Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 > My son (21 - SMA Type 2) has started experiencing muscle spasms in > his neck and and shoulder area - only one side. This usually happens > late in the evening after being on the computer most of the day. is he a member here? -- Stride, Mercy Ltd. stride@... ICQ# : 29358721 AOL-IM : BardsDirge http://mercy-limited.com " Creative minds always have been known to survive any kind of bad training. " -- Freud Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 I would like to know why I don't get these spasms? I am type II, fairly petite, boney arms and legs yet no neuro pain or spasms. I do get tired and very weak when I overdo repetitive tasks, but I sit still for a bit (say ten to thirty seconds and go again). Just curious? Angie On Friday 10 March 2006 21:29, Alana wrote: > Cheryl, > > The pain your son is having sounds similar to repetitive stress > injuries caused by too much time doing whatever. I have shoulder and > neck pain from being at the computer too long, and I get spasms in my > lower back. Here's a resource for people with disabilities and > ergonomics: http://humanics-es.com/recc-disabled.htm > > Alana > > > > My son (21 - SMA Type 2) has started experiencing muscle spasms in > > his neck and and shoulder area - only one side. This usually happens > late in the evening after being on the computer most of the day. It > makes his head twitch/jerk and becomes painful after a while. I > wondered if anyone else has had this problem, how long did it last and > what did you do for it. If this issue has been dealt with before and I > missed it, just e-mail me. Thanks - Cheryl > > > --------------------------------- > > > > Bring photos to life! New PhotoMail makes sharing a breeze. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 I think you have the perfect form of sma. L Angie wrote: > I would like to know why I don't get these spasms? I am type II, fairly > petite, boney arms and legs yet no neuro pain or spasms. I do get > tired and > very weak when I overdo repetitive tasks, but I sit still for a bit > (say ten > to thirty seconds and go again). Just curious? > > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 I had a doctor once tell me that twitches (not spasms) where a sign of neurons branching out and trying to make new connections to the muscles. > > My son (21 - SMA Type 2) has started experiencing muscle spasms in his neck and and shoulder area - only one side. This usually happens late in the evening after being on the computer most of the day. It makes his head twitch/jerk and becomes painful after a while. I wondered if anyone else has had this problem, how long did it last and what did you do for it. If this issue has been dealt with before and I missed it, just e-mail me. Thanks - Cheryl > > --------------------------------- > > Bring photos to life! New PhotoMail makes sharing a breeze. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 Suzie, Sorry to hear your having problems. I hope someone will have a suggestion that will help! Take care, SheilaSuzie <suzieq32069@...> wrote: Greetings all~ I have a question and am unsure if anyone will have any ideas or suggestions that I haven't thought of or tried as of yet.... Last night I had terrible muscle spasms in my neck and throughout my entire back, it was so bad that I was unable to roll over or get out of bed unassisted. I have trouble with spasms in my "bad" foot and leg on a fairly regular basis but never in the neck and back. The medications that I take are Zanaflex 3 X per day, Trazadone at bedtime, Klonapin at bedtime....I also take Calcium, Magnesium and Vitamin D, Potassium. I have tried heat and tiger Balm patches, and even eat a banana before bed and had no success!! Any suggestions?! Thanks! Suzie Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2007 Report Share Posted September 7, 2007 The only thing that I can think of to suggest is to keep a journal so that you can get a better idea of what the cause of the spasms might be (maybe overtired, stress, weather, etc.). You might want to speak with your pharmacist to see if the medications are causing a side effect, especially in combination with what you are eating or taking in supplements. Otherwise, you might want to check for another underlying cause or condition. I have a condition related to Restless Leg Syndrome, that I have to take an epileptic medication. The rest of the time, I do some deep breathing, relaxation techniques to try and calm my body. It's hard to do when you are in the middle of a big spasm, but it helps reduce the strength of the spasm. It has helped my brother, who has cerebral palsy, when he gets them during his exercise therapy. Good luck in finding some sort of solution to this. Llweyn From: [mailto: ] On Behalf Of Suzie Sent: September 6, 2007 9:14 PM Subject: [ ] muscle