Headaches

[Guest guest]

In a message dated 1/22/04 5:15:02 PM Central Standard Time, Emeraldsx3@... writes:

Has he flared before from strep?

Nope,

He has only had it twice before,the first causing Scarlet fever because we had no clue anything was wrong and it was left untreated for a couple days.I took him in becuase he had a rash.The second was caught early.Both times were before he was diagnosed.The infective trigger for him was a virus with sore throat and high fever,he even had the white spots on his tonsils,but tested negative.

Hugs

Becki and 5 systemic

[Guest guest]

Patty

headaches and the stomach pain yes but not due to meds i dont think

but we did find out has a psuedo tumor celebri which caused her to have headaches for 16 straight weeks only relief was a spinal tab and if another series hits her she will have a shunt put in

they did alot of tests to locate what the headaches were from 1 doctor took it upon herself and found the tumor had headaches off and on before the 16 week headache

Robbin

[Guest guest]

In a message dated 1/22/04 7:00:33 PM Eastern Standard Time,

shelly443142002@... writes:

<< hello, my daughter takes methotrexate, enbrel, choline magnesium and

prednisone, and gets sever headaches to the point where she shakes and then

throws

up. the always throw it off to a sinus infection, or allergies, but they did

a sinus ct last week and it came up negative, so they atre pretty putting it

as a side effect to probably the mtx. i wish they could say positively,

instead of probably. she also get severe stomache aches that sometimes follow

the

headaches. they have scoped her throat and stomach and found nothing.. she

gets sever heart burn as well. i hope your daughter feels better. it hurts me

so much to see young kids in pain, especially when they have other problems

such as arthritis.. i hope i have helped in some kind of way. >>

Hi :

Thank you for your email response. Everything I learn is extremely helpful

and I appreciate everyone's advice, personal experience, understanding and many

words of wisdom. How have the doctors helped your daughter with her

headaches? I know they 'think' it's the MTX, but have they given her a med for

her

severe headaches? I hope they can pinpoint for sure what it is and help

alleviate some of the headache pain.

Take care.

Patty

[Guest guest]

In a message dated 1/22/04 10:25:47 PM Eastern Standard Time,

Robbin40@... writes:

<<

Patty

headaches and the stomach pain yes but not due to meds i dont think

but we did find out has a psuedo tumor celebri which caused her to

have headaches for 16 straight weeks only relief was a spinal tab and if

another series hits her she will have a shunt put in

they did alot of tests to locate what the headaches were from 1 doctor took

it upon herself and found the tumor had headaches off and on before

the 16 week headache

Robbin >>

Hi Robbin:

Wow, how scary for you both. Is on rGH? I know this is a 'rare'

side effect with it, but I worry for in regards to the rGH and a psuedo

tumor celebri. Thank God for the one doctor that figured out what was causing

her headaches. They didn't figure out what caused it? How is she now?

Take care.

Patty

[Guest guest]

Barb,

I've been on synthroid for 3 years and have never had headaches

----Original Message Follows----

From: " Barbara Schulz " <beschulz@...>

Reply-hypothyroidism

hypothyroidism

Subject: headaches

Date: Thu, 29 Jan 2004 15:53:01 -0000

I've been getting headaches for the past few days.

_________________________________________________________________

Learn how to choose, serve, and enjoy wine at Wine @ MSN.

http://wine.msn.com/

[Guest guest]

Thanks, . Then I prob. have another sinus infection happening.

Barb

K a r e n P <karlynn17@...> wrote:

Barb,

I've been on synthroid for 3 years and have never had headaches

----Original Message Follows----

From: " Barbara Schulz " <beschulz@...>

Reply-hypothyroidism

hypothyroidism

Subject: headaches

Date: Thu, 29 Jan 2004 15:53:01 -0000

I've been getting headaches for the past few days.

_________________________________________________________________

Learn how to choose, serve, and enjoy wine at Wine @ MSN.

http://wine.msn.com/

[Guest guest]

What is in your soy pill in addition to soy? I tried one with black

cohosh and it gave me a headache. Soy will also give you a

headache. A soy headache for me was along the back of my skull and

low down. A progesterone headache was in the front above the eyes.

