Re: confused about coughs and CD57 results!!!

[Guest guest]

That is how mine started w/the cough. I was given flagyl and i take this and

it shuts the cough down.

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[ ] confused about coughs and CD57 results!!!

Hello All,

two things i'm confused about:

1. I developed a dry non-productive persistent cough at the end of

November/Beginning of December which was the same time as my symptoms

really started to manifest themselves. I was diagnosed the beginning

of January with Lyme and co-infection of Bartonella. I've been taking

Amoxicillin 1500mg a day.

anyway, at my February appointment i asked my LLMD about the cough and

he said " i'm not concerned about that. its probably a virus going

around. " well, my cough is just a dry cough coming from my throat..not

my lungs or respiratory tract. nothing comes up..its just a dry

cough. I haven't had sore throats, colds, allergies, sinus infections

or anything.

I figured i would give the amoxicillin one more month to get rid of

the cough. its still here. Well, yesterday i had my march appt. with

my LLMD and brought up the cough again. he said " oh its probably just

allergies or a virus. coughs aren't a symptom of TBD. " But i wonder

about that. I have two documents that include a non-productive cough

in their list of symptoms (dr. burr. paper on managing tick born

diseases and one from a lyme group in PA, that was given to my by my

LL neuropsychiatrist.)

so after all that...have any of you had the same problem with a

cough??? and had it dismissed as a symptom of TBD? what cured the

cough? what was its source? did the antibiotics cure it? something else?

2. i'm frustrated because all my test results are negative. (except

the SPECT scan. the LL radiologist said the results were consistent

with neuroburreliosis.) i was diagnosed based on the fact that i had a

tick bite in June and the symptoms. the thing that really weirds me

out is that my CD57 score was *440*!!! isn't that freakishly high?

Last month it was 414. Have any of you had this? i thought i was

told that CD57 is only for Lyme...not other TBD...is that right?

because i was first diagnosed with Bartonella based on my symptoms and

neg blood test results, and then he decided to treat me for Lyme as

well since i had alot of those symptoms too. even if i didn't have

Lyme, and therefore didn't have really low CD57, is there anything

that could explain why its so weirdly high? the LabCorp results say, i

think, 60-360 was the normal range. I'm so confused. My LLMD doesn't

seemed concerned by the 440 but i feel since its so out of range that

it must indicate SOMETHING.

thanks very much!!

st. john

[Guest guest]

I actually just read that a high CD57 level goes along

with co-infections. Feel better

--- " stjohn.sharp " <stjohn.sharp@...> wrote:

> Hello All,

>

> two things i'm confused about:

>

> 1. I developed a dry non-productive persistent

> cough at the end of

> November/Beginning of December which was the same

> time as my symptoms

> really started to manifest themselves. I was

> diagnosed the beginning

> of January with Lyme and co-infection of Bartonella.

> I've been taking

> Amoxicillin 1500mg a day.

>

> anyway, at my February appointment i asked my LLMD

> about the cough and

> he said " i'm not concerned about that. its probably

> a virus going

> around. " well, my cough is just a dry cough coming

> from my throat..not

> my lungs or respiratory tract. nothing comes

> up..its just a dry

> cough. I haven't had sore throats, colds,

> allergies, sinus infections

> or anything.

>

> I figured i would give the amoxicillin one more

> month to get rid of

> the cough. its still here. Well, yesterday i had my

> march appt. with

> my LLMD and brought up the cough again. he said " oh

> its probably just

> allergies or a virus. coughs aren't a symptom of

> TBD. " But i wonder

> about that. I have two documents that include a

> non-productive cough

> in their list of symptoms (dr. burr. paper on

> managing tick born

> diseases and one from a lyme group in PA, that was

> given to my by my

> LL neuropsychiatrist.)

>

> so after all that...have any of you had the same

> problem with a

> cough??? and had it dismissed as a symptom of TBD?

> what cured the

> cough? what was its source? did the antibiotics

> cure it? something else?

>

> 2. i'm frustrated because all my test results are

> negative. (except

> the SPECT scan. the LL radiologist said the results

> were consistent

> with neuroburreliosis.) i was diagnosed based on the

> fact that i had a

> tick bite in June and the symptoms. the thing that

> really weirds me

> out is that my CD57 score was *440*!!! isn't that

> freakishly high?

> Last month it was 414. Have any of you had this? i

> thought i was

> told that CD57 is only for Lyme...not other TBD...is

> that right?

> because i was first diagnosed with Bartonella based

> on my symptoms and

> neg blood test results, and then he decided to treat

> me for Lyme as

> well since i had alot of those symptoms too. even

> if i didn't have

> Lyme, and therefore didn't have really low CD57, is

> there anything

> that could explain why its so weirdly high? the

> LabCorp results say, i

> think, 60-360 was the normal range. I'm so

> confused. My LLMD doesn't

> seemed concerned by the 440 but i feel since its so

> out of range that

> it must indicate SOMETHING.

>

> thanks very much!!

