Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Hello, You poor luv, you must have been through hell. I have got hypothyroidism and puedohyperparathyroidism. I have had it for years and I am only just getting to know what its all about. Its very hard to understand and the best thing I can say to you right now, is to diet. Don't over work yourself. Darren aged 31 from Wigan, UK > Hi, My name is Eve I am 28, I live in the Uk and I am 19 weeks > pregnant. > > While I was trying to conceive I was diagnosed with hashimoto's > thyroiditis and then also polycystic ovarian syndrome. I started > taking thyroxine at 50mcg for the thyroid probs (TSH started off at > 6.32, and antibodies of 532) but the drugs for the pcos sounds > really horrible (and success rates not so good) so I worked at that > the drug free way - detox, low GI diet, acupuncture, had my mineral > balance checked etc. I must have done something good as I conceived > very quickly after that & the pcos symptoms disappeared - I hadn't > been ovulating. > > I am now taking 150mcg of thyroxine as my TSH went up to 13.42 > during the early stages of my pregnancy, and increasing the dose to > 100mcg was not enough to get the TSH back to the endo's target of > under 2. > > Anyway I know there isn't much I can do about it all at the moment, > but after I have had the baby I really want to see what I can do > naturally to help the thyroid probs. > > In the Uk seeing my endo and also all medication is free on the NHS > so the motivation to help myself is health and not cost inspired - I > plan to see my acupuncturist for example and I will have to pay for > that. > > I will add that there is a strong family history of hashimoto's > thyroiditis is my family - my Mum and Gran both have it and so do > lots of females on my Dad's side too. Both my sisters were tested > and where borderline - with TSH of around 4, but as they are not ttc > at the moment they are not on treatment. > > Anyway look forward to hearing from you all! > > Eve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2003 Report Share Posted June 26, 2003 Hi Dianne. Welcome to the group I am 36 and just had a fusion at L4-L5. I had the laminectomy/discetomy in Jan of 02. All was well but it herniated again in Oct. Before the surgery I had 2 shots of cortizone. The first one helped for a week the 2nd nothing. So thats why I had the surgery. Oh and therapy didnt work either. Then in Oct we tried another shot and that actually worked till I fell on my butt in Feb. I know now by my surgeon that when I fell it pretty much emptied the disc space out. I was in alot of pain. I just had the fusion April 28. I am returning to work Sept 3. I am doing great. The surgery went very well. It was 4 hrs long and I was in the hospital for 5 days.. Its worth it to at least try the shots first to avoid having surgery. But did they say if it was to be a fusion or just a laminectomy? I wished I had the fusion first so I wouldnt have to had the other surgery but it didnt work like that.. If you have any other questions please ask anytime.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2003 Report Share Posted June 27, 2003 Hi Dianne Im , Im also messed up at L4 & 5 and S1 along with the pain in my right thigh and buttocks too. So far i have tried chiropractors,PT,tens unit and had the series of ESI " s....nothing worked for me. Just had myelogram and cat scan today,so will know more next week what is really going on.... Sorry I can't help you anymore then that. New Member Hi everyone I am new to this group and want to intrduce myself- My name is Dianne and I am 43 yrs old. I have a herniated disk L4/5 as well as right leg pain ( sometimes in left ) and bad hip and tailbone pain.been having physio 3 times per week and the surgeon now wants to try cortisone epidural. He said if it does not have any effect within a few weeks then we will have to discuss surgery. I had a fall at work on the 8/5/03 and this is the result. I feel they are really pushing me to get back to work, what is the usual time frame to allow your body to heal? I woud appreciate any advice, and any info on the cortisone through personal experience etc. Thankyou Regards Dianne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 , You wrote: >... My tsh was 102. How high can your tsh get? ... > Your 102 is pretty high but not rare. Much higher levels can occur from a pituitary tumor. >... it took from March til August to get my numbers down and a lot of >my symptons to calm down. ... > This is not atypical. The recommended approach is to gradually increase dosage to avoid oscillations in blood levels which can be life threatening on the hyper side. The official recommendation is for 6-8 weeks between changes in dosage. If you were hyper, they can ask for up to a three month wait, since being hyper suppresses TSH production long after the condition swings to the hypo side. This could lead to dangerous rebounds in blood levels. Unfortunately, such caution also leaves you with symptoms for the duration of the safety period. Your dosage may still need further changes. Go request another blood test when you notice symptoms returning. Chuck Blatchley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 If you are still having hypo symptoms (which, incidentally, includes depression), you may not be optimally treated with $ynthroid. When your thyroid fails, you lose T4, T3, T2, T1, etc. $ynthroid replaces only T4. Get FREE T3, FREE T4 and TSH tests and post them here. I'm betting you're low on T3. Val in Boulder, CO -----Original Message----- From: Jane [mailto:maryjane_39180@...] any thoughts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 FREE T3 and FREE T4?????? wow, we pay like 20 bucks a month...where can I get it free??? Juuuust kidding folks, just struck me funny. Josh RE: new member If you are still having hypo symptoms (which, incidentally, includes depression), you may not be optimally treated with $ynthroid. When your thyroid fails, you lose T4, T3, T2, T1, etc. $ynthroid replaces only T4. Get FREE T3, FREE T4 and TSH tests and post them here. I'm betting you're low on T3. Val in Boulder, CO -----Original Message----- From: Jane [mailto:maryjane_39180@...] any thoughts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Hi , welcome. It takes 6 weeks for the Synthroid to reach steady state in your body, and the dosage you are taking is probably a starter dosage that will need adjustment. So you should feel better in another 3 weeks, but probably not 100% yet. When are you getting tested again? Jan > Hi, > I just found this eGroup...I have been recently diagnosed with > Hashimoto's and have now been taking Synthroid for 3 weeks...50 > micrograms. I have so many questions.....I notice no change yet. In > fact, I had a very bad day yesterday. I was diagnosed in error > because I thought I was going through menopause or something. I went > to a new gynecologist who wanted to test my hormone levels. > > I've probably had this forever and is the cause of all my symptoms > that everyone thought was allergies, Meniere's disease, endometriosis > and so on. It has been a long journey and I was hopeful that > something was detected in order for me to feel better.... > > Can anyone offer any advice on how long the medication takes to work > and are there good/bad days...depending on maybe cycles of the > month... > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2003 Report Share Posted December 4, 2003 Welcome another new member!!!! tell us everything---it's better for us to understand--and no you are not a hypchondriac here---NOT at ALL!!!! The rest of the world just does not UNDERSTAND this illness, disease whatever you want to call it---it has so many names--but welcome and anyone else I foget to say hi too as well!!!!! it's a busy time of year!!!!! tina > Hi there! My name is , I was referred here by a friend. I was > reading your posts and some of you have a tsh of 8. I am > thinking " whoah! that's low! " LOL Mine was at first when I was > diagnosed under 20. Then in 6 weeks, it was 30. Now 6 weeks later > its 69.2! And I feel bad, but not that bad! Strange! But see, I > always feel bad. Everyone thinks I am a hypchondriac! So I just > learned to live with my symptoms. My body temp is always 96.7 and > always has been! So I wonder how long I've had this?? And one day I > might feel better and not know what to do! Haha! Well, I am glad I > found this list! Well, good luck to all! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Welcome, ! I thought I was kind of loopy, too! Didn't want to get out of bed, didn't care about anything, tired all the time. Geez! I just started my meds the day before yesterday. Looking forward to feeling normal again, though it has been sooo long, I'm not sure I'll know when I feel it. Barb <jalynnb25@...> wrote: Hi there! My name is , I was referred here by a friend. I was reading your posts and some of you have a tsh of 8. I am thinking " whoah! that's low! " LOL Mine was at first when I was diagnosed under 20. Then in 6 weeks, it was 30. Now 6 weeks later its 69.2! And I feel bad, but not that bad! Strange! But see, I always feel bad. Everyone thinks I am a hypchondriac! So I just learned to live with my symptoms. My body temp is always 96.7 and always has been! So I wonder how long I've had this?? And one day I might feel better and not know what to do! Haha! Well, I am glad I found this list! Well, good luck to all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 Hi , and Welcome! Sorry to hear about everything you've been going through. You won't always feel so bad. I was diagnosed with Hashi's & hypo last Feb. When I first starting taking Levoxyl, I noticed a little improvement, but not much. They say to give your body about 6 weeks...maybe you'll notice an improvement in a couple more weeks. I have good days and bad days too. For me, the number one thing that makes a difference is my stress level. If I can do whatever I can to keep my stress down, I have less symptoms. I try to make sure I get enough rest and sleep. If my body seems like it needs more sleep, I don't berate myself for taking a little nap. Exercise is also really important to me. I feel so much better when I get out for my walks!!! Listening to my body just really helps me with the stress. If I'm hungry, I eat... some days it seems I'm nibbling all day, but that's actually better for me since I'm hypoglycemic. I usually always have crummy days during my cycle. See how things are in a couple of weeks. When do you see your doctor next, by the way? If you continue to see have much relief in your symptoms, make sure you let your doctor know...you may need a higher dose of medication. Take care, have hope, and hang in there! Keep in touch! Hugs, sheila carriek320 <carriek320@...> wrote: Hi, I just found this eGroup...I have been recently diagnosed with Hashimoto's and have now been taking Synthroid for 3 weeks...50 micrograms. I have so many questions.....I notice no change yet. In fact, I had a very bad day yesterday. I was diagnosed in error because I thought I was going through menopause or something. I went to a new gynecologist who wanted to test my hormone levels. I've probably had this forever and is the cause of all my symptoms that everyone thought was allergies, Meniere's disease, endometriosis and so on. It has been a long journey and I was hopeful that something was detected in order for me to feel better.... Can anyone offer any advice on how long the medication takes to work and are there good/bad days...depending on maybe cycles of the month... Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 I can relate, - my symptoms started when I was 13 or so, and people just assumed I was hypochondriac or crying out for attention. When I was 19 the goiter got huge, and I started going to doctors, but it took them 5 1/2 years to admit there was something wrong with me, they just ignored the goiter. The last year there I was so sick I couldn't work or do anything other than sleep, the energy I had was strictly to get up and pee, I even needed help showering. Of course, again I was just a lazy hypochondriac. When I got on meds, I got my life back. Jan > Hi there! My name is , I was referred here by a friend. I was > reading your posts and some of you have a tsh of 8. I am > thinking " whoah! that's low! " LOL Mine was at first when I was > diagnosed under 20. Then in 6 weeks, it was 30. Now 6 weeks later > its 69.2! And I feel bad, but not that bad! Strange! But see, I > always feel bad. Everyone thinks I am a hypchondriac! So I just > learned to live with my symptoms. My body temp is always 96.7 and > always has been! So I wonder how long I've had this?? And one day I > might feel better and not know what to do! Haha! Well, I am glad I > found this list! Well, good luck to all! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2003 Report Share Posted December 5, 2003 hi & Welcome! When my TSH was around 5. something, I was in really bad shape. I think if mine was as high as yours I would be completely unable to do anything! Have you felt bad most of your life? Are you taking any thyroid hormones? Take care & keep in touch. Sheila <jalynnb25@...> wrote: Hi there! My name is , I was referred here by a friend. I was reading your posts and some of you have a tsh of 8. I am thinking " whoah! that's low! " LOL Mine was at first when I was diagnosed under 20. Then in 6 weeks, it was 30. Now 6 weeks later its 69.2! And I feel bad, but not that bad! Strange! But see, I always feel bad. Everyone thinks I am a hypchondriac! So I just learned to live with my symptoms. My body temp is always 96.7 and always has been! So I wonder how long I've had this?? And one day I might feel better and not know what to do! Haha! Well, I am glad I found this list! Well, good luck to all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 welcome to the board, Larry New member > Hi! I have been suffering with back pain for 3 years now, and it is > wonderful to finally find a place where there are others like > myself. I can't wait to start hearing from some of you!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 > i do have a diagnosis but i am 32 years old and i am trying to avoid surgery. < Just curious...what was your diagnosis? That at least gives us a starting point for future chat. Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 > > i do have a diagnosis but i am 32 years old and i am trying to avoid surgery. < > > Just curious...what was your diagnosis? That at least gives us a starting point for future chat. > > Viv in Ga I HAVE SPONDYLOLISTHESIS, HERNIATED DISC, MODERATE DISC DEGNERATIVE, AND SPINA BIFADA OCCULTA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 > I HAVE SPONDYLOLISTHESIS, HERNIATED DISC, MODERATE DISC DEGNERATIVE, AND SPINA BIFADA OCCULTA. < Sounds like a lot to deal with. Viv in GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 step one, get a new doctor. his attitude alone will hold you up. step two. read. read all you can for a few weeks. this list, the archives, www.curezone.com, books- I recomend " the key to health and rejuvenation " by Anreas Moritz. Don't make any rash decisions about what course you want to follow. you will see many " cures " batted about, many supps recomended ect. The more you understand your predicament, the better you will be able to find your own way. there was even a pretty good post earlier today summarzing some of the main general approaches to this situation, see if you can find it above. most of all, be patient and relax. you can certainly recover your health. I have as have others on this list. The best advice I can give you is to avoid seeing candida as a disease, the disease that's affecting you. Candida is just a symptom of other underlying bodily conditions. week and clogged digestive system, clogged up liver, kidneys, poor diet, stress, ect. don't waste your time or money with antifungals. the cure is diet, lifestyle, bodily cleansing and attitude. g > Hi. I have had candidiasis for about 6 years. My doctor thinks I will > never be rid of it, that I've changed something permanent in my body. > I don't want to believe that but I don't know what else to do. When I > adhere to the diet I am fine but if I eat the smallest amount of sugar > I become very ill. Is this possible? What is the next step to curing > it? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2004 Report Share Posted February 13, 2004 Hi, I am new to this group too and have also had candida for about 6 years. I found a great Dr. who has put me on nystatin and a bunch of suppliments. I am also on a strict diet. When I finally get rid of candida, I will not be eating sugar again. After being on a strict diet (no fruit, grain, carbs, sugar, etc.) fruit sounds like chocolate, and cracked wheat sounds like ice cream. It is curable, you just have to be willing to change your lifestyle. Good Luck! > Hi. I have had candidiasis for about 6 years. My doctor thinks I will > never be rid of it, that I've changed something permanent in my body. > I don't want to believe that but I don't know what else to do. When I > adhere to the diet I am fine but if I eat the smallest amount of sugar > I become very ill. Is this possible? What is the next step to curing > it? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 Hello!! You sound like you have been through hell as well!! I have had many of the symptoms you have and am beginning to see light at the end of the tunnel. The first step for me has been to decide on an approach to take to fight this. Now I am starting that. There are a couple of schools of thought and you will see that the different sides tend to greatly disagree with each other. Take a look at both and decide for yourself what will work for you. Maybe a mixture of both is your answer. We all are individual in our situations. We may have many things in common, but the biggest thing we do have in common is that we all are personally responsible for our health and how to heal ourselves. I have decided that I need to do the bowel cleanse, followed by a kidney cleanse, and then the liver cleanse. Looking at what started this for me (I think a really bad case of mono when I was in HS started the liver issues) I think this is the way to go for me. I know myself well enough to know that I could never stick to a really strict diet and still be happy. I also had gastric by-pass surgery and all those supplements don't sit well with me. If I took everything they say to, I wouldn't have any room left for FOOD!!! ;O) I have never been a very disciplined person, which doesn't make this any easier for me, so the diet that many recommend isn't going to work. I'm a single mom of three very active kids and work a high stress job as well. I know that my diet has to change...and is...just not willing to give up every thing they suggest. I suggest you look at The Cure Zone, especially the Ask Andraes board. You can download his book " The Amazing Liver Cleanse " for about $10 or so. Do that, read it, also his other books. Read, read, read....then decide. What works for some, doesn't work for everyone. Best wishes to you and welcome!!! Kim > > > > > > > > . For the last month I have been on the super > > > strict candida diet. Not being able to have grains and some of my > > > favorite snacks and foods (popcorn, potatoes, pancakes, etc...) > has > > > been very depressing for me. So is this diet doing my body more > harm > > > than good??? I will never go back to eating refined sugar and > carbs, > > > but would be oh so happy to have wheat, oatmeal, rice, legumes, > and > > > all of those other yummy carbs back. > > > What do you all think? > > > Jen > > > > > > > Hi Jen: If you're itching to eat something, try it - then listen > to your > > body - it'll somehow let you know if it doesn't tolerate something. > > > > And is the diet doing more harm than good? I wouldn't think so. > What are > > you mostly being asked to cut out? - processed flours and sugars > and dairy, > > probably. All things that " gum up the works " so to speak. But as > for oats > > and whole wheat and brown rice etc, my Naturopath told me to omit > them from > > my diet for a number of weeks and then introduce them back into > the diet > > slowly. You could be pleasantly surprised. > > > > In my case, after months I still can't eat sweet fruit or oats > (tried them > > yesterday - ugh - very uncomfortable bloating - not worth it). > But then, I > > know my candida isn't under control - and won't be until I address > the > > underlying reason the Candida hangs on. > > > > cheers - p > > > > . > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 New Member Hello Everyone! I've been plagued with health problems for about the past 10 years and I recently heard about Candida. I have so many of the symptoms and I feel almost relieved to learn that I just might not be crazy after all. Hi and welcome to the forum. If you want to help yourself feel better, this is the place to be. There are some great people on this site and as Kim said, read, read, read and then do what's right for you. Kim suggested that you read s Moritz' books and for some on this list, his advice has done wonders. And perhaps his protocol is what you need. However, in all cases, remember to do what your body tells you is right and don't slavishly follow one person's advice because - as has been said here many times - everyone is different. Since you say you were on antibiotics for a long stretch, one of your problems very probably is Candida. And if there's a symptom in the book, Candida can probably cause it!! And as for the Chronic fatigue, a lot of us on this forum have been diagnosed with that too. Read up all you can on Candida - type it into your Google and do a search. Read the posts on Curezone - and I'm sure some other people here can give you some more places to visit. We're all helping ourselves get well here and research is a must. I don't know how familiar you are with Candida but it loves to feed on processed stuff like sugar and white flour, etc. So the idea is, to lessen your symptoms and feel better, you have to stop feeding it and take natural antifungals to get it down to acceptable levels. The diet isn't easy - but most of us find that when we've come to the end of our tether and can barely function, giving up white bread and cake is a small price to pay. To ease some of your symptoms right away, my advice would be to eliminate grains and sugars and dairy from your diet immediately - at least for a few days and see if that doesn't help your bloating (I know how uncomfortable that can be). And you could have developed food sensitivities as well, so start eating just vegetables and meat for awhile and see how that goes. You asked about Yeast Fighter and I don't have any personal knowlege of that so perhaps someone else can help - but what I wanted to say was that if your health is "delicate", sometimes you have to deal with the Candida gently or you could suffer from what we call "die off" (from the dead Candida) if you attack it aggressively. And sometimes this can make you feel worse than before. So my advice would be to take it gently - start with eliminating problem foods and using natural antifungals (garlic for instance) (and rotating them). Another point - have you been to a Naturopath or some other natural medicine practitioner? I am seeing a Naturopath on a regular basis and he knows that I am also tuned to this site daily - we regularly discuss things I've heard here. And most times, the advice I have found here is sound. Both resources, I hope, will teach me how to get the spark back in my life. Some of us feel comforted knowing that we can ask a "professional" for advice before trying something new. For instance, a lot of people here are encouraging liver flushes, for example. I asked my Naturopath if I should do one and he didn't advise it. Because I have other "issues" to deal with first. And perhaps in your case, those should be investigated too. There is a school of thought that Candida thrives, not always just because of poor diet, but because there may be other underlying causes too. For instance, have you had your thyroid checked? Do you have amalgam fillings? Then perhaps mercury is your problem? Lastly and most important - try to keep the stress out of your life (that includes putting up with negative friends). Be kind to yourself (take warm baths and do some deep breathing now and then). Take baby steps. And congratulate yourself when you do well and realize that everyone falters now and then, so if you fall off the wagon, dust yourself off and get back on. I wish you luck on your journey to better health. And don't hesitate to ask questions, that's what this place is all about. Cheers Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 From: Do any of my symptoms sound familiar to any of you? Any stories or suggestions would be greatly appreciated. Thanks! Fibromyalgia: A Den Of Demons! Discoveries by Dr. Brice E. Vickery Introduction At the end of my 45 years of practice as a Holistic Chiropractic Physician there appeared from time to time, and with increasing frequency, a diagnosis of fibromyalgia usually made by a Rheumatologist or a Physiatrist. Except for the fact that these were usually " bad cases" I filed them under the heading of advanced myofascial fibrositis and smiled to myself