spasms Greetings all~ I have a question and am unsure if anyone will have any ideas or suggestions that I haven't thought of or tried as of yet.... Last night I had terrible muscle spasms in my neck and throughout my entire back, it was so bad that I was unable to roll over or get out of bed unassisted. I have trouble with spasms in my "bad" foot and leg on a fairly regular basis but never in the neck and back. The medications that I take are Zanaflex 3 X per day, Trazadone at bedtime, Klonapin at bedtime....I also take Calcium, Magnesium and Vitamin D, Potassium. I have tried heat and tiger Balm patches, and even eat a banana before bed and had no success!! Any suggestions?! Thanks! Suzie Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2008 Report Share Posted April 10, 2008 > > Bee, > > On your list of candida symptoms you mention muscle probelms. What sort of problems do you mean? > ==>, muscles problems vary from person to person. Some people have muscle aches and pain called fibromyalgia, which is caused by toxins. Muscle spasms and twitches are mainly caused by a lack of calcium or an imbalance in calcium and magnesium; start with equal amounts as I recommend. Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Craig... Are you taking any magnesium and potassium? Muscle spams are a classic symptom of magnesium and potassium defficiency: http://www.nutros.com/nsr-02003.html http://web.mit.edu/london/www/magnesium.html A few easily absorable forms of magnesium are Magnesium Glycinate, magnesium aspartate and magnesium taurate. If you need to increase your potassium levels, NOW has a powdered potassium chloride that you can add to liquids and easily bump up your levels without swallowing 20 tablets. Lorie > > Greetings, > > During the past few days, I have been having muscle spasms which run up > and down my spine, into hips and up into neck area. Also increased > anxiety. I am taking 6mg of Valium a day (I am not changing this level > until I get the hypothyroid under control...besides I have dropped from > an equivalent level of 120mgs Valium/day to where I am now). > > Now these spasms are not new, I have had them for many years, off and > on. They come on almost like a migraine (which I don't get)...can be > triggered by bright lights, bright sun flashing between buildings, etc. > > Yesterday afternoon, I decided to take an additional Iodoral (I am > taking 12.5mg 4 x day) because they have been calming...and the spasms > didn't take off. That was nice. > > At 6:00am today, I woke with them starting up again, so I took an > Iodoral and within 45 minutes they had quieted down and I went back to > sleep. Took another Iodoral at 9:30am and then another at 1:00pm...and > they are still not taking off...can feel them in a potential state, so > to speak, but not going anywhere. > > Additionally, I am experiencing many aches, joints in particular...I > understand this is a common symptom with hypothyroid. > > Finally, my question: It seems I need to be moving my dose up toward > the 100mg/day range. I am not having any other detox symptoms and am > still not taking any desicatted thyroid or adrenal. > > Stepanie, I haven't called Dr Meletis yet...will do tomorrow, end of > last week was weirdly frantic. > > Regards, > > Craig > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Graig What you have is the results of a Magnesium deficiency. Magnesium citrate is the best way to go (cost effective). Chelated magnesium is expensive and Magnesium oxide while containing much magnesium the body will absorb only 4% of it. How much to take? Doctor Carolyn Dean recommends 3 to 4.5 mg/lb say about 600 to 900 mg/day for a 200 lb person. http://www.drcarolyndean.com/articles_the_magnesium_miracle.html A. Muscle spasms Greetings, During the past few days, I have been having muscle spasms which run up and down my spine, into hips and up into neck area. Also increased anxiety. I am taking 6mg of Valium a day (I am not changing this level until I get the hypothyroid under control...besides I have dropped from an equivalent level of 120mgs Valium/day to where I am now). Now these spasms are not new, I have had them for many years, off and on. They come on almost like a migraine (which I don't get)...can be triggered by bright lights, bright sun flashing between buildings, etc. Yesterday afternoon, I decided to take an additional Iodoral (I am taking 12.5mg 4 x day) because they have been calming...and the spasms didn't take off. That was nice. At 6:00am today, I woke with them starting up again, so I took an Iodoral and within 45 minutes they had quieted down and I went back to sleep. Took another Iodoral at 9:30am and then another at 1:00pm...and they are still not taking off...can feel them in a potential state, so to speak, but not going anywhere. Additionally, I am experiencing many aches, joints in particular...I understand this is a common symptom with hypothyroid. Finally, my question: It seems I need to be moving my dose up toward the 100mg/day range. I am not having any other detox symptoms and am still not taking any desicatted thyroid or adrenal. Stepanie, I haven't called Dr Meletis yet...will do tomorrow, end of last week was weirdly frantic. Regards, Craig Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi Lorie, Yes, I am taking mag & potassium...these are not the same kind of spasm, say like a leg cramp, different...kind of hard to describe. Thanks for the thought...It is just strange that additional Iodoral stops them...don't you think? Regards, Craig > <http://www.eset.