FDA Approval

[Guest guest]

You said that "It cost pennies now and the increase would be minimal." You are either very naive or you are connected to the drug companies. Dr Skips example, I have forgotten the name of the drug, was a very old drug that was very cheap, the FDA offered a drug company to trial the drug and they would have an exclusive on it. The price went up something like 1000 times, hardly minimal.SterlingFrom: Pat O'Mara <nypatandgeorge@...>Subject: RE: [low dose naltrexone] FDA approvalbicyclenutmail-ldn@...Date: Thursday, March 10, 2011, 4:04 AM

So what if the FDA approves it for lower doses and the price goes up... isn't FDA approval what everyone is fighting for? Isn't this the reason doctors won't prescribe it? Don't we all want this available to every patient who needs it? It would be the BEST thing to happen! It cost pennies now and the increase would be minimal. It would be nice to see it on the news as the best thing in 50 years and it would hurt companies who make lousy expensive drugs that don't work and make patients sick. Millions could benefit!low dose naltrexone From: bicyclenutmail-ldn@...Date: Wed, 9 Mar 2011 22:43:15 -0800Subject: [low dose naltrexone] FDA approval

I too am concerned that FDA approval will mean higher prices for LDN. Are we cutting our own throat by promoting LDN? I hate to think that. However, Dr Skips example and other similar examples, it looks like LDN might just be ours and nobody else. What an awful position.Sterling

[Guest guest]

When a drug company does a trial they spend lots of money and they want the return. A search of offshore chemical synthesizers that supply the active

ingredients found in drugs approved by the FDA. for you edification:Celebrex 100 mg

Consumer price (100 tablets): $130.27

Cost of general active ingredients: $0.60

Percent markup: 21,712%

Claritin 10 mg

Consumer Price (100 tablets): $215.17

Cost of general active ingredients: $0.71

Percent markup: 30,306%

Keflex 250 mg

Consumer Price (100 tablets): $157.39

Cost of general active ingredients: $1.88

Percent markup: 8,372%

Lipitor 20 mg

Consumer Price (100 tablets): $272.37

Cost of general active ingredients: $5.80

Percent markup: 4,696%This is just a partial list, the actual cost of drugs is the minimal part, what we will pay will be lots more. My wife has Crohn's and the doctor prescribed Entocort, $800.00 per month and it did not work as well as LDN. I do not know if the FDA will approve a drug without a drug company on board, I doubt it. If you have evidence to the contrary please let me know. I would love for others to benefit from LDN.SterlingFrom: Pat O'Mara <nypatandgeorge@...>Subject: RE: [low dose naltrexone] FDA approvalbicyclenutmail-ldn@...Date: Thursday, March 10, 2011, 4:04 AM

So what if the FDA approves it for lower doses and the price goes up... isn't FDA approval what everyone is fighting for? Isn't this the reason doctors won't prescribe it? Don't we all want this available to every patient who needs it? It would be the BEST thing to happen! It cost pennies now and the increase would be minimal. It would be nice to see it on the news as the best thing in 50 years and it would hurt companies who make lousy expensive drugs that don't work and make patients sick. Millions could benefit!low dose naltrexone From: bicyclenutmail-ldn@...Date: Wed, 9 Mar 2011 22:43:15 -0800Subject: [low dose naltrexone] FDA approval

I too am concerned that FDA approval will mean higher prices for LDN. Are we cutting our own throat by promoting LDN? I hate to think that. However, Dr Skips example and other similar examples, it looks like LDN might just be ours and nobody else. What an awful position.Sterling

[Guest guest]

My late husband was a pharmacist and we had our own drug store until 1970. He said, that some drugs, such as thyroid medications were so dirt cheap that if a pharmacist didn't use a much larger than usual mark-up, people wouldn't believe they were a worthwhile drug and wouldn't take them.

