Re: Just wanted to say hello and ask a few questions

January 22, 2008

>

> Hi, I am new to this group and very new to lyme. I was just dx

about 5

> days ago. I have been on the antibiotics 4 days and I am feeling

> worse. Is this normal? I have been in bed the last 3 days. I

feel so

> weak and my muscles and bones hurt. Any sugestions?? I am going

> through all this and my family is acting like i found out i had the

> flu. They don't want to talk about it..and are very dismissive.

When

> I tell them I am not feeling well they say maybe you are thinking

about

> it too much. I feel bad that my once supportive family has given

up on

> me. I was dx with fibromyalgia in 95 and so it took the doctors 12

> years to realize what was wrong with me. I have over 20 spots of

white

> matter disruption on my brain and nerve problems. I am thankful

that I

> finally found a doctor that did the right tests! Have any of you

gone

> through this??

>

> Sincerely, Kathleen

>

I am so sorry your family doesn't understand. This is very common.

You are very sick if you have had this for so many years. It is like

having Aids. It is a very dangerous illness. See if you can go on

http://www.LymeDiseaseAssociation.org, and http://lymenet.org. Print

out some information on lyme and give it to family members and

friends or tell them to go it and read. Sometimes I think they are

just in deniel because they are affriad. I still have some family

members and friends that don't understand,or don't want to here about

it. But most have come to understand when I explain how it was

attacking my liver. It is serious. It will get better.

January 22, 2008

Kathleen-

Your story scares me! I know I had the rash back in sept. and I can't get

diagnosed! I know what you mean about your family acting like you have the flu-

my husband and kids just don't get it. My parents are very worried. I feel worse

on the doxy, too. I have been on it for weeks. How did you finally get a Dr. to

properly diagnose you? I could use all of the advice I can get! Good luck to

you and thanks for sharing your story!

Amy

Kathy <katnet100@...> wrote:

Hi, I am new to this group and very new to lyme. I was just dx about 5

days ago. I have been on the antibiotics 4 days and I am feeling

worse. Is this normal? I have been in bed the last 3 days. I feel so

weak and my muscles and bones hurt. Any sugestions?? I am going

through all this and my family is acting like i found out i had the

flu. They don't want to talk about it..and are very dismissive. When

I tell them I am not feeling well they say maybe you are thinking about

it too much. I feel bad that my once supportive family has given up on

me. I was dx with fibromyalgia in 95 and so it took the doctors 12

years to realize what was wrong with me. I have over 20 spots of white

matter disruption on my brain and nerve problems. I am thankful that I

finally found a doctor that did the right tests! Have any of you gone

through this??

Sincerely, Kathleen

---------------------------------

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

January 22, 2008

>

> Hi, I am new to this group and very new to lyme. I was just dx about 5

> days ago. I have been on the antibiotics 4 days and I am feeling

> worse. Is this normal? I have been in bed the last 3 days. I feel so

> weak and my muscles and bones hurt. Any sugestions?? I am going

> through all this and my family is acting like i found out i had the

> flu. They don't want to talk about it..and are very dismissive. When

> I tell them I am not feeling well they say maybe you are thinking about

> it too much. I feel bad that my once supportive family has given up on

> me. I was dx with fibromyalgia in 95 and so it took the doctors 12

> years to realize what was wrong with me. I have over 20 spots of white

> matter disruption on my brain and nerve problems. I am thankful that I

> finally found a doctor that did the right tests! Have any of you gone

> through this??

>

> Sincerely, Kathleen

>The Herxheimer Reaction-Lyme Disease's Nemesis..

A Herx is when a Lymie finally takes antibiotics and has a unique

reaction of worsening symptoms as a result of the Lyme bacteria

fighting the antibiotics or an entire new set of symptoms can occur.

Lyme Bacteria is uniquely shaped like a corkscrew and literally screws

itself into every entity of the body, then hides itself.

The Herxheimer is a wicked, horrific, painful, fucked up, something

that can not be described unless you yourself experience. Those who

see you experience a Herx sometimes think we are faking it….or it is

an imagined concept….or they think we are dying… Because the pain is

something nothing you have ever felt except having natural childbirth.

Ranson, my 5, year old is now on his second day of antibiotics after

an 8 month exposure to the Lyme bacteria in my womb and no one willing

to help him just after his recent 5 birthday.

Only two doses of one antibiotic and one of another, my hoksila has

herxed already. A Herx is another painful entity of Lyme Disease that

proves you have it.

No one has any idea the pain that comes out when Herx is happening.

Ranson had an immediate Herx; sometimes it takes, hours, days, and

weeks. It depends on the individual. His face is beat red, he is

running a fever, he is irritable, more than a normal Oglala child,

Ha Ha! He is wicked toward me, his mother. Everything is directed at

me and his grandmother.

My baby has a high fever, is irritable and crying…he says his tummy

hurts….his legs hurt. Today his temperature is only 97.2….which is not

uncommon. It is cold where we are, it makes it worse on our bodies to

be in the cold…..

My son doesn't cry much, except when he lost his first tooth

yesterday. Otherwise, he gets so mad that he is sick. He gets pissed

repeatedly that he doesn't feel better.

He often asks me, " When am I going to feel good, mama? "

Nobody reading this who does not have Lyme or a loved one that does

has no idea the suffering that comes along with finally getting

treatment. Before, during, after!

Our loved ones do not even know what Lyme Disease is and don't know

the horrible effects of this infectious disease.

Lyme Disease has been minimized to be a minor infection and can cause

some symptoms when treated with three weeks of oral antibiotics. That

is when it is properly diagnosed immediately, which rarely happens.

Many mothers including myself get repeatedly lectured and yelled at

by doctors, nurses, infectious disease specialists, neurologists (not

mine ; ) ) etc. that our baby could not contract Lyme Disease from our

womb.

Why? Because we are all conditioned that

A. Medical Doctors are 'God-like' and should not be questioned!

B. We are brain washed that antibiotics immediately work on an

infection such as Strep, bronchitis, or pneumonia . You take them and

get better with no real side effect but diarrhea.

However, there are so many symptoms. As my neurologist said Lyme

Disease can present it's itself as any disease known to man.

It is a deadly disease.

The pain of seeing my child go through another step with this disease

is so unbelievable painful…Watching my baby working out the poison out

of his tiny body, that his mom gave to him….It is something I know I

will never get over…

But the blessings here is that Ranson should get better. I pray the

day he listens and is not hyper. That my not ever happen either. But I

know with this incredible doctor, our hope and our traditional Lakota

medicine, he in a place to heal now!

My Lakota boy relatives are Chief ph Gall, Sitting Bull and Chief

Red Cloud and Crazy Horse….

It is in Ranson's blood to be a warrior. He has been a warrior before

he even came out of my womb.

Now he has a fair chance to beat this….and he will…

8:05 - 2 Comments - 2 Kudos - Add Comment

January 22, 2008