Guest guest Posted July 29, 1999 Report Share Posted July 29, 1999 , My pharmacist was also excited about the AP and asked me to keep her informed on my progress as she also has deep reservations about the traditional meds. Makes you wonder why the rheums are the last to embrace this approach. a M Carroll wrote: > > From: M Carroll <LCARROLL@...> > > Hi all, > I was talking to a new pharmicist yesterday ( she was probably in her > late 50's ) > about the AP and she was genuinly excited about it as she had a few horror > stories about mtx and she thought the antibioitcs were a good way to go. > She kept commenting about how well I looked and I looked like I really felt > good which was encouraging that it is showing on the outside to strangers. > Anyway.... > > She told me that many years ago a gentleman lived in her neighborhood that > was stricken with severe RA and was in a wheelchair. His caregiver used to > roll him in the yard to get some sunlight and one day a dog bit him. He had > to go through the old series of rabies shots and after the fifth one he got > out of his wheelchair and was able to walk! ( Isn't the rabies shot a > strong antibioitic? I forgot to ask her...) She said she would never forget > him getting out of that chair and walking. > > She also told me that since she had seen this she believed that there is > some type of infectious trigger in RA. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 1999 Report Share Posted August 5, 1999 Did someone send me a message on ankylosing spondylitis? If you did, I erased it by mistake. Please send it again. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2000 Report Share Posted August 17, 2000 Oh Chestnut Please get back on track with the diet. I'm starting it officially tomorrow ICQ - 53662031 AOL Instant Messenger (Screen name: crohn) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 In a message dated 2/23/01 8:28:27 AM Eastern Standard Time, quartznh@... writes: > I was reading how some people are getting annoyed with these > discussions about the word cracker, etc. And they want the topic to > change. You know, I think instead of Complaining, Why dont you change > the topic yourself? This happens everytime a topic comes up that more > than 2 people are participating in. if you keep saying you are sick > of these conversations, you're not helping it...you're prolonging > these topics...right? > > a, It wasn't just with the Cracker topic it was with other topics some complained about. What they really should do is just use the delete key which is real simple to do and doesn't make you waste one of 3 posts per day privilege. ;-) Some complain when a subject has already been discussed, some complain that it isn't 100% dwarfism related, some complain when people don't agree with someone's opinion and twist it around, some complain when you are doing 3 posts which you are allowed to do. I go with what my Dad used to say which was a saying Art Linkletter used to say " People are funny... " ;-) Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 In a message dated 4/3/01 8:27:36 PM Pacific Daylight Time, BAILYKUHN writes: The reason the DOC band didn't work as well for him as it does for kids who have a flat occiput from being placed directly on their back (exclusively) is because his is an inutero problem. The band can sometimes make it worse in their case. Oh, I must say, I disagree with her and didn't go into any details on our band therapy, only that we were currently in the STAR and did the DOC last summer. I will contact her and let her know I am happy with my decision to band and really feel all other treatments were not enough. I do agree with having a difficult head to correct but hey, coming along! Tammy & 12/8/99 This is a response I got from a chiropractor. Check out her book New Dawn Publishing . A retired chiropractor called me about our article in the local paper and she also attended one of her seminars. This is her response to me about our story and I thought many of you would be interested in her comments. I'll ask her to send me her copy of her case. Always something to learn! Tammy & 12/8/99 Hi Tammy, I'm so proud of you for getting your little guy the treatment he deserves rather than just sitting back and letting the pediatrician ignore your concerns. Torticollis will sometimes resolve on its own---by curving the spine permanently. You are preventing that from happening! You were so very smart to get craniosacral therapy started - that was the most important thing you could have done. Now, my question is, Did your therapist address the repiratory diaphragm at each visit? It's imperative that the diaphragm be fully released to allow the occiput to free up. There also is a stretch of the whole spine that must be done because the problem is not just the head--it's everything. He was oblique inutero. I don't have anything on the internet yet but I have published a case just like his in the textbook Pediatric Chiropractic. Send me your address and I'll send you a copy of that section. The reason the DOC band didn't work as well for him as it does for kids who have a flat occiput from being placed directly on their back (exclusively) is because his is an inutero problem. The band can sometimes make it worse in their case. I teach about this all the time and have worked successfully on many cases but it requires a full complement of craniosacral therapy, myofascial work and chiropractic adjustments. If your therapist feels that the diaphragm is not their expertise have him/her give me call. I have just published a book that will help you with the next pregnancy and