My present husband has Idiopathic Pulmonary Fibrosis. Our new doctor prescribed 1.5 mg of LDN for him, along with adding T3 to his T4 thyroid medication. He's only taken 5 LDN and 5 of the new compounded thyroid medication and he's at least 25% improved! At age 76, he played two jazz church services on Sunday and then played with a swing band from 2-5 and was exhausted when he got home. However, on Monday he spend 8 hrs away from home with 11/2 hrs driving and the remainder carpet cleaning. Yesterday he cleaned carpets in two homes. He was NOT exhausted on Monday or Tuesday. So whether it's the LDN or the new thyroid medication or the combination, he's doing better each day. According to his pulmonologist, he should be dead by now.

Annette

[Guest guest]

Very well said Bev! I can’t think of anyone I don’t know who doesn’t know someone who could benefit from using LDN. This attitude is intolerable. May I suggest that for those who feel this strongly about not having this drug trialled so it can be available as a front line option treatment by the medical profession to ALL, kindly email Dr Zagon, Dr McCandless, Professor Jill , Dr Gluck, Dr Jarred Younger, Dr Gironi, Dr Bruce Cree, and ask them WHY they are pursuing down this line? You might actually learn something!! Jayne Crocker www.LDNNow.comImportant! Please sign our LDN petition to the European Parliament by clicking heretel: +44 (0) 7877 492 669Dr Steele MBE, talking about LDNLDNNow are a political/pressure group of individuals dedicated to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the myriad of uses it shows benefit for. . From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Bev KeanSent: 11 March 2011 01:46oldglory@...; low dose naltrexone Subject: RE: [low dose naltrexone] FDA approval I`m sorry but I`m a little horrified at this kind of attitude. When I go with my husband to his neuro appointments once a year, we sit in the waiting room and I could cry when I see the state some people are in. I know they all have MS. Some cant talk anymore, most cant walk without aid. Am I supposed to sit there and think that these people dont deserve to know about LDN because they didnt find it yet? Or dont use a computer? I don`t think we have any right to try to keep this " our little secret " , that would be a horrible selfish attitude.I would not have found out about LDN 7 years ago had someone not " paid it forward' and put their findings on the internet. Then maybe my husband would be one of those poor people in the waiting room instead of a man who still works each day.Be low dose naltrexone From: oldglory@...Date: Thu, 10 Mar 2011 15:31:29 -0600Subject: [low dose naltrexone] FDA approval Hi,I agree. Trialing would be right down their alley. You would not be able to afford it, nor find doctors to prescribe it. Leave It ALONE! It belongs to the people and once you give it up, it won’t come back around. We don’t want their approval!!!!! JeanFrom: <bicyclenutmail-ldn@...>Reply-<bicyclenutmail-ldn@...>Date: Thu, 10 Mar 2011 06:51:54 -0800 (PST)Pat O'Mara <nypatandgeorge@...>, <low dose naltrexone >Subject: RE: [low dose naltrexone] FDA approvalYou said that " It cost pennies now and the increase would be minimal. " You are either very naive or you are connected to the drug companies. Dr Skips example, I have forgotten the name of the drug, was a very old drug that was very cheap, the FDA offered a drug company to trial the drug and they would have an exclusive on it. The price went up something like 1000 times, hardly minimal.SterlingFrom: Pat O'Mara <nypatandgeorge@...>Subject: RE: [low dose naltrexone] FDA approvalbicyclenutmail-ldn@...Date: Thursday, March 10, 2011, 4:04 AMSo what if the FDA approves it for lower doses and the price goes up... isn't FDA approval what everyone is fighting for? Isn't this the reason doctors won't prescribe it? Don't we all want this available to every patient who needs it? It would be the BEST thing to happen! It cost pennies now and the increase would be minimal. It would be nice to see it on the news as the best thing in 50 years and it would hurt companies who make lousy expensive drugs that don't work and make patients sick. Millions could benefit!low dose naltrexone From: bicyclenutmail-ldn@...Date: Wed, 9 Mar 2011 22:43:15 -0800Subject: [low dose naltrexone] FDA approval I too am concerned that FDA approval will mean higher prices for LDN. Are we cutting our own throat by promoting LDN? I hate to think that. However, Dr Skips example and other similar examples, it looks like LDN might just be ours and nobody else. What an awful position.Sterling

