Guest guest Posted March 27, 2011 Report Share Posted March 27, 2011 Hi Folks, I'm so glad to have found this forum for LDN users who have fibromyalgia. Here's my story: I'm a 56 year old female diagnosed with spinal arthritis and degenerative disc disease, (L5S1 ruptured in 93) Fibro. CFS and IC over the past 10 years. Had complete hysterectomy in 2003 due to non-cancerous lumps in uterus and ovaries. Also had HPV with pre-cancerous cells before hysterectomy. I also have had eczema since I was a baby and had different salves and creams put on it. Probably steroids. As I grew older and the eczema flared, I would use the prescription cream the doctor gave me for it and it cleared up just fine. Little did I know that it was something I was not supposed to use on a daily basis and that my skin would become addicted to it. Two years ago my ex-husband passed away and long story short, I was a wreck and began drinking on weekends after 20 years of zero alcohol. I broke out into an itchy rash all over my stomach, legs and upper body, but not my face, thank God. My doctors were stumped and put me on " scabies " cream (another steroid ointment) and prednisone. I only took 20 mg of the prednisone and weaned off of it by small increments. It worked but the eczema flared real bad on the backs on my hands, arms and neck since October 2010. I have about gone crazy with itching and the horrible sight of this eczema. I will not touch steroids, knowing they caused my skin to be addicted. I had tried LDN in 2009 for my fibro with little results and I'm not sure it was mixed with the right filler, so I only took it for a week and quit. I recently found the LDN site and thought that it would help all of my problems going on, so I got my doctor to prescribe the 4.5 mg for me and made sure the compounding pharmacy mixed it with Avicel. I started a week ago on it and my eczema seemed to get worse. I called the pharmacist and he said to ride it out as it was probably the steroid withdrawal, still. Another pharmacist told me the LDN could be making the eczema worse, so I was torn and decided to not take it last night and see what I could gather before taking it again. Along with the LDN, I've been taking Atarax for the insane itching, which makes me extremely sleepy along with the LDN. I also have taken a half of my 1 mg klonopin to relax with this pain and itching in my arms and hands. I'm not sure the LDN is doing this and don't want to give up on it but I read about the " IRIS " effect from taking it, if you have CFS? It can make things worse because it ramps up the immune system which then goes into overdrive and causes this onslaught of old symptoms? I don't know what to do because the LDN was making me relaxed and kind of euphoric and well and knocking me out by 10 pm when I normally would be awake until 3 am. Any knowledgeable advice? I do plan on calling Skip's pharmacy tomorrow as they were closed when I called on Saturday. Thanks. ~~ Quote Link to comment Share on other sites More sharing options...
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