that the doctors who were unaware of the trigger points that had been part of our stock-in-trade for all of those practice years, were getting serious about these abnormalities. In retirement when it was learned what my vocation had been many people sought my opinions. My stipulations were; That no doctor available was helping them and then I would " take a look". It was in this vein that we had a person from a fibromyalgia support group. This is where it began. We had of course unlimited time to examine these people and began to make breath taking discoveries, many which were based on previous discoveries which I have been reporting for the last 20 years. This article is basically in three main sections: 1. What is known and/or suspected about the condition, 2. The discoveries that I have made about the condition, 3. The treatment and outstanding success of the treatment. I am aware that many traditional doctors will be upset or nonplused by what we present here, for this condition more than any other illustrates the fact that Chiropractic (in particular) has repeatedly ignored the advances made by others and not a few by myself. The best of today’s graduates of the best of schools are, in my opinion, not qualified to either diagnose or treat this condition. This is because the basics of the diagnosis are not taught in any college that is known to me. The diagnosis is comparable to the sequence of events that cause the condition and is the equivalent of another college degree in the extent of knowledge and skills required. In answer to your unspoken question: I write and divulge these things so that people can be better and maintain healthy and productive lives knowing - that only 2% of doctors will understand and – the 2% are ready! "When the student is ready the master appears" (Chinese Proverb). Fibromyalgia – State of the Art Fibromalgia is considered by some as a syndrome or collection of symptoms and by others as a disease entity. The doctors of the world are getting serious about the condition and now have meetings such as the " Copenhagen Fibromyalgia Symposium". The outstanding symptoms are pain (in muscles and joints) and stiffness. It is generally accepted that this must be whole body pain with representatives on both sides and above and below the waist. The list of symptoms is impressive and diversified. Some doctors now include what is called " The Fibro Five" which are; Chronic Fatigue Syndrome, Depression, Irritable Bowel, Interstitial Cystitis, Migraine Headache. Some include sleep disorders. In most severe cases the victims are not able to maintain employment. The Symptoms are varied and widespread: Musculoskeletal pain and aching Disturbed sleep patterns Fatigue Paraesthesis Depression Soft tissue swelling Irritable bowel TMJ and bruxism Bursitis Allergies Sciatica Chest Pains Back Pain Interstitial Cystitis Migraine Headaches Raynaud’s Dysmenorrhea Hypoglycemia It usually is differentiated from arthritis both rheumatoid and osteo, polymyalgia rheumatica, myopathy, hypothyroidism, disk herniation, and cardiac or pleural pain. Despite the symptoms, physical, laboratory, and radiological studies are often normal. This connective tissue disorder is not associated with deformity of the joints. Thus the diagnosis has been clinical . The Tender Points or Trigger Point Diagnosis (Bilateral) Knee, at the medial fat pads proximal to the articulation Greater Trochanter, posterior to the trochanteric eminince Gluteal, upper outer quadrants of the buttocks Lateral Epicondyle, 2 cm. Distal to the epicondyles Second Rib, second costochondral junction on upper surfaces Supraspinatous origins near the medial border above the scapular spine Trapezius, midpoint of the upper border Lower Cervical, anterior intertransverse spaces of C-5 to C7 Occipital, suboccipital insertion The Tender Points of Fibromyalgia 11, some say 12 of these 18 points must be positive to approximately 2 to 3 lb. Pressure, The point must be reported as painful vs. pressure Pressure Points Concept of Central Sensitization While many theories have been advanced such as hormonal, neurotransmitters etc., astute observers have accurately described the concept of "central sensitization". Describing the decreased threshold of pain in these subjects (hyperalgesia) some believe that decreased blood to the muscles activates chemicals or initiates their release, accounting for the irritability. One theory is that it is a disease of the central nervous system not as a pathological change, but a "central activation" vs. a type of myopathy. Remember this very astute observation for we will explain why it is CORRECT even though the proponents do not understand the MECHANISMS. Current Treatments Current medical treatments are palliative and concentrate on the usual pain relievers such as aspirin, acetaminophen or other NSAIDS. If the pain is not relieved at this level stronger prescriptions are used. Alternative medicine has many interesting remedies and theories but none that hit any home runs. Chiropractic in general disgraces itself in the treatment of this condition because the practitioner invariably being a strictly mechanical chiropractor increases the frequency of treatments to daily, as the DESPERATION sets in and the patient slips away because he " Does Not Hold " and is getting MORE AND MORE INFLAMED! I know this for a fact because I have web pages for this condition and consult with victims around world. These events are usual in their history. Fibromyalgia - New Discoveries With New Tools The First Demon At the end of the seventies (and we have written about this ever since ) I found that nine out of ten subjects examined were found not able to digest/transport, utilize or incorporate the daily dietary protein which was usually adequate (except for some vegetarians) in intake. The discoveries of Rheinholdt Voll, M.D.1 enabled me to put two and two together and establish that the pancreatic points that he identified as; protein digestion function, carbohydrate digestion function, and fat digestion function on the Pancreas Meridian were almost always caused by lack of suitable amino acids. We developed the Vickery-Voll2 test which was the beginning of an entirely new view of the body and explained why I was NEVER able to keep our patients " straight ". The way it is believed to work is simple. The amino acids in the correct proportions and in adequate amounts reverse this deficiency by supplying the pancreas and intestinal glands with the ingredients necessary to synthesize adequate digestive enzymes to digest the dietary intake. Having the necessary enzymes the daily food intake is more completely utilized and the transport or carrier proteins are manufactured in suitable amounts and the entire " Enzyme Cascade " of the body is re-established. This begins within twelve hours! Every case of fibromyalgia is found to have this deficiency but, so do many other problems. PROTEIN/ENZYME DEFICENCY IS THE FIRST DEMON The Second Demon The body gets most of it’s dietary sulfur from proteins in the form of the sulfur bearing amino acids and some sulfur bearing plants such as garlic and onions, cabbage, and peppers etc. I knew about this problem in the early eighties but also knew that in the amino acid formula that I developed, there were one molecule in methionine and two in cystine. Furthermore we were unlocking the dietary proteins taurine etc. which were also sulfur containing. In retirement I found a test for sulfur that showed a high percentage of persons that took our amino acids formulas religiously were still sulfur deficient (myself included). I also found that infections, the arthrites and poisonings; heavy metals, PAH"s (polycyclic aromatic hydrocarbons) etc. responded much, much better when we added methylsulfanylmethane to our amino acid formula. Every person that had fibromyalgia was sulfur deficient. SULFUR DEFICIENCY IS THE SECOND DEMON The Third Demon By 1986 I had developed two tests that screened the spine for spinal disk lesions; (The BEV Tests3) and the (The CCT or Confirmatory Challenge Tests 4) which also identified exactly disks which were involved and the exact corrections necessary to relieve them. I have written about them since that time and will not spend time here describing them. I will however explain that every case of fibromyalgia has DISKAL DEGENERATION THROUGHOUT THEIR ENTIRE SPINE. For those of you who are not familiar with my grading of diskal lesions we