[Guest guest]

Once Naltrexone is approved in Low Doses for one particular illness, Drs will readily approve prescribing it for other conditions. Jayne Crocker www.LDNNow.comImportant! Please sign our LDN petition to the European Parliament by clicking heretel: +44 (0) 7877 492 669Dr Steele MBE, talking about LDNLDNNow are a political/pressure group of individuals dedicated to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the myriad of uses it shows benefit for. . From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of gash_okSent: 11 March 2011 02:26low dose naltrexone Subject: [low dose naltrexone] Re: FDA Approval he FDA does not approve drugs generically, but for specific conditions. Naltrexone is approved for opiate and alcohol dependency at specified dosages (starting at 12.5 or 25 mg and increasing to 50 mg daily). Using naltrexone in low dosages for any other condition is not FDA approved, thus the need for doctors to prescribe it " off label. " For LDN to be approved, it would have to go through regorous studies for each condition seeking approval. Each study could easily cost hundreds of thousands of dollars. A drug company would not sponsor a study unless the FDA could ensure it of the ability to make a huge return on the cost. The trade-off for FDA approval would be an extremely high cost for the approved form. One of the main reasons that I got interested in LDN is the high cost of the approved drugs for MS. My insurance sucks, and I barely have too much income to qualify for prescription assistance, so I am stuck with paying the extremely high cost of approved drugs. If LDN was to get FDA approval, it would end up costing more than $1000 per month, and I would be forced to go without it. So, I am against any effort to get FDA approval. If it ain't broke, don't fix it.--Greg>> LDN is an FDA approved drug.> > We should work on seeing LDN in a Low dose be studied for MS.> > Larry>

[Guest guest]

----- Jayne, what I will never understand in a million years is why people don't support the work of these Dr's by drumming up donations one way or another, and as far as Zagon goes, he would use any monies for a specified disease, I have mentioned this before but got nowhere, we have decent researchers who don't want to make a big buck, indeed Zagon uses a lot of his own money for research, all that is holding him back, and probably others, is money....If everyone on these lists sent a couple of pounds/dollars, what a difference that would make......

Celia

May I suggest that for those who feel this strongly about not having this drug trialled so it can be available as a front line option treatment by the medical profession to ALL, kindly email Dr Zagon, Dr McCandless, Professor Jill , Dr Gluck, Dr Jarred Younger, Dr Gironi, Dr Bruce Cree, and ask them WHY they are pursuing down this line?

You might actually learn something!!

Jayne Crocker

[Guest guest]

Naltrexone is already approved and lots of drugs are prescribed off label. Should a drug company get exclusive rights to naltrexone in a low dose form I will not be able to afford it. There are lots of examples of exactly that. Doctors need to be educated by us and not by the drug companies.SterlingFrom: Pat O'Mara <nypatandgeorge@...>Subject: RE: [low dose naltrexone] FDA approvalbicyclenutmail-ldn@...Date: Thursday, March 10,

2011, 4:04 AMSo what if the FDA approves it for lower doses and the price goes up... isn't FDA approval what everyone is fighting for? Isn't this the reason doctors won't prescribe it? Don't we all want this available to every patient who needs it? It would be the BEST thing to happen! It cost pennies now and the increase would be minimal. It would be nice to see it on the news as the best thing in 50 years and it would hurt companies who make lousy expensive drugs that don't work and make patients sick. Millions could benefit!low dose naltrexone From: bicyclenutmail-ldn@...Date: Wed, 9 Mar 2011 22:43:15 -0800Subject: [low dose naltrexone] FDA approval I too am concerned that FDA approval will mean higher prices for LDN. Are we cutting our own throat by promoting LDN? I hate to think that. However, Dr Skips example and other similar examples, it looks like LDN might just be ours and nobody else. What an awful position.Sterling

