spasms in my lower back. Here's a resource for people with disabilities and ergonomics: http://humanics-es.com/recc-disabled.htm Alana > > My son (21 - SMA Type 2) has started experiencing muscle spasms in his neck and and shoulder area - only one side. This usually happens late in the evening after being on the computer most of the day. It makes his head twitch/jerk and becomes painful after a while. I wondered if anyone else has had this problem, how long did it last and what did you do for it. If this issue has been dealt with before and I missed it, just e-mail me. Thanks - Cheryl > > --------------------------------- > > Bring photos to life! New PhotoMail makes sharing a breeze. > > Quote Link to comment Share on other sites More sharing options...
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