New member

[Guest guest]

>

> hi; I'm a new member.

==>Hi Pedro. Welcome to our group.

> I have sd and some rosacea, candida also I'm intolerant to soy. Was

vega now vegetarian (started to eat eggs now) and would like to know

how can I follow this diet being vegetarian. I don't think I can handle

eating meat food . REgarding protain intake is it ok eating legumes

(soaked) and eggs only?

==>You may get enough protein from eggs if you eat enough of them, but

legumes are not okay for candida sufferers, even if soaked properly.

They are high in carbs and they will feed candida. But the problem will

be the other nutrients that only contained in red meats. Human can be

very healthy on only meats and nature-made fats. I suggest you read

the articles in the Candida Diet Folder " Myths & Truths About

Vegetarianism " and " Myth #2, Vitamin B12 can be obtained from plants. "

And it that same folder read " Myths & Truths About Beef " in the Protein

Folder.

The best in health, Bee

>

[Guest guest]

> I'm a new member. I have sd and some rosacea, candida also I'm

> intolerant to soy. Was vega now vegetarian (started to eat eggs now)

> and would like to know how can I follow this diet being vegetarian. I

> don't think I can handle eating meat food .

> REgarding protain intake is it ok eating legumes(soaked) and eggs only?

Hi Pedro,

I've been on Bee's diet for over two years now, and I started out a vegan as

well. For almost

30 years, I was alternatively either a vegetarian or vegan. I tried a modified

vegetarian

version of the diet for about the first six months, but it just didn't work. I

don't think that

it's possible to recover eating a vegetarian diet, as there's no way to

sufficiently lower the

carbs.

I don't know why you're a vegetarian, but for me it was for ethical reasons. I

didn't have to

have to kill in order to live. Your first responsibility is to yourself;

however, as you won't

be able to be of benefit to others or live to your full potential if you aren't

well yourself.

Learning to eat meat again was difficult at first, and I lived on canned tuna

and store-

bought, roasted chicken for the first month, as I couldn't stand the idea of

cooking meat.

If you decide to take the leap and live near a Whole Foods, you might think

about buying

some of their food to go at first. I live in Mexico City and didn't have that

option, but there

are plenty of places around that sell roasted chicken and other meat dishes.

I know the decision isn't easy, and I wish you well.

Saludos,

Jeanne OTS

[Guest guest]

Hi Jeanny

Thanks for your post.

It is a difficult decision and thought would never had to do it.

Meat for now is out of question been meat free for more than 15

years. May be fish. I leave by the sea and there is plenty of fresh

fish.

Does it work just eating fish, seafood and eggs for the protein intake?

take care

pedro

On 2006/12/18, at 19:40, yuxtalineal wrote:

>

>

> > I'm a new member. I have sd and some rosacea, candida also I'm

> > intolerant to soy. Was vega now vegetarian (started to eat eggs now)

> > and would like to know how can I follow this diet being

> vegetarian. I

> > don't think I can handle eating meat food .

> > REgarding protain intake is it ok eating legumes(soaked) and eggs

> only?

>

> Hi Pedro,

>

> I've been on Bee's diet for over two years now, and I started out a

> vegan as well. For almost

> 30 years, I was alternatively either a vegetarian or vegan. I tried

> a modified vegetarian

> version of the diet for about the first six months, but it just

> didn't work. I don't think that

> it's possible to recover eating a vegetarian diet, as there's no

> way to sufficiently lower the

> carbs.

>

> I don't know why you're a vegetarian, but for me it was for ethical

> reasons. I didn't have to

> have to kill in order to live. Your first responsibility is to

> yourself; however, as you won't

> be able to be of benefit to others or live to your full potential

> if you aren't well yourself.

>

> Learning to eat meat again was difficult at first, and I lived on

> canned tuna and store-

> bought, roasted chicken for the first month, as I couldn't stand

> the idea of cooking meat.

> If you decide to take the leap and live near a Whole Foods, you

> might think about buying

> some of their food to go at first. I live in Mexico City and didn't

> have that option, but there

> are plenty of places around that sell roasted chicken and other

> meat dishes.