I think that was what was causing them, the product would relieve

the pain faster than an asprin. Joan

> I've been getting headaches for the past few days. I think they

may

> be sinus headaches, which means I'm probably getting another sinus

> infection. Has anyone had headaches while taking synthroid? The

> only other thing I have added to my medicinal mix is the soy-

> menopause pill, but I've only taken that for a few days.

>

> Any ideas?

>

> Barb

[Guest guest]

In a message dated 2/2/04 5:15:59 AM Central Standard Time, boundforlondon@... writes:

MTX and they couldn't get the same brand in anymore so it came in this huge vial this time. And the literature mentions nothing about arthritis. Hmmm, makes me think I should have checked the expiration date.

Hi e,

Good luck at finding the source of the headaches. has been on 3 differant MTX's one had no mention of arthritis what so ever.I paniced called the rheumy and named the ingrediants.All was fine.I assume Joe got a big vial with 4mls or 100mg of MTX.

Hugs

Becki and 5 systemic

[Guest guest]

Hi e,

I feel like we've been really lucky, as far as not having

problems with the headaches that are mentioned so frequently here, in

kids with JRA. He has headaches only occasionally. Rarely, really.

It's so hard to know whether it's from the disease or possibly a side

effect of one or another of the meds, or something totally unrelated to

either. That is a somewhat higher than normal dose of MTX for arthritis

but I've read and posted (long time ago, though) studies suggesting that

a higher dose may be more effective for those whose arthritis symptoms

aren't being adequately controlled, as long as the liver profile is

okay. I guess lowering the dose might be one way to find out if the

headaches subside. Or maybe switching to a different type of birth

control pills, if that's possible, to see if they resolve?

It can be worrisome to pick up a regularly ordered medication from the

same pharmacy you always use and only later, to notice that it has a

different, unexpected, appearance. A different color pill, a different

shape sometimes, etc. Most times the pharmacist has put a sticker on

ours when that happened, saying it's the same med despite the different

look. Once or twice they've forgotten to make note of it and I've gone

back just to be sure. To be on the safe side. We don't get any liquid

meds from the pharmacy, though. But I can see how you might be worried

about whether or not the product was still fresh, in case that might

have caused the headaches.

Wish I could be of more help. I hope you'll find out the cause of Joe's

headaches and be able to reduce them.

Take Care,

Georgina

bound for london wrote:

> I know I have seen recent posts about headaches from others. Our rheumy

> said this is a side effect of the MTX and one reason why we should

> reduce it (she is at 25mg injectable weekly). Anyone else know of this?

> I read the insert and it does list headache as a side effect but then

> there are so many side effects listed. weird thing is my daughter is the

> only one at this pharmacy on the MTX and they couldn't get the same

> brand in anymore so it came in this huge vial this time. And the

> literature mentions nothing about arthritis. Hmmm, makes me think I

> should have checked the expiration date.

>

> So, any ideas on the headaches. Med related or just another feature of

> JRA? He also said it could be the birth control pills but without them

> she cycles every 2 weeks with only a few days off. That is new since

> JRA. ARGH!!! Poor kid. No wonder she is so emotionally labile. Well, I

> am once again off topic and need sleep. LOL

>

> e, mom to joe 17 poly

> Current meds: Prednisone, MTX, Celebrex, Enbrel, Vitamins, Folic Acid,

> Protonix, Tums, Low-ogestrol, Ultram, Tylenol, Celexa (and my brain is

> slipping cause I'm sure there is something else)

[Guest guest]

n gets headaches all of the time. We have brought her to many

specialists and they were labeled as chronic daily headaches. No medicine

was prescribed, for the neurologist said that you get a rebound effect from

the drugs with these types of headaches. When she flares she gets the

headaches. They are 24/7. With n, I would definitely say that the

headaches are part of her disease. (n, 15, systemic)

headaches

> Hi All:

> I rarely post anymore, though I do keep up somewhat with the reading.

