Re: Not sure why I'm being given LDN

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[Guest guest]

If you developed pain while on a quinolone drug, it should have been

discontinued! Tendon rupture is a not unheard of side effect of those drugs.

http://en.wikipedia.org/wiki/Adverse_effects_of_fluoroquinolones (for

starters!).

Soy can affect your thyroid, which can cause muscle and joint pain (like

fibromyalgia). Lots of people find they feel better without it.

I can't say why he put you on naltrexone, but it can have good effects on your

immune system and the gut, so that might be the line of reasoning.

Just my 2c

Jaye

>

> Hi All,

>

> My doctor has prescribed me LDN, but he won't tell me why. I think he knows

I'm in a mad mad love affair with pubmed and google scholar!

>

> So my problem is that I took a Fluoroquinolone drug (Cipro/Levaquin/Avelox are

the most common) about 7 months ago. I developed tendinitis while on it even

though I wasn't exercising, and my doctor said to just ignore it and keep taking

the drug.

>

> Since I got off, I have developed bilateral tendinopathy in every limb of my

body. In fact, for the first 3 months off the drug, every few days brought a

new tendinopathy, joint pain, stiff joint that no longer moved, eye problem or

other. By the end of 3 months, I had 44 tendinopathies, 6 arthritic joint

pains, 4 joints that didn't move, and all kinds of other problems.

>

> I joined a support group, and we found that for at least 22% of the members,

some of our symptoms are made worse by soy, specifically tendon pain, joint

pain, and nerve burning/buzzing/just painful pain. I'm lucky because I don't

have the nerve pain.

>

> But within hours of eating soy, my tendon pain increases, growing to a plateau

by the beginning of the 3rd day. With continued exposure, my joint pain

increases on the 3rd and 4th days. When I stop soy, my tendon pain drops off

after two days. By joint pain hangs on for those two days, then fades

throughout days 3-5.

>

> I also have had low level diarrhea for the first 3 months, and strange bowel

patterns for the entire time.

>

> Now, I'm aware that joint pain is common in Irritable Bowel disease, Crohn's,

Ulcerative Colitis, and Celiac.

> http://www.medscape.com/viewarticle/538350

> http://www.mayoclinic.com/health/celiac-disease/DS00319/DSECTION=symptoms

> http://www.ncbi.nlm.nih.gov/pubmed/3876079

>

> And so on...

>

> I did tell the doctor that I was scared of medications given that the last one

has left me disabled for months.

>

> He wants me gluten-free and casein-free the entire time.

>

> So I was wondering, if there is any reason that anyone can think of why I

might have been given LDN?

>

> Since he initially notified me he was going to write the prescription but

before he actually did, I also found that gluten affects my joint pain. If I

stop eating gluten for 16 hours, my joint pain drops off a few levels. When I

return to eating gluten after a week or more off, my joint pain slowly climbs

back over a 10 day period.

>

> Would soy increasing tendon or joint pain be a symptom of Crohn's or IBD or

Ulcerative Colitis?

>

> -Bruce

>

[Guest guest]

I would demand an answer. Maybe he thinks you have fibromyalgia? On Apr 13, 2011, at 4:50 PM, jprocure@... wrote:

If you developed pain while on a quinolone drug, it should have been discontinued! Tendon rupture is a not unheard of side effect of those drugs. http://en.wikipedia.org/wiki/Adverse_effects_of_fluoroquinolones (for starters!).

Soy can affect your thyroid, which can cause muscle and joint pain (like fibromyalgia). Lots of people find they feel better without it.

I can't say why he put you on naltrexone, but it can have good effects on your immune system and the gut, so that might be the line of reasoning.

Just my 2c

Jaye

>

> Hi All,

>

> My doctor has prescribed me LDN, but he won't tell me why. I think he knows I'm in a mad mad love affair with pubmed and google scholar!

>

> So my problem is that I took a Fluoroquinolone drug (Cipro/Levaquin/Avelox are the most common) about 7 months ago. I developed tendinitis while on it even though I wasn't exercising, and my doctor said to just ignore it and keep taking the drug.

>

> Since I got off, I have developed bilateral tendinopathy in every limb of my body. In fact, for the first 3 months off the drug, every few days brought a new tendinopathy, joint pain, stiff joint that no longer moved, eye problem or other. By the end of 3 months, I had 44 tendinopathies, 6 arthritic joint pains, 4 joints that didn't move, and all kinds of other problems.