[Guest guest]

I know, Jayne, that your heart is in the right place and I too know people who would benefit from LDN but the cost will be prohibitive. So lots of those people who would benefit from LDN will not be able to afford it. I have no answer to this problem but I need LDN and so does my wife and if the price is much higher than it is (my cost is about 20 cents per day) I will not be able to get it.SterlingFrom: jaynelcrocker <jaynelcrocker@...>Subject: RE: [low dose naltrexone] Re: FDA Approvallow dose naltrexone Date: Friday, March 11, 2011, 3:31 AM

Once Naltrexone is approved in Low Doses for one particular illness, Drs will readily approve prescribing it for other conditions. Jayne Crocker www.LDNNow.comImportant! Please sign our LDN petition to the European Parliament by clicking heretel: +44 (0) 7877 492 669Dr Steele MBE, talking about LDNLDNNow are a political/pressure group of individuals dedicated to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the myriad of uses it shows benefit for. . From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of gash_okSent: 11 March 2011 02:26low dose naltrexone Subject: [low dose naltrexone] Re: FDA Approval he FDA does not approve drugs generically, but for specific conditions. Naltrexone is approved for opiate and alcohol dependency at specified dosages (starting at 12.5 or 25 mg and increasing to 50 mg daily). Using naltrexone in low dosages for any other condition is not FDA approved, thus the need for doctors to prescribe it "off label." For LDN to be approved, it would have to go through regorous studies for each condition seeking approval. Each study could easily cost hundreds of thousands of dollars. A drug company would not sponsor a study unless the FDA could ensure it of the ability to make a huge return on the cost. The trade-off for FDA approval would be an extremely high cost for the approved form. One of the main reasons that I got interested in LDN is the high cost of the approved drugs

for MS. My insurance sucks, and I barely have too much income to qualify for prescription assistance, so I am stuck with paying the extremely high cost of approved drugs. If LDN was to get FDA approval, it would end up costing more than $1000 per month, and I would be forced to go without it. So, I am against any effort to get FDA approval. If it ain't broke, don't fix it.--Greg>> LDN is an FDA approved drug.> > We should work on seeing LDN in a Low dose be studied for MS.> > Larry>

[Guest guest]

Well, as I said in my post on this subject, anytime one of us expresses

concerns about the FACT that LDN will no longer be affordable we get this

condemnation from others on this list with absolutely no acknowledgement of

our concerns. I say that this holier than thou attitude and unwillingness

to understand our concerns is itself a problem.

I have no desire to continue this back and forth so count me out. We've

already heard your point of view and we've already heard the point of view

of those of us who would be excluded from LDN if it becomes expensive.

--

>Very well said Bev! I can't think of anyone I don't know who doesn't know

>someone who could benefit from using LDN. This attitude is intolerable.

>

>May I suggest that for those who feel this strongly about not having this

>drug trialled so it can be available as a front line option treatment by

>the medical profession to ALL, kindly email Dr Zagon, Dr McCandless,

>Professor Jill , Dr Gluck, Dr Jarred Younger, Dr Gironi, Dr

>Bruce Cree, and ask them WHY they are pursuing down this line?

>

>You might actually learn something!!