>

> I know the decision isn't easy, and I wish you well.

>

> Saludos,

>

> Jeanne OTS

>

>

>

Joao Pedro Vasconcelos

info.fresh@...

[Guest guest]

Very well said Jeanne! I'll add this, since I was vegetarian too for

similar reasons and then some:

One day I was watching this animal program probably on Discovery. It

was about wild animals that eat their young, and the young of their

neighbors like ground squirrels. This showed that animals got no

qualms about being...welll... child-abusing cannibals!

I've always liked animals better than people, thought they were more

" human " and at that point I went " oh bleep it! Pass the beef! "

The end of my vegetarian days!

Chris.

> I don't know why you're a vegetarian, but for me it was for ethical

reasons. I didn't have to

> have to kill in order to live. Your first responsibility is to

yourself; however, as you won't

> be able to be of benefit to others or live to your full potential if

you aren't well yourself.

> Jeanne OTS

>

[Guest guest]

> It is a difficult decision and thought would never had to do it.

I know what you mean. I remember standing in line to see the Dalai Lama several

years

ago, before I had been diagnosed with Candida. The woman in line ahead of me was

saying that she had been vegetarian but that she became allergic to soy and

couldn't

continue. I hate to admit it, but I remember feeling a bit smug at the time --

that could

never happen to me. Well it did, and I have had to learn to live with it as

gracefully as I

can.

> Meat for now is out of question been meat free for more than 15

> years. May be fish. I leave by the sea and there is plenty of fresh

> fish.

> Does it work just eating fish, seafood and eggs for the protein intake?

Bee can better answer you, but I believe that there are things that you can only

get from

red meat. In my opinion, that's not a priority for you right now, and if you can

begin to eat

fish, eggs, and other sea food, you'll be in good shape. It took me quite a

while to start

eating red meat, but when I did, I found that it agreed with me very well.

Where are you writing from? Portugal? Brazil?

Saludos,

Jeanne

[Guest guest]

Joao Pedro -

I am also a former smug *mostly* vegetarian (who ate only seafood) and also

cannot tolerate soy today (got rid of it when my health began to fall apart). I

didn't eat red meat, chicken, pork, etc for 15 yrs too until last year.

While we can't push you to change, I would like to add my 2 cents that it is

well worth it to leave the vegetarian mindset and lifestyle. I don't think it's

easy to eat the amount of good fats to be healthy and by default it's very

carb-rich so it will just further feed your candida.

Best of luck to you - some of us truly understand the dilemma! And if you told

me 3 or 5 yrs back I would even be writing or saying those words, I woulda told

you you were completely crazy!!

~Anita

yuxtalineal <yuxtalineal@...> wrote: ---

In , Joao Pedro <info.fresh@...> wrote:

> It is a difficult decision and thought would never had to do it.

I know what you mean. I remember standing in line to see the Dalai Lama several

years

ago, before I had been diagnosed with Candida. The woman in line ahead of me

was

saying that she had been vegetarian but that she became allergic to soy and

couldn't

continue. I hate to admit it, but I remember feeling a bit smug at the time --

that could

never happen to me. Well it did, and I have had to learn to live with it as

gracefully as I

can.

__________________________________________________

[Guest guest]

>

> Hi Jeanny

>

> Thanks for your post.

> It is a difficult decision and thought would never had to do it.

> Meat for now is out of question been meat free for more than 15

> years. May be fish. I leave by the sea and there is plenty of fresh

fish.

> Does it work just eating fish, seafood and eggs for the protein

intake?

==>Hi Pedro. Yes you should do okay on those foods.

==>May I please ask that you trim your messages - see our Candida Group

Info folder. Thanks.

