Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Geri, They are anticpating a future need for a transplant, right now my levels are not elevated enough......I am hoping my levels stay this way, or at least until the waiting period ends. I have contacted a land Clinic to get info on their rules. Right now, I am dealing with depression and I found a support group and free meditation classes. Once in a while I bonk out. lydia 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Lydia 2, Very often AIH can be treated and at least they can keep you stable. What are you taking now for AIH? Imuran and Prednisone? Have they been able to make your liver function tests stabilize or are they heading towards normal levels? That five year wait has to be frightening, but perhaps all transplant centers don't have the same provisions. You might call a couple of other transplant centers and ask what their rules are. I know that some transplant centers will list people who have had cancer, but I don't know under what circumstances. Do your doctors think that you should be listed now or are they anticipating the future possibility? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 lydia 2 sorry I`m so late in responding. thanks for the welcome. As a matter of a fact I do have (weird) a great sense of humor. I`ve been able to cultivate it mainly by abusing my body to the point of death and then finding out God made other plans for me.Because of that I don`t take My life too seriously.I do however take your life seriously and would like to ease it in any way i can. I don`t know how old you are but I`m 57, and I play poker with some older men who have saying when one has what may be a life=threating health problem.----- " Well, after all you`re old enough " ---- meaning we`ve each lived long enough that it`s no surprise that we may soon die, Unsaid,but understood, is that if we didn`t accomplish what we should have,, too bad --- maybe we shouldn`t be sitting there playing poker. But probably too late. It`s up to each of us to choose how we spend each day. Most of us make some bad choices, I made some very bad choices , but each unwisely spent day is gone and those choices can`t be rectified- thier consequences have already been recorded.Theres another part of life that doesn`t include choices. This is summed up by that ancient saying: " SHIT HAPPENS " With the part of life that includes choices you have some control--you can determine the consequence-- do the right thing and you`ll get the right result-- here is God`s gift of free will. BUTTT.... when " shit happens " that`s what it does .. it just happens you didn`t make it so-- -- here though we still have been given some choices---- tolerance and acceptance---- we can waste our time,and others, whining, feeling sorry for ourselves,and generally making useless asses of ourselves that nobody wants to be around, or.... we can accept whatever has happened is the way it is suposed to be at that time that place.. can`t change it. It`s helpful to remember that you are probably not the 1st this particular shit has happened upon nor will you be the last. You are in position to prove that you can handle it better than those other poor bozos . When you do this you will have found another key to coping ---- helping some one else. This is more powerful than you can imagine. When you get out of your self and reach out to others your own problems minimalize and you feel a sense of self worth that cant help but make you feel better. Talk about being kind to yourself.... theres no better way than helping another child of God. In my particular case I do just what you think I do. I laugh as much as I can.. I go out of my way to find something funny about my situation. you know now I have a perfect excuse to wait till the crack of noon to get up.and not get ragged on for it. I also find it amusing that I was diagnosed with bone marrow cancer 3 yrs ago, a condition that eats away my bones from the inside, but obviously it wasn`t happening fast enough to sastisfy those devils in charge of shit so I had to come down with a disease whose TREATMENT is known to deteriorate bone tissue ... I figure it wont be too long before I`m a puddle of Jello with a nose and a cigar sticking out of the middle ( smoke 5-6 hand rolled a day-which I cant` afford but so what now.?) You know I had a liver transplant five years ago so i doubt I `ll be seriously considered as a canidate for another one, nor do I think I should be. I made a lot of bad choices earlier, as I said and so far I was given 5 extra yrs . to try to make up for them That`s alot of extra time and if I haven`t got it right i probably never will. You sound young enough not to have time to get in your quota of bad choices I pray you get that chance. Try not to worry so much about that which hasn`t hapened yet( and may never) You can`t do anything to stop shit from happening (you can look it up, its in the rules) Wasting your time worrying takes time from your being good to yourself TODAY and today ALWAYS turns into yesterday and you cant bring it back.