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi , I get close to that amount. Maybe I need more, eh. I will increase the dosage and see what happens...thanks to both you and Lorie. Regards, Craig Thehermit wrote: Graig What you have is the results of a Magnesium deficiency. Magnesium citrate is the best way to go (cost effective). Chelated magnesium is expensive and Magnesium oxide while containing much magnesium the body will absorb only 4% of it. How much to take? Doctor Carolyn Dean recommends 3 to 4.5 mg/lb say about 600 to 900 mg/day for a 200 lb person. http://www.drcarolyndean.com/articles_the_magnesium_miracle.html <http://www.drcarolyndean.com/articles_the_magnesium_miracle.html> A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Sounds like you are having some good effects. Maybe the spasms are due to low magnesium and potassium. Good luck with Dr. M Steph Muscle spasms > Greetings, > > During the past few days, I have been having muscle spasms which run up > and down my spine, into hips and up into neck area. Also increased > anxiety. I am taking 6mg of Valium a day (I am not changing this level > until I get the hypothyroid under control...besides I have dropped from > an equivalent level of 120mgs Valium/day to where I am now). > > Now these spasms are not new, I have had them for many years, off and > on. They come on almost like a migraine (which I don't get)...can be > triggered by bright lights, bright sun flashing between buildings, etc. > > Yesterday afternoon, I decided to take an additional Iodoral (I am > taking 12.5mg 4 x day) because they have been calming...and the spasms > didn't take off. That was nice. > > At 6:00am today, I woke with them starting up again, so I took an > Iodoral and within 45 minutes they had quieted down and I went back to > sleep. Took another Iodoral at 9:30am and then another at 1:00pm...and > they are still not taking off...can feel them in a potential state, so > to speak, but not going anywhere. > > Additionally, I am experiencing many aches, joints in particular...I > understand this is a common symptom with hypothyroid. > > Finally, my question: It seems I need to be moving my dose up toward > the 100mg/day range. I am not having any other detox symptoms and am > still not taking any desicatted thyroid or adrenal. > > Stepanie, I haven't called Dr Meletis yet...will do tomorrow, end of > last week was weirdly frantic. > > Regards, > > Craig > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Have you tried taking some Celtic salt? Steph Re: Re: Muscle spasms > Hi Lorie, > > Yes, I am taking mag & potassium...these are not the same kind of spasm, > say like a leg cramp, different...kind of hard to describe. > > Thanks for the thought...It is just strange that additional Iodoral > stops them...don't you think? > > Regards, > > Craig > > >> <http://www.eset.com> > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi , I am taking Real Salt and have been for a long time...I am a salt person. I have ordered the Celtic Salt. Regards, Craig ladybugsandbees wrote: > > Have you tried taking some Celtic salt? > > Steph > > - > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 A week or so ago I had muscle spasms and didn't think of low potassium or magnesium as the cause because I've been taking them daily. Why would I have had the spasms for several days? I didn't have them before starting Iodine and magnesium and potassium, why now? Or more accurately, last week? Vj From: ladybugsandbees <ladybugsandbees@...>Subject: Re: Muscle spasmsiodine Date: Monday, September 1, 2008, 7:09 PM Sounds like you are having some good effects. Maybe the spasms are due to low magnesium and potassium.Good luck with Dr. MSteph Muscle spasms> Greetings,>> During the past few days, I have been having muscle spasms which run up> and down my spine, into hips and up into neck area. Also increased> anxiety. I am taking 6mg of Valium a day (I am not changing this level> until I get the hypothyroid under control...besides I have dropped from> an equivalent level of 120mgs Valium/day to where I am now).>> Now these spasms are not new, I have had them for many years, off and> on. They come on almost like a migraine (which I don't get)...can be> triggered by bright lights, bright sun flashing between buildings, etc.>> Yesterday afternoon, I decided to take an additional Iodoral (I am> taking 12.5mg 4 x day) because they have been calming...and the spasms> didn't take off. That was nice.>> At 6:00am today, I woke with them starting up again, so I took an> Iodoral and within 45 minutes they had quieted down and I went back to> sleep. Took another Iodoral at 9:30am and then another at 1:00pm...and> they are still not taking off...can feel them in a potential state, so> to speak, but not going anywhere.>> Additionally, I am experiencing many aches, joints in particular.. .I> understand this is a common symptom with hypothyroid.>> Finally, my question: It seems I need to be moving my dose up toward> the 100mg/day range. I am not having any other detox symptoms and am> still not taking any desicatted thyroid or adrenal.>> Stepanie, I haven't called Dr Meletis yet...will do tomorrow, end of> last week was weirdly frantic.>> Regards,>> Craig>> ------------ --------- --------- ------>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Ok, just a thought. Re: Re: Muscle spasms > Hi , > > I am taking Real Salt and have been for a long time...I am a salt > person. I have ordered the Celtic Salt. > > Regards, > > Craig > > ladybugsandbees wrote: >> >> Have you tried taking some Celtic salt? >> >> Steph >> >> - >> >> > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi , The thoughts always be welcome:) I haven't had a bit of spasms today, taking more Iodoral, though. I think I have come up with a better description for what I experience: Think of an accupuncturist putting needles where the muscles are at every intersection with your vertabrae (sp?) and then having them just light up in spasm...but only there (plus the neck and extending to the hips). No other muscles are involved in this...no arms, no leg, etc. FWIW Thanks, Craig ladybugsandbees wrote: > > Ok, just a thought. > > Re: Re: Muscle spasms > > > Hi , > > > > I am taking Real Salt and have been for a long time...I am a salt > > person. I have ordered the Celtic Salt. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Have you tried Chiropractic? Re: Re: Muscle spasms >> >> > Hi , >> > >> > I am taking Real Salt and have been for a long time...I am a salt >> > person. I have ordered the Celtic Salt. >> > >> >> > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Hi , Oh yes, got a really great lady and another who does my accupuncture...I would have been in terrible shape all of my life if it hadn't been for chiropractors. She has set me up with a tens unit to help when this happens, but I would like it to not happen, so I have being stubborn a bit these past few days to see if I could pin it down. I am going to increase my mag/pot and see if it helps. And I will be seeing her on Wed and Fri...she also does cranial-sacro and that is helpful. So, just to be clear...are you Steph or ...I don't like to be presumptuous. Thanks for the thoughts, Craig ladybugsandbees wrote: > > Have you tried Chiropractic? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Vj,This is my theory - I think that taking Iodine increases our need for other nutrients - it uncovers borderline deficiencies because metabolism improves, so we are using stuff up more quickly, and detoxification is increased which increases the need for synergistic nutrients -- these things make other nutrient requirements higher ... Also here is another significant thing if you are doing salt loading - I found that increasing my salt intake demanded I increase my potassium and magnesium intake to balance it. I know when I start feeling unquenchable thirst (even though I'm drinking plenty of water and peeing a ton), or get a headache, or a calf cramp on waking (which first happened after I began more salt) - I need to increase not just my potassium, but magnesium as well since they work synergistically ... This has been a huge discovery for me! The salt is helping but I have to make sure I stay balanced ... Marlena>> A week or so ago I had muscle spasms and didn't think of low potassium or magnesium as the cause because I've been taking them daily. Why would I have had the spasms for several days? I didn't have them before starting Iodine and magnesium and potassium, why now? Or more accurately, last week?>  > Vj> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Thanks Marlena. You've articulated this well, and it makes sense. I'd be interested to know what Steph thinks, too. Vj From: marlenaappletree <marlenaappletree@...>Subject: Re: Muscle spasmsiodine Date: Monday, September 1, 2008, 8:36 PM Vj, This is my theory - I think that taking Iodine increases our need for other nutrients - it uncovers borderline deficiencies because metabolism improves, so we are using stuff up more quickly, and detoxification is increased which increases the need for synergistic nutrients -- these things make other nutrient requirements higher ... Also here is another significant thing if you are doing salt loading - I found that increasing my salt intake demanded I increase my potassium and magnesium intake to balance it. I know when I start feeling unquenchable thirst (even though I'm drinking plenty of water and peeing a ton), or get a headache, or a calf cramp on waking (which first happened after I began more salt) - I need to increase not just my potassium, but magnesium as well since they work synergistically ... This has been a huge discovery for me! The salt is helping but I have to make sure I stay balanced ... Marlena >> A week or so ago I had muscle spasms and didn't think of low potassium or magnesium as the cause because I've been taking them daily. Why would I have had the spasms for several days? I didn't have them before starting Iodine and magnesium and potassium, why now? Or more accurately, last week?> > Vj> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Great - my dad was a chiropractor so I was raised that way. I am either - Steph or works for me. Re: Re: Muscle spasms > Hi , > > Oh yes, got a really great lady and another who does my accupuncture...I > would have been in terrible shape all of my life if it hadn't been for > chiropractors. > > She has set me up with a tens unit to help when this happens, but I > would like it to not happen, so I have being stubborn a bit these past > few days to see if I could pin it down. I am going to increase my > mag/pot and see if it helps. And I will be seeing her on Wed and > Fri...she also does cranial-sacro and that is helpful. > > So, just to be clear...are you Steph or ...I don't like to be > presumptuous. > > Thanks for the thoughts, > > Craig > > ladybugsandbees wrote: >> >> Have you tried Chiropractic? >> >> > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 I have noticed some of the same things. I have needed more iron since increasing my iodine as my ferritin levels have dropped. I haven't been taking my buffered C powder (Mg, K, C & Vit C) and don't feel as good so I will be going back to that. Not sure if that is a problem in the reason why but I will try it and see. Steph Re: Muscle spasmsiodine Date: Monday, September 1, 2008, 8:36 PM Vj, This is my theory - I think that taking Iodine increases our need for other nutrients - it uncovers borderline deficiencies because metabolism improves, so we are using stuff up more quickly, and detoxification is increased which increases the need for synergistic nutrients -- these things make other nutrient requirements higher ... Also here is another significant thing if you are doing salt loading - I found that increasing my salt intake demanded I increase my potassium and magnesium intake to balance it. I know when I start feeling unquenchable thirst (even though I'm drinking plenty of water and peeing a ton), or get a headache, or a calf cramp on waking (which first happened after I began more salt) - I need to increase not just my potassium, but magnesium as well since they work synergistically ... This has been a huge discovery for me! The salt is helping but I have to make sure I stay balanced ... Marlena >> A week or so ago I had muscle spasms and didn't think of low potassium or magnesium as the cause because I've been taking them daily. Why would I have had the spasms for several days? I didn't have them before starting Iodine and magnesium and potassium, why now? Or more accurately, last week?> > Vj> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Vit. C is needed for iron absorption. Orange juice really makes a difference for me. G Murray ladybugsandbees wrote: > > I have noticed some of the same things. I have needed more iron since > increasing my iodine as my ferritin levels have dropped. I haven't > been taking my buffered C powder (Mg, K, C & Vit C) and don't feel as > good so I will be going back to that. Not sure if that is a problem > in the reason why but I will try it and see. > > Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2008 Report Share Posted September 1, 2008 Did that - we added B6. Need to retest again. Steph Re: Re: Muscle spasms > Vit. C is needed for iron absorption. Orange juice really makes a > difference for me. > > > G Murray > > ladybugsandbees wrote: >> >> I have noticed some of the same things. I have needed more iron since >> increasing my iodine as my ferritin levels have dropped. I haven't >> been taking my buffered C powder (Mg, K, C & Vit C) and don't feel as >> good so I will be going back to that. Not sure if that is a problem >> in the reason why but I will try it and see. >> >> Steph > > ------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
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