Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Where did you have this test done. Was it at the hospital or did you do the 24 hour salivary adrenal profile? If the latter, I need to know the results for each of the four times you spit into the test tubes and the reference range for each of those tests, as they differ throughout the day. Don't worry Sioban, neither or I are likely to give up, as one door closes, another opens. Luv - Sheila )_______________________________ ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Hi Sheila , It was the 24 hour compprehensive adrenal stress profile (saliva) from Genova. Cortisol levels sample 1 13.00 (inside range ) sample 2 2.3 L (outside range) sample 3 2.8 L (outside range) sample 4 3.3 H (outside range) Total daily cortisol 21.4 range 21- 41 nmol /L DHEA levels sample 2 (am) 0.18 L sample 3 (pm ) 0.32 DHEA :cortisol Ratio 1.7 DHEA Mean 0.25 ref range 0.30 - 1.00 DHEA: Cortisol Ratio 1.7 ref range 1.0 - 4.0 Hope that does it ! Thanks , just worried if my DHEA is too low and I should be supplementing. Taking cortef 20- 25 mg , T3 75mcg and Natural progesterone. Thanks Sheila , Sioban x From: Sheila <sheilaturner@...>Subject: RE: DHEAthyroid treatment Date: Saturday, 1 November, 2008, 11:55 AM Where did you have this test done. Was it at the hospital or did you do the 24 hour salivary adrenal profile? If the latter, I need to know the results for each of the four times you spit into the test tubes and the reference range for each of those tests, as they differ throughout the day. Don't worry Sioban, neither or I are likely to give up, as one door closes, another opens. Luv - Sheila )___________ _________ _________ __ ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Hi Sioban I really cannot see any reason why you should not supplement your DHEA with 25 mgs daily. You should supplement the hormone that is low. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2008 Report Share Posted November 1, 2008 Ok Sheila , thanks, think I will. sioban x From: Sheila <sheilaturner@...>Subject: RE: DHEAthyroid treatment Date: Saturday, 1 November, 2008, 3:40 PM Hi Sioban I really cannot see any reason why you should not supplement your DHEA with 25 mgs daily. You should supplement the hormone that is low. Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2008 Report Share Posted November 2, 2008 Sheila HELP ! not having a very good few days. I have been on T3 75mcg for two weeks and 20 mg of cortef . I am getting missed heartbeat every so often and i have a headache , I have tried taking another 2.5 mg of cortef , should I take more cortef or will this make it worse . Also could it be that I need to reduce T3 to say 50 mcg. Dr P has told me last wednesday to stay on 75mcg for another three weeks . What do I do , I've got something wrong ! any suggestions please ? Thanks sioban From: Sheila <sheilaturner@...>Subject: RE: DHEAthyroid treatment Date: Saturday, 1 November, 2008, 11:55 AM Where did you have this test done. Was it at the hospital or did you do the 24 hour salivary adrenal profile? If the latter, I need to know the results for each of the four times you spit into the test tubes and the reference range for each of those tests, as they differ throughout the day. Don't worry Sioban, neither or I are likely to give up, as one door closes, another opens. Luv - Sheila )___________ _________ _________ __ ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Hi Val I was reading Dr Hertoghe's Book " The Hormone Handbook " and he writes, under 'Indications' " The major indication is DHEA therapy - Other indications are 'Autoimmune diseases such as lupus and rheumatoid arthritis - Cortisol or other glucocorticoid therapy. Most patients on glucocorticoid therapy should, in our experience, add DHEA to their treatment as glucocorticoid treatment creates a DHEA deficiency by reducing ACTH secretion and thereby DHEA production. In this way, side-effects such as osteoporosis and other tissue wasting effects of the glucocorticoids may be avoided. Progress with DHEA treatment is slow to come, very slow. Most patients report the first improvements after 3 to 4 months of therapy. Others only after six months! Six months are necessary to obtain the full effects from DHEA therapy. An estimated 30-50% of the patients taking DHEA at small physiological doses do not feel much change with the therapy. Explanations for this may be that the dose is too low or the deficiency is so mild that DHEA treatment does not make any noticeable difference. " Dr Hertoghe recommends 5 to 30 mgs for women and 20 to 55 mg for men. He says that DHEA can be increased by correcting other hormone deficiencies. Several hormones can boost DHEA (and androstenedione) production and its effects in the body. Their absence or deficiency will adversely affect DHEA (and androstenedione) activity. The principal hormone replacement therapies that increase or decrease the secretion and/or action of DHEA are : As a moderate to strong stimulator of DHEA: Testosterone - DHT - Anabolic steroids (Androgens) and Thyroid hormones. As a moderate to strong inhibitor of DHEA: Glucocorticoids at high doses - Cortisol at low doses and Oral oestrogens. Luv - Sheila __________________ Lots of people who need DHEA do get the side-effects from it. I was discussing it with my endo & I can't really remember what he said except that he has his addisons patients on it at 25mg or 50mg (I was taking 5mg but my blood test was still low in range & I have been on it for about 5 years on longer perhaps). I asked if they have side effects (e.g. hairy face for females), and he said that yes, they do. I guess they really need it & so have to live with this but plucking hairs from the moustache area is not pleasant. I asked whether I should increase to 10mg/day and he said this was up to me & was not bothered either way as although I am on hc I am not addisons. I decided to increase to 10mg/day but I am keeping a close eye on my moustache & keep thinking about getting a lazer to get rid of the few I get. Personally I think people should only take if they test low in it, and then should get regular testing like we do for thyroid. I try to get a 6 monthly blood test for this. ,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Your body is obviously not yet ready to take such a large dose of T3 Sioban, your missed heartbeats and headache are showing this. I would stop your T3 altogether for 24 hours to get the excess T3 out of your system and then start back on 50 mcgs and see how you feel. Are you also splitting your dose and taking it twice a day? If you were taking all of your dose at one go, this could account for your symptoms. How long have you been on Cortef and did you start taking this for a week without taking any form of thyroid hormone replacement? You have to build up your adrenals first to enable them to cope with thyroid hormone replacement. Luv - Sheila Sheila HELP ! not having a very good few days. I have been on T3 75mcg for two weeks and 20 mg of cortef . I am getting missed heartbeat every so often and i have a headache , I have tried taking another 2.5 mg of cortef , should I take more cortef or will this make it worse . Also could it be that I need to reduce T3 to say 50 mcg. Dr P has told me last wednesday to stay on 75mcg for another three weeks .. What do I do , I've got something wrong ! any suggestions please ? Thanks sioban ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 I think I know what has happened . I raised the cortef for a couple days by an extra 5mg and I think it caused a thyroid dump . I have stopped the T3 now . Its unfortunatley coincides with me having to have a blood test this coming Friday as GP wants to check my levels. This will mean I'll only have been on T3 for one or two days this week , as I have to stop T3 two days before test. I would have brought it forward but they are fully booked. Oh well at least I wont get an false high reading ! Thankyou sheila you confirmed my thoughts , luv Sioban On Mon, 3/11/08, Sheila <sheilaturner@...> wrote: From: Sheila <sheilaturner@...>Subject: FW: DHEAthyroid treatment Date: Monday, 3 November, 2008, 9:38 AM Your body is obviously not yet ready to take such a large dose of T3 Sioban, your missed heartbeats and headache are showing this. I would stop your T3 altogether for 24 hours to get the excess T3 out of your system and then start back on 50 mcgs and see how you feel. Are you also splitting your dose and taking it twice a day? If you were taking all of your dose at one go, this could account for your symptoms. How long have you been on Cortef and did you start taking this for a week without taking any form of thyroid hormone replacement? You have to build up your adrenals first to enable them to cope with thyroid hormone replacement. Luv - Sheila Sheila HELP ! not having a very good few days. I have been on T3 75mcg for two weeks and 20 mg of cortef . I am getting missed heartbeat every so often and i have a headache , I have tried taking another 2.5 mg of cortef , should I take more cortef or will this make it worse . Also could it be that I need to reduce T3 to say 50 mcg. Dr P has told me last wednesday to stay on 75mcg for another three weeks . What do I do , I've got something wrong ! any suggestions please ? Thanks sioban ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 - please do not post information on this forum that you have taken from another forum - first, out of courtesy, you should ask permission from the owner of any Internet forum before taking information from them and passing it to another forum, and second, you have no way of knowing whether such information is correct or not. You most certainly do not know whether a death had been caused because a doctor gave a patient too much DHEA and pregnelolone all at once - this is how bad and incorrect information gets spread around and I feel that spreading such information could be dangerous. Like TPA-UK, the members of the Adrenal forum are not medically qualified, but at TPA-UK, we do, at least, have 4 qualified medical advisers. You mentioned the other day to Val that you would never take DHEA because it was an anabolic steroid. I wrote to explain that you need to replace whatever hormone in your body you were not making - whether it is an anabolic steroid or not - everybody makes anabolic steroids naturally. Many people need DHEA as replacement in the same way they need T4, T3, cortisol, melatonin, growth hormone, calcitonin, pragnenolone, aldosterone, oestrogen and progesterone or testosterone. If you don't trust your doctor or chiropractor, then never take anything they offer without first finding out as much information about it as you can. Everybody should do that - and no, it is not a case that " …you should be able to trust your doctor " . As you say you just kept taking the DHEA, followed by pregnenolone and kept increasing magnesium (which sounds a very willy-nilly way of taking medication to me)- is it any wonder that you wondered what was wrong? We have no idea how much DHEA, pregnenolone or magnesium you were taking at that time or for how long you were taking it. We recommend here that every member reads as much as they can before they start taking any hormone replacement to get a thorough understanding of it. Never forget also, that each one of us is an individual with individual needs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I will replace whatever hormone my body is missing under correct medical advice and certainly not from anyone who is not medically trained, or from any advice I get on a forum, its just too dangerous to do any other. Taking too many supplements can be dangerous if not needed. I wasnt trying to frighten anyone I just found it quite alarming myself, self treating has its place but we have to make sure we know what we are messing with as the consequences could be quite awful. I do actually do a lot of reasearch Sheila and have read a lot on various things and a lot of imformation is conflicting - please do not post information on this forum that you have taken from another forum - first, out of courtesy, you should ask permission from the owner of any Internet forum before taking information from them and passing it to another forum, and second, you have no way of knowing whether such information is correct or not. You most certainly do not know whether a death had been caused because a doctor gave a patient too much DHEA and pregnelolone all at once - this is how bad and incorrect information gets spread around and I feel that spreading such information could be dangerous. Like TPA-UK, the members of the Adrenal forum are not medically qualified, but at TPA-UK, we do, at least, have 4 qualified medical advisers. You mentioned the other day to Val that you would never take DHEA because it was an anabolic steroid. I wrote to explain that you need to replace whatever hormone in your body you were not making - whether it is an anabolic steroid or not - everybody makes anabolic steroids naturally. Many people need DHEA as replacement in the same way they need T4, T3, cortisol, melatonin, growth hormone, calcitonin, pragnenolone, aldosterone, oestrogen and progesterone or testosterone. Sheila Be very careful with DHEA especially if you've ever had heart problems or blood clots or blood clots run in your family. A chiropractor put me on it last May, and naively, I trusted him and just took it followed by pregnenolone. I started having all kinds of palpitations and just kept increasing magnesium wondering what was wrong. Then an internet friend who had a heart attack caused directly by pregnenolone and too much thyroid given all at once BY A DOCTOR emailed me some info and it was scary. DHEA can cause heart palpitations, tachycardia, irregular pulse, faintness etc AND is absolutely contraindicated if you have ever had blood clots in your legs, lungs etc. I have a history of pulmonary emboli and a genetic clotting disorder. I will never trust anyone again when it comes to herbs, hormones etc. I did feel better while taking them though, lol.PattyJUST FOUND THIS INFORMATION ON THE ADRENAL FORUM _ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I am pleased to hear this, you have obviously learned your lesson after raising your cortisol on the advice of another forum. You are Dr P's patient and you should be guided by him, and him only. I believe we are all aware that taking too many supplements is dangerous . Self treating is, unfortunately,  the only thing that is left for a lot of us - if we cannot get the diagnosis and treatment we need via the NHS, is to self treat - we have NO choice - this is what TPA is about and the reason we are campaigning to change this so we don't have to self diagnosis, self treat and self monitor. It really is necessary, that whenever you find information that is conflicting to what is being posted, that you post a link to that research/study so we can check whether it is good research or flawed (as the studies showing that T4/T3 combination works no better than T4 alone was flawed). sheila I will replace whatever hormone my body is missing under correct medical advice and certainly not from anyone who is not medically trained, or from any advice I get on a forum, its just too dangerous to do any other. Taking too many supplements can be dangerous if not needed. I wasnt trying to frighten anyone I just found it quite alarming myself, self treating has its place but we have to make sure we know what we are messing with as the consequences could be quite awful. I do actually do a lot of reasearch Sheila and have read a lot on various things and a lot of imformation is conflicting _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I believe you are prescribed Armour on the NHS Sheila? So indeed they are helping you, some other members are not as fortunate to get that so really you cant knock the NHS that much can you? They ARE helping you. Yet again I didnt increase my HC from advice from another forum, thought I had already cleared that. I am pleased to hear this, you have obviously learned your lesson after raising your cortisol on the advice of another forum. You are Dr P's patient and you should be guided by him, and him only. I believe we are all aware that taking too many supplements is dangerous . Self treating is, unfortunately, the only thing that is left for a lot of us - if we cannot get the diagnosis and treatment we need via the NHS, is to self treat - we have NO choice - this is what TPA is about and the reason we are campaigning to change this so we don't have to self diagnosis, self treat and self monitor. It really is necessary, that whenever you find information that is conflicting to what is being posted, that you post a link to that research/study so we can check whether it is good research or flawed (as the studies showing that T4/T3 combination works no better than T4 alone was flawed). sheila I will replace whatever hormone my body is missing under correct medical advice and certainly not from anyone who is not medically trained, or from any advice I get on a forum, its just too dangerous to do any other. Taking too many supplements can be dangerous if not needed. I wasnt trying to frighten anyone I just found it quite alarming myself, self treating has its place but we have to make sure we know what we are messing with as the consequences could be quite awful. I do actually do a lot of reasearch Sheila and have read a lot on various things and a lot of imformation is conflicting _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 I believe you are prescribed Armour on the NHS Sheila? So indeed they are helping you, some other members are not as fortunate to get that so really you cant knock the NHS that much can you? They ARE helping you. Dear Yes indeed, it was the most wonderful day when I eventually managed to get Armour prescribed through the NHS.  However, a little background to the facts and to the reason why I was so " fortunate " as you put it. The NHS did nothing for me and had I not left the NHS to find a private hormone specialist I would now be wheelchair bound (courtesy of the lack of thyroid knowledge by the NHS). I eventually got Armour prescribed through damned hard bloody work and hours and hours of research. Had I remained with the NHS, I would never have found out that it was natural thyroid extract that I needed to make me well. I paid for several private prescriptions and then, had to send the prescription to London to be filled. I  did more research and wrote to the MHRA to find out why doctors within the NHS were not prescribing this for sufferers who did not do well on levothyroxine alone. The MHRA responded to my question by telling me that doctors CAN prescribe Armour for such patients, but that because it was unlicensed in the UK, they could only do so taking on the responsibility for this themselves. Endocrinologists at that time believed that the T4 and T3 in Armour was not standardised in every batch and that this was dangerous, so again, I did the research to find the facts, and we found the original monograph to show how four laboratories had tested Armour to find that the T4 and T3 was standardised to the specifications required by the USP - a brilliant success. I then did the research to find out why Armour was not licensed in the UK and when I got all of this information together, I sent it to my NHS endocrinologists who had previously refused to recommend it because he believed it had problems. He also believed that it was not licensed because it had had previous potency problems. I asked him to read everything and when he had, he told me he was now happy to recommend Armour for me. My GP refused to prescribe it and because I questioned their reasoning, I was sacked. That is not a nice feeling and after 20 years, these doctors managed to make my husband I feel like pariahs in our own village. It was a terrible hurt, after being with this practice for over 20 years. However, having won over my endocrinologists, I was determined that I just might win over other endocrinologists if I sent them the same information. I will not go into detail here, but shortly after opening TPA-UK forum to start my first 'Armour Campaign' I first encountered some real grief from a certain party that cost me £400 through having to pay a solicitors costs to put a stop to the lies that  person was writing about me. This caused me pain I don't ever want to go through again, and many tears were shed through utter frustration and anger, but I was not going to allow her to stop me. I carried on and sent letters to 860 endocrinologists enclosing the information I thought they needed. I had a wonderful little band of helpers at that time. This was our first TPA campaign carried out in 2004. Some endo's wrote back with their comments, some with more questions - the majority never responded. However, from that came a few endocrinologists who decided that they would recommend Armour for their patients who still remained ill on T4 - small victory, but what a start. Then this same person wrote to all the top thyroid doctors around the world telling them that I had opened a new thyroid forum in the UK and that they should have nothing whatsoever to do with me and TPA-UK. Apparently, I was not the sort of person they would want to have any dealings with. I know of this because one of the people who received this message (in Canada) told me that she was shocked to receive it because she knew nothing of me (who did?), but decided that rather than being told by somebody else they should have nothing to do with me,  she would wait and find out for herself. She is still a friend and colleague. However, others that could have been of great help to me and our campaigns have shunned me and that is still too painful to bear at times. A couple of years ago my forum was hijacked overnight, by completely ruthless and thoughtless idiots, and all the work I had in our files and links was gone and lost forever. I almost gave up at that time, but there was nothing else to do but  pick myself up and start again and we tried a couple of different forums that really didn't work - and a year last September, opened this forum. There is not a day goes by without I wake up wondering who else, or what else is out there determined to  stop me and the work TPA is trying to do. , look on our website www.tpa-uk.org.uk and click on 'TPA-UK Campaigns' (which needs updating), you will see the other campaigns that TPA-UK has been involved in and how, most times, the outcome is little short of a slap in the face, but we keep on and on and on….and we will still keep on and on and on until eventually we do make a difference. We have the BTA who have been given hundreds of references by TPA to research and trials that show that the information given by their executive committee on the T4/T3 and Armour statements  is incorrect, and we have asked them to amend their statements to help the thousands of hypothyroid patients who are still remaining unwell, but they disregard all of the research and make no changes on their statements. They carry on still giving incorrect information to the media - to doctors and to patients. It was not the NHS who put me on Armour , it was sheer damned hard work and determination that did it  - and having refused to see one endoprat who still believes that " Armour is rubbish " , persuaded my GP eventually to let me see another. It was this wonderful man that decided to take in the information and he is now recommending Armour for a number of his other patients. He also discussed this with some of his colleagues, who are now also recommending Armour and each time I see him, persuades me to continue with my campaigning for Armour to be recognised within the NHS. I have travelled to other parts of the country to accompany members when they had a consultation with their 'unbelieving' endocrinologists and were too frightened or unable to discuss the rights and wrongs of Armour with them - one of those endocrinologists actually did decide to recommend Armour for her - that was a great day.  I am aware other members are " not as fortunate " as you say - that is why I opened TPA-UK, so our members can have access to all of the information that I worked to find in the hope that they too might become as " fortunate " as me. All I ever try to do is offer a place where members can receive and give support.  Every day is a challenge because at the end of that day, it's always possible that some small change might have been made and our campaigns suddenly become worth-while. Writing this response has caused me pain. I'm happy to jog along in my own little way doing what I do and I don't mind putting my head above the parapet when that is needed, but I object when somebody keeps trying to lop it off for no particular reason.   Your response to my messages has perhaps made me a tad too sensitive tonight, and maybe I should have waited to respond 'til the morning, if at all. However, there is always the last straw that breaks the camels back isn't there? With the work that and I have been closely involved in these last few weeks putting in hours of our time in trying to help thousands of sufferers of hypothyroidism in the UK and potentially, millions of people throughout the world,  and with the kick back from TSO that we received a couple of days ago, both and I are left with the feeling - what is the point… But, we will catch our breath again and dust ourselves down, and get back to the business we feel passionate about, but please remember, we are all here to help each other and not to hurt each other.  TPA-UK is here because of my own personal success (after  hard work and  grief) in finally getting my endo to prescribe Armour. However, I would reiterate, the NHS did NOT help me, nor are they helping thousands of other people who need their support. Sheila _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008  Well if everyone had the "I'm alright Jack'" attitude , nothing would ever get done. Even more kudos to Sheila because she is selflessly helping us who are not as fortunate as her. Lilian So indeed they are helping you, some other members are not as fortunate to get that so really you cant knock the NHS that much can you? They ARE helping you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2008 Report Share Posted November 12, 2008 Hi Sheila, I think it helps at these times to remember that under stress people snap back & are terse to those closest to them, to make them selves feel better in some way. I think must be suffering herself to have given you the terse replies today, and so you should feel honoured that you have been chosen to help her (even if it does not feel like it at the time). It was good to be reminded of the journey TPA has gone on. You are doing a good job! Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Sheila, You demonstrate complete gold standard leadership skills! It's hard to drive a campaign in the face of official opposition. Your energy and commitment to the cause are remarkable. As you know, I have never presented myself to be one of the more seriously affected people on this forum. However, I was becoming chronically unwell, quality of life sliding downwards, and I've only been economical on here with the wider issues. I got no help from the system, one that I've been an avid supporter of and paid into all of my working life. It was thoroughly disappointing and distressing. The bottom line was I needed to get 'more sick', with bloods out of 'their' ranges before anyone would have listened to me. Without YOUR help, and other fabulous folk of tpa, I don't even want to consider where I'd be. I am definitely one of the people you aim to reach. Don't lose faith Sheila, you do the best job ever. xx > Yes indeed, it was the most wonderful day when I eventually managed to get Armour prescribed through the NHS. However, a little background to the facts and to the reason why I was so " fortunate " as you put it. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Then this same person wrote to all the top thyroid doctors around the world------- Hi Sheila, Wow, you must have really rattled their cage for them to do that. I hope you take great store from this person seeing you as such a great threat to warrant such action. Best wishes keith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Sheila I apologise for my attitude yesterday, I didnt realise what a battle it was for you to get Amour and I do admire your strenght and determination, some would have given up. I think because I dont yet feel 100% on my present treatment, although slighty better, it frustrates me. You do help a lot of people on here but I sometimes feel you are a bit 'shirt' with me, maybe its just me I dont know, I am sincerely hoping that Levo works better for me this time round now I am supporting my adrenals with HC but it seems such a long wait to find this out. Once again sorry if I upset you or anyone else From: Sheila <sheilaturner@...>Subject: RE: DHEAthyroid treatment Date: Wednesday, 12 November, 2008, 10:40 PM I believe you are prescribed Armour on the NHS Sheila? So indeed they are helping you, some other members are not as fortunate to get that so really you cant knock the NHS that much can you? They ARE helping you. Dear But, we will catch our breath again and dust ourselves down, and get back to the business we feel passionate about, but please remember, we are all here to help each other and not to hurt each other. TPA-UK is here because of my own personal success (after hard work and grief) in finally getting my endo to prescribe Armour. However, I would reiterate, the NHS did NOT help me, nor are they helping thousands of other people who need their support. Sheila _._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 EXACTLT! Must have been a very credible challenge to evoke such a response! M > > Then this same person wrote to all the top thyroid doctors around the > world------- > Hi Sheila, Wow, you must have really rattled their cage for them to do > that. I hope you take great store from this person seeing you as such > a great threat to warrant such action. > > Best wishes > keith > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Hi and - yes, I did rattle somebody's cage. I was told by the lady in Canada, that one of the doctors who was 'warned off' was Dr Lowe, and, at that time, we had an excellent rapport between us. I wrote to him asking if he would give me permission to use a paragraph out of one of his papers to use in the covering letter to go with the information I was sending out to all the UK endocrinologists in our first 'Armour Campaign'. He sent me the letter below, which naturally, I've kept ever since. This was in August 2004. After he sent me this letter, he never wrote to me again, or answered any of my emails, and to this day, he still will not write to me. Needless to say, neither did he include my email comments on his website. I think where it all went wrong was that I foolishly posted Dr Lowe's letter onto the Forum, and this person was a member at that time: It still hurts. Luv - Sheila ______________ Dear Sheila, Yes, please do use the quote. My only requirement is that you include the webpage address to my critique of the replacement studies. The webpage address is: http://www.drlowe.com/frf/t4replacement/intro.htm What you're planning to do is a noble humanitarian enterprise---one that's likely to contribute to the rescue of millions of patients from the false beliefs of the endocrinology specialty about hypothyroidism. I think that a revolution in the care of hypothyroid patients is likely only by more and more individuals such as you and groups educating the public and the medical professional. Eventually, such activities by progressively more individuals and groups will coalesce into a massive rebellion that will force the endocrinology specialty to give up its false beliefs and its tyrannical practices that coerce doctors and their patients to submit to the beliefs. Do you mind if we post your email comments to our page titled " response letters " to my critique? If we can post it, do you want us to exclude or include your name and/or email address? Many doctors and patients in the UK read our website, and my thought is that by posting a notice of your email, it may somehow facilitate your worthy efforts. I hope you'll keep me abreast of your progress, and if I can help in any way, just let me know. Kindest regards Dr. C. Lowe Board Certified: American Academy of Pain Management Director of Research: Fibromyalgia Research Foundation Center for Metabolic Health 1007 Pearl Street, Suite 280, Boulder, CO 80302 USA Tel (303) 413-9100 Fax (303) 604-0773 www.drlowe.com _________________________________________________________________________ EXACTLT! Must have been a very credible challenge to evoke such a response! M > > Then this same person wrote to all the top thyroid doctors around the > world------- > Hi Sheila, Wow, you must have really rattled their cage for them to do > that. I hope you take great store from this person seeing you as such > a great threat to warrant such action. > > Best wishes > keith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2008 Report Share Posted December 6, 2008 Chantelle, DHEA is a hormonal building block that falls with age. It is the first hormonal supplement I'd use after maintaining my growth hormone at youthful values. I feel marvelous when I take 25 mg daily so I'm going back on it when I start another anti-aging round next week. Duncan > >> > No Acne, I'm 65. Well, I can get mad but then I always could. > >> > You took 2.5 mg. for just that one day? > >> > > > Yep, the sudden out of proportion rage scared the crap out of me. I cut > > down to 1.25 mg without that reaction, but after a few days began to > > break out in my hairline and on my face. I'm 62, and that is a bit old > > for acne, LOL. not a good look........ I am now trying 1.25 mg just a > > couple days a week to see if I can tolerate it that way. > > sol > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2008 Report Share Posted December 7, 2008 Okay, thanks for explaining. I figured I might as well understand all this stuff. I¹m still youthful for now. Pregnancy at a slightly advanced age really seems to help that along. Got rid of any wrinkles I was starting to get. But I know youth is about a lot more than the wrinkles chantelle On 12/6/08 11:06 AM, " Duncan Crow " <duncancrow@...> wrote: > > > > Chantelle, DHEA is a hormonal building block that falls with age. It > is the first hormonal supplement I'd use after maintaining my growth > hormone at youthful values. I feel marvelous when I take 25 mg daily > so I'm going back on it when I start another anti-aging round next > week. > > Duncan > > >>>>> > >> > No Acne, I'm 65. Well, I can get mad but then I always could. >>>>> > >> > You took 2.5 mg. for just that one day? >>>>> > >> > >>> > > Yep, the sudden out of proportion rage scared the crap out of me. > I cut >>> > > down to 1.25 mg without that reaction, but after a few days began > to >>> > > break out in my hairline and on my face. I'm 62, and that is a > bit old >>> > > for acne, LOL. not a good look........ I am now trying 1.25 mg > just a >>> > > couple days a week to see if I can tolerate it that way. >>> > > sol >>> > > >>> > > >> > >> > >> > >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2009 Report Share Posted April 17, 2009 > > Hi Bee, > > My holistic doctor has suggested I supplement with DHEA as blood tests indicated it's very low. (It's made up by a compound pharmacist - whatever that means!) > > I know you say these things normalise with time, but I have been on the diet and supplements for over a year now and have just been getting soooo tired and now its at the point where I just don't know what to do with myself (getting a little desperate!). > > Just wondering what your thoughts are on taking DHEA? If you advise against it, what are the reasons? Will it set me back in my candida battle? +++Hi Amber. You shouldn't rely on tests to determine what you should take, since they work with so many other substances in the body, and not all of those others are tested in addition. Hormones are the worst supplements to take since they are very powerful and will interfere with healing. Yes, hormones and all nutrient levels normalize on this program. I suggest you re-check all of your supplements to ensure you are taking the correct doses and kinds, and that you aren't taking anything else, nor any drugs of any kind, including birth control pills. For example, how much omega-3, vitamins A & D are in the daily doses you take? Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2009 Report Share Posted April 18, 2009 Thanks Bee, that does make sense. I guess I just go through stages of impatience where a quick fix seems like the answer. I'm definitely not taking any other medications, this is the first time since starting healing I have been trully tempted by anything you need a script for! Will put it off for now. Thanks again, Amber > > +++Hi Amber. You shouldn't rely on tests to determine what you should take, since they work with so many other substances in the body, and not all of those others are tested in addition. > > Hormones are the worst supplements to take since they are very powerful and will interfere with healing. Yes, hormones and all nutrient levels normalize on this program. > > I suggest you re-check all of your supplements to ensure you are taking the correct doses and kinds, and that you aren't taking anything else, nor any drugs of any kind, including birth control pills. For example, how much omega-3, vitamins A & D are in the daily doses you take? > > Bee > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2010 Report Share Posted January 10, 2010 You need to supplement the DHEA. We usually recommend taking 25mgs of DHEA daily. It takes quite a long time before you actually start feeling the effect, in fact, for some people it can take up to 3 months, but persevere. You can buy DHEA from www.pharmwest.com very cheaply. Luv - Sheila i had some bloods done and my dhea was very low.is it suggested it will recover or shouls i suppliment it along with my hc? ....so much to learn.x No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.432 / Virus Database: 270.14.131/2608 - Release Date: 01/09/10 19:35:00 Quote Link to comment Share on other sites More sharing options...
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