( (we have a saying " If you`re standing with one foot in yesterday and one in tomorow- you must be pissing on today. Live in the moment,love yourself. don`t blame God, love your fellow human beings,(hell,love all of God`s creatures) accept those things you can`t control,change the things you can-know the difference-seek serenity, laugh well, PRAY hard (and not just for yourself)---\wear your galoshes,don`t tease your brother,watch both ways crossing the street, mind your manners , mind your P`s and Q`s,the mind is a terrible thing to waste,if you don`t mind me I`ll tell your dad , just you wait til he gets home , don`t let the boys kiss you on the first date, taste it before you salt it,don`t eat the yellow snow ... that`s all the advice have in me right now ,I`m very tired....... Oh ,yes one more- be prepared,,and keep plenty of toilet paper on hand in case it shit storms. I`m praying for you right now, as I write may your day be pain free and filled with some love and fun and laughter.may tomorrow become a warm and fond yesterday. Hug yourself and mean it. Hug someone you love and mean it more. Jerry, I am a new member too, with a similiar outlook, I have AIH and was diagnosed with colon/rectal cancer aug.99.....I been through the chemo and radiation......it's left me a total wreck.......now....the hepa doc is telling me...that if I do get a transplant...i will have to wait 5 years.....I don't really know, if with all these symptoms I will last that long. Jerry, you sound like if you have a sense of humor.....tell me what the secret is....I think I need to be kind to myself during this journey. lydia 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Lydia 2 If you have to wait 5 yrs and only can make 4... make them remember you were here... love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 Hi , Welcome! Anger is an important step in dealing with chronic diseases, so it is good that you are angry. Discovering that you have a chronic disease is similar to suffering the loss of a loved one. In a way you are, the loss of your life as you knew it. Sometimes grief counseling is helpful in learning to cope. Many of us have AIH and other overlapping conditions. I'm sure we can help with a lot of your issues. Feel free to ask questions or jump into conversations. Don Terradon Unlimited http://www.TerradonUnlimited.com "People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000 -----Original Message-----From: Beizer [mailto:rbeizer@...]Sent: Monday, October 16, 2000 11:56 AM egroupsSubject: [ ] New MemberHello,My name is and I was recently diagnosed with Autoimmune Hepatitis. I am male, single, 48 y/o live in the Philadelphia PA area.This diagnosis was so surprising to me and comes on the heels of an earlier unrelated diagnosis of Chronic Myelogenous Leukemia which I've been dealing with since January of 1998. I also have a history of collitis or Chrons disease(I never remember how to spell it)which is also autoimmune in nature. I had a biopsy in 1997 which was clear but had high liver enzymes. Then I was dx with Leukemia and went on Interferon in May '98. My May 2000 liver biopsy now shows the AIH. What a mess.Here's another irony. The treatment I am on for the Leukemia is Interferon - an immune stimulant - and the standard treatment as I'm sure you all know - for AIH is Predinsone and Immuran (an immune suppresent). So my docs had been scratching their heads over what to do.The decision seems to be to have me stay on the Interferon, the Leukemia being the more unpredicatable condition and to have me start on Predisone alone for the AIH. I am waiting for final ok from the hepatologist to start that therapy.This whole thing really has me more pissed off at times than scared. I don't understand why I seem to be falling apart inside, yet look fine to the world on the outside. Further complicating things is that I was laid off a year ago and have not been able to replace the job I had. I am a computer systems anlayst. Surprising huh and frustrating as all get out.Any information anyone could provide would be helpful. I am really stressed out and now participate in three different support groups.Thanks to all in advance._________________________________________________________________________Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 robert, you hit the nail on the head, looks fine on the outside and falling apart on the inside. i was retired in three days from my job with the state of texas, when they found out about my doctor not wanting me in such a stressful situation. when any one finds out how to look good on the outside and feel great on the inside, please let me know. linda satx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Welcome....As you obviously already know these support groups can really be a great place to learn and vent and make friends....all three things being very important when we are dealing with doctors and hospitals.... Sounds like you have been doing all the right things for yourself ....mentally...and hope that they will now be able to help you with your treatments.... The job thing I would imagine is very frustrating.....it seems that out of nowhere something will fall from the sky....when you are not looking....almost like a watched pot won't boil.... I hope you will post often...and we will all get to know you....I am a mom here....my son just turned 18 last week....He also has Crohns...diagnosed at 9 ....he also has RA..PSC and AIH....and just in the last couple of weeks has been told that he has Spleen....something...can't remember the exact name right now....but his spleen is really large....long story....We live in NJ and he sees doctors in Childrens Hosp. in Philly.....He has an older brother (22) who has UC and has been going to CHOP since he was 3 so we see the same doctors....plus some others there....they are at a loss with him right now and want to send him to NIH...the National Institute of Health...in DC....so we are in the waiting process to see if they will accept him into their study.. Again welcome to our group....I mostly read and then will post when I find time....sometimes in spurts and then not again for days or weeks....but I try to keep up ..... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 Hello , There is a lot of information about cleansing and particularly the Arise and Shine cleansing program at www.cleanseandpurify.com Arise and Shine is one of the most effective colon cleansing products on the market! I personal have had great experiences with these products. new member > Hi, > > I am a new member to this group. My husband and I > have wanted to do some cleanseing for a while now, so > here I am. I'm hoping to find some info on cleansing > programs, herbs, etc. If anyone could suggest some > great books or places to pick up info it would be > greatly appreciated. > > I suffer from unexplained infertility. I am hoping > cleansing may set my body back on track. If anyone > else in the group has further info on infertility and > cleansing I would love to hear from you. > > Thank you, > > > > Subscription email: > mailto:bowel cleanse-subscribeegroups > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 FYI, I didn't menstruate for three years. Cleansed my bowel, started taking animal thyroid, got pg. first try. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 If anyone could suggest some > great books or places to pick up info it would be > greatly appreciated. Dr. Bernard Jensen's book " Guide to Better Bowel Care " is a good place to start. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2000 Report Share Posted November 1, 2000 > Hi, > A good start is the classic book " Tissue Cleansing Through Bowel Management " written by Dr. Bernard Jensen http://members.xoom.com/bowel cleanse/cleansing.pdf It is a must read for every serious cleanser -- detailed explanation, instruction on cleansing, diet, nutrition with sample menu and a cleansing program plus self-diagnostic tips. Ludmil > I am a new member to this group. My husband and I > have wanted to do some cleanseing for a while now, so > here I am. I'm hoping to find some info on cleansing > programs, herbs, etc. If anyone could suggest some > great books or places to pick up info it would be > greatly appreciated. > > I suffer from unexplained infertility. I am hoping > cleansing may set my body back on track. If anyone > else in the group has further info on infertility and > cleansing I would love to hear from you. > > Thank you, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 In a message dated 11/01/2000 12:20:15 AM Central Standard Time, chujien2@... writes: << I am a new member to this group. My husband and I have wanted to do some cleanseing for a while now, so here I am. I'm hoping to find some info on cleansing programs, herbs, etc. If anyone could suggest some great books or places to pick up info it would be greatly appreciated. I suffer from unexplained infertility. I am hoping cleansing may set my body back on track. If anyone else in the group has further info on infertility and cleansing I would love to hear from you. Thank you, >> _________________ , If you are familiar with www.hacres.com there are many testimonies there of people unable to conceive but when they cleanse and eat properly, which in it's self causes internal cleansing, are able to convieve and bear healthy children. Best wishes in her plight and in doing it correctly without drugs. Ej Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 KBullock: I had autoimmune hepatitis for 11 years before I had to be transplanted and I think I had every known (and some unknown!) symptoms of the disease. I continued to work full time up until 6 months prior to my transplant when I became critically ill. If you have any specific questions, you can email me at: Bonjo46@... I would be glad to help in any way. Bonnie P. AIH and post transplant ('95) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Welcome I have had AIH since 1967. At present I am taking Prednisolone 5mgs and Azathioprine (Imuran) 50 mgs per day as well as other medication for complications associated with the AIH. I have had 6 relapses since the first time when AIH was diagnosed, all a result of reduction in Prednisolone I think. I will be happy to exchange info and experiences with you any time. Regards Janet UK [ ] New Member > I am an individual who has had autoimmune hepatitis for about 12 > years. I have been very fortunate in that most of my liver tests > have been nearly normal. I was on Imuran and prednisone for a few > years. Currently, I am on 5mg. of prednisone and feel I am doing > very well. One attempt was made to take away meds, but that lasted > all of 3 weeks when I went back to pre-treatment levels. I do feel > that prednisone has affected me especially emotionally, although I'm > not sure my doctor believes me. > Currently, I am employed as a speech pathologist, but I need to > get out of that field. I'm haveing a hard time coping with all of > the illness and chronic disability I face every day. > I would appreciate being in contact with others who have had the > disease for long periods of time and see what some of their struggles > have been. I've had my ups and downs and would like to relate to > others who may have had similar issues. > I look forward to participating. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Thanks for the reply. I was intriqued by thre statement of when you think it may have started. What were the reasons which made you feel that 1979 may have been when it started? I appreciate the information. [ ] Re: New Member >Hi, > >I was formally diagnosed with AIH in 1990 but probably have had it at >least since 1979, if not before. I am currently stuck on 15 mg of >prednisone a day. My struggles have been coping with the side >effects of the medication and my liver damage. I am developing >cataracts and have gained 80 lbs. Unfortunately, I developed some >cirhossis before I was diagnosed and then,last Fall, they discovered >varices. Now, I am on a beta blocker to prevent a bleed. Its side >effect is fatigue!! I also have low platelets so I don't clot in the >normal amount of time. > >On the positive side, I am still able to have a professional career >and an active family life. (no daredevil activities) I just let my >body tell me when I am over doing it. > >, AIH, Elmhurst, Illinois > > >> I am an individual who has had autoimmune hepatitis for about >12 >> years. I have been very fortunate in that most of my liver tests >> have been nearly normal. I was on Imuran and prednisone for a few >> years. Currently, I am on 5mg. of prednisone and feel I am doing >> very well. One attempt was made to take away meds, but that lasted >> all of 3 weeks when I went back to pre-treatment levels. I do feel >> that prednisone has affected me especially emotionally, although >I'm >> not sure my doctor believes me. >> Currently, I am employed as a speech pathologist, but I need >to >> get out of that field. I'm haveing a hard time coping with all of >> the illness and chronic disability I face every day. >> I would appreciate being in contact with others who have had >the >> disease for long periods of time and see what some of their >struggles >> have been. I've had my ups and downs and would like to relate to >> others who may have had similar issues. >> I look forward to participating. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Hi, I was formally diagnosed with AIH in 1990 but probably have had it at least since 1979, if not before. I am currently stuck on 15 mg of prednisone a day. My struggles have been coping with the side effects of the medication and my liver damage. I am developing cataracts and have gained 80 lbs. Unfortunately, I developed some cirhossis before I was diagnosed and then,last Fall, they discovered varices. Now, I am on a beta blocker to prevent a bleed. Its side effect is fatigue!! I also have low platelets so I don't clot in the normal amount of time. On the positive side, I am still able to have a professional career and an active family life. (no daredevil activities) I just let my body tell me when I am over doing it. , AIH, Elmhurst, Illinois > I am an individual who has had autoimmune hepatitis for about 12 > years. I have been very fortunate in that most of my liver tests > have been nearly normal. I was on Imuran and prednisone for a few > years. Currently, I am on 5mg. of prednisone and feel I am doing > very well. One attempt was made to take away meds, but that lasted > all of 3 weeks when I went back to pre-treatment levels. I do feel > that prednisone has affected me especially emotionally, although I'm > not sure my doctor believes me. > Currently, I am employed as a speech pathologist, but I need to > get out of that field. I'm haveing a hard time coping with all of > the illness and chronic disability I face every day. > I would appreciate being in contact with others who have had the > disease for long periods of time and see what some of their struggles > have been. I've had my ups and downs and would like to relate to > others who may have had similar issues. > I look forward to participating. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 , When I was a freshman in college (Fall of 1979),I got sick. I was fatigued ,my liver enzymes were high and I lost 40lbs. I tested negative for all the known, viral hepatitis types at the time. With plenty of rest, my liver enzymes improved. Since my doctors never really diagnosed the problem, I was not aware of my illness until 1990 when I came down with Lyme's disease. My doctor did not like my liver enzyme levels and started me on a battery of tests which finally led to a biopsy and diagnosis. By that time, my liver had already sustained some cirhossis. So, I guess I owe my life to a tick! , AIH, Elmhurst, Illinois > >> I am an individual who has had autoimmune hepatitis for about > >12 > >> years. I have been very fortunate in that most of my liver tests > >> have been nearly normal. I was on Imuran and prednisone for a few > >> years. Currently, I am on 5mg. of prednisone and feel I am doing > >> very well. One attempt was made to take away meds, but that lasted > >> all of 3 weeks when I went back to pre-treatment levels. I do feel > >> that prednisone has affected me especially emotionally, although > >I'm > >> not sure my doctor believes me. > >> Currently, I am employed as a speech pathologist, but I need > >to > >> get out of that field. I'm haveing a hard time coping with all of > >> the illness and chronic disability I face every day. > >> I would appreciate being in contact with others who have had > >the > >> disease for long periods of time and see what some of their > >struggles > >> have been. I've had my ups and downs and would like to relate to > >> others who may have had similar issues. > >> I look forward to participating. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 hi elaine, we know how you feel. i don't have liver disease but my daughter kathleen who is 9 was diagnosed this past feb. she wasn't sick either but when we did blood work, her alt and ast levels were 1500 and 1300. it was a long process and alot of blood work before the biopsy confirmed her autoimmune hepatitis. she doesn't really understand what all is going on so i'm going through the worries for her. be positive, i think as long as you are feeling well you need to stay active and on top of things. what medications are you taking? how are they treating you condition? there are so many options, we have already discussed liver transplants and the great success of them with her doctor, even though she's along way off. there is all kinds of info on the internet. read... knowledge is stregenth. hope this helps some what. feel free to email when ever you want [ ] New Member Hello out there.... My world changed yesterday when I went to hear the results from a recent biopsy. I was told I have advanced liver disease( " stage 3 and possibly 4 " ) and they don't know what the cause is! I feel as though I'm not able to wake from a really bad dream. I don't feel sick, I don't look sick, who do I talk to, what do I do next? This is all so surreal.... Anyone willing to help me start to sort this all out? efp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Hi Elaine, Don't despair! You've come to the right place for support. I came here because in Oct. my mother died of liver disease, but she was 82! There are so many things the doctors can do for you. My mother was too old when they found her's. You're really lucky. The folks here have been great! They will help you understand the lab results, the meds, the causes, the worries, and most of all they give it all with love. No BILLS! They truly care about you and your problems because most of them have a liver problem or one close to them has a liver problem. It will be good for you to go back in the archives and read the post in there. It takes time to go through all of them, so you might want to just skim through until you find a subject you need. Quite a few will be asking how someone is doing since they haven't posted for a while, others will be asking for help with meds, and some like " bluupoint " and others will be posting facts from research. You will find a lot of knowledge on these pages. Some of these people on the list are probably more knowledgeable than some doctors about these diseases. I know they were more knowledgeable than my mother's doctor. So relax, it's not the end of the world, it's only another step in your world that has to be climbed. Life is made up of a lot of steps, it is a steady climb to the top. While you're at it, tell us what area of the world you live in. There may be someone near you who can help with the doctors. How old are you? Not that it is any business of mine, just curious. Have your doctors started you on any meds yet? What test have been done? And all that kind of stuff. I won't be able to answer your questions most likely, but others can and will. You've come to the right place. We are all here for you. I am rambling, but I just wanted you to know we care...Carolyn Wilkinson... evinmoon@... or evinmoon@... Keep smiling, you never know who's life you touch with a simple smile. [ ] New Member > Hello out there.... > My world changed yesterday when I went to hear the results from a recent > biopsy. I was told I have advanced liver disease( " stage 3 and possibly 4 " ) > and they don't know what the cause is! I feel as though I'm not able to > wake from a really bad dream. I don't feel sick, I don't look sick, who do > I talk to, what do I do next? This is all so surreal.... > > Anyone willing to help me start to sort this all out? > efp > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Welcome Elaine, Did they give you a reason for doing the biopsy? They must have suspected something was wrong. What did they say would be the next step? BTW...welcome to our group. I hope we can answer some of your questions. Jen On Tue, 14 Nov 2000 11:50:53 -0700, egroups wrote: > Hello out there.... > My world changed yesterday when I went to hear the results from a recent > biopsy. I was told I have advanced liver disease( " stage 3 and possibly 4 " ) > and they don't know what the cause is! I feel as though I'm not able to > wake from a really bad dream. I don't feel sick, I don't look sick, who do > I talk to, what do I do next? This is all so surreal.... > > Anyone willing to help me start to sort this all out? > efp > _______________________________________________________ Tired of slow Internet? Get @Home Broadband Internet http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 Here's a little info I found: Symptomatic Treatment of Pinworms SIGNS AND SYMPTOMS: Fidgeting, irritability, restlessness, a severe itching in the anal area and also on the outside of the vaginal area in women. Sleeplessness, bedwetting, and abdominal discomfort, and a crawling sensation may also occur. DISCUSSION AND TREATMENT 1. Excessive scratching may lead to secondary infections. 2. The movement of the adult female pinworm as she lays her eggs in the skin around the anus causes a tickling or itching, which may cause the child to scratch the area continually. 3. This area of skin becomes raw. 4. Pinworms are small round worms with a white body and pointed tail. 5. During the night, they emerge from the anus to lay microscopic eggs on the surrounding skin. 6. This movement causes swelling and severe itching. 7. It is usually necessary to inspect the anal area at night to confirm pinworm infection. 8.The eggs after being laid in the skin around the anus are usually transferred to the mouth via the fingers to cause reinfestations or are carried on toys, clothes, or linens to other children. 9. Eggs can survive outside the body for as long as 3 weeks. 10.Eggs may be inhaled from the air (such as from linens that are shaken before being put on a bed). 11. The eggs that are swallowed hatch and mature after 2 to 6 weeks in the intestine. 12. The female worm moves to the anus area usually at night to deposit her eggs. 13. An accurate diagnosis of pinworm infestation should be made. 14. Use a flashlight to inspect the anal region after the child has been in bed for about 1 to 2 hours. 15. Female adult pinworms may be seen coming outside the anal region to lay eggs. 16. After pinworms occur in the family, all family members should sleep in separate beds. 17. Keep the fingernails short and clean, avoid thumb sucking, nail biting, and wear cotton underpants. 18. Wear underpants and pajamas on retiring. 19. Change linens, underpants and pajamas frequently. 20. Wash linens, underpants and pajamas in hot soapy water. Rinse and dry thoroughly. 21. Use soap and water to clean floors of sleeping rooms. 22. To insure decontamination of pinworm eggs, vacuum the floors, especially around the bed. 23. To prevent infestation, children should sleep in separate beds, toilet seats should be kept clean, showers taken every morning, wash hands before eating and preparing foods, and after leaving the bathroom. 24. Most children who carry pinworms, outside of an itching around the anus, have no symptoms. 25. Make it a point to always wash your hands with soap and water before eating and after going to the bathroom. 26. Do not touch your face (especially your nose or mouth) unless you hands have been washed with soap and water. DRUG CATEGORY: PINWORM RELIEF MEDICATION Drug Name: Pin-X® Pinworm Treatment. Pin-X® is the registered trademark of Effcon Laboratories, Inc. Drug dose Adults and Children 2 years to under 12 years of age: Oral dosage is a single dose of 5 milligrams of pyrantel base per pound, or 11 milligrams per kilogram, of body weight not to exceed 1 gram. Dosage information is summarized on the following dosage schedule: The medication kills only the adult worm not the eggs of the larvae. When one person in the family has pinworms, the entire family should be treated. Weight Dosage (taken as a single dose) & #61623; 25 to 37 lbs. = ½ tsp. & #61623; 38 to 62 lbs. = 1 tsp. & #61623; 63 to 87 lbs. = 1½ tsp. & #61623; 88 to 112 lbs. = 2 tsp. & #61623; 113 to 137 lbs. = 2½ tsp. & #61623; 138 to 162 lbs. = 3 tsp. (1 tbsp.) & #61623; 163 to 187 lbs. = 3½ tsp. & #61623; 188 lbs. & over. = 4 tsp. WARNINGS: Observe all warnings as stated on the label. Keep this and all drugs out of the reach of children. In case of accidental overdose, seek professional assistance or contact a poison control center immediately. If you are pregnant or have liver disease, do not take this product unless directed by a physician. MODE OF ACTION Pyrantel Pamoate, the active ingredient of Pin-X® paralyzes the worm. The paralyzed worms lose their grip on the intestinal wall and are eliminated from the body. ACTIVE INGREDIENT: Each 1 mL of liquid for oral administration contains: Pyrantel base ------- 50 mg (as Pyrantel Pamoate) For Anal Itching 1. Use a hand towel and soap and water to gently clean the rectal area after a bowel movement. 2. Carefully dry area. 3. To the dry area, apply Cortaid® Maximum Strength Cream as directed below. DRUG CATEGORY: ITCHING RELIEF MEDICATION Drug Name: Cortaid® Maximum Strength Cream. Cortaid® is the registered trademark of Pharmacia & Upjohn. Drug dose & #61623; Wash the hands with soap and water each time before and after applying the Cortaid® Maximum Strength Cream. Adults and Children 2 years of age and older Apply to affected area not more than 3 to 4 times daily. Under 2 years of age: Do not use, consult a physician. WARNINGS: & #61623; Observe all warnings as stated on the label. & #61623; For external use only. & #61623; Avoid contact with eyes. & #61623; If condition worsens, or if symptoms persist more than 7 days or clear up and occur again within a few days, stop use of this product and do not begin the use of another hydrocortisone product unless you have consulted a physician. & #61623; Do not use for the treatment of diaper rash. Consult a physician. & #61623; For external feminine itching, do not use if you have a vaginal discharge. Consult a physician. & #61623; For external anal itching, do not exceed the recommended dosage unless directed by a physician. & #61623; In case of bleeding, consult a physician. & #61623; Do not put this product into the rectum by using fingers or any mechanical device or applicator. & #61623; Keep this and all drugs out of the reach of children. & #61623; In case of accidental ingestion, seek professional assistance or contact a poison control center immediately. MODE OF ACTION Cortaid® Maximum Strength Cream is for the temporary relief of itching associated with minor skin irritations, inflammation, and rashes due to eczema, psoriasis, seborrheic dermatitis, poison ivy, poison oak, or poison sumac, insect bites, soaps, detergents, cosmetics, jewelry, and for external feminine and anal itching. ACTIVE INGREDIENT: HYDROCORTISONE ------------------------------------------------------------ > In a message dated 02/03/2000 1:44:30 PM Central Standard Time, > denisedunlap@m... writes: > > << Hello everyone. My name is and I just joined this list last > night. I've been reading the archived messages and am learning so much. > > My husband and I have pinworms -- I'm sure because we've SEEN them. > We've been using PinX (an over the counter drug that I saw on TV) and > that gets rid of them for a month or so, and then they return in full > force. I understand from this experience and from what I've already > read here that the road to life without pinworms might be a long one. > > So -- to my question -- what's the best course of action to get rid of > these little creatures? Also, I remember my brother and I having them > when we were very young (I was about seven or eight.) Do you think > they've been in my body all this time? > > Thank you for being here. I'm already encouraged and am so happy to > find someplace where I can talk about this openly, without > embarrassment. > > > > ~~~~~~~~~~~~~~~~~~~~~~~ > Try looking here for an answer > http://home.sol.no/~dusan/parasitescleanse.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 Thanks for the welcome to the group! I'm an RN, and pretty well versed in this horrible disease I have, but my doc doesn't want to transplant because AIH so frequently comes back. I am in FL, but would love to have resources, docs, etc for anywhere to get better or transplant if necessary. I just recently had to move here to be closer to my mom as she helps me with my kids (I'm a widow). My best blessings to all of you, dag Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 25, 2000 Report Share Posted December 25, 2000 In a message dated 12/25/00 8:41:39 PM Pacific Standard Time, cwalaszek@... writes: Hello, I am new to this. My name is and I am 26 years old and I was informed that I have advanced cirrhosis. there are others in the group that can give you better advice than I can, but I wanted to say hello and welcome right away. First, what part of the country are you in? I hope the coming year will be a good one for you, and that we can be of some help. Harper (AIH 5/00) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 Chris...... neither prednisone or imuran are treatments for cirrhosis....a cirrhosed cell can not be reclaimed.... what doctors do is try to slow or stop the cause of the cirrhosis and hope your liver hasn`t reached a point of no return.... how advanced is your cirrhosis ..... what symptoms do you have ? If your doctor doesn`t know any thing about cirrhosis you better get another one. even most general practicioners know about cirrhosis. Find a hepatologist and/or gastroenterologist. Cirrhosis unchecked leads to death. If you are really in advanced stages of cirrhosis, proteins, at least complex ones as in meat. are dangerous. the liver no longer can metabolize them and harmful toxins find thier way into your bloodstream, this leads to a condition known as encephalopathy which can result in coma and death. I`ve never tried any herbs but some people have taken or take milkthistle which is supposed to heal damaged livers. but like, I said, cirrhosed cells are irrevocably gone. I think you will find that most doctors are dedicated to thier work and not just in it for the money. I received a transplant in 1995 at the Cleveland Clinic ,which is one of the top transplant centers in the world. You`re going to have to ask more about your diagnosis... prednisone and imuran are not treatments for cirrhosis, but for an underlying disease that is causing the cirrhosis...if your cirrhosis has reached later stages (which I doubt, as you`ve offered no symptoms of such) then all the prednisone in the world isn`t going to help you. Find out what you have exactly. Get a liver doctor . Get a biopsy.. ask questions..... Good luck . I`d be glad to help if I can.....been there done that, got the tee shirt. Jerry Fox Transplanted `95 for end stage cirrhosis To whomever, Hello, I am new to this. My name is and I am 26 years old and I was informed that I have advanced cirrhosis.For the last year I have been given prednisone at different doses.The docs tried Immuran, but I did not react well. I do not know much about this disease, nor do they it seems.I have a million questions to whomever has the answers. Is protein more damaging to my liver or do I need to be on a increased protein diet? What herbs has anyone tried with any known benefits? Where are the doctors that care about health,more than just money? What hospitals are the best for liver transplant? What can I do to help myself? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 Welcome to the group. I'm 29 and I was dx in Sept with AIH. If you look at past messages you will find info about herbs. I take milk thistle. Milk Thistle strenghtens the outer protective membrane of liver cells and stimulates the production of new liver cells to replace damage ones. Of course, this is not scientifcally proven, at least in the US. Milk thistle is commonly used in Germany, Switerland and other parts of Europe. There are no side effects to Milk Thistle so it can't hurt to try it. I had trouble finding a good doctor as well. Like Don said ask lots of questions and if you feel you are not getting answers find another doctor. You can call the American Liver Foundation and they can give you names of doctors in your area. Also check the website hepatitis-central.com. They also list doctors across the country. That is how I found mine. The American Medical Association also lists doctors and will tell you if they are board certified. This group is great. I learned more from this group than anywhere else. Quote Link to comment Share on other sites More sharing options...
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