I've begun work on the second book that will address cases just like . I will have a whole section on torticollis for parents just like yourself. It may take me years with my schedule (this one took 8 years to complete). Joan's husband did the layout work on it so she may have told you. Check it out on the internet www.newdawnpublish.com. Read that book (especially Step 4) before you have another pregnancy. Good luck and keep up the good parenting!!! Dr. Carol P. Hi Tammy, I'm so proud of you for getting your little guy the treatment he deserves rather than just sitting back and letting the pediatrician ignore your concerns. Torticollis will sometimes resolve on its own---by curving the spine permanently. You are preventing that from happening! You were so very smart to get craniosacral therapy started - that was the most important thing you could have done. Now, my question is, Did your therapist address the repiratory diaphragm at each visit? It's imperative that the diaphragm be fully released to allow the occiput to free up. There also is a stretch of the whole spine that must be done because the problem is not just the head--it's everything. He was oblique inutero. I don't have anything on the internet yet but I have published a case just like his in the textbook Pediatric Chiropractic. Send me your address and I'll send you a copy of that section. The reason the DOC band didn't work as well for him as it does for kids who have a flat occiput from being placed directly on their back (exclusively) is because his is an inutero problem. The band can sometimes make it worse in their case. I teach about this all the time and have worked successfully on many cases but it requires a full complement of craniosacral therapy, myofascial work and chiropractic adjustments. If your therapist feels that the diaphragm is not their expertise have him/her give me call. I have just published a book that will help you with the next pregnancy and I've begun work on the second book that will address cases just like . I will have a whole section on torticollis for parents just like yourself. It may take me years with my schedule (this one took 8 years to complete). Joan's husband did the layout work on it so she may have told you. Check it out on the internet www.newdawnpublish.com. Read that book (especially Step 4) before you have another pregnancy. Good luck and keep up the good parenting!!! Dr. Carol P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Tammy, If you get a chance to read the book let us know what you think about it. I am glad you are going to correct her about the DOC band! Marci (Mom to - helmet grad) Oklahoma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 In a message dated 1/14/02 5:34:33 AM Mountain Standard Time, bluestar78@... writes: the ruling that ended Lilly's monopoly on Prozac. Aw, shucks, looks like the teats on that big fat cash cow are starting to dry up!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 In a message dated 1/14/02 5:34:33 AM Mountain Standard Time, bluestar78@... writes: the ruling that ended Lilly's monopoly on Prozac. Aw, shucks, looks like the teats on that big fat cash cow are starting to dry up!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 I'm sure they probably have a bigger killer drug in the making. always the optimist - stinky > In a message dated 1/14/02 5:34:33 AM Mountain Standard Time, > bluestar78@a... writes: > > > > > > Aw, shucks, looks like the teats on that big fat cash cow are starting to > dry up!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2002 Report Share Posted January 14, 2002 I'm sure they probably have a bigger killer drug in the making. always the optimist - stinky > In a message dated 1/14/02 5:34:33 AM Mountain Standard Time, > bluestar78@a... writes: > > > > > > Aw, shucks, looks like the teats on that big fat cash cow are starting to > dry up!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2002 Report Share Posted December 26, 2002 Dear Karin, Thank you for sharing links and information. As you pointed out this article was written in 2000. Please notice that Texas as of Jan1,2001 has PTCB Certification required. I believe Montana now requires cert as well. To my knowledge several states also have dual pharmacy tech status: those without certifcation and those with. Among such states are: Arizona, Tennissee, Delaware and last I knew Rhode Island was toying with this idea. In addition NABP has been on the band wagon for at least 3 years to get all states to require certification and registration, in alliance with PTCB. Each year the NABP prints and publishes the updated list of all of the states requirements for techs in a survey. You can access this by going to PTCB site: www.ptcb.org Sorry I can not give you a separate link. You may not be aware of it, but at each 'page' that you go to on ptcb.org , your address window will still show: www.ptcb.org But if you click on " Regulation " in the menu to the left, then on " State Regulations " then on the following link at that site: " Click here to view the 2001-2002 NABP Survey of Pharmacy Law in Adobe Acrobat Format. " it will take you to the latest survey. I can not wait for the 2002- 2003 survey, it will go through the roof! On this survey you can read which states allow techs to take orders over the phone, require formal education etc. It is on adobe and you have to download that to access it. However it is the 'latest' known authoratative 'printed' information. However EVEN THIS IS BEHIND the TIMES! So much happens so fast. We actually know from being on line with each other news and information BEFORE it