include the drawings which we presented way back in the early eighties. You will note that we are talking mostly about the intradiskal lesion or Grade 1. This has no visible changes apparent in the CAT scan, the MRI, and the myelogram studies done with contrast media but is NEUROLOGICALLY ACTIVE. IT IS THIS LESION THAT MOST CHIROPRACTORS ARE UNKNOWINGLY TRYING TO CORRECT. This puts these practioners in the same condition as a carpenter without glue and other fasteners. This was known to me in 1982 when I pioneered the use of the CAT scan in the study of diskal lesions in the New York area hospitals and private radiological facilities. Their presence is easily demonstrated through the BEV Tests. This was pretty much a theory standing alone at that time but has now since been proven by a new procedure, IDET5 (intradiskal electrothermal annuloplasty) which I refer to as "Boil-a-Disk". It is reported to work as well as "fusion" and claims 80% of patients have "reduced pain and greater mobility". The procedure involves a six inch needle and a heating element which is inserted into the particular DISK and heated to 194 degrees for fifteen minutes. The heat not only kills the nerves but tightens (cauterizes?) the surrounding ligaments. I have been trying to inform the profession about this for twenty years but only received defocused stares! Maybe when I tell you that the procedure costs $7,000, saving the patient $43,000 (a spinal operation can cost up to $50,000) your attention spans will increase. Also this is not practical to do to the victims of fibromyalgia throughout the entire spine! You can see now that the accuracy of "central sensitization" is a valid observation even though the good doctors are limited by their state-of-the-art diagnostic ability. Those few who practice as I do are way beyond that barrier. SPINAL DISK DEGENERATION IS THE THIRD DEMON The Grading of Diskal Lesions The Diskal Connections of the Spinal Nerve The Fourth Demon I had been using the test kit Silver Amalgam which is made from homeopathic nosodes in a graduated series since my studies with Voll in the early eighties. Usually it was part of the testing we did on the worst of the allergy patients, the universal reactors. When I began to test the fibromyalgia patients I was amazed to find that EVERYONE OF THEM WAS POSITIVE. Most of the really bad cases showed in the lower dilutions (D5, D6, D10 etc.) which is the most severe. Furthermore as you will see in our case histories, the offending teeth were removed some 30 years before. The reason for them not ridding themselves of this toxic heavy metal is the preceding protein/sulfur deficiencies preventing the glutathione and 400 series enzymes from being produced and the sulfation detoxification mechanisms (Phase II liver detoxification) being therefore totally inadequate. I suspect that other of the heavy metals are involved and will be testing for them in the future. Right now the all time winner is mercury which if not removed by the liver is deposited in the NERVE and FATTY TISSUES. The reason for irritated nerves continues to grow. Not all cases were from the amalgam fillings, but most. The dental profession just did a study on the relationship between mercury blood levels in the brain and the number of silver amalgam fillings in the mouth. They found that there was no relationship. What our dental brethren failed to take into account was the detoxifying ability of the patient (protein, sulfur etc.) and the specific fillings, which were "leaching" mercury. Actually short of punching holes all over the patient, the mercury will not show in blood levels, in hair analysis, or in urine and stool. It has to be mobilized for all laboratory tests. That is why the Energetic testing which I have named Vickery Quantum Testing© and EAV, (Electropuncture according to Voll) are the only 21st century diagnostic tools that can determine these problems, and with extreme accuracy. THE FOURTH DEMON IS MERCURY/OTHER METAL POISONING The Fifth Demon Usually called the Epstein-Barr, this virus is associated with chronic fatigue. While the scientific community argues about the confusing results of their laboratory tests I am able to find it with great clarity and accuracy as to its exact degree in the body using our Quantum Testing. We have confirmed it many times with laboratory tests but have left them far, far behind in accuracy. This virus has recently been associated with breast cancer6 . In rare cases it is not the EBV but is ackie, Cytomegalovirus, or other. Sometimes these subjects have TWO VIRUSES and a bacteria. Since most viruses seem to locate irritated and inflamed areas, the fibromyalgia victim is fertile soil. Because of his depressed immune functions, his degenerating joint system, his deteriorating spine, his lack of neurotransmitters, and his poisoned tissues, all of which are the result of the protein/sulfur inadequacy, these viruses, without PROPER treatment, have found a lifetime home. This is one of the conditions that is reported as medically incurable (EBV) but has been conquered by natural means for many years. THE VIRUS IS THE FIFTH DEMON The Treatments The Success of Treatment With Some Case Histories Causes To fully understand the treatments given it is best to restate the findings in these cases, many which are complications or associated conditions found progressively in other conditions (including the demons). 1. Protein (amino acids) deficiency resulting in enzyme deficiencies. 2. Multiple spinal disk degeneration. 3. Toxic bowel – ileocecal valve malfunction. A. Dysbiosis 4. Chronic viral infection – particularly Epstein Barr = chronic fatigue 5. Tissues (including bones!) calcium/phosphorus low from lack of protein transport. 6. Lack of proper neurotransmitters and hormones insulin, thyroid, serotonin, glutathione, DHEA, and sex hormones from improper amino acid metabolism. 7. Lymph slowdown. 8. Sinus infections, viral, bacterial, yeast, fungal. 9. Other infections bacterial – (Lymes disease) 10. Lack of Phase I and particularly Phase II detoxification mechanisms in the liver that allow heavy metals (mercury is only one) to remain in the body. This is where the lack of sulfur results in toxin removal failure and inadequate production of glutathione. 11. Mercury (or other heavy metal) poisoning. 12. Sulfur deficiency. 13. Altered body mechanics (crooked posture) 14. Vitamin and mineral deficiencies. 15. Essential Fatty Acids deficiency. 16. Antioxidant deficiency. 17. Subluxation This is present in every person with Cat I Distortions and every diskal lesion. The Treatment In treating any body problem of whatever magnitude, the goal is to supply the deficiencies. In the case of acute infections additional supplementation may be added to counteract the invader. Therefore in this condition extra vitamin C (ascorbic acid crystalline) minimum 3000 mg per day, along with an enzyme C-complex, Enzyme Formulations (containing all known factors) one with each 1000 mg of vitamin C is always added. The protein and sulfur problem is addressed with our US (and World patent pending) Platinum Plus. Nothing that we have seen exceeds the spinal disk rebuilding and detoxifying ability of this nutrient. It is in my opinion and all of the doctors who have the ability to monitor the removal of mercury from their patients, the treatment of choice is Platinum Plus at six per day. The spinal disks begin volumizing in 12 hours. The dysbiosis, lack of HCL, are normalized and the digestive enzymes are replenished, re-arming the "Enzyme Cascade" from the pancreas to the individual cells. Nothing else, other than this patented product, will accomplish these multiple healing functions. The Vitamin-Mineral used is BioMultiPlus from Biotics Laboratories, which has no fillers and has proved to be a reliable source of Iodine, B-complex, Chromium, Selenium, and Vitamin A. I am sure that there are probably sources equal to this but when you spend your time doing millions of tests on these vitamins and they never let you down – you don’t change. The essential fatty acids which correct excessive inflamation with prostaglandins, produce hormones, help calcium into the cells, are either from Pure Encapsulations or Omega Plus – both work. Summary of the most important consistent findings: Protein digestion/ utilization/ enzyme deficiencies. Because of this five or more minerals do not get into the tissues. Sulfur deficiency. Multiple Spinal Disk degeneration (throughout the spine). These noxious stimuli irritate the spinal nerves (from the nerves inside the disks ) causing tremendous discomfort before they ever reach the herniated disk stage. Mercury poisoning ( stored in nerve plexuses and fatty tissues) not in the bowel! Chronic viral infection (usually, but not always, the Epstein Barr Virus, EBV). In the deadlier forms also the Herpes Family, which attacks the nervous system. A more specific diagnosis can now be made from these grouped findings without probing the 11 trigger points which will be positive! It is now possible for anyone to perceive why Dr. Vickery calls this a manmade syndrome: Man preserved, cooked, weakened or destroyed, the natural enzymes and proteins in our food make individual amino acids unavailable in proper sequence and amounts. Filling carious teeth with a poisonous mercury compound that is convenient for the dentist that is able to destroy the recipient. The weakened individual then becomes degenerated, toxic, infested and infected. Conclusion This condition more than any other spotlights the stubborn lack of progress especially, in the Chiropractic profession, since the other professions have not had presented to them the brilliant discoveries of some of our great researchers. When full knowledge of the sequence of events is known the reversal of these compounded conditions is routine although with great variations. The fact that even the most recent graduate has not the faintest idea of what is going on under his hands is not his/her fault. This profession despite the academic "window trimming" is mired in the 19th century where it started. As even lay persons can readily determine the state-of the-art is inadequate and it is shameful that the college presidents that are contacted say " put it in a journal ". Chiropractic and Osteopathy have had special treatments that were intimately connected with the body. They also had the heaviest burdens because to contribute to the patient’s lasting health and maintain it they had to explain more than any other profession why these events (distortions, subluxations, and the physiology and pathology) were occurring. The cry is always for more research. The research is already accomplished. Medicine did not always bother with finding the true cause but is very adept at remedies that cover up symptoms. In the treatment of fibromyalgia it is largely NSAIDS. The medical profession does as much or even more harm than the chiropractor because they are contributing to the already present cartilage degeneration and presenting more poisons for an already overwhelmed liver. I for one have chosen the route of bringing this knowledge to those that are ready (in all of the professions) and directly to the suffering people. This route is growing steadily and is a source of great satisfaction. My entire life has more than adequately prepared me for it. While I would readily accept help in submitting these facts and findings to scientific channels, as yet no research director seems interested but perhaps when the doctors that we have taught have seasoned a champion will appear. There is a great gulf between doctors like myself and the orthodox practitioner with whom I cannot really converse. I illustrate it thusly: The gulf is thirty feet wide and the chiropractor is a ten foot jumper. Who among you is ready to become a forty foot jumper? Fibromyalgia Update: A New and Terrible demon The new and terrible demon that we introduced into the causes of fibromyalgia in part one was HCV (Hepatitis C). We warned the practitioners of the healing arts that if they were protein/sulfur deficient they were in the greatest danger of contracting it because not having a proper immune response they could not repel from their tissues this virus ,and actually most viruses. The second reason is just numerical; doctors and health workers coming into contact with sick persons every day act as funnels. Unfortunately they will not know it. They still believe that serum tests are the only way to do this diagnosis. It is a pity because about 90% of all of the chiropractors that we tested in seminars were protein/sulfur deficient and had DISKAL LESIONS. I am coming into increasing contact with doctors who have the means such as kinesiology and it’s forms, electroacupuncture with newer and more sophisticated machines and concepts. These same doctors can also diagnose the HCV. Meanwhile in contrast to these 21st Century successful types the Chiropractic Schools for the most part still turn out “Dodo Birds” - The Dodo bird is of course extinct. (“… any of several clumsy, flightless, extinct birds” ... Random House.) I chose to concentrate on one case history in the first article that was in process at the time of the article. It will demonstrate a great number of new facts that have never been brought together in the healing arts This is rather unique because while I present the case history synopsis the patient tells her story in her own words as a testimonial. Fibromyalgia and Lupus A Recent Case History and Testimonial First Exam 1/10/01A pale F reported a history of over ten years being incapacitated- who had formerly done everything. Unable to work. Diagnosis of FM and lupus. Constant nausea, pain from the waist up, ultrasound of organs -MRI of spine - normal. Examination revealed the following: Positive BEV TESTS throughout the spine (DDD degenerative disk disease) Strep infection D5 upper spine, Hepatitis C D6 liver, gall bladder, brain and spine, Severe Candida infection D3, Herpes Simplex D8 everywhere, Staph D5 Head, teeth, liver, bowels, Measles virus D30 Brain only, Silver Amalgam D6 Liver, brain, and spine, Aluminum all over, Arsenic D6 all over. This patient is the perfect example of why I wrote the article " Fibromyalgia, A Den of Demons" . She was placed on my " Vickery Protocol " and put on a candida (strict) diet. An array of three deadly viruses , two bacteria, systemic yeast (6 infections) and 3 toxic metals confronted us (undiagnosed by a long string of doctors ). On our side the simple, professional grade nutritional supplements (Vickery Protocol) spearheaded by our Platinum Essential Amino Acids Plus, Pat. # 6,203,820. against Goliath? We entered the battle. 2/28/01Some improvement from the start and considerable progress in the levels of noxious elements. Hepatitis C D100 (the higher the better) Measles D15, Herpes simplex D30, Candid D15, Staph and Strep D15, Arsenic D30, Aluminum D30, Mercury( Silver amalgam )D100, BEV tests (spinal disks) healed. Patient reported much less pain and much increased energy with less bad days. We were now confident of winning the battle. Patient was placed on VP #2 2cnd phase with less nutritional support. 3/16/01Hepatitis C D200, Measles gone, Herpes Simplex D30 (found in the teeth), Staph D30, Strep D100, Candida D400, Arsenic D30 (same) Mercury D400, Aluminum none. Corrected lymphatic drainage manually, continue nutrition and add some fruits, beans, and non-yeasted bread (spelt) to diet. 4/25/01Hepatitis C D400, Herpes Simplex D60, Strep none, Staph D15 (localized in teeth and gums - consider calling in a holistic dentist, now fighting a local battle with possible abscesses) Candida D1000, Mercury none, Arsenic none. 6/1/01Staph none didn't need the dentist) Viruses none, corrected lymphatic system again. 