Headaches

[Guest guest]

Hi

Thank you for answering my post , sorry it came up twice i'm not

a computer person. I often feel like and afternoon nap most days. Do

you have AIH? And what has your doctor said about your headaches is it

related to your liver disease.

Have a great day

God Bless

AIH

_____________________________________________________________

[Guest guest]

Hi Tami,

Thank you for your response to my question on headaches, do you take

anything for your headache.

Have a good day

God Bless

AIH

_____________________________________________________________

[Guest guest]

,

I have taken several things for my headaches. Since being diagnosed with

AIH,

I have limited myself to Ibuprofen. I have found a really good magnet

company, be wary of fakes, and the headband has done wonders for me. It is

incredible what it can do. My doctor also believes that the headaches could

be caused by my blood pressure, which has gone up since taking the

prednisone. If you discover something else about the headaches, please share

it!

Tami (AIH) chollyfam@...

[Guest guest]

Hi Tami

I will try to purchase the headband. thanks for the info.

Have a good day

AIH

_____________________________________________________________

[Guest guest]

I noticed Robbin hat you mentioned that has headaches. My daughter

Ashton,14 poly JRA has been experiencing headaches alot here lately. She is

on MTX,Relefan,folic acid & we will be adding plaquenil this week. I am

wondering if it's the meds.or the JRA or who knows... It is frustrating

though because it has affected her schooling lately. Anyone else with

headaches? Also anyone with more info an plaquenil..curious sine we will be

adding this . Kris

[Guest guest]

Dear Kris, n is 12 with systemic JRA. There are times that she has

suffered with headaches. Once it was right before a flair, but now they

just pop up. We have not been able to figure them out. n is on

naprosyn, so she supplements with tylenol when the headaches become too much

at school. n is also on plaquenil, 100mg daily, and hasn't seemed to

have any side effects. She has to see a opthamologist every six months on

it , for it can rarely effect the eyes. n seems to lose alot of hair,

and I believe that can be a side effect of the plaquenil, but I have also

read that sometimes that can just happen with systemic. She has thin hair

anyway, so it just kind of worsens the problem.

>From: dkakheath@...

>Reply-

>

>Subject: Re: headaches

>Date: Mon, 30 Apr 2001 11:06:06 EDT

>

>I noticed Robbin hat you mentioned that has headaches. My daughter

>Ashton,14 poly JRA has been experiencing headaches alot here lately. She is

>on MTX,Relefan,folic acid & we will be adding plaquenil this week. I am

>wondering if it's the meds.or the JRA or who knows... It is frustrating

>though because it has affected her schooling lately. Anyone else with

>headaches? Also anyone with more info an plaquenil..curious sine we will be

>adding this . Kris

>

>

>To manage your subscription settings, please visit:

>

>

>For links to websites about JRA:

>http://www.geocities.com/Heartland/Village/8414/Links.html

>

>

[Guest guest]

Kris- My son (13 pauci) has been getting headaches since he started on

his meds (celebrex - 800 mgs). Now, they have gotten worse since he is on

sulfasalazine also. I too wonder if the headaches are the disease or the

meds. He also has alot of fatigue. I figure that is from the disease. Maybe

it is a combination of both. Michele

Re: headaches

I noticed Robbin hat you mentioned that has headaches. My daughter

Ashton,14 poly JRA has been experiencing headaches alot here lately. She is

on MTX,Relefan,folic acid & we will be adding plaquenil this week. I am

wondering if it's the meds.or the JRA or who knows... It is frustrating

though because it has affected her schooling lately. Anyone else with

headaches? Also anyone with more info an plaquenil..curious sine we will be

adding this . Kris

To manage your subscription settings, please visit:

For links to websites about JRA:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

Dear Kris,

Hi! It's Kate's mom again! Just read this and Kate too complains of a

lot of headaches-she is currently on Enbrel, Ibuprofen and Prilosec-but

has always complained of headaches even when on other meds. Wondered

about the location of them as Kate tends to complain of one sided

headaches alot (either side) or right on top of her head. Also seem to

come out of the blue when they hit. Like everyone else never sure if

meds or jra. Will be looking for any info on this too! Thanks again,

[Guest guest]

Kris

melissa has Poly also shes on Voltaren tylenol 3 and flexaril for JRA

they put her on elavil and then on pamelor for the pain for the headaches

please talk with your dr about this its not something to just pass off

some kids get this

have your dr screen her for Pseudo Tumor Celebri

the headaches can last along time or come and go melissa had hers for 10

weeks with no relief she had to indure 2 unsuccessful lumbar puntures and

now we are going may 11th for her to be admitted and be put to sleep for a

lumbar punture just to make sure of a diagnoses

the bad part is some acne meds can cause this

melissa was out of school so much with headaches and joint pain we finally

did a homeschooling for her because of the mobility and focusing on her work

start telling your dr about this and reccommend your daughter see a

neurologist

have them screen her for this

do a CT scan and a MRI of the neck and head this will show alittle but to get

a full diagnoses she will have to have a lumbar punture

i thought that the medications were the problem and in some causes it can

cause headaches i read its called medication induced headaches

in that you have to work with the medication to see which is the problem

they checked melissas labs and her eyes the eyes i think show something

but i aint sure yet

keep a record on the headaches with a pain scale 1 to 10

i thought MSG was the cause so i took her off all foods with MSG

the headaches stopped for a few days but returned

let me know what the headaches are like

Robbin

melissa just turned 14 years old

[Guest guest]

hi

melissas headaches are on one side then will change

she says sometimes it feels like throbbing the sometimes its sharp pains

but never easeing much

Robbin

[Guest guest]

In a message dated 05/01/2001 10:49:19 AM Pacific Daylight Time,

Robbin40@... writes:

> hi

> melissas headaches are on one side then will change

> she says sometimes it feels like throbbing the sometimes its sharp pains

> but never easeing much

> Robbin

>

>

Robin,

Sounds like a migraine to me. Throbbing headache. Light may bother her,

sounds too. Does she feel sick to her stomach during the headaches? Try an

ice pack on the back of her neck

Marcie, s Mom

[Guest guest]

Robbin,

That sounds SO much like Kate's headaches-wonder what to make of it ?

[Guest guest]

Robbin,

Thanks for your reply as well as everyone else... seems to me there are

alot of headache issues going on with our kids. From the posts I've read I

don't really see a common thread in meds,seems like the JRA is the only

thing that all our children have in common. Your thoughts of fluid in the

spinal cord make alot of sense..thanks I hadn't thought of that. ...Kris

[Guest guest]

Marcie

the dr said its not migraines

my son has the migraines and gets sick at his stomach

once he throws up he feels better

but melissas headaches dont make her sick at all

Robbin

[Guest guest]

Bethanne,

According to Palmer's book Hepatitis & Liver Disease, headaches need

to be evaluated with an MRI and maybe other tests. " Many headaches

associated with liver disease stem from treatment medication " High

blood pressure should be routinely monitored. Lifestyle changes may

help-like " stress-reduction techniques, elimination of excessive

caffine, plenty of rest, regular exercise, and avoidance of all

alcohol can also help reduce the frequency and severity of headaches " .

Hope this helps,

Joanna in WA state

AIH 8/01

>

> Hi everyone, I hope all is well. I have a question concerning

headaches. I've searched the archives and can't really find much

that has been written about them. I have had a pretty consistent

headache now for over 3 weeks. I was on an antibiotic and

decongestant thinking it could be related to sinuses, but that didn't

touch it. Has anyone else had this or maybe it's not even related to

AIH. It is really starting to drive me crazy and I'm probably going

to have to call the doc before I go in on the 30th. Any input would

be appreciated. Thanks.

>

> Bethanne

>

>

>

> ---------------------------------

>

[Guest guest]

Kat...... elevated lfts is not indicative of increased ammonia levels, n

fact you can have normal lfts and have elevated ammonia levels, Ammonia

and other toxins stay in the blood stream when the liver is no longer

able to remove them and snd them to elimination in the bowels or urinary

system. Also , hepatic encephalpathy which may be caused by ammonia or

other unmetabolized wastes is not characterized by headaches. Your mom

on the other hand if she had ascites could also had higher levels of

these toxins in her bloodstream, since ascites is a sign of advanced

liver disease. The appearance of ascites, varices and/or encephalopathy

occur in advanced liver disease. (cirrhosis) and is caused by portal

systemic hypertension. All of these conditions can be treated. The

appearance of encephalopathy is serious.

I don't know why these complaints of headaches but 'l try to find out.

love jerry

[Guest guest]

Hi Patty,

used to get bad headaches at night right behind his ears.He would just scream.It was his jaw joint acting up so we were told but they never could find lost range of motion.I used to be suspicious of the MTX but it only happened a few times.

Going off topic here.

hasn't had strep since before diagnoses over 3 yrs now.Yesterday around 4:30 sudden bad tummy ache and headache,then came some vomiting and a sore throat.Slept all evening and night and felt just fine this morning.Just as wild as ever and never did have a fever but my mommy instincts told me Strep,even though he had never had this bad of symptoms.Sure enough he tested positive and to play it safe we all felt a Bicillan shot was the way to go,right smack in the top of the butt.Now hopefuly we caught it quick enough and he doesn't flare like so many others have.

I hope Caitlin starts feeling better and she has just caught a virus.

Hugs

Becki and 5 systemic

[Guest guest]

Our son (Carrick age 11, poly, onset age 9, MTX injections @ 8ml 1/x) gets occasional headaches and stomach aches. He takes folic acid and multivitamins to offset this and cold sores that he got quite frequently before taking the folic acid tablets.

[Guest guest]

Hi-

Just wanted to add my 2 cents about the headache issue. Meg used to get

headaches and stomach aches all the time. I knew she had some allergies

(stuffed

up a lot and had had frequent ear infections and also family history). I

would mention it to the pediatrician but they didn't think it warranted a

referral

to the allergist. We tried a few antihistamines which helped some with the

nasal congestion. To be honest I didn't push it at the time because we were

doing so much with the JRA and referrals and such. Also because of my other

daughter's allergies I had already made a lot of household changes.

Our ped. rheumy wanted to add Azulfidine to Meg's Naprosyn but she had an

allergy as a baby to Pediazole which contains sulfa so he asked if we had an

allergist in our city who could do a sulfa challenge test.

We went to the allergist (whom I knew from other daughter) and in talking he

says before I do that I'd like to do some other allergy testing because I've

seen a few cases (in adults) of food allergies causing joint inflammation. He

tests her and says she has an allergy to corn!!! I'm a RN so I am extremely

doubtful thinking wouldn't I know if my child had a food allergy. So we do the

1 week elimination diet (corn is in everything just about) and we are amazed,

first of all by how much she is eating (my husband can't believe she's asking

for seconds) and no headaches all week. Then you are supposed to follow it by

3 days of intensive corn-she couldn't do it-tried popcorn and had such a

stomach ache and headache. He hoped her joint would go down (a toe) but it

didn't

so we had that injected. But no new joints since then and has been off meds

for a year. I'm almost afraid to write this because I know JRA can rear it's

ugly head whenever it wants. i don't know if the corn allergy and arthritis

were related (rheumy doesn't think so but he says we don't know everything

about what causes this to happen in the first place)

My point however is that the headaches and stomachaches are much decreased

(it's been 2 yrs now) If she gets something with corn in it she will get one.

Allergies affect the immune system as does JRA so if it is going wacky you

could have an allergy in addition to JRA since the system doesn't always know

what

to attack and what it should not. Also I feel if we don't have the corn

stimulating that immune response we at least aren't adding to it. I know this

has

been long winded but wanted to respond that there are a lot of things that can

cause headaches and stomach aches and certainly the meds can be a big culprit

but maybe something else to consider is a food allergy because many things can

happen when that immune system is out of whack so to speak. I hope your

child's symptoms get much better.

Debby (mom to Meg 14-pauci probable psoriatic)

[Guest guest]

Hi Patty,

I am sorry to hear that Caitlin had a bad night. Robbie had severe headaches

after we added the Cyclosporin - when we went to the ER his Blood pressure was

very high and they started him on Lisinopril for his blood pressure. They felt

it was due to the combination of the steriods and the cyclosporine & the

headaches stopped after he had been on the Lisinopril for a couple of days. His

blood pressure seems to be more affected by the steriod dose, as the taper gets

low, we are able to lower the Lisinopril - when we had to raise the steriods

last winter, the blood pressure went back up (and headaches resumed) - and we

had to up the Lisinopril. I actually ended up getting a blood pressure cuff to

check his pressure at home - because the Nephrologist as well as the others

wanted it watched closely, especially at first to ensure that the Lisinopril

dose was affective. I see I have gone into more detail than I meant to (it's

going to be a rambling day for me, I think) - I know that Caitlin isn't taking

Cyclosporine, but hypertension is a side affect of the steriods, so that may be

a factor - and adding meds can always change things. I hope she feels better

soon.

Val

Rob's Mom (6,systemic)

In a message dated 1/22/2004 8:25:23 AM Eastern Standard Time, Emeraldsx3

writes:

>

>

> Hello Again All:

>

> Caitlin had a bad night last night, but not because of fever, rash or joint

> pain/swelling, but because of a headache followed by a headache and stomach

> ache. She has been on Plaquenil for two weeks now and has had two doses of

MTX.

> Has anyone had a problem with headaches from these meds with their children

> or headaches from JRA itself? Thank you.

>

> Take care.

> Patty

>

>

>

>

[Guest guest]

In a message dated 1/22/04 9:54:13 AM Eastern Standard Time,

carneyval@... writes:

<<

Hi Patty,

I am sorry to hear that Caitlin had a bad night. Robbie had severe

headaches after we added the Cyclosporin - when we went to the ER his Blood

pressure

was very high and they started him on Lisinopril for his blood pressure. They

felt it was due to the combination of the steriods and the cyclosporine & the

headaches stopped after he had been on the Lisinopril for a couple of days.

His blood pressure seems to be more affected by the steriod dose, as the taper

gets low, we are able to lower the Lisinopril - when we had to raise the

steriods last winter, the blood pressure went b >>

Hi Val:

Thank you:) When she complained of a headache I immediately thought of high

blood pressure from a med and, of course, the sickening thought of another

strep infection. I was leaning towards the bp though. She is almost off the

steroid YEAH. She's been tapering off them for, well, this is the third week as

of yesterday and is now taking 2 mls (6 mg if I remember my dosage lesson from

this wonderful group:) in the morning only. She has, fortunately, (knock on

wood, knock, knock, knock)

had few problems coming off of them, whew.

<<and we had to up the Lisinopril. I actually ended up getting a blood

pressure cuff to check his pressure at home - because the Nephrologist as well

as

the others wanted it watched closely, especially at first to ensure that the

Lisinopril dose was affective. I see I have gone into more detail than I meant

to (it's going to be a rambling day for me, I think) - I know that Caitlin

isn't taking Cyclosporine, but hypertension is a side affect of the steriods, so

that may be a factor - and adding meds can always change things. I hope she

feels better soon.>>

Is Robbie currently still on the bp med?

I think I will feel better being able to check her bp myself at home for any

reason in the future and heck, for myself too. Did you get an automatic one

or do you know how to read the ones like the doctor's offices have? Are they

expensive?

Thank you for the info Val. Take care.

Patty

[Guest guest]

In a message dated 1/22/04 10:08:54 AM Eastern Standard Time,

sonia1md@... writes:

<< complains of headaches. I use to think it was

caused from the medicine but we have had her off the

meds since mid-dec. and she still gets the headaches.

She is also complaining of burning pain in her eye.

We weren't suppose to have to take her back to the eye

dr. until March but perhaps I should move that appt

up.

Hope Caitlyn has a much better day today. Aundrea

takes a warm back and ice-pack on her head when the

headaches are really bothersome. Seems to help a

little.

>>

Hi :

Does Aundrea get migraine headaches? If Caitlin has another headache

tonight, I will see if she wants a cold pack for her head. When she was in the

hospital and they tried to put cold cloths on her head she hated it - they

annoyed

her, but a ice-pack might work better, it's not wet. Thanks for your

suggestion.

Take care.

Patty

[Guest guest]

In a message dated 1/22/04 10:47:33 AM Eastern Standard Time,

Arthurnator@... writes:

<< off topic here.

hasn't had strep since before diagnoses over 3 yrs now.Yesterday

around

4:30 sudden bad tummy ache and headache,then came some vomiting and a sore

throat.Slept all evening and night and felt just fine this morning.Just as

wild

as ever and never did have a fever but my mommy instincts told me Strep,even

though he had never had this bad of symptoms.Sure enough he tested positive

and

to play it safe we all felt a Bicillan shot was the way to go,right smack in

the top of the butt.Now hopefuly we caught it quick enough and he doesn't

flare like so many others have. >>

Hi Becki:

It is amazing how quickly a child can feel better and symptoms disappear and

still have strep. Caitlin never showed symptoms of her strep infection,

nothing, until it was already in her blood and she was in a immune reaction

response. I often sit and think back to October to think if she ever complained

of

tummy ache, sore throat, fever and I can't recall any of them. The strain of

strep she had, I have been told, most people didn't even know they had it as

they showed no signs until it went beserk in the blood stream. Scary.

Has he flared before from strep? I hope the shot of antibiotic early on

prevents any type of flare.

Take care.

Patty

[Guest guest]

In a message dated 1/22/04 11:07:39 AM Eastern Standard Time,

gladswan@... writes:

<< nd no headaches all week. Then you are supposed to follow it by

3 days of intensive corn-she couldn't do it-tried popcorn and had such a

stomach ache and headache. He hoped her joint would go down (a toe) but it

didn't

so we had that injected. But no new joints since then and has been off meds

for a year. I'm almost afraid to write this because I know JRA can rear

it's

ugly head whenever it wants. i don't know if the corn allergy and arthritis

were related (rheumy doesn't think so but he says we don't know everything

about what causes >>

Wow, that's great that you figured out where the headaches were coming from.

No meds for a year WHOHOO! Knock, knock, knock.

Thanks Debby. I hadn't given a thought to any allergies. Something to think

about and watch.

Take care.

Patty

[Guest guest]

In a message dated 1/22/04 11:30:44 AM Eastern Standard Time,

cmjoconnor@... writes:

<< He takes folic acid and multivitamins

to offset this and cold sores that he got quite frequently before taking the

folic acid tablets.

>>

Hi :

Caitlin hasn't started taking folic acid. The doctor didn't write a script

for it either. Is it over the counter or script? What type of multivitamins

does your son take.

Take care.

Patty