Bee

[Guest guest]

Hi DianeM,

Welcome. Where are you living now? You don't say if you are being

followed my an adult scoli specialist, but I think if you are not, now

would be a good time to find one. I am not trying to be an alarmist,

but it is not outside the realm of possibility that you are/have been

developing symptoms of flatback which are straining your neck now. Do

you feel like you are in a bit of a forward lean these days? Or,

something else entirely could be going on...but since you have " landed "

here, I am guessing that, like me, when things started going downhill

in a hurry for me, I knew intuitively that it was related to my fusion

from long ago. A well qualified doc should be able to help you sort out

your concerns.

I have read that mitral valvue prolapse is very commong amongst folks

that have scoliosis....maybe knows more of the thinking

here...but for many of us it is just " part of the package " !

Isn't scoliosis grand?

Take Care,

Cam

[Guest guest]

Thanks Cam,

I am in Norwalk Connecticut. I had an orthopedist but I don't think he is what you mentioned " an adult scoli specialist" Years ago the orthopedist told me to see my general practioner for problems. The GP found the osteopenia. Recently I made the mistake of seeing a chiropractor about my neck but found that the adjustment did make my neck feel better but it made my hip feel ALOT worse so I stopped seeing her. Right now I am just trying to be proactive to stay healthy and would like to hear from other flatbackers so as to better understand aging with a fused,etc. spine.

Thank you,

Diane M

[ ] Re: new member

Hi DianeM,Welcome. Where are you living now? You don't say if you are being followed my an adult scoli specialist, but I think if you are not, now would be a good time to find one. I am not trying to be an alarmist, but it is not outside the realm of possibility that you are/have been developing symptoms of flatback which are straining your neck now. Do you feel like you are in a bit of a forward lean these days? Or, something else entirely could be going on...but since you have "landed" here, I am guessing that, like me, when things started going downhill in a hurry for me, I knew intuitively that it was related to my fusion from long ago. A well qualified doc should be able to help you sort out your concerns.I have read that mitral valvue prolapse is very commong amongst folks that have scoliosis....maybe knows more of the thinking here...but for many of us it is just "part of the package"! Isn't scoliosis grand?Take Care, Cam

[Guest guest]

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

From: dmongi

Sent: Saturday, December 30, 2006 2:55 PM

Subject: Re: [ ] Re: new member

Thanks Cam,

I am in Norwalk Connecticut. I had an orthopedist but I don't think he is what you mentioned " an adult scoli specialist" Years ago the orthopedist told me to see my general practioner for problems. The GP found the osteopenia. Recently I made the mistake of seeing a chiropractor about my neck but found that the adjustment did make my neck feel better but it made my hip feel ALOT worse so I stopped seeing her. Right now I am just trying to be proactive to stay healthy and would like to hear from other flatbackers so as to better understand aging with a fused,etc. spine.

Thank you,

Diane M

[ ] Re: new member

Hi DianeM,Welcome. Where are you living now? You don't say if you are being followed my an adult scoli specialist, but I think if you are not, now would be a good time to find one. I am not trying to be an alarmist, but it is not outside the realm of possibility that you are/have been developing symptoms of flatback which are straining your neck now. Do you feel like you are in a bit of a forward lean these days? Or, something else entirely could be going on...but since you have "landed" here, I am guessing that, like me, when things started going downhill in a hurry for me, I knew intuitively that it was related to my fusion from long ago. A well qualified doc should be able to help you sort out your concerns.I have read that mitral valvue prolapse is very commong amongst folks that have scoliosis....maybe knows more of the thinking here...but for many of us it is just "part of the package"! Isn't scoliosis grand?Take Care, Cam

[Guest guest]

Jill,

Thank you for replying. If you don't mind me asking, do you know how your 3 disks got herniated? Are you living with constant pain? I hope not. Lately I get lower back pain/right side hip pain if I stand too much. I have trouble swallowing too, especially those big calcium pills I take.