>

> My daughter Mickey, now 10, (systemic onset at 3) has been getting a lot

of

> headaches lately. Her pred is down to 1mg/day, .8cc of methotrexate once a

> week, 25mg indomethacin 3x/day. Folic acid, calcium, etc every day.

>

> I myself get migraines, and it looks like the poor kid may have inherited

> this tendency. But as bad headaches are one of the symptoms of MAS, could

> someone please refresh my memory on the other tell-tale signs? I am doing

a

> search of the archives, but any information would be appreciated. Does

> anyone else's child suffer from regular headaches?

>

> Thanks,

>

> Lynn

> Mom to:

> Mickey (10), systemic jra since 3

> Kinsey(8), wonderful sister to Mickey

> -----

>

>

>

>

>

[Guest guest]

Hello Lynn,

I also have systemic, aka still's disease. I have had problems with

migraines and also I hear a lot of others at the still's disease board

of having problems with headache's as well. I do believe there is a

link between them and the arthritis. Just the other night I had a

real bad one, I haven't had one like this in over a year. But also I

believe mine are also due partly to my neck.

> Hi All:

> I rarely post anymore, though I do keep up somewhat with the reading.

>

> My daughter Mickey, now 10, (systemic onset at 3) has been getting a

lot of

> headaches lately. Her pred is down to 1mg/day, .8cc of methotrexate

once a

> week, 25mg indomethacin 3x/day. Folic acid, calcium, etc every day.

>

> I myself get migraines, and it looks like the poor kid may have

inherited

> this tendency. But as bad headaches are one of the symptoms of MAS,

could

> someone please refresh my memory on the other tell-tale signs? I am

doing a

> search of the archives, but any information would be appreciated. Does

> anyone else's child suffer from regular headaches?

>

> Thanks,

>

> Lynn

> Mom to:

> Mickey (10), systemic jra since 3

> Kinsey(8), wonderful sister to Mickey

> -----

>

>

>

>

>

[Guest guest]

Hi Lynn,

The first time that Robbie had headaches since diagnosed with JRA was when we

added cyclosporine - and it caused him to have hypertension (more likely the

combination of prednisolone and the cyclosporine - since it is a side affect of

both medications - when we taper the steriods we end up tapering the lisinopril

as well - when the steriods go back up, so does the hypertension and the

lisinopril dose) - He never had problems with hypertenision previously though on

just the pred. I have noticed that he has had complaints of headache on top of

his other symptoms during the last two flares - but they have been been in

concjunction with his other severe systemic symptoms ( " all over " pain,fever,

rash, lethargy, etc.) Robbie also complains of abd pain during his flares. The

MAS symptoms I remember reading about in addition to the headache are flu like

symptoms - much of the symptoms are such that it is the combination of a lot of

symptoms that alone would seem insignificant. With your history of migraines -

nausea and vomitting would seem to go hand in hand with them - at least they did

for me - my migraines stopped about 12 years ago - for no apparrent reason that

I have been able to identify - but I know how painful and miserable it can be.

I would think if Mickey is having flu like symptoms along with the headaches

that it would bear looking into. At Robbie's second arthritis related hospital

admission, and the one where they agreed on his SoJRA diagnosis - he was

admitted with " probable JRA and MAS " It was months before I was able to find

out what the MAS was - but all I know is that Robbie was so very sick when

admitted that time that I couldn't begin to sort what symptoms actually went

with what, he was lethargic, didn't want to be touched, didn't want to be moved

- there hardly seemed to be an internal organ not inflammed in one way or

another, it appeared he had strep(though he didn't), ear infection, and

conjunctivitis on top of the enlarged liver, spleen, lung involvement and

irregular heartbeat. The rash showed up later. I hope this is of little help -

there is a clear description of MAS in one of the archive posts. I hope that

Mickey feels better soon. I do agree with n that headaches for many seem

to be connected.