> st. john

>

>

________________________________________________________________________________\

____

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[Guest guest]

I think it's a good sign that your CD57 is not low. Although it is out of

range, it's not outragously high to cause concern. I also had a dry cough for

about a year due to my chronic Lyme infection. I also had a hoarseness to my

voice and it felt like there was a lump in my throat. Your symptoms most likely

are Lyme related, however, I wouldn't waste your energy trying to prove that to

your Dr. unless you really need treatment for it. This is just my opinion.

Penni

[ ] confused about coughs and CD57 results!!!

Hello All,

two things i'm confused about:

1. I developed a dry non-productive persistent cough at the end of

November/Beginning of December which was the same time as my symptoms

really started to manifest themselves. I was diagnosed the beginning

of January with Lyme and co-infection of Bartonella. I've been taking

Amoxicillin 1500mg a day.

anyway, at my February appointment i asked my LLMD about the cough and

he said " i'm not concerned about that. its probably a virus going

around. " well, my cough is just a dry cough coming from my throat..not

my lungs or respiratory tract. nothing comes up..its just a dry

cough. I haven't had sore throats, colds, allergies, sinus infections

or anything.

I figured i would give the amoxicillin one more month to get rid of

the cough. its still here. Well, yesterday i had my march appt. with

my LLMD and brought up the cough again. he said " oh its probably just

allergies or a virus. coughs aren't a symptom of TBD. " But i wonder

about that. I have two documents that include a non-productive cough

in their list of symptoms (dr. burr. paper on managing tick born

diseases and one from a lyme group in PA, that was given to my by my

LL neuropsychiatrist.)

so after all that...have any of you had the same problem with a

cough??? and had it dismissed as a symptom of TBD? what cured the

cough? what was its source? did the antibiotics cure it? something else?

2. i'm frustrated because all my test results are negative. (except

the SPECT scan. the LL radiologist said the results were consistent

with neuroburreliosis.) i was diagnosed based on the fact that i had a

tick bite in June and the symptoms. the thing that really weirds me

out is that my CD57 score was *440*!!! isn't that freakishly high?

Last month it was 414. Have any of you had this? i thought i was

told that CD57 is only for Lyme...not other TBD...is that right?

because i was first diagnosed with Bartonella based on my symptoms and

neg blood test results, and then he decided to treat me for Lyme as

well since i had alot of those symptoms too. even if i didn't have

Lyme, and therefore didn't have really low CD57, is there anything

that could explain why its so weirdly high? the LabCorp results say, i

think, 60-360 was the normal range. I'm so confused. My LLMD doesn't

seemed concerned by the 440 but i feel since its so out of range that

it must indicate SOMETHING.

thanks very much!!

st. john

[Guest guest]

As for the cough,

Often what starts as a cough from cold flu, becomes chronic because

it is perpetuated just from irritation from allergens in the air.

All it may take is something to break the cycle:

-like Zyrtec (now OTC) at day

-and something with dexbrompheniramine (drixoral etc.) at night--

this is old school antihistamine--causes drowsiness but is a great

cough suppressant. Don't confuse with similar sounding ingredient in

most cough syrups which is much less effective. Worked for me with a

cough that was just hanging on two years ago.

-or you could just irrigate your sinuses morning and night with

saline solution as a non-med option. Sometimes we can end up on so

many meds that a sort of messy never-feel-good state can develop. I

try to keep my meds to a minimum.

Silas

On Mar 7, 2008, at 8:58 AM, stjohn.sharp wrote:

> Hello All,

>

> two things i'm confused about:

>

> 1. I developed a dry non-productive persistent cough at the end of

> November/Beginning of December which was the same time as my symptoms

> really started to manifest themselves. I was diagnosed the beginning

> of January with Lyme and co-infection of Bartonella. I've been taking

> Amoxicillin 1500mg a day.

>

> anyway, at my February appointment i asked my LLMD about the cough and

> he said " i'm not concerned about that. its probably a virus going

> around. " well, my cough is just a dry cough coming from my throat..not

> my lungs or respiratory tract. nothing comes up..its just a dry

> cough. I haven't had sore throats, colds, allergies, sinus infections

> or anything.

>

> I figured i would give the amoxicillin one more month to get rid of

> the cough. its still here. Well, yesterday i had my march appt. with

> my LLMD and brought up the cough again. he said " oh its probably just

> allergies or a virus. coughs aren't a symptom of TBD. " But i wonder

> about that. I have two documents that include a non-productive cough

> in their list of symptoms (dr. burr. paper on managing tick born

> diseases and one from a lyme group in PA, that was given to my by my

> LL neuropsychiatrist.)

>

> so after all that...have any of you had the same problem with a

> cough??? and had it dismissed as a symptom of TBD? what cured the

> cough? what was its source? did the antibiotics cure it? something

> else?

>

> 2. i'm frustrated because all my test results are negative. (except

> the SPECT scan. the LL radiologist said the results were consistent

> with neuroburreliosis.) i was diagnosed based on the fact that i had a

> tick bite in June and the symptoms. the thing that really weirds me

> out is that my CD57 score was *440*!!! isn't that freakishly high?

> Last month it was 414. Have any of you had this? i thought i was

> told that CD57 is only for Lyme...not other TBD...is that right?

> because i was first diagnosed with Bartonella based on my symptoms and

> neg blood test results, and then he decided to treat me for Lyme as

> well since i had alot of those symptoms too. even if i didn't have

> Lyme, and therefore didn't have really low CD57, is there anything

> that could explain why its so weirdly high? the LabCorp results say, i

> think, 60-360 was the normal range. I'm so confused. My LLMD doesn't

> seemed concerned by the 440 but i feel since its so out of range that

> it must indicate SOMETHING.

>

> thanks very much!!

> st. john

>

>

>

[Guest guest]

I'm having the same issue with the cough. My LLMD said the same as

your Dr., but I know my body and it isn't related to allergies or a

cold. I've had allergies all my life, and know the difference. It's

exactly as you described, a nagging, dry cough that is there all the

time. I was diagnosed in Dec. and have been on Doxy since. Also was

doing IV Rocephin for the last 2 months. The cough has been around

for over a month now (may be related to when the Rocephin dose

reached it's max of 2g). I am in the process of switching to Biaxin

and Flagyl, and am curious to see if things change. I just accepted

the cough as part of the process for now.

>

> Hello All,

>

> two things i'm confused about:

>

> 1. I developed a dry non-productive persistent cough at the end of

> November/Beginning of December which was the same time as my

symptoms

> really started to manifest themselves. I was diagnosed the

beginning

> of January with Lyme and co-infection of Bartonella. I've been

taking

> Amoxicillin 1500mg a day.

>

> anyway, at my February appointment i asked my LLMD about the cough

and

> he said " i'm not concerned about that. its probably a virus going

> around. " well, my cough is just a dry cough coming from my

throat..not

> my lungs or respiratory tract. nothing comes up..its just a dry

> cough. I haven't had sore throats, colds, allergies, sinus

infections

> or anything.

>

> I figured i would give the amoxicillin one more month to get rid of

> the cough. its still here. Well, yesterday i had my march appt. with

> my LLMD and brought up the cough again. he said " oh its probably

just

> allergies or a virus. coughs aren't a symptom of TBD. " But i wonder

> about that. I have two documents that include a non-productive

cough

> in their list of symptoms (dr. burr. paper on managing tick born

> diseases and one from a lyme group in PA, that was given to my by my

> LL neuropsychiatrist.)

>

> so after all that...have any of you had the same problem with a

> cough??? and had it dismissed as a symptom of TBD? what cured the

> cough? what was its source? did the antibiotics cure it? something

else?

>

> 2. i'm frustrated because all my test results are negative. (except

> the SPECT scan. the LL radiologist said the results were consistent

> with neuroburreliosis.) i was diagnosed based on the fact that i

had a

> tick bite in June and the symptoms. the thing that really weirds me

> out is that my CD57 score was *440*!!! isn't that freakishly high?

> Last month it was 414. Have any of you had this? i thought i was

> told that CD57 is only for Lyme...not other TBD...is that right?

> because i was first diagnosed with Bartonella based on my symptoms

and

> neg blood test results, and then he decided to treat me for Lyme as

> well since i had alot of those symptoms too. even if i didn't have

> Lyme, and therefore didn't have really low CD57, is there anything

> that could explain why its so weirdly high? the LabCorp results

say, i

> think, 60-360 was the normal range. I'm so confused. My LLMD

doesn't

> seemed concerned by the 440 but i feel since its so out of range

that

> it must indicate SOMETHING.

>

> thanks very much!!

> st. john

>

[Guest guest]

Flagyl is what stopped my cough. When I start coughing it is time to take

another dose. I do PRN.

[ ] Re: confused about coughs and CD57 results!!!

I'm having the same issue with the cough. My LLMD said the same as

your Dr., but I know my body and it isn't related to allergies or a

cold. I've had allergies all my life, and know the difference. It's

exactly as you described, a nagging, dry cough that is there all the

time. I was diagnosed in Dec. and have been on Doxy since. Also was

doing IV Rocephin for the last 2 months. The cough has been around

for over a month now (may be related to when the Rocephin dose

reached it's max of 2g). I am in the process of switching to Biaxin

and Flagyl, and am curious to see if things change. I just accepted

the cough as part of the process for now.

[Guest guest]

My whole family has had lyme, babesia bartonella, and ehrlichia. My

understanding is that the dry, unproductive cough that is kind of constant (so

much

so you just get used to having and hearing it), is a symptom of Babesia -- we

have all been treated for Babesia and that cough went away. When we had

upswings in Babesia symptoms, sure enough the cough would come back. Have you

been evaluated for Babesia? it is an insidious infection that gave me in

particular my worst symptoms, several of them life-threatening (involving two

911

calls by my husband). - , SEPA