UPDATE

[Guest guest]

I keep forgetting to put info on here as to what LDN has done for me. I'm going

to get downright personal, but I want everyone to see what types of things it

has changed. I have been on it since November of 2009, and I do notice that the

temperature that it's stored at makes a difference in its effectiveness. My

diagnosis: SJOGRENS, LUPUS, RA, AND NASH.

The things helped:

DRY EYES/NOSE/PERINEUM: all gone within 24 hours of first dose of LDN!

LEAKY BLADDER (bad leakage): no longer leaks (took 24 hrs after first dose to

stop leaking).

RESTLESS LEGS SYNDROME (took only 24 hours to stop that also)

MUSCLE CRAMPS: Has not stopped it completely...I still get some in my thighs

and neck, but mostly they occur during very high stress situations). For the

most part, I can say that 90% of the cramping is gone.

memory and concentration (noticed a big difference within a week of first LDN

capsule). BUT it did not take care of allllll memory and concentration issues.

I did have an episode a couple of weeks ago of total disorientation and was

about 1/2 a mile from home and couldn't remember how to get home, and this was

right after starting a dose of 3000 IU of Vitamin D3). That was a very rare

thing for me and scared the daylights out of me. Most of the time, since taking

LDN, I seem to have a better memory than my children who are in their 20's.

LONG BONE PAIN is gone. It comes back when my LDN is left in the sun, or is

old. So, my next batch of LDN will be in only a one month supply and I'm hoping

that will take care of the issue, and I will also keep it in the fridge, just in

case). I also have the long bone pain return if I'm under severe stress. I

did notice the Vitamin D high doses took away the long bone pain also. I was

tested for Vitamin D levels and came out at a 20 and my doctor was very unhappy

with that level. So, I started at the 3000 IU per day, and had that

disorientation, so went to 2000 IU. I usually can't spend time in the sun, as

it puts me to sleep, but I seem to tolerate 30 minutes ok. So, since that gives

us 10,000 IU of Vit D naturally (according to vitamindcouncil.org), I think

that's my best solution.

ENERGY LEVEL has increased 10 fold since taking LDN. I run circles around my

kids and husband. Can't keep up with my four year old grandson, tho. He is the

energizer bunny.

WEAKNESS: I had a problem with weakness in my arms and around the middle of my

torso. I noticed I couldn't stand at the kitchen sink and wash dishes without

having to sit, and catch a breath after just a few minutes. WITH LDN, that

problem disappeared within the first 24 hours. BUT... since my LDN is coming in

a 7 month supply from SKIPS, I noticed that the weakness is now coming back, and

don't know if it's the freshness issue or the daylight savings time issue. My

arms are again so weak that I cannot lie on my back and text someone with my

cell phone and cannot hold my kindle in the air to read while on my back.

That's just been in the past month. I'm hoping a fresh dose of LDN will make

the difference.

PAIN in the heals used to be soooo bad as soon as I went to bed. I would have

no pain there all day, but the minute I went Prone and my heals were resting on

the soft mattress, I was in severe pain and couldn't lie on my back. Within 24

hours of my first LDN capsule, that went away.

ONE THING NOT HELPED is the arthritis. I have to say it's helped it about maybe

60%, but not entirely. I have some swelling still and mostly have the heat in

the joints after eating cheap pasta I buy at walmart (generic). My daughter has

the same issue. But, Sometimes there is no swelling or pain. I also have

suddenly had a problem with joint degeneration. During High stress times, I

have found that the day after a high stress day, I can't walk due to my left hip

and leg being in so much pain. I just had it x-rayed and was told the hip

joints show slight degerative disease. The pain is horrendous. That's all new.

IMMUNITY: I almost NEVER GET SICK anymore since taking LDN. I believe I have

been sick only twice since being on LDN, but before LDN I was always sick with

everything that someone brought into the room, no matter what the virus was, I

had it.

PHOTOPHOBIA: I no longer have trouble with pain behind my eyes when in bright

lights, tho I am more sensitive than my husband who has no illnesses. But my

sensitivity is very minimal since being on LDN.

I can't remember anything else that I needed to share with you. I did give up

all other Lupus and Sjogrens medications, such as methotrexate, plaquenil,

enbril, etc. But with the joints causing the issues I now have, I'm wondering

if anyone knows what works for stopping that degenerative bone loss and will

work with the LDN instead of against iT? I know Enbril and Methotrexate work

against it and my body feels it.

I am scared to try an all day in the sun adventure. Last time I was in the sun

for two hours I slept for 36 hours straight, and don't want to do that again. I

have heard of a teen that was not warned to stay out of the sun (Lupus victim)

and she went hiking and her kidneys failed after a full day in the sun. SO, I'm

not brave enough to try that to see if LDN helps that at all. I don't need to

be in the sun that long anyway.

Sorry for the length of this. I just wanted to share. I'm sure there are other

things that have been helped, but I can't think of them right now.

[Guest guest]

For bone loss look at at vit K2

and magnesium.

Health Benefits of Vitamin K2: A Revolutionary Natural Treatment for

Heart Disease And Bone Loss

The magnesium night help also with cramps.

For the rest of arthritis look also at food grade H2O2

Flood

Your Body with Oxygen

I am using the Free version of SPAMfighter.SPAMfighter has removed 3124 of my spam emails to date.Do you have a slow PC? Try free scan!

[Guest guest]

, thanks for that update. Have you put your details into Donnelly's

database? I'm asking because I tried to read anything about LDN for lupus, as a

friend's friend has just been diagnosed with it. It's great to be able to tell

somebody how to find a story. A report on that would be greatly appreciated,

unless the one entry there is you (but it hasn't been updated since 2009)

http://www.ldndatabase.com

Thanks and great report on your ldn experiences. Good luck

Silvia

>

> I keep forgetting to put info on here as to what LDN has done for me. I'm

going to get downright personal, but I want everyone to see what types of things

it has changed. I have been on it since November of 2009, and I do notice that

the temperature that it's stored at makes a difference in its effectiveness. My

diagnosis: SJOGRENS, LUPUS, RA, AND NASH.