Val

Rob's Mom (6,systemic)

In a message dated 8/15/2004 11:03:29 AM Eastern Daylight Time, " WILLIAM PRICE "

<bc.price@...> writes:

>n gets headaches all of the time.  We have brought her to many

>specialists and they were labeled as chronic daily headaches.  No medicine

>was prescribed, for the neurologist said that you get a rebound effect from

>the drugs with these types of headaches.  When she flares she gets the

>headaches.  They are 24/7.  With n, I would definitely say that the

>headaches are part of her disease.   (n, 15, systemic)

> headaches

>

>

>> Hi All:

>> I rarely post anymore, though I do keep up somewhat with the reading.

>>

>> My daughter Mickey, now 10, (systemic onset at 3) has been getting a lot

>of

>> headaches lately. Her pred is down to 1mg/day, .8cc of methotrexate once a

>> week, 25mg indomethacin 3x/day. Folic acid, calcium, etc every day.

>>

>> I myself get migraines, and it looks like the poor kid may have inherited

>> this tendency. But as bad headaches are one of the symptoms of MAS, could

>> someone please refresh my memory on the other tell-tale signs? I am doing

>a

>> search of the archives, but any information would be appreciated. Does

>> anyone else's child suffer from regular headaches?

>>

>> Thanks,

>>

>> Lynn

>> Mom to:

>> Mickey (10), systemic jra since 3

>> Kinsey(8), wonderful sister to Mickey

>> -----

>>

>>

>>

>>

>>

[Guest guest]

Hi there,

I am not a headachey person, but I had a time in my life, around age

19, where I was stricken with them. It was like my head was in a

vice and was being squeezed, kind of where the temple areas are. I

remember the pressure would build and become unbearable and I wept

almost daily. I do not recall painkillers helping me and I wanted to

die. EVERYDAY I had them.

Then, I went to someone because I was always ill and suffering

depression etc. I was shoved on antidepressants which did no good, I

thought of suicide. I had symptoms all over the place that made no

sense to me. Finally through a friend, I went to a doctor who put me

on new diet. I did not want to do it because I liked my sugar, but I

was desperate. I found it hard to adhere to this diet and the

withdrawal at that time was so bad, I cried and paced the floor

because of my love of sugar and other foods.

I stuck to it and had NO sugar and no yeast and no gluten/wheat.

The headaches worsened in one way for the time I was

withdrawing/detoxing as the toxins in and around my brain began to

come loose and I felt wretched. I think I smelt also, but by the end

of two weeks or so, I noticed a change in myself that was marked.

The improvements were amazing. My quality of life almost returned,

my appearance changed and became youthful (and I was already young,

yet looking old/haggard because of illness). My hair and skin and

eyes changed in quality and became healthy. I looked like a

different person.

Though I was still ill in one way (I suffer with mercury toxicity),

the other symptoms were GONE. NO MORE HEADACHES!!! Even my asthma

died down, though occasional wheezing. I do not know whether the

headaches went from me giving up gluten/wheat or the sugar or what it

was, but they never returned. I cannot promise the same will happen

to you, but please believe me, the diet is worth everything. IT

might be the only thing to ever help as it was for me. Nothing else

helped me. No amount of medication for this or that did a darned

thing.

Though I am ill again, due to other problems with toxicity, so am

trying to start from scratch, though I have underlining toxicity now

that is going to have to be dealt with. The candida diet, giving up

wheat/gluten is probably keeping me sane.

I hope this in some way encourages you that given a chance, the body

can begin to release the stored poison and rebuild itself with new

tissue/cells etc. Eating sugar here and there, thinking it's not a

big deal will not allow this process to take place. I tried that.

You have to give it up completely so that the candida cannot keep

surviving on the bits you might still be having. Oneday you might be

able to have bits again here and there without getting ill, but

initially you have to give it up.

>

>

Hi, I am new to this group but not new to candida. I have systemic

> candida, Fibromyalgia, CF, IBS and the list goes on. I feel that

it

> is all caused by overgrowth of yeast, but try and tell a Dr that.