8/30/01No infections. Patient had driven cross-country (for as long 16 hours at a time) by her self and needed a lymphatic correction. Her muscles dormant for 13 years were not yet toned for such an endurance trial. This patient is declared cured. Summary Patient compliance is the key and not the imposing list of "demons" inhabiting the patient. This lady was a model for all to follow and she has courage. She deserves to live out her life in health and now knows how to do that. When we named our website fibromyalgiacure.com we knew that just the name would draw flack especially from the traditional medical profession. On the other hand to be equal and balanced, the average Chiropractor might have given her 96 visits to no avail. We gave her four. This case is a good example of what is accomplished every day. The new paradigm is what we do- the old is what is. Here is Penny's story in her own words: Dear Dr. Vickery, I am writing this letter to thank you for helping me get my life back. I have suffered from fibromyalgia and chronic fatigue for over ten years. I had given up hope of ever having a normal life or ever being healthy again. I knew I would never be a " whole individual" again. Last year during an unusually painful episode where I had already been totally disabled for over a month, I was fortunate enough to meet you. You tested me and told me I was full of all kinds of infections and diseases and then told me not to worry. You put me on your MEVY diet, gave me Platinum Plus and your FM starter package and told me that I would feel better in a few days. I must admit my husband and I were very skeptical but the price of these items was nothing compared to the mountains of money we had already spent to try to stop my pain and give me some kind of life. Two days later I woke up and said, Hmmm, I think I will put some clothes on. (My pain was so severe before that I could not wear clothes) Then I went for a ride in the car. Then I decided to tidy up my house, and four days later I cleaned my home from top to bottom. I have been going "like Gangbusters" ever since. I have been on Platinum Plus and the nutrition for about six months now. This summer has been wonderful. My husband and I are doing primitive camping in the mountains. I have been white water rafting twice. I drove across the country by myself to see my family. The freedom I have experienced this summer has been a prayer answered. I am keeping myself busy this winter by caring for my four-year-old grandson. I know it is difficult to believe in anyone or anything when we suffer from this horrendous connective tissue disorder (lupus). Many times in my life I wanted to call it quits. Thank God I didn't. I hope this letter will help encourage anyone who suffers from this disease (fibromyalgia) to try Dr. Vickery's treatment. If your are like me It will give you your life back. Sincerley, L. Drab Bibliography 1.Topographic Positions of Measuring Points in Electroacupuncture, Voll R., Textual Volume 1, 1st English, 3rd German Ed. H Schuldt Ed., Mediziniche Literarische Verlagsgesellschaft MBH, Uelzen, Germany, 1977. 2. The Vickery-Voll Tests, Free Form Acids, The Key Dietary Supplement, Published Privately, 1986 3. The BEV Tests, Vickery B.E., The Collected Papers of the International College of Applied Kinesiology, summer Ed, 1990-91 4. The Confirmatory Challenge Test, Vickery B.E., Today’s Chiropractic, Vol. 18, No.5 Sept/Oct 1989 5. Beating the Back Ache, Medicine, A New Procedure That Could Revolutionize Disc Surgery, Cowley G., Newsweek, March 15, 1999 6. Cancer Cantagion, Medicine, Why Do Epstein-Barr And Other Viruses Show Up In Breast Tumors?, Cowley G., Newsweek, August 30, 1999 Brice E. Vickery, D.C. graduated from Lincoln Chiropractic College in 1951 and took post graduate work at Lincoln College and Spears Chiropractic Hospital. He has appeared on radio and television and has authored The Pocket T.S. line Manual as well as numerous magazine articles. He also served two terms on the Board of Directors for the Connecticut Chiropractic Association. He is a certified Applied Kinesiologist and has accreditation in Electroacupuncture according to Voll (EAV). He is listed in the 1999-2000 Who’s who in Medicine and Healthcare. After 50 years of practice most of which was in the CT Holistic Chiropractic Offices, he is now president of SuperNutrient Corporation, is a nutritional consultant, and teaches his methods in seminars. He can be reached by phone: 803-644-0607 or by e-mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Welcome Meredith. Isn't it just the greatest moment when you finally find out what's really wrong! Even though you might still be feeling less than stellar, there's a light at the end of that tunnel. Most of the people on this site have gone down similar paths to you - myself included. Years of "here, have another drug", etc. Anyway, you sound like you've done a lot of research already and you're on the right track. Keep reading everything you can get your hands on. Have you visited the Curezone yet? www.curezone.com And if you have any questions, this is the place to ask them. I know it's hard to believe but if you stick to the regimen, after awhile those "sugar blues" go away. One of the things that helped me get over the hump was to strain yogurt through cheesecloth and sweeten with stevia. Yum. It tastes like cheesecake to me! Just remember, be easy on yourself and keep plugging away - it gets easier and you'll doubtless start to feel better. And what better reward than that! New member Hello, I'm Meredith 28 (today) mom of three and all that good stuff *grin*. I was diagnosed with fibro about 3 years ago, and endometriosis about 3 1/2. It took a lot of pushing and prodding on my part, a lot of proffered prozac on my doctors part, and since we are military, it finally took a threat of an inspector general complaint on the part of my husband to even get any tests done. (a whole year of are you sure you don't want some prozac?? no? ok, well here's some motrin, come back in a month if you're still hurting) I started researching fibro (being stupid enough to trust a different doctor on the endo) and changed my diet a bit, started doing yoga, and stretching a LOT. I went down from about 210 to 165-170, but still experience a lot of pain, finally my arms were completely numb, I'd broken several plates at my job, dropped numerous items of food, dropped coffee cups, you name it. I had finally gone into our local health food store (we moved here to Georgia about 6 months ago) to get some shampoo and saw a business card that read massages: RN, LMT, reiki master and fibro. I made an appt LOL. I talked to Gail, the lady that did the massages, she's got 30 years experience in massage therapy, and in helping people with illnesses. She said she didn't think I had fibro, that she thought it might be Candida. I promptly remembered my grandmother thinking she had Candida when I was a child and changing her diet. I remember years of yeast infections, antibiotics, pregnancy's and can practically see a time line of when it turned into a full body infection. You know, I was HAPPY to hear I might have Candida, it gave me hope that one day all this pain could be GONE if I was just strict enough with myself! GONE! YAY! *heheheheh* So here I am, cutting food items out of my diet (sugar, gluten, yeast, mushrooms, and dairy products so far) My body is very not happy about the foods being cut out (one reason I'm still drinking coffee!) My kids and hubby love the new things I'm cooking though I must admit those toast and jam cravings are driving me mad at night. Anyways, I'm happy to be here, glad to see so much information going around. And my heart swells just watching the support in here. Best wishes! Meredith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Thanks Penny, I haven't been to curezone yet, but I shall check them out tomorrow! I went and got stevia yesterday along with some gluten free flour (on my second try the bread was more than edible) I'm very happy to have gotten some sort of a 'cure' if I can do ANYTHING to stop the pain and general yuck of the past few years, I will do it. The only thing I might have difficulty in is getting an anti-fungal prescribed to me. Getting the doctors to admit that fibro is a real disease after the first person who diagnosed me has been a real problem. I've started working at the local health food store though, and they have some dealings with a naturopath here, so he may be able to come up with something. I KNOW I have more energy now, and that's just a miracle of sorts to me. 1 month ago I couldn't rake even a quarter of my yard, and today I did the whole thing, and I still feel fine, besides the blisters on my hands. So here's to healing, and hope everyone here experiences it! Meredith Re: New member Welcome Meredith. Isn't it just the greatest moment when you finally find out what's really wrong! Even though you might still be feeling less than stellar, there's a light at the end of that tunnel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2004 Report Share Posted April 3, 2004 Meredith, I'm with Penny. Love sharing here. I have found so much cool info and books to read. Curezone is the best as well. Have fun finding your healing path. I learned so much. love to you and yours, gigiPenny <penelopea@...> wrote: Welcome Meredith. Isn't it just the greatest moment when you finally find out what's really wrong! Even though you might still be feeling less than stellar, there's a light at the end of that tunnel. Most of the people on this site have gone down similar paths to you - myself included. Years of "here, have another drug", etc. Anyway, you sound like you've done a lot of research already and you're on the right track. Keep reading everything you can get your hands on. Have you visited the Curezone yet? www.curezone.com And if you have any questions, this is the place to ask them. I know it's hard to believe but if you stick to the regimen, after awhile those "sugar blues" go away. One of the things that helped me get over the hump was to strain yogurt through cheesecloth and sweeten with stevia. Yum. It tastes like cheesecake to me! Just remember, be easy on yourself and keep plugging away - it gets easier and you'll doubtless start to feel better. And what better reward than that! New member Hello, I'm Meredith 28 (today) mom of three and all that good stuff *grin*. I was diagnosed with fibro about 3 years ago, and endometriosis about 3 1/2. It took a lot of pushing and prodding on my part, a lot of proffered prozac on my doctors part, and since we are military, it finally took a threat of an inspector general complaint on the part of my husband to even get any tests done. (a whole year of are you sure you don't want some prozac?? no? ok, well here's some motrin, come back in a month if you're still hurting) I started researching fibro (being stupid enough to trust a different doctor on the endo) and changed my diet a bit, started doing yoga, and stretching a LOT. I went down from about 210 to 165-170, but still experience a lot of pain, finally my arms were completely numb, I'd broken several plates at my job, dropped numerous items of food, dropped coffee cups, you name it. I had finally gone into our local health food store (we moved here to Georgia about 6 months ago) to get some shampoo and saw a business card that read massages: RN, LMT, reiki master and fibro. I made an appt LOL. I talked to Gail, the lady that did the massages, she's got 30 years experience in massage therapy, and in helping people with illnesses. She said she didn't think I had fibro, that she thought it might be Candida. I promptly remembered my grandmother thinking she had Candida when I was a child and changing her diet. I remember years of yeast infections, antibiotics, pregnancy's and can practically see a time line of when it turned into a full body infection. You know, I was HAPPY to hear I might have Candida, it gave me hope that one day all this pain could be GONE if I was just strict enough with myself! GONE! YAY! *heheheheh* So here I am, cutting food items out of my diet (sugar, gluten, yeast, mushrooms, and dairy products so far) My body is very not happy about the foods being cut out (one reason I'm still drinking coffee!) My kids and hubby love the new things I'm cooking though I must admit those toast and jam cravings are driving me mad at night. Anyways, I'm happy to be here, glad to see so much information going around. And my heart swells just watching the support in here. Best wishes! Meredith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2004 Report Share Posted April 4, 2004 Hi Meredith, While we’re on the yoghurt, I mix mine with cinnamon (also an antifungal) and stevia. Yoghurt is also good mixed with fresh crushed garlic and chopped cucumber. You can eat this plain or have it as a assort of dressing for steamed vegies etc. If you can tolerate nuts they are a great snack (not peanuts or pistachios though). Also, although the diet is really hard at first, eventually it will seem like the way you always ate. I cut things out gradually, which I found much easier than just going cold turkey on everything. You will learn which brands to buy that don’t contain sugar (or yeast or vinegar) and learn lots of yummy new recipes. And home cooked food is sooooooo much nicer than takeaway. And it feels good to do. And eventually when you get better you can start adding back things like fresh fruit and some grains. It only took me two months of strict dieting. Now when I eat too many carbs I get a bit bloated and gassy but those are my only symptoms. There is hope, and with the help of people on this forum you can do it. My last piece of advice is not to get too freaked out because there is so much information, sometimes it feels like there is someone out there telling you not to eat just about everything. Do what works for you, and do it gradually. Forgive yourself for slip ups and move on straight away. The better you eat the better you’ll feel and the easier it will be to eat better. Wishing you all the best, S -----Original Message----- From: Penny [mailto:penelopea@...] Sent: Sunday, 4 April 2004 1:14 PM candidiasis Subject: Re: New member Welcome Meredith. Isn't it just the greatest moment when you finally find out what's really wrong! Even though you might still be feeling less than stellar, there's a light at the end of that tunnel. Most of the people on this site have gone down similar paths to you - myself included. Years of " here, have another drug " , etc. Anyway, you sound like you've done a lot of research already and you're on the right track. Keep reading everything you can get your hands on. Have you visited the Curezone yet? www.curezone.com And if you have any questions, this is the place to ask them. I know it's hard to believe but if you stick to the regimen, after awhile those " sugar blues " go away. One of the things that helped me get over the hump was to strain yogurt through cheesecloth and sweeten with stevia. Yum. It tastes like cheesecake to me! Just remember, be easy on yourself and keep plugging away - it gets easier and you'll doubtless start to feel better. And what better reward than that! New member Hello, I'm Meredith 28 (today) mom of three and all that good stuff *grin*. I was diagnosed with fibro about 3 years ago, and endometriosis about 3 1/2. It took a lot of pushing and prodding on my part, a lot of proffered prozac on my doctors part, and since we are military, it finally took a threat of an inspector general complaint on the part of my husband to even get any tests done. (a whole year of are you sure you don't want some prozac?? no? ok, well here's some motrin, come back in a month if you're still hurting) I started researching fibro (being stupid enough to trust a different doctor on the endo) and changed my diet a bit, started doing yoga, and stretching a LOT. I went down from about 210 to 165-170, but still experience a lot of pain, finally my arms were completely numb, I'd broken several plates at my job, dropped numerous items of food, dropped coffee cups, you name it. I had finally gone into our local health food store (we moved here to Georgia about 6 months ago) to get some shampoo and saw a business card that read massages: RN, LMT, reiki master and fibro. I made an appt LOL. I talked to Gail, the lady that did the massages, she's got 30 years experience in massage therapy, and in helping people with illnesses. She said she didn't think I had fibro, that she thought it might be Candida. I promptly remembered my grandmother thinking she had Candida when I was a child and changing her diet. I remember years of yeast infections, antibiotics, pregnancy's and can practically see a time line of when it turned into a full body infection. You know, I was HAPPY to hear I might have Candida, it gave me hope that one day all this pain could be GONE if I was just strict enough with myself! GONE! YAY! *heheheheh* So here I am, cutting food items out of my diet (sugar, gluten, yeast, mushrooms, and dairy products so far) My body is very not happy about the foods being cut out (one reason I'm still drinking coffee!) My kids and hubby love the new things I'm cooking though I must admit those toast and jam cravings are driving me mad at night. Anyways, I'm happy to be here, glad to see so much information going around. And my heart swells just watching the support in here. Best wishes! Meredith Candidiasis stories: Candidiasis stories: http://CureZone.com/forums/f.asp?f=41 http://CureZone.com/dis/ http://CureZone.com/diseases/parasites/ List Unsubscribe: candidiasis-unsubscribe Post message: candidiasis Group page: candidiasis --- Incoming mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.605 / Virus Database: 385 - Release Date: 1/03/2004 --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.605 / Virus Database: 385 - Release Date: 1/03/2004 Quote Link to comment Share on other sites More sharing options...
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