>

>Jayne Crocker

>LDNNow logo the one to use

>

>

>www.LDNNow.com

><http://www.ipetitions.com/petition/ldnnow/>Important! Please sign our

>LDN petition to the European Parliament by clicking here

>tel: +44 (0) 7877 492 669

><

Steele MBE, talking

>about LDN

>LDNNow are a political/pressure group of individuals dedicated to getting

>Low Dose Naltrexone (LDN) accepted into modern me

>

>

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

I talked aobut this with my doctor this past week. He said that it is

frustrating - he knows a lot about ldn, said it is approved and used for

many conditions in Europe, and hopes it will be here. He thinks it is a

good drug. But, he works within a group of doctors who are very

conservative and set certain standards. They will not, cannot prescribe

off label on anything that it is at all controversial. Some have done

it with not very controversial drugs that have an established track

record of safety and effectiveness, and still have been fired, had to go

elsewhere. This is fact. So, while it is legal to prescribe things off

label, it is heavily censured by the medical community in general -

except for a few things that have been used successfully for long enough

to be tolerated, if not openly acknowledged. But many clinics/medical

practice groups or communities - the medical practitioners within a

community do " police " each other to some extent even when they are not

employed by the same organizations - do have very strict standards on

this matter. I would not assume your doctor is just lazy or lying if he

says he can't write this prescription. Sara

[Guest guest]

On Fri, 11 Mar 2011 06:30:09 -0500, jaynelcrocker

<jaynelcrocker@...> wrote:

> Very well said Bev! I can't think of anyone I don't know who doesn't

> know someone who could benefit from using LDN. This attitude is

> intolerable.

>

> May I suggest that for those who feel this strongly about not having this

> drug trialled so it can be available as a front line option treatment by

> the medical profession to ALL, kindly email Dr Zagon, Dr McCandless,

> Professor Jill , Dr Gluck, Dr Jarred Younger, Dr Gironi, Dr

> Bruce Cree, and ask them WHY they are pursuing down this line?

I find it a very realistic, even compassionate attitude.

A few of you seem to be missing the point that LDN would become

phenomenally, prohibitively expensive if it WERE LDN approved for one or

more specific conditions.

Not maybe it will. It will. There are thousands of examples from which to

choose to prove it.

I fail to see how that's making a drug available for " all. " It's doing

exactly the opposite -- and all those illustrious doctors surely know that.

n

[Guest guest]

I sent this to Jayne, and the group but must have been misplaced.

I am one of those who does not want LDN to be approved by the US FDA. Let me point out what happened to 4 aminopyridine when .Ampyra was approved. We sell 4-ap 10mg for less than 40 dollars per month. Ampyra as of just a few minutes ago was wholesaling for over 1000 dollars for a month's supply. Same drug different delivery system. Our stuff you have to take three times a day, their stuff you take twice a day. So for 960 dollars you have the luxury of reducing your dose by one per day. Now, we have dispensed this for over 10 years now. Not once did I ever have anyone complain that they were inconvienced by the extra tab and for close to a thousand dollars.

Next is progesterone injection to prevent spontaneous abortion. We have sold literally gallons of this stuff in 10 ml sizes. Price was 39.95/10 mls. New company gets an orphan approval and is now selling it for 1500 dollars.

I can go on, but sufficive to say that these bottom feeding pieces of bovine feces will feed on MS patients at every opportunity they can get. Just look at the average cost of the crap drugs, opps I mean crabs. > 30,000 dollars per year. For what, an average decrease of 38% for exacerbations. It goes on and on, how about Prokarin for 250 dollars, the zapper for 199 dollars, dr barefoots super duper pooper scoper calcium carbonate for 49 dollars. All approved all junk but MS patients will jump because this crap might help.

So no I don't support the approval of LDN. I will challenge the applications with a patient petition as soon as I learned about it.

I have spent the last 10 years selling LDN for a pittance. Why, because it is one of the most significant drugs I have seen in the last almost 40 years. I believe that people should have access to it no matter how much money they make. You get this approved and all bets are off.

Answer me this, was I a fool for making it available to a large number of people, or should I have charged 50-60-up to 90 dollars per month.

Okay, I will get off my high horse now. Friends can disagree.

Skip

[Guest guest]

In Brazil LDN  can be sold in all the medical Pharmacies. With the prescription you buy 50mg of it and then go to another Centre to fraction it in your dose 4,5mg. The commercial name of LDN in Brazil is REVIA 50mg, Lab Cristalia.