gets printed! But of course we are not authoraties, so links to where the info is helps us to 'verify' the info. I am so proud of this site, you, our members for always trying to clarify, verify and to support information and to document and state the resources. It means so much to me to have such a group in which Integrity, Honesty and Correct DATA means so much and is dependable. Thank you again for your contributuions, as always, Respectfully, Jeanetta Mastron CPhT BS Chemistry Pharm Tech Educator Founder/Owner > > I found this while looking for more forums. it was in an article on errors by technicians written in 2000. I apologige for the HUGE link. you may have to cut and paste to get it to work. I have quopted the part i found interesting. > > http://ask.com/main/metaAnswer.asp?t trunkated by Jeanetta > According to the National Association of Boards of Pharmacy, only Alaska, Utah, Washington, and Wyoming license pharmacy technicians, while a certification exam is required in just Louisiana and Wyoming. Nineteen states simply register the technicians. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Pippa, LOLOLOL! YES! Appropriate place indeed. I'm really sorry though, because of all the pain you have had to go through to get there. 50% decrease really isn't safe. It may work for some, but unbearable and or horindus reaction in others. I hope you are educating yourself in order to be successful in getting completly off this garbage they call medicine. Does your family understand? You may eventually need them. The lower you go the more difficult it will become for you. Take care and PLEASE keep us posted on your progress. We live eat and breath to hear success stores. My son is still on 7.5 mg's Zyprexa. He's been on the crap for 2 years now. Well, he's been on more (a lot more) than that, but that is where we are now. I have been completly drained by what they have done to him, SO it is stories like this that keep me from giving into mental exhaustion. It's what helps me to endure. Thank you for sharing! Connie interesting hi all, this seems to be the right place to share this... i've been on 300mg venlafaxine and 300mg quetiapine for a little while. 6 or 7 weeks ago i halved both of them. i spent a week puking and ended up in hospital with palpitations. then it calmed down and i've been ok since then. yesterday my gp commented on this " inexplicable " improvement in me for the last 6 weeks (i see her weekly) and basically said whatever i'm doing, keep on doing it!!!! if only she knew! well, she soon will... encouraged by what she had said, once our appointment finished i left her a note telling her what i'd done. i haven't heard back from her so she either hasn't got the note yet or she doesn't mind... i'll let you konw what happens, but interesting to know whether she'd have commented on how much better i was doing if she'd known it was a result of half doses of my drugs! pippa x ==== http://www.geocities.com/purplestar1uk/journey.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Pippa, LOLOLOL! YES! Appropriate place indeed. I'm really sorry though, because of all the pain you have had to go through to get there. 50% decrease really isn't safe. It may work for some, but unbearable and or horindus reaction in others. I hope you are educating yourself in order to be successful in getting completly off this garbage they call medicine. Does your family understand? You may eventually need them. The lower you go the more difficult it will become for you. Take care and PLEASE keep us posted on your progress. We live eat and breath to hear success stores. My son is still on 7.5 mg's Zyprexa. He's been on the crap for 2 years now. Well, he's been on more (a lot more) than that, but that is where we are now. I have been completly drained by what they have done to him, SO it is stories like this that keep me from giving into mental exhaustion. It's what helps me to endure. Thank you for sharing! Connie interesting hi all, this seems to be the right place to share this... i've been on 300mg venlafaxine and 300mg quetiapine for a little while. 6 or 7 weeks ago i halved both of them. i spent a week puking and ended up in hospital with palpitations. then it calmed down and i've been ok since then. yesterday my gp commented on this " inexplicable " improvement in me for the last 6 weeks (i see her weekly) and basically said whatever i'm doing, keep on doing it!!!! if only she knew! well, she soon will... encouraged by what she had said, once our appointment finished i left her a note telling her what i'd done. i haven't heard back from her so she either hasn't got the note yet or she doesn't mind... i'll let you konw what happens, but interesting to know whether she'd have commented on how much better i was doing if she'd known it was a result of half doses of my drugs! pippa x ==== http://www.geocities.com/purplestar1uk/journey.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Pippa, LOLOLOL! YES! Appropriate place indeed. I'm really sorry though, because of all the pain you have had to go through to get there. 50% decrease really isn't safe. It may work for some, but unbearable and or horindus reaction in others. I hope you are educating yourself in order to be successful in getting completly off this garbage they call medicine. Does your family understand? You may eventually need them. The lower you go the more difficult it will become for you. Take care and PLEASE keep us posted on your progress. We live eat and breath to hear success stores. My son is still on 7.5 mg's Zyprexa. He's been on the crap for 2 years now. Well, he's been on more (a lