New member

[Guest guest]

> I am Lexi, 81 years old. In april 2001 I had surgery for spinal

> stenosis.Then that Sept I was in a car accident. I had a nerve

injured

> in my knee and leg is numb. but since this last Sept I have been in

> constant pain. First it was thought to be bursitis in the buttocks,

> but now is the muscle that feels like it is sagging so much it pokes

> me,which when I say this, the Dr ignores it. I have gone to my

Primary

> Dr who sent me to a neurologist who found the reason for the leg

> numbness, but she didn't treat buttock pain so next to an arthritis

Dr

> who says its trapped and irritated nerves.He is going to send me to

> physical therapy.I live alone and was always able to do my work, but

> now can't Does anyone have any advice for this. Lexi

[Guest guest]

>I am Lexi, 81 years old. In april 2001 I had surgery for spinal

>stenosis.Then that Sept I was in a car accident. I had a nerve injured

>in my knee and leg is numb. but since this last Sept I have been in

>constant pain. First it was thought to be bursitis in the buttocks,

>but now is the muscle that feels like it is sagging so much it pokes

>me,which when I say this, the Dr ignores it. I have gone to my Primary

>Dr who sent me to a neurologist who found the reason for the leg

>numbness, but she didn't treat buttock pain so next to an arthritis Dr

>who says its trapped and irritated nerves.He is going to send me to

>physical therapy.I live alone and was always able to do my work, but

>now can't Does anyone have any advice for this. Lexi>>

Hi Lexi and welcome to our little family!

Hmmmm, sounds like they are giving you the run around Damned Dr's get

pretty good about that. Vern gave you some very good advice. So.....did

the Dr tell you HOW the nerves are trapped? Or what is irritating them? I

had a chunk of disc squishing my sciatic nerve....and they kept trying to

tell me that I had bursitis in my hip....for which they gave me injections

in! OUCH! I have to tell you that I have very little hope for modern

medicine since my 2 surgeries. Is there anything that makes the pain worse

or better? Hey Jan......is your pain in your buttocks area as well? Jan

and are our resident Dr's to be <G>

Wish I could offer more help We do offer all kinds of support tho

Lexi.....I told Hubby that we had a new member,......he said " Sexy Lexi "

LOLOL He likes you already!

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

[Guest guest]

Yes I had surgery in April 2001 and it got numb before thee surgery and

after the surgery it was terrible but it got some better.Today my legs

and one arm are numb and burn I walked nearly every day.The surgery

was in my lower back and I did have a MRI late last year and my surgery

hasn't failed. But the bones I sit on hurt just terrible, that is why

the Dr thought my arthritis was acting up. I have to go so darn far to

see a Dr. I live in western Ne and have to drive so darn far to see a

DR. I go 50 miles to my primary Dr and over 100 miles to the Dr who

did my surgery. I do have 7 kids and 2 live in Ne but still far away.

The rest live in Minn, 3 in Texas and Wash State. Every Dr gives you a

blood test(I have gone to three} even if you just had one I did take

neurotin after my surgery and was allergic to it. Can you believe it

caused me to have a breast biopsy.One Dr told me he doesn't give it

because it caused men's testicals to swell.One of my sisters takes it

and does fine with it.I have three sisters and three of us had surgery

for spinal stenosis. They are doing better than me as they caught it

earlier.They live in Texas,Ariz, and Calif.

Also the neurologist I went the first time was mainly a brain surgeon

and the next one didn't treat butt pain. " She said I am a neurologist,

I do not treat bursitis " .I could go on forever but this is to long.All

dor now. Lexi

On Wednesday, January 29, 2003, at 11:23 PM, Janice Keenan wrote:

> spinal surgery for stenosis? Was in the cervical area or the lower

> back? How was your recovery? Did it go well? Did you have any numbness

> in your leg before your procedure or after (before the accident)?

> If the neurologist said the leg numbness

[Guest guest]

Its just one the left side but burning is inflamation the DR said.He

gave me steroid shots for that and it is bit better but the pain isn't

better.Why do so many older people have neuropathy? The Dr told me

they had to have diabetes and I do not have diabetes. Lexi

On Wednesday, January 29, 2003, at 11:23 PM, Janice Keenan wrote

> Is the leg numbness in both legs and both butt cheeks? If it is one

> leg is the pain on the same side in your buttocks? Is the leg pain  in

> the front or posterior (back)?  I would ask your doctor if he knows

> which nerve is entrapped or compressed and does he know where? Is it

> the sciatic? The cutaneous nerve? (These two are the most common for

> both leg and butt pain and numbness). Does he feel you have periphial

> neuropathy (nerve damage)?

[Guest guest]

>as we can...of course none of us our doctors but as said we all have

>had our share of doctors as many of them are about as clueless as you

>could imagine!

>Jan>>

See Lexi.....I told ya she was pretty darned close to a Dr herself! LOLOL

Ask me about my new MSM lotion for aches/pains!

http://www.scentsappeal.net

[Guest guest]

On Thursday, January 30, 2003, at 03:20 PM, Janice Keenan wrote:

> I go once a month to get my blood tested anyway. I live in a 14

> room house and until now I have always done all my own work. Three

> years ago I gave up a garden and last year let my flowers go to pot.

> I always had a high tolerance for pain but now it seems to be getting

> so bad and I think I am complaining to much. My oldest girl is 60 and

> my youngest, a boy is 40. My kids are getting to the age where

> ailments are starting to affect them and mostly it is bad backs which

> must run in the family. Lexi

> Lexi,

>   It is interesting that your butt hurts where your sit bones area

> is...the most common diagnosis for this is 'ishial turborsities

> bursities " Which most of the time this is not accurate. When you push

> on your sit bones does it hurt? If not, you definitly do not have

> bursities. If they do hurt...it is a possibility that you do.

>   I have the same problem with my sit bone area and they do not hurt

> when I press on it with my hand. The pain is further up...very hard to

> explain unless you've had it. I definitly cannot sit straight down...I

> have to sit kind of cock eyed. VERY annoying.I also have burning in

> the rectum  and some hamstring pain (off and on)....I am still

> undiagnosed but I am closing in a couple possiblities...none in which

> the lower back is related but the pudendal nerve (which comes from the

> lower back) is.

> If you had that reaction to Neurontin, the doctor probably will shy

> away from other antiseisure medication (commonly used for nerve pain),

> like Topamax. I would ask him. Maybe you could arrange a telephone

> appointment with him rather than always having to drive out to see

> him...he might be willing...due to your situation.

>

> Jan

>

[Guest guest]

Hey Amy,

I'm having the same thing on the C6 and C7 on Wednesday the

12th. I'll let you know after - I hope !!! LOL

Dave S.

> Hello,

> My name is Amy.

> I have just found out that I'm to have surgery....cervical

Laminectomy and

> fusion on March 3rd.

> Has anyone else had this done? Is it risky?

> Amy

[Guest guest]

What is it you are feeling, that calls for this operations?

Are you having this operation from the back of your neck?

How long does the doctor figure you'll be in the hospital?

thanks....just trying to figure this all out (smile)

amy

> Hey Amy,

>

> I'm having the same thing on the C6 and C7 on Wednesday the

> 12th. I'll let you know after - I hope !!! LOL

>

> Dave S.

>

>

>

>

> > Hello,

> > My name is Amy.

> > I have just found out that I'm to have surgery....cervical

> Laminectomy and

> > fusion on March 3rd.

> > Has anyone else had this done? Is it risky?

> > Amy

>

>

>

[Guest guest]

Amy,

I herniated my C6 & C7 and the doc is going in to remove the " stuff "

that leaked-out and is pressing on my nerve. The pain goes from my spine

all the way to my left hand, including my left chest and rotator cuff.

Depending on how I feel I might go home that day, or leave the next day.

He said to wait 6-8 weeks before returning to normal. ( ie. physical

activities ). No long term restrictions.

Dave S>

>From: " gmcpath1 " <Amy@...>

>Reply-spinaldisorderssupport

><spinaldisorderssupport >

>Subject: Re: Re: New member

>Date: Mon, 10 Feb 2003 18:12:07 -0500

>

>

>What is it you are feeling, that calls for this operations?

>Are you having this operation from the back of your neck?

>How long does the doctor figure you'll be in the hospital?

>thanks....just trying to figure this all out (smile)

>amy

>

> > Hey Amy,

> >

> > I'm having the same thing on the C6 and C7 on Wednesday the

> > 12th. I'll let you know after - I hope !!! LOL

> >

> > Dave S.

> >

> >

> >

> >

> > > Hello,

> > > My name is Amy.

> > > I have just found out that I'm to have surgery....cervical

> > Laminectomy and

> > > fusion on March 3rd.

> > > Has anyone else had this done? Is it risky?

> > > Amy

> >

> >

> >

[Guest guest]

thanks Dave and good luck!

Amy

>

> Amy,

>

> I herniated my C6 & C7 and the doc is going in to remove the " stuff "

> that leaked-out and is pressing on my nerve. The pain goes from my spine

> all the way to my left hand, including my left chest and rotator cuff.

> Depending on how I feel I might go home that day, or leave the next day.

>

> He said to wait 6-8 weeks before returning to normal. ( ie. physical

> activities ). No long term restrictions.

>

> Dave S>

>

>

>

> >From: " gmcpath1 " <Amy@...>

> >Reply-spinaldisorderssupport

> ><spinaldisorderssupport >

> >Subject: Re: Re: New member

> >Date: Mon, 10 Feb 2003 18:12:07 -0500

> >

> >

> >What is it you are feeling, that calls for this operations?

> >Are you having this operation from the back of your neck?

> >How long does the doctor figure you'll be in the hospital?

> >thanks....just trying to figure this all out (smile)

> >amy

> >

> > > Hey Amy,

> > >

> > > I'm having the same thing on the C6 and C7 on Wednesday the

> > > 12th. I'll let you know after - I hope !!! LOL

> > >

> > > Dave S.

> > >

> > >

> > >

> > >

> > > > Hello,

> > > > My name is Amy.

> > > > I have just found out that I'm to have surgery....cervical

> > > Laminectomy and

> > > > fusion on March 3rd.

> > > > Has anyone else had this done? Is it risky?

> > > > Amy

> > >

> > >

> > >

[Guest guest]

Welcome Amy -

I've had a cervical laiminectomy with fusion. It can be risky. Make

sure a Neurosurgeon is doing the surgery. I had a 2-layer done

last August. I'm still recovering from the surgery. Don't plan to

be able to lift your arms above your head for a while. Follow your

doctor's instructions and enter physical therapy as soon as you can.

Pursuant to some of the members of this splintered, but loveable group,

I am not a doctor nor do I pretend to be. I give you the information above

based on my experience. , Robin.... is that good enough of a

disclaimer?

joe

New member

> Hello,

> My name is Amy.

> I have just found out that I'm to have surgery....cervical Laminectomy

and

> fusion on March 3rd.

> Has anyone else had this done? Is it risky?

> Amy

>

[Guest guest]

Thanks Joe for your welcome.

Thanks for taking the time to tell me about your operation.

Yes he is a Neurosurgeon and is said to be one of the best.

What do you mean by a " 2-layer " ? Was your operation done from

the front or the back of your neck?

Can you move your head in all directions? With the fusion I keep

thinking that I won't.

How long were you in the hospital? The doctor told me a week to

ten days....does that sound right?

Your experience is the best information. I know that there are web-sites

that I can check with. It is information like you just shared that I

wanted to hear....why because it came from your own experience, not

from a text.

Thanks again.

Amy

> Welcome Amy -

>

> I've had a cervical laiminectomy with fusion. It can be risky. Make

> sure a Neurosurgeon is doing the surgery. I had a 2-layer done

> last August. I'm still recovering from the surgery. Don't plan to

> be able to lift your arms above your head for a while. Follow your

> doctor's instructions and enter physical therapy as soon as you can.

>

> Pursuant to some of the members of this splintered, but loveable group,

> I am not a doctor nor do I pretend to be. I give you the information

above

> based on my experience. , Robin.... is that good enough of a

> disclaimer?

>

> joe

>

>

> New member

>

>

> > Hello,

> > My name is Amy.

> > I have just found out that I'm to have surgery....cervical Laminectomy

> and

> > fusion on March 3rd.

> > Has anyone else had this done? Is it risky?

> > Amy

> >

>

>

>

>

[Guest guest]

Amy -

Sorry for your rude welcome. There are 2 factions on this

newsgroup. One faction has decided that no e-mails to the

group are to contain any type of humor or jokes. I'm in the

other faction, humor helps me with the pain. I think this

was the reason you might have thought some people were

joking about your condtion, there was actually a thread on

the merits of a humorless society.

>

> Thanks Joe for your welcome.

> Thanks for taking the time to tell me about your operation.

> Yes he is a Neurosurgeon and is said to be one of the best.

Excellent

> What do you mean by a " 2-layer " ? Was your operation done from

> the front or the back of your neck?

2 layer means 2 discs next to each other. My operation was C5/6/7.

My surgery was an ACDF, which is from the front. They do cut your

throat open to get to the discs. I had titanium plates, screws and donor

bone placed in my neck. My scar is about 4 inches long but the surgeon

put it in a natural crease in my neck. (I was going to make a joke here,

but and others would be offended)

> Can you move your head in all directions? With the fusion I keep

> thinking that I won't.

My range of motion is fine. For some reason, I have a mental block and

am careful when I turn my head. I've got what is called a " football neck "

which means I look like a football player (, remain calm, this is not a

joke). For some reason, people with " football necks " don't suffer from a

loss of range of motion.

> How long were you in the hospital? The doctor told me a week to

> ten days....does that sound right?

I was in the hospital for 11 days. I was told that I would only be there

for 3 days, but I had a complication that kept me in the ICU for extra

days. Spinal fluid leakage.

> Your experience is the best information. I know that there are web-sites

> that I can check with. It is information like you just shared that I

> wanted to hear....why because it came from your own experience, not

> from a text.

Amy, get someone to be with you as you go in and as you recover. I took

the time to pay 3 months of bills in advance, which let me not worry about

having to sit down and write too many checks.

I was dissapointed in the hospital food (not a joke ) because they

served a lot of dry toast/bagels, etc. that were tough to swallow. I bought

a lot of yogurt, jello, applesauce, etc for home.

One big thing, you won't be able to lift much after the surgery, I had

trouble

with cans of soda. A gallon of milk might be agony at first.

Do physical therapy. It helps. Take pain meds before you go, they kick in

during therapy.

Good luck on your surgery.

joe

[Guest guest]

Welcome to the group Beulah!! (BTW...welcome to all other newbies I may

have ovelooked)

Beulah...have you been listed for transplant? I'm not sure prednisone

and imuran will help much if you are end stage cirrhosis...I'm not

trying to scare you but end stage is about as far as you can go without

a transplant. What complications do you have? I pray for the best for

you.

love jerry

[Guest guest]

He prescribed T- 100 Thyroid Support Formuls by H.I. Biologics. The

main ingredient is 400 mg of Dulse. He indicated to me that he may

have to up the dosage when I went back in 3 weeks. Well I don't

think this is doing anything for me at all. I feel it is just a

waste of time. I take l in the morning and l at lunch. Why doesn't

he just give me the T-3 everyone here is talking about? Do they

start with this T-100 and then move up? Do they give T-3 for

subclinical? I am ALWAYS freezing cold. >>

The first thing I wondered is if this " natural " doctor has

prescription privileges?. Only licensed medical doctors can write

prescriptions in Canada - so, if you want prescription medication

(which T3 would be....) then perhaps this natural doctor can't do

that for you.

Dulse is iodine from kelp - it seems a lot of alternative

practitioners like to try it. Not everyone responses well to

kelp/iodine and it's not the only treatment available.

I had the severe cold spells too - I found that Ashwagandha really

helped. I take 500 mg three times a day and I haven't experienced the

severe cold spells like before. I've also had good results with L-

Tyrosine - more energy, clarity etc... L-Tyrosine is technically " not

available " in Canada - but you can buy it in most places that sell

body buidling suppliments (they keep it " in the back " !).

I'm in Vancouver - so can't help you with the Toronto referrals.

[Guest guest]

-Hi and thank you for your input. Yes this Dr. use to be the

head of obstetrics at Etobicoke General Hospital for about 18 years.

Then he switched over to alternative med's because he went through a

change in his life and thought he would be a better help to women if

he practised in this way. I guess he wants to try different things

first, but I will definitely mention to him about the T-3. Thank you.

-- In hypothyroidism , " lil2du " <lil2du@y...> wrote:

>

> He prescribed T- 100 Thyroid Support Formuls by H.I. Biologics.

The

> main ingredient is 400 mg of Dulse. He indicated to me that he may

> have to up the dosage when I went back in 3 weeks. Well I don't

> think this is doing anything for me at all. I feel it is just a

> waste of time. I take l in the morning and l at lunch. Why

doesn't

> he just give me the T-3 everyone here is talking about? Do they

> start with this T-100 and then move up? Do they give T-3 for

> subclinical? I am ALWAYS freezing cold. >>

>

> The first thing I wondered is if this " natural " doctor has

> prescription privileges?. Only licensed medical doctors can write

> prescriptions in Canada - so, if you want prescription medication

> (which T3 would be....) then perhaps this natural doctor can't do

> that for you.

>

> Dulse is iodine from kelp - it seems a lot of alternative

> practitioners like to try it. Not everyone responses well to

> kelp/iodine and it's not the only treatment available.

>

> I had the severe cold spells too - I found that Ashwagandha really

> helped. I take 500 mg three times a day and I haven't experienced

the

> severe cold spells like before. I've also had good results with L-

> Tyrosine - more energy, clarity etc... L-Tyrosine is

technically " not

> available " in Canada - but you can buy it in most places that sell

> body buidling suppliments (they keep it " in the back " !).

>

> I'm in Vancouver - so can't help you with the Toronto referrals.

>

>

[Guest guest]

Does

> anyone know how you can find a doctor who treats

> based on this or can give me any guidance?

> Barb

I believe both these sites may have information for you and doctor's

names:

http://www.brodabarnes.org/

http://www.wilsonssyndrome.com/

[Guest guest]

Hi Eve, just want to say that TSH 0f 4 is horrible and will lead to problems

down the road. TSH is veyr bad way to diagnose too. There is a thyroid UK

board with lots of proactive people on there (for doc referral etc) but stay

with us too! http://www.thyroid.about.com/UK

I think the PCOS and you would respond better to Armour

http://www.armourthyroid.com

Also http://www.geocities.com/thyroide

Gracia

> Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

> pregnant.

>

> While I was trying to conceive I was diagnosed with hashimoto's

> thyroiditis and then also polycystic ovarian syndrome. I started

> taking thyroxine at 50mcg for the thyroid probs (TSH started off at

> 6.32, and antibodies of 532) but the drugs for the pcos sounds

> really horrible (and success rates not so good) so I worked at that

> the drug free way - detox, low GI diet, acupuncture, had my mineral

> balance checked etc. I must have done something good as I conceived

> very quickly after that & the pcos symptoms disappeared - I hadn't

> been ovulating.

>

> I am now taking 150mcg of thyroxine as my TSH went up to 13.42

> during the early stages of my pregnancy, and increasing the dose to

> 100mcg was not enough to get the TSH back to the endo's target of

> under 2.

>

> Anyway I know there isn't much I can do about it all at the moment,

> but after I have had the baby I really want to see what I can do

> naturally to help the thyroid probs.

>

> In the Uk seeing my endo and also all medication is free on the NHS

> so the motivation to help myself is health and not cost inspired - I

> plan to see my acupuncturist for example and I will have to pay for

> that.

>

> I will add that there is a strong family history of hashimoto's

> thyroiditis is my family - my Mum and Gran both have it and so do

> lots of females on my Dad's side too. Both my sisters were tested

> and where borderline - with TSH of around 4, but as they are not ttc

> at the moment they are not on treatment.

>

> Anyway look forward to hearing from you all!

>

> Eve

>

>

>

>

[Guest guest]

Eve writes:

> Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

> pregnant.

>

Welcome to the list Eve. Congratulations on your pregnancy!

Jenelle

[Guest guest]

hi eve. congrats on your pregnancy. i'm 30 and would like to consider getting

preggers soon but i want to get my health under control first. i've been

suffering with symptoms for years but only recently was diagnosed hypothyroid. i

had my thyroid tested regularly because of all my symptoms, but i was told i was

" borderline " and never given any further info/treatment. until now. frustrating,

isn't it? i'd say your sisters should be really cautious and keep an eye on any

symptoms--it's quite likely they'll be diagnosed eventually. doctors need to

realize that just because a woman doesn't fall into the conventional problem

range, it doesn't mean that her thyroid is fine.

i hope that you and your baby are doing well, that you're getting the rest you

need and that you keep me posted on your progress. it's so reassuring to know

that others are going through this and leading happy, normal lives.

all best,

melissa

Eve <eve_gettingpregnant@...> wrote:

Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

pregnant.

While I was trying to conceive I was diagnosed with hashimoto's

thyroiditis and then also polycystic ovarian syndrome. I started

taking thyroxine at 50mcg for the thyroid probs (TSH started off at

6.32, and antibodies of 532) but the drugs for the pcos sounds

really horrible (and success rates not so good) so I worked at that

the drug free way - detox, low GI diet, acupuncture, had my mineral

balance checked etc. I must have done something good as I conceived

very quickly after that & the pcos symptoms disappeared - I hadn't

been ovulating.

I am now taking 150mcg of thyroxine as my TSH went up to 13.42

during the early stages of my pregnancy, and increasing the dose to

100mcg was not enough to get the TSH back to the endo's target of

under 2.

Anyway I know there isn't much I can do about it all at the moment,

but after I have had the baby I really want to see what I can do

naturally to help the thyroid probs.

In the Uk seeing my endo and also all medication is free on the NHS

so the motivation to help myself is health and not cost inspired - I

plan to see my acupuncturist for example and I will have to pay for

that.

I will add that there is a strong family history of hashimoto's

thyroiditis is my family - my Mum and Gran both have it and so do

lots of females on my Dad's side too. Both my sisters were tested

and where borderline - with TSH of around 4, but as they are not ttc

at the moment they are not on treatment.

Anyway look forward to hearing from you all!

Eve

[Guest guest]

Thanks - actually i responded to the thyroxine fine - both T4 and T3

were well inside the normal range after a month and I felt so much

better within a week. Doc also measured thyroid antibodies (532) and

also t4 (was 12). Anyway I know how to beat the pcos naturally now

and am pg anyway so am not worried by that as much.

I don't really want to take armour as I understand it is from pig's

thyroid and i am jewish (I would take it if I didn't respond to the

other stuff).

Eve

>

> Hi Eve, just want to say that TSH 0f 4 is horrible and will lead

to problems

> down the road. TSH is veyr bad way to diagnose too. There is a

thyroid UK

> board with lots of proactive people on there (for doc referral

etc) but stay

> with us too! http://www.thyroid.about.com/UK

> I think the PCOS and you would respond better to Armour

> http://www.armourthyroid.com

> Also http://www.geocities.com/thyroide

> Gracia

>

>

> > Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

> > pregnant.

> >

> > While I was trying to conceive I was diagnosed with hashimoto's

> > thyroiditis and then also polycystic ovarian syndrome. I started

> > taking thyroxine at 50mcg for the thyroid probs (TSH started off

at

> > 6.32, and antibodies of 532) but the drugs for the pcos sounds

> > really horrible (and success rates not so good) so I worked at

that

> > the drug free way - detox, low GI diet, acupuncture, had my

mineral

> > balance checked etc. I must have done something good as I

conceived

> > very quickly after that & the pcos symptoms disappeared - I

hadn't

> > been ovulating.

> >

> > I am now taking 150mcg of thyroxine as my TSH went up to 13.42

> > during the early stages of my pregnancy, and increasing the dose

to

> > 100mcg was not enough to get the TSH back to the endo's target of

> > under 2.

> >

> > Anyway I know there isn't much I can do about it all at the

moment,

> > but after I have had the baby I really want to see what I can do

> > naturally to help the thyroid probs.

> >

> > In the Uk seeing my endo and also all medication is free on the

NHS

> > so the motivation to help myself is health and not cost

inspired - I

> > plan to see my acupuncturist for example and I will have to pay

for

> > that.

> >

> > I will add that there is a strong family history of hashimoto's

> > thyroiditis is my family - my Mum and Gran both have it and so do

> > lots of females on my Dad's side too. Both my sisters were tested

> > and where borderline - with TSH of around 4, but as they are not

ttc

> > at the moment they are not on treatment.

> >

> > Anyway look forward to hearing from you all!

> >

> > Eve

> >

> >

> >

> >

[Guest guest]

,

My endo said with a TSh of 4 he might not have treated me if I

wanted to conceive - but fertility can be very affected with a tsh

over 2, so that would be something to watch. What other health probs

do you have?

Eve

maybe you need to

> Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

> pregnant.

>

> While I was trying to conceive I was diagnosed with hashimoto's

> thyroiditis and then also polycystic ovarian syndrome. I started

> taking thyroxine at 50mcg for the thyroid probs (TSH started off

at

> 6.32, and antibodies of 532) but the drugs for the pcos sounds

> really horrible (and success rates not so good) so I worked at

that

> the drug free way - detox, low GI diet, acupuncture, had my

mineral

> balance checked etc. I must have done something good as I

conceived

> very quickly after that & the pcos symptoms disappeared - I hadn't

> been ovulating.

>

> I am now taking 150mcg of thyroxine as my TSH went up to 13.42

> during the early stages of my pregnancy, and increasing the dose

to

> 100mcg was not enough to get the TSH back to the endo's target of

> under 2.

>

> Anyway I know there isn't much I can do about it all at the

moment,

> but after I have had the baby I really want to see what I can do

> naturally to help the thyroid probs.

>

> In the Uk seeing my endo and also all medication is free on the

NHS

> so the motivation to help myself is health and not cost inspired -

I

> plan to see my acupuncturist for example and I will have to pay

for

> that.

>

> I will add that there is a strong family history of hashimoto's

> thyroiditis is my family - my Mum and Gran both have it and so do

> lots of females on my Dad's side too. Both my sisters were tested

> and where borderline - with TSH of around 4, but as they are not

ttc

> at the moment they are not on treatment.

>

> Anyway look forward to hearing from you all!

>

> Eve

>

>

>

[Guest guest]

Hi Eve

Welcome to the group and all the best with your pregnancy!

I was interested to read that you wouldn't take Armour as I don't want to

either as I am piscoperian (eat fish and veg). How do you treat your

thyroid naturally? I am not yet diagnosed as hypo but I getting as much

info as I can so I am prepared. Oh and what is pcos?!

Regards

Jane

Re: New member

> Thanks - actually i responded to the thyroxine fine - both T4 and T3

> were well inside the normal range after a month and I felt so much

> better within a week. Doc also measured thyroid antibodies (532) and

> also t4 (was 12). Anyway I know how to beat the pcos naturally now

> and am pg anyway so am not worried by that as much.

>

> I don't really want to take armour as I understand it is from pig's

> thyroid and i am jewish (I would take it if I didn't respond to the

> other stuff).

>

> Eve

>

>

>

> >

> > Hi Eve, just want to say that TSH 0f 4 is horrible and will lead

> to problems

> > down the road. TSH is veyr bad way to diagnose too. There is a

> thyroid UK

> > board with lots of proactive people on there (for doc referral

> etc) but stay

> > with us too! http://www.thyroid.about.com/UK

> > I think the PCOS and you would respond better to Armour

> > http://www.armourthyroid.com

> > Also http://www.geocities.com/thyroide

> > Gracia

> >

> >

> > > Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

> > > pregnant.

> > >

> > > While I was trying to conceive I was diagnosed with hashimoto's

> > > thyroiditis and then also polycystic ovarian syndrome. I started

> > > taking thyroxine at 50mcg for the thyroid probs (TSH started off

> at

> > > 6.32, and antibodies of 532) but the drugs for the pcos sounds

> > > really horrible (and success rates not so good) so I worked at

> that

> > > the drug free way - detox, low GI diet, acupuncture, had my

> mineral

> > > balance checked etc. I must have done something good as I

> conceived

> > > very quickly after that & the pcos symptoms disappeared - I

> hadn't

> > > been ovulating.

> > >

> > > I am now taking 150mcg of thyroxine as my TSH went up to 13.42

> > > during the early stages of my pregnancy, and increasing the dose

> to

> > > 100mcg was not enough to get the TSH back to the endo's target of

> > > under 2.

> > >

> > > Anyway I know there isn't much I can do about it all at the

> moment,

> > > but after I have had the baby I really want to see what I can do

> > > naturally to help the thyroid probs.

> > >

> > > In the Uk seeing my endo and also all medication is free on the

> NHS

> > > so the motivation to help myself is health and not cost

> inspired - I

> > > plan to see my acupuncturist for example and I will have to pay

> for

> > > that.

> > >

> > > I will add that there is a strong family history of hashimoto's

> > > thyroiditis is my family - my Mum and Gran both have it and so do

> > > lots of females on my Dad's side too. Both my sisters were tested

> > > and where borderline - with TSH of around 4, but as they are not

> ttc

> > > at the moment they are not on treatment.

> > >

> > > Anyway look forward to hearing from you all!

> > >

> > > Eve

> > >

> > >

> > >

> > >

[Guest guest]

Eve

Sorry about that - blame the brain fog! I now know what PCOS is after

reading your original email!

Jane

Re: New member

>

>

> > Thanks - actually i responded to the thyroxine fine - both T4 and T3

> > were well inside the normal range after a month and I felt so much

> > better within a week. Doc also measured thyroid antibodies (532) and

> > also t4 (was 12). Anyway I know how to beat the pcos naturally now

> > and am pg anyway so am not worried by that as much.

> >

> > I don't really want to take armour as I understand it is from pig's

> > thyroid and i am jewish (I would take it if I didn't respond to the

> > other stuff).

> >

> > Eve

> >

> >

> >

> > >

> > > Hi Eve, just want to say that TSH 0f 4 is horrible and will lead

> > to problems

> > > down the road. TSH is veyr bad way to diagnose too. There is a

> > thyroid UK

> > > board with lots of proactive people on there (for doc referral

> > etc) but stay

> > > with us too! http://www.thyroid.about.com/UK

> > > I think the PCOS and you would respond better to Armour

> > > http://www.armourthyroid.com

> > > Also http://www.geocities.com/thyroide

> > > Gracia

> > >

> > >

> > > > Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks

> > > > pregnant.

> > > >

> > > > While I was trying to conceive I was diagnosed with hashimoto's

> > > > thyroiditis and then also polycystic ovarian syndrome. I started

> > > > taking thyroxine at 50mcg for the thyroid probs (TSH started off

> > at

> > > > 6.32, and antibodies of 532) but the drugs for the pcos sounds

> > > > really horrible (and success rates not so good) so I worked at

> > that

> > > > the drug free way - detox, low GI diet, acupuncture, had my

> > mineral

> > > > balance checked etc. I must have done something good as I

> > conceived

> > > > very quickly after that & the pcos symptoms disappeared - I

> > hadn't

> > > > been ovulating.

> > > >

> > > > I am now taking 150mcg of thyroxine as my TSH went up to 13.42

> > > > during the early stages of my pregnancy, and increasing the dose

> > to

> > > > 100mcg was not enough to get the TSH back to the endo's target of

> > > > under 2.

> > > >

> > > > Anyway I know there isn't much I can do about it all at the

> > moment,

> > > > but after I have had the baby I really want to see what I can do

> > > > naturally to help the thyroid probs.

> > > >

> > > > In the Uk seeing my endo and also all medication is free on the

> > NHS

> > > > so the motivation to help myself is health and not cost

> > inspired - I

> > > > plan to see my acupuncturist for example and I will have to pay

> > for

> > > > that.

> > > >

> > > > I will add that there is a strong family history of hashimoto's

> > > > thyroiditis is my family - my Mum and Gran both have it and so do

> > > > lots of females on my Dad's side too. Both my sisters were tested

> > > > and where borderline - with TSH of around 4, but as they are not

> > ttc

> > > > at the moment they are not on treatment.

> > > >

> > > > Anyway look forward to hearing from you all!

> > > >

> > > > Eve

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi Jane,

I take thyroxine - that is the generic name - it is synthetic

hormone. I think that this is the standard treatment... It doesn't

work for everyone as it is just T4, so if your body can't convert

well to T3 then armour might be a better option.

PCOS - poly-cystic ovary sydrome - other endocrine problem!

Basically there are a number of theories on what causes it, but

either way the sex hormones are out of balance and symptoms include

irregular periods, hard to lose weight, acne, excess body hair etc.

As you can see some of the symtptoms are similar to hypothyroidism.

> > >

> > > Hi Eve, just want to say that TSH 0f 4 is horrible and will

lead

> > to problems

> > > down the road. TSH is veyr bad way to diagnose too. There is

a

> > thyroid UK

> > > board with lots of proactive people on there (for doc referral

> > etc) but stay

> > > with us too! http://www.thyroid.about.com/UK

> > > I think the PCOS and you would respond better to Armour

> > > http://www.armourthyroid.com

> > > Also http://www.geocities.com/thyroide

> > > Gracia

> > >

> > >

> > > > Hi, My name is Eve I am 28, I live in the Uk and I am 19

weeks

> > > > pregnant.

> > > >

> > > > While I was trying to conceive I was diagnosed with

hashimoto's

> > > > thyroiditis and then also polycystic ovarian syndrome. I

started

> > > > taking thyroxine at 50mcg for the thyroid probs (TSH started

off

> > at

> > > > 6.32, and antibodies of 532) but the drugs for the pcos

sounds

> > > > really horrible (and success rates not so good) so I worked

at

> > that

> > > > the drug free way - detox, low GI diet, acupuncture, had my

> > mineral

> > > > balance checked etc. I must have done something good as I

> > conceived

> > > > very quickly after that & the pcos symptoms disappeared - I

> > hadn't

> > > > been ovulating.

> > > >

> > > > I am now taking 150mcg of thyroxine as my TSH went up to

13.42

> > > > during the early stages of my pregnancy, and increasing the

dose

> > to

> > > > 100mcg was not enough to get the TSH back to the endo's

target of

> > > > under 2.

> > > >

> > > > Anyway I know there isn't much I can do about it all at the

> > moment,

> > > > but after I have had the baby I really want to see what I

can do

> > > > naturally to help the thyroid probs.

> > > >

> > > > In the Uk seeing my endo and also all medication is free on

the

> > NHS

> > > > so the motivation to help myself is health and not cost

> > inspired - I

> > > > plan to see my acupuncturist for example and I will have to

pay

> > for

> > > > that.

> > > >

> > > > I will add that there is a strong family history of

hashimoto's

> > > > thyroiditis is my family - my Mum and Gran both have it and

so do

> > > > lots of females on my Dad's side too. Both my sisters were

tested

> > > > and where borderline - with TSH of around 4, but as they are

not

> > ttc

> > > > at the moment they are not on treatment.

> > > >

> > > > Anyway look forward to hearing from you all!

> > > >

> > > > Eve

> > > >

> > > >

> > > >

> > > >