> Does anyone out there suffer with this horrible headaches that last

> for weeks or monthes and there is no pain reliever that helps. I

feel

> all alone and scared that this pain i feel will drive me crazy.

Any

> suggestions?

>

[Guest guest]

Hi, what is your name? Welcome to our group my friend. I answered

your questions below offline, so I hope you read my main article and

start on the diet right away, one step at a time. All of your

symptoms are related to candida overgrowth. Many of our members have

turned their symptoms around, even headaches, on our candida

program. Eventually you will regain your health and the headaches

will stop - it takes persistence and hard work but it is worth it.

The best in health,

Bee

>

> Hi, I am new to this group but not new to candida. I have systemic

> candida, Fibromyalgia, CF, IBS and the list goes on. I feel that

it

> is all caused by overgrowth of yeast, but try and tell a Dr that.

> Does anyone out there suffer with this horrible headaches that last

> for weeks or monthes and there is no pain reliever that helps. I

feel all alone and scared that this pain i feel will drive me crazy.

Any suggestions?

[Guest guest]

The best headache cure for me I got from the macrobiotics.

You heat some water in a pan, and have some folded washcloths or small

towels. Soak the towels in the hot water -- as hot as you can stand. I

myself heat the water to boiling, let it cool slightly, then wring the

towels with the use of tongs and spoons. It keeps cooling as you wring

the excess water out and (if necessary) refold them.

You can add fresh ginger juice to the water; though I am so lazy I

skip that part.

Have 3 hot moist towels folded one on top of the other. Put the towels

on the part of your head that hurts. The towels should feel hot. You

don't want to burn yourself of course. But as hot as you can stand.

After a while the towel on your head will cool, and then you take the

one on your skin and put it on the back of the pile so that the towel

in the middle is on your head -- that one will be hot. Until that one

cools down. When they are all cool, you can wring them out and resoak

them in more hot water if necessary.

This works much much better than any asprin or ibuprofen or any other

drug. It opens the blood veins and relaxes the muscles.

A hot shower can help too. But you need to dry your hair quickly

afterwards, so your head doesn't get cold again.

Another thing I like to do is to rub Tiger Balm on the part of my head

that hurts. That helps alot though not as thoroughly as the hot towels.

Hot towels are also good for dry eye syndrome; I make them a little

less hot for directly on my eyelids.

Good luck!

- T

[Guest guest]

Here is one I like to do. I lie down and put a cold pack behind my

neck and a heat pack on my stomach. Crazy as it sounds it works even

on the worst migraines.

Jeanne

[Guest guest]

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

Sandy, thank you so much. I am just about ready for hubby to takeme to ER and

see if I can get some relief. Not only are the headaches bad, but the pain in

the right side is driving me mad!

Debby

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

Hello, my doctor put me on Zomig nasal spray for my headaches, and it is the

only thing that works. It makes my nose burn alittle and dripps down my throat

and taste terrible, but the headache is gone.

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

I think that I am going to see my GP tomorrow is I can get in the AM and see if

I can get something to kill the pain. I am willing to do anything. The Imitrex

is not touching the headache at all. All I want to do is to sleep...this is NOT

normal for me

Debby

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

Debby

Glad to see that you are going to the doc tomorrow. If it stays this

long it needs to be checked. Will keep fingers crossed that it is not

a flare up causing it. Good luck, let us know how you do.

Thinking of you

Marie (Ont)

> >

> > It has been a while, but is there a possibility that

dizziness and

> bad bad headaches can be caused for a flare with AIH?

>

> Before I was diagnosed with AIH/PBC overlap, I used to get

disabling

> headaches that would last for days - averaging 2-3 days. Not

being

> prone to headaches, they really upset me. The worst pain was

near the

> left temple. Nothing helped them.

>

> Once I was diagnosed and put on pred and imuran, I haven't

had them

> since. So though I can't say for sure it was due to AIH, it

seems too

> coincidental not to be the cause.

>

> Take care,

> Sandy C.

>

>

>

>

>

>

>

[Guest guest]

I had headache on my right side that was disabling. I used to wake up with

headache at night as well. I had this headache and felt extremely tired and that

is why I thought something was wrong and went to see a doctor. Of course they

found out that I have AIH. Personally I don't think headache is from AIH because

I have been doing these very slow stretching excises for a week or so and my

headache is gone. Before starting these exercises, I tried all sorts of pain

medication but nothing worked. So I turned to oriental medicine. I tried

pressure points (like acupuncture but without the needle) and these slow

stretching yoga like exercises. My tiredness has diminished greatly. Only

symptom I feel is the tingling on my right shoulder. I guess that is from

inflammation of the liver.

I hope your headache will get better soon!

Kim from PA

tdcc2000@... wrote:

Sandy, thank you so much. I am just about ready for hubby to takeme to ER and

see if I can get some relief. Not only are the headaches bad, but the pain in

the right side is driving me mad!

Debby

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

I did finally see my GP and had the labs done. The liver counts were somewhat

elevated, but no worse than they have been in the past. The only problem that

did show up was the protein levels, globulin serum and indirect bilirubin.

These were elevated more than normal. I have not sent them to my GI but may

tomorrow. The good thing was that my CBC looked better than ever before!

WHOOHOO! Now just to get the liver back in line! Anyway, thought I would let

you know.

The headaches are still there, but not quite as bad as before, so maybe they

will all go away soon!

Debby

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

Do you have any other symptoms with your headache like sinus pain, post nasal

drip?? Does Sudafed help??

I found that since my liver problem I also developed a non-allergic-rhinitis

(?), and I have been taking Nasacort Nasal Spray and Saline Nasal Spray for it

and I do not get the headaches very often lately. But I found out that I had

that problem by reponding to Sudafe/Sinutab meds and went to an Allergist (on my

own) who did all the tests for allergies without success, but gave me the right

medicine anyway. Later when it flared up again, I even had a head x-ray that

showed a mass in my sinuses and had to take prednisone and antibiotics for 2

weeks. I seem to be OK since, at least in that department! By the way , my

blood work did not show the sinus infection!

Sometimes we concentrate on the liver problem so much, that even the doctors

forget to check for other things.

Clara from OR

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.

[Guest guest]

I also have a lot of problems with sinuses and other respiratory problems: ear

infections, pneumonia. Nasacort does help -only use it once/day at bedtime. I'm

currently finishing uo a round of antibiotics and steroids. My liver does not

make enough IgA which helps fight upper respiratory infections. You can buy over

the counter nasal sprays but only use them twice a day (I'm told that it can be

addictive).

Clara Shelton <cshelton33@...> wrote: Do you have any other

symptoms with your headache like sinus pain, post nasal drip?? Does Sudafed

help??

I found that since my liver problem I also developed a non-allergic-rhinitis

(?), and I have been taking Nasacort Nasal Spray and Saline Nasal Spray for it

and I do not get the headaches very often lately. But I found out that I had

that problem by reponding to Sudafe/Sinutab meds and went to an Allergist (on my

own) who did all the tests for allergies without success, but gave me the right

medicine anyway. Later when it flared up again, I even had a head x-ray that

showed a mass in my sinuses and had to take prednisone and antibiotics for 2

weeks. I seem to be OK since, at least in that department! By the way , my blood

work did not show the sinus infection!

Sometimes we concentrate on the liver problem so much, that even the doctors

forget to check for other things.

Clara from OR

[ ] Re: Headaches

>

> It has been a while, but is there a possibility that dizziness and

bad bad headaches can be caused for a flare with AIH?

Before I was diagnosed with AIH/PBC overlap, I used to get disabling

headaches that would last for days - averaging 2-3 days. Not being

prone to headaches, they really upset me. The worst pain was near the

left temple. Nothing helped them.

Once I was diagnosed and put on pred and imuran, I haven't had them

since. So though I can't say for sure it was due to AIH, it seems too

coincidental not to be the cause.

Take care,

Sandy C.