There isn´t problem to buy it.I have been using LDN for 4 months and feel great after a breast cancer. Started with 1.5 and now 4.5mg.No pain, no headache, no allergies. I take my dose between 9pm and 3pm. Normally I never use another medication together as my doctor recommend.

Good luck!Ednice (Rio de Janeiro)On 10 March 2011 22:11, Larry Stahl <larry@...> wrote:

 

LDN is an FDA approved drug.We should work on seeing LDN in a Low dose be studied for MS.Larry

[Guest guest]

Thank you, Dr. Skip. I don't know how it all works, but if appropriate, I

will sign on to your patient petition in a heartbeat.

--

>I sent this to Jayne, and the group but must have been misplaced.

>I am one of those who does not want LDN to be approved by the US FDA. Let

>me point out what happened to 4 aminopyridine when .Ampyra was

>approved. We sell 4-ap 10mg for less than 40 dollars per month. Ampyra

>as of just a few minutes ago was wholesaling for over 1000 dollars for a

>month's supply. Same drug different delivery system. Our stuff you have

>to take three times a day, their stuff you take twice a day. So for 960

>dollars you have the luxury of reducing your dose by one per day. Now, we

>have dispensed this for over 10 years now. Not once did I ever have

>anyone complain that they were inconvienced by the extra tab and for close

>to a thousand dollars.

>Next is progesterone injection to prevent spontaneous abortion. We have

>sold literally gallons of this stuff in 10 ml sizes. Price was 39.95/10

>mls. New company gets an orphan approval and is now selling it for 1500

>dollars.

>I can go on, but sufficive to say that these bottom feeding pieces of

>bovine feces will feed on MS patients at every opportunity they can

>get. Just look at the average cost of the crap drugs, opps I mean

>crabs. > 30,000 dollars per year. For what, an average decrease of 38%

>for exacerbations. It goes on and on, how about Prokarin for 250 dollars,

>the zapper for 199 dollars, dr barefoots super duper pooper scoper calcium

>carbonate for 49 dollars. All approved all junk but MS patients will jump

>because this crap might help.

>So no I don't support the approval of LDN. I will challenge the

>applications with a patient petition as soon as I learned about it.

>I have spent the last 10 years selling LDN for a pittance. Why, because

>it is one of the most significant drugs I have seen in the last almost 40

>years. I believe that people should have access to it no matter how much

>money they make. You get this approved and all bets are off.

>Answer me this, was I a fool for making it available to a large number of

>people, or should I have charged 50-60-up to 90 dollars per month.

>Okay, I will get off my high horse now. Friends can disagree.

>Skip

>

>

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Amen Skip! If anyone should know what these "bottom feeding pieces of bovine feces" (as Skip calls them) are capable of for profit, it's Skip. They don't care about people as much as they do the ALMIGHTY dollar. Be careful what you wish for people.I love folks and want everyone to know about LDN. We should keep spreading the word ourselves. If the FDA approves it, you can bet many people who now take LDN will be out of the loop... what about them? I care about those folks too.I think we all want to help others. It's a disagreement on the best way to do that. It's not a question of one's compassion for others.I'd like to thank Skip from the bottom of my heart for providing LDN to us at an affordable rate. I am grateful that he cares enough about people to even bother with this low cost, low profit drug. Bravo Skip! : )AnitaOn Mar 11, 2011, at 2:52 PM, slenzrph@... wrote:these bottom feeding pieces of bovine feces

[Guest guest]



We must remember that this group is all around the world. Here in the UK it would be great to have it as an accepted treatment because all would be able to benefit from it. Doctors could prescribe it freely and users would only pay the standard prescription charge which, at the moment is £6:75. This, in my case, is for 3 months supply from Dickinson's of Glasgow, delivered to my door. I am very lucky that I get on very well with my Doctor and she will explore any new ideas that come along.