Sincerely,

Diane Mongiardo

[ ] Re: new member

Hi DianeM,Welcome. Where are you living now? You don't say if you are being followed my an adult scoli specialist, but I think if you are not, now would be a good time to find one. I am not trying to be an alarmist, but it is not outside the realm of possibility that you are/have been developing symptoms of flatback which are straining your neck now. Do you feel like you are in a bit of a forward lean these days? Or, something else entirely could be going on...but since you have "landed" here, I am guessing that, like me, when things started going downhill in a hurry for me, I knew intuitively that it was related to my fusion from long ago. A well qualified doc should be able to help you sort out your concerns.I have read that mitral valvue prolapse is very commong amongst folks that have scoliosis....maybe knows more of the thinking here...but for many of us it is just "part of the package"! Isn't scoliosis grand?Take Care, Cam

[Guest guest]

Hi, Diane

Unfortunately, I do live in constant pain. Not only is my neck nearly unbearable, most of the time, but it gives me constant headaches. I had an MRI a couple of years ago and then it got so much worse that I actually called my neurologist and asked him to please order another MRI. Knowing that I'm not one to do something like that, he ordered it no questions asked. That's when I found out that I had a 3rd herniation and that 1 is pressing on the cord.

I, too, have the low back issues. Due to the large fusion my sacro-iliac joint is experiencing erosion and causes nerve pain down my right leg. All of this on top of the flatback makes things difficult.

BTW, my surgery was in 1975. My rod broke, too, while I was still in my body cast. I had to have surgery, by a different surgeon, this time at Hospital for Special Surgery in NYC, to have the broken Harrington rod removed and 2 compression rods inserted because apparently part of the fusion hadn't healed.

Where are you in Norwalk? I actually have to make a trip to Stew's for some bagels either this coming week or next. Are you anywhere near there? I used to work in Norwalk til I went on disability nearly 10 yrs ago.

Be well,

Jill

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Boy, do I miss Stew Leonard's! Not to mention Trader Joe's. If I had those in NC, I'd be thrilled!

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Bonnie,

Where did you live in CT? How long did you live here and when did you leave. Yes, Stew's is absolutely great and we have Trader Joe's right here in Fairfield. Actually, there is one TJ's in NC. It's in Cary. I don't know where that is or where you live, but at least they have a presence there.

Anyway, how are you doing? I was gone from the list for a while and am not yet familiar with your story. It will take me quite a while to catch up. When did you have your original surgery? Have you had the revision procedure?

Wishing you well and sorry you left the great state of CT.

Be well,

Jill

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

HI Jill,

I had my Harrington Rod surgery by Dr. Keim,for a 70/55 curve in 1977 at age 36, fused T-3 to L-4. Had revision surgery in 1997, age 56, by Dr. Boachie. He removed the Harrington Rod, reconstructed the spine and inserted 2 isola rods starting at T-10, 8 pedicle screws and 8 cages, via posterior only, fused to S-1. I'm doing pretty well, though I've had my ups and downs. My biggest problem now is with the S-I Joint on my right side, but it's pretty much under control.

I knew about the Trader Joe's in Carey, NC, which is near Raleigh, about 2 hours from where I live in Wilmington. We hope that now that Trader Joe's has a presence in NC, that they will find Wilmington sooner rather than later. My friends and I write to them every so often, begging them to open a store here. At least we have our brand new Costco and don't have to rely only on Sam's any more. :-)

Bonnie

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Hi Jill,

That is awful that your rod broke when you were still in your cast. I am not sure when my rod broke but I think it was during my first pregnancy. I have nerve pain down my right leg too but it is not constant. I live 5 minutes away from Stew Leonards,just down the road. Would you like to meet at the Starbucks next to Stew's?

Diane M.

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Hi, Diane

What a great idea. Yes, I would love to meet you for coffee. Starbucks by Stew's would be perfect. I was thinking of going later this week- Wednesday or Thursday. Would either be good for you? I usually go to Stew's late morning (bagels are usually really fresh in preparation for the lunch crowd)but it isn't set in stone. What would be a good day and time for you?

Jill

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Hi, Bonnie

I, too, had Dr. Keim for my original surgery but in 1975, 2 yrs before you. I met a sweet 12 yr old who was at the Harkness Pavillion of Columbia Presbyterian at the same time having the same surgery. She is now a doctor in MA. and we are still good friends. I guess it's my silver lining from that time.

My 2nd surgery, at Hospital for Special Surgery was with Dr. Levine. What a gem. I wish he wasn't retired. I'd love to consult with him. But, I'm sure that when the time is right I'll find the right person.

I'm sorry you went through so much with your revision surery. I think you and all that have gone through it are very brave.

Be well,

Jill

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Hi Jill,

FYI, Dr. Boachie is Dr. Levine's successor at HSS.

Bonnie

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Thanks, Bonnie. I understand he has a superb reputation and it's good to know that he's the successor to such a talented and wonderful man.

Be well,

Jill

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

Hi Jill,

I could meet you on Thursday at 10:45 at the Starbucks next to Stew Leonards. Is that time ok for you? I can stay about 45 minutes because I will have to get back to work.

Diane M.

Re: [ ] Re: new member

Diane,

Hi, Welcome to the group. I sort of "dropped out" for a while but am going to try to participate a bit more. I had my original surgery at Columbia Presbyterian in 1975. I'm 54 now and have suffered from flatback for quite a few years now. I, too, have severe neck problems; in fact, 3 disks are herniated and 1 is pressing on my spinal cord. I do believe that the flatback has only aggravated the problem. And, believe it or not, I've been complaining, on occasion, of difficulty swallowing, too.

Anyway, I wanted to say hi and tell you that I'm your neighbor. I live in Fairfield. So, please feel free to email me.

Be well,

Jill

[Guest guest]

,

You are in the right place. How on earth you are able to work and go to

school is beyond my understanding. Bless you and please feel free to come here

and vent anytime.

Annie

colorado83_2002 <emily_j@...> wrote:

Hi, my name is . I was diagnosed five years ago with

Spondylolisthesis of my L5 and permanent fractures of my L3 and L4

vertebrea.

Most people do not believe I have back pain. I've had to learn to

live with it med free. I cannot attend school or do my job when I am

hazy from medication. I finally decided I needed to find a place where

others would understand what it is like to live with this pain on a

regular place.

J.

---------------------------------

Finding fabulous fares is fun.

Let FareChase search your favorite travel sites to find flight and hotel

bargains.

[Guest guest]

Welcome !

You found the right place. I've had chronic lower back pain for 11 years now

and chances are the I won't ever get rid of it again.

People don't see anything wrong with you on the outside (like a missing limb

or something) so they don't see your pain.

Hence, they assume you're just being a difficult person when they really

have no idea what chronic pain is like.

I have to say though that reading this board I sometimes feel lucky compared

to a lot of folks on here who have it even harder than me.

--stucky

On 4/2/07, colorado83_2002 <emily_j@...> wrote:

>

> Hi, my name is . I was diagnosed five years ago with

> Spondylolisthesis of my L5 and permanent fractures of my L3 and L4

> vertebrea.

> Most people do not believe I have back pain. I've had to learn to

> live with it med free. I cannot attend school or do my job when I am

> hazy from medication. I finally decided I needed to find a place where

> others would understand what it is like to live with this pain on a

> regular place.

>

> J.

>

>

>

--

stucky

[Guest guest]

Hi KC,

I have had Lyme disease for 20 years now and I have never been in

remission. When you are in remission, does the extreme pain and

fatigue go away? I seriously cannot remember ever feeling good like I

did before I became infected! I keep hoping that someday I will be in

remission. For the first 15 years hwoever, I did pretty good. Even

though I hurt all the time and was tired alot, it was nothing near as

bad as the last three years have been. I am barely managing to keep

working and from the way it looks, I may end up on disability. I do

not even want to quit work because I am afraid I will just keep getting

worse from not getting up all the time and moving. I do exercise all

the time however, I can also sleep for days at a time. Good luck and I

pray your Lyme disease stays in remission!!

God Bless!

M.

>

> I had lyme at least 15 years before diagnosed. I was diagnosed in

1998.I have been in remission for about a year now. I would like to

know if anyone else had lyme that long. Also anyone in remission and if

so do you have any lasting damage from the lyme. Thank you and hello! KC

>