>

> I joined a support group, and we found that for at least 22% of the members, some of our symptoms are made worse by soy, specifically tendon pain, joint pain, and nerve burning/buzzing/just painful pain. I'm lucky because I don't have the nerve pain.

>

> But within hours of eating soy, my tendon pain increases, growing to a plateau by the beginning of the 3rd day. With continued exposure, my joint pain increases on the 3rd and 4th days. When I stop soy, my tendon pain drops off after two days. By joint pain hangs on for those two days, then fades throughout days 3-5.

>

> I also have had low level diarrhea for the first 3 months, and strange bowel patterns for the entire time.

>

> Now, I'm aware that joint pain is common in Irritable Bowel disease, Crohn's, Ulcerative Colitis, and Celiac.

> http://www.medscape.com/viewarticle/538350

> http://www.mayoclinic.com/health/celiac-disease/DS00319/DSECTION=symptoms

> http://www.ncbi.nlm.nih.gov/pubmed/3876079

>

> And so on...

>

> I did tell the doctor that I was scared of medications given that the last one has left me disabled for months.

>

> He wants me gluten-free and casein-free the entire time.

>

> So I was wondering, if there is any reason that anyone can think of why I might have been given LDN?

>

> Since he initially notified me he was going to write the prescription but before he actually did, I also found that gluten affects my joint pain. If I stop eating gluten for 16 hours, my joint pain drops off a few levels. When I return to eating gluten after a week or more off, my joint pain slowly climbs back over a 10 day period.

>

> Would soy increasing tendon or joint pain be a symptom of Crohn's or IBD or Ulcerative Colitis?

>

> -Bruce

>

[Guest guest]

Please Bruce, you should research the " low oxalate diet. " I have cured my carpal tunnel, joint pain and eczema by following this diet. It does have some de-tox periods so you have to muddle thru till you feel better.

http://lowoxalate.infoand group " trying_low_oxalates " Soy and many grains are high oxalate. So are nuts, spinach, beets, rhubarb.

On Wed, Apr 13, 2011 at 4:13 AM, Bruce <bm_groups2002@...> wrote:

Hi All,

My doctor has prescribed me LDN, but he won't tell me why.  I think he knows I'm in a mad mad love affair with pubmed and google scholar!

So my problem is that I took a Fluoroquinolone drug (Cipro/Levaquin/Avelox are the most common) about 7 months ago.  I developed tendinitis while on it even though I wasn't exercising, and my doctor said to just ignore it and keep taking the drug.

Since I got off, I have developed bilateral tendinopathy in every limb of my body.  In fact, for the first 3 months off the drug, every few days brought a new tendinopathy, joint pain, stiff joint that no longer moved, eye problem or other.  By the end of 3 months, I had 44 tendinopathies, 6 arthritic joint pains, 4 joints that didn't move, and all kinds of other problems.

I joined a support group, and we found that for at least 22% of the members, some of our symptoms are made worse by soy, specifically tendon pain, joint pain, and nerve burning/buzzing/just painful pain.  I'm lucky because I don't have the nerve pain.

But within hours of eating soy, my tendon pain increases, growing to a plateau by the beginning of the 3rd day.  With continued exposure, my joint pain increases on the 3rd and 4th days.  When I stop soy, my tendon pain drops off after two days.  By joint pain hangs on for those two days, then fades throughout days 3-5.

I also have had low level diarrhea for the first 3 months, and strange bowel patterns for the entire time.

Now, I'm aware that joint pain is common in Irritable Bowel disease, Crohn's, Ulcerative Colitis, and Celiac.

http://www.medscape.com/viewarticle/538350

http://www.mayoclinic.com/health/celiac-disease/DS00319/DSECTION=symptoms

http://www.ncbi.nlm.nih.gov/pubmed/3876079

And so on...

I did tell the doctor that I was scared of medications given that the last one has left me disabled for months.

He wants me gluten-free and casein-free the entire time.

So I was wondering, if there is any reason that anyone can think of why I might have been given LDN?

Since he initially notified me he was going to write the prescription but before he actually did, I also found that gluten affects my joint pain.  If I stop eating gluten for 16 hours, my joint pain drops off a few levels.  When I return to eating gluten after a week or more off, my joint pain slowly climbs back over a 10 day period.

Would soy increasing tendon or joint pain be a symptom of Crohn's or IBD or Ulcerative Colitis?

-Bruce

------------------------------------

[Guest guest]

PS The list-owner/moderator of the Trying Low Oxalates group is a pub-med junkie and can/will/does back up all she does and says with scientific documentation. :-) On Wed, Apr 13, 2011 at 4:13 AM, Bruce <bm_groups2002@...> wrote:

Hi All,

My doctor has prescribed me LDN, but he won't tell me why.  I think he knows I'm in a mad mad love affair with pubmed and google scholar!

So my problem is that I took a Fluoroquinolone drug (Cipro/Levaquin/Avelox are the most common) about 7 months ago.  I developed tendinitis while on it even though I wasn't exercising, and my doctor said to just ignore it and keep taking the drug.

Since I got off, I have developed bilateral tendinopathy in every limb of my body.  In fact, for the first 3 months off the drug, every few days brought a new tendinopathy, joint pain, stiff joint that no longer moved, eye problem or other.  By the end of 3 months, I had 44 tendinopathies, 6 arthritic joint pains, 4 joints that didn't move, and all kinds of other problems.

I joined a support group, and we found that for at least 22% of the members, some of our symptoms are made worse by soy, specifically tendon pain, joint pain, and nerve burning/buzzing/just painful pain.  I'm lucky because I don't have the nerve pain.

But within hours of eating soy, my tendon pain increases, growing to a plateau by the beginning of the 3rd day.  With continued exposure, my joint pain increases on the 3rd and 4th days.  When I stop soy, my tendon pain drops off after two days.  By joint pain hangs on for those two days, then fades throughout days 3-5.

I also have had low level diarrhea for the first 3 months, and strange bowel patterns for the entire time.

Now, I'm aware that joint pain is common in Irritable Bowel disease, Crohn's, Ulcerative Colitis, and Celiac.

http://www.medscape.com/viewarticle/538350

http://www.mayoclinic.com/health/celiac-disease/DS00319/DSECTION=symptoms

http://www.ncbi.nlm.nih.gov/pubmed/3876079

And so on...

I did tell the doctor that I was scared of medications given that the last one has left me disabled for months.

He wants me gluten-free and casein-free the entire time.

So I was wondering, if there is any reason that anyone can think of why I might have been given LDN?

Since he initially notified me he was going to write the prescription but before he actually did, I also found that gluten affects my joint pain.  If I stop eating gluten for 16 hours, my joint pain drops off a few levels.  When I return to eating gluten after a week or more off, my joint pain slowly climbs back over a 10 day period.

Would soy increasing tendon or joint pain be a symptom of Crohn's or IBD or Ulcerative Colitis?

-Bruce

------------------------------------

[Guest guest]

Hi,

I have been taking LDN for about 16 months. I tried to get 5 doctors to prescribe my LDN. NONE would. I would love to know your doctor's name and where you are. He/She is a rarity!

I would say from your symptoms that you may have fibro and it sounds like IBS. Both have been clinically studied and proven to be helpful. The fibro study was small, but all experienced help and relief.

For me, it has helped with so many things. Here are a few:

Better sleep - and I have sleep apnea which has improved!

No more thyroid meds. Went from hypO to hyperT and had to keep cutting back.

More energy, want more though, of course!

I can get out now and do things by myself, where before I had to have assistance for most things.

No more walker/cane.

Less cognitive distortions.

Feel better overall!

40-60% less pain!!!!! And that keeps getting better.

Lost 70 pounds, was doing exercises for my back and that helped.

Have gained back about 14 pounds, but that is because I am not eating properly because I am so happy to be weller! Getting back to eating right and doing my exercises. I actually have the energy to do them now.

No longer suicidal on a daily moment to moment basis, which was a year long downward spiral that was/is cut off!

Hoping for:

Even better sleep

More weight loss, about 30 more pounds

Increased energy.

Am doing the iodine protocol too. Just started again. I had bad detox symptoms and have been doing a liver/gallbladder cleanse for 2-3 months.

You don't really know how lucky you are. He/She does need to tell you why he thinks you need to do it though. It is a blessing you will love!

Best wishes on your journey to health.

Increase in reduction of my pain

To get off anti-depressants once and for all.

Glowing, grace~As Ghandi taught, the secret to life is to struggle against oppression and to fight for what is needed, but not to be attached to any particular outcome. Therein lies the secret of peace within the chaos."For every failure there's another course of action. When you hit a roadblock, take a detour." - Kay Ash