(Gloucester UK)

RE: [low dose naltrexone] FDA approval

sadly, that's how it is and i'm with you.

thanks for posting this... maybe it will give due pause to some well-intended exuberance.

you're only a fool in the eyes of predators deserving of contempt, near as i can figger.

From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of slenzrph@...Sent: Friday, March 11, 2011 11:52 AMlow dose naltrexone Subject: RE: [low dose naltrexone] FDA approval

I sent this to Jayne, and the group but must have been misplaced.

I am one of those who does not want LDN to be approved by the US FDA.

Answer me this, was I a fool for making it available to a large number of people, or should I have charged 50-60-up to 90 dollars per month.

Okay, I will get off my high horse now. Friends can disagree.

Skip

[Guest guest]

It does make you wonder and I couldn’t agree with you more. We have people like the below who are investing so much time and their own money into further studies/trials for OUR benefit! The very least we could do, is support them. We’re all feeling the ‘squeeze’ with the economy, and they are no different. Jayne Crocker www.LDNNow.comImportant! Please sign our LDN petition to the European Parliament by clicking heretel: +44 (0) 7877 492 669Dr Steele MBE, talking about LDNLDNNow are a political/pressure group of individuals dedicated to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the myriad of uses it shows benefit for. . From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Celia DanksSent: 11 March 2011 13:32low dose naltrexone Subject: Re: [low dose naltrexone] FDA approval ----- Jayne, what I will never understand in a million years is why people don't support the work of these Dr's by drumming up donations one way or another, and as far as Zagon goes, he would use any monies for a specified disease, I have mentioned this before but got nowhere, we have decent researchers who don't want to make a big buck, indeed Zagon uses a lot of his own money for research, all that is holding him back, and probably others, is money....If everyone on these lists sent a couple of pounds/dollars, what a difference that would make......Celia May I suggest that for those who feel this strongly about not having this drug trialled so it can be available as a front line option treatment by the medical profession to ALL, kindly email Dr Zagon, Dr McCandless, Professor Jill , Dr Gluck, Dr Jarred Younger, Dr Gironi, Dr Bruce Cree, and ask them WHY they are pursuing down this line?You might actually learn something!!Jayne Crocker

[Guest guest]

It`s true that it`s very very different for people in (sane!) countries like the UK and europe who have a good general healthcare system. But here in the US everything is about money. It`s still the one issue that I constantly think about as I age here in the US, having been used to getting very adequate care in the UK for the first 45 years of my life. Now, after 10 years here I have a British "brain" about it all but with an understanding about how Americans feel nervous about the cost of LDN going crazy. It`s a total disgrace here and there are times I just cant afford to either see my doctor or get the meds prescribed. Not if I want to eat and have a roof over my head anyway.I think that is where we are seeing the difference in opinions in this debate - the NHS might not be great but I challenge anyone who complains about it, to come and live here in the US for a year and soon you`ll be begging to go home!Climbing off high horse now!Bev low dose naltrexone From: monza.jones@...Date: Sat, 12 Mar 2011 15:12:54 +0000Subject: RE: [low dose naltrexone] FDA approval  We must remember that this group is all around the world. Here in the UK it would be great to have it as an accepted treatment because all would be able to benefit from it. Doctors could prescribe it freely and users would only pay the standard prescription charge which, at the moment is £6:75. This, in my case, is for 3 months supply from Dickinson's of Glasgow, delivered to my door. I am very lucky that I get on very well with my Doctor and she will explore any new ideas that come along. (Gloucester UK) RE: [low dose naltrexone] FDA approval sadly, that's how it is and i'm with you.thanks for posting this... maybe it will give due pause to some well-intended exuberance. you're only a fool in the eyes of predators deserving of contempt, near as i can figger. From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of slenzrph@...Sent: Friday, March 11, 2011 11:52 AMlow dose naltrexone Subject: RE: [low dose naltrexone] FDA approvalI sent this to Jayne, and the group but must have been misplaced.I am one of those who does not want LDN to be approved by the US FDA. Answer me this, was I a fool for making it available to a large number of people, or should I have charged 50-60-up to 90 dollars per month. Okay, I will get off my high horse now. Friends can disagree.Skip

[Guest guest]

That’s excellent – maybe you should consider crossing that bridge into Wales where we don’t pay for our prescriptions Jayne Crocker www.LDNNow.comImportant! Please sign our LDN petition to the European Parliament by clicking heretel: +44 (0) 7877 492 669Dr Steele MBE, talking about LDNLDNNow are a political/pressure group of individuals dedicated to getting Low Dose Naltrexone (LDN) accepted into modern medicine and trialled for the myriad of uses it shows benefit for. . From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Sent: 12 March 2011 15:13low dose naltrexone Subject: RE: [low dose naltrexone] FDA approval  We must remember that this group is all around the world. Here in the UK it would be great to have it as an accepted treatment because all would be able to benefit from it. Doctors could prescribe it freely and users would only pay the standard prescription charge which, at the moment is £6:75. This, in my case, is for 3 months supply from Dickinson's of Glasgow, delivered to my door. I am very lucky that I get on very well with my Doctor and she will explore any new ideas that come along. (Gloucester UK) RE: [low dose naltrexone] FDA approval sadly, that's how it is and i'm with you.thanks for posting this... maybe it will give due pause to some well-intended exuberance. you're only a fool in the eyes of predators deserving of contempt, near as i can figger. From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of slenzrph@...Sent: Friday, March 11, 2011 11:52 AMlow dose naltrexone Subject: RE: [low dose naltrexone] FDA approvalI sent this to Jayne, and the group but must have been misplaced.I am one of those who does not want LDN to be approved by the US FDA. Answer me this, was I a fool for making it available to a large number of people, or should I have charged 50-60-up to 90 dollars per month. Okay, I will get off my high horse now. Friends can disagree.Skip

[Guest guest]

he knows a lot about ldn, said it is approved and used for

many conditions in Europe,

Where and how exactly? I talk about LDN in the German language areas of Europe

and nobody ever seems to know about it.

Silvia

>

> I talked aobut this with my doctor this past week. He said that it is

> frustrating - he knows a lot about ldn, said it is approved and used for

> many conditions in Europe, and hopes it will be here. He thinks it is a

> good drug.

[Guest guest]

In Belgium or Holland it is completely unknown to MDs

*************************************************************************************************************************************************************“No one can listen to your body for you. To grow and heal, you have to take responsibility for listening to it yourself.” — Jon Kabat-Zinn

[low dose naltrexone] Re: FDA Approval

he knows a lot about ldn, said it is approved and used formany conditions in Europe,Where and how exactly? I talk about LDN in the German language areas of Europe and nobody ever seems to know about it.Silvia>> I talked aobut this with my doctor this past week. He said that it is > frustrating - he knows a lot about ldn, said it is approved and used for > many conditions in Europe, and hopes it will be here. He thinks it is a > good drug.

[Guest guest]

Slivia, I know they use it in Finland if that's any use?

Celia

he knows a lot about ldn, said it is approved and used formany conditions in Europe,Where and how exactly? I talk about LDN in the German language areas of Europe and nobody ever seems to know about it.Silvia

[Guest guest]

In the netherlands you can get it sometimes from the gp or

neurolog but you have to bring the info.

Here you find mostly ms patients

http://blaasdarmforum.forumup.nl/index.php?mforum=blaasdarmforum & sid=4df7357e2d50e5c400e4b60b7cdc0901

I am using the Free version of SPAMfighter.SPAMfighter has removed 2484 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

Would appreciate info about low dose naltrexone cream.  How to obtain and patient satisfaction.

 

Joan L. Reiter

nmrf@...

[Guest guest]

Ms Crocker has a valid point also. Now if LDN is approved by the FDA, and the price goes up a hundredfold, would we be able to purchase the 50mg Naltrexone from Allday Chemist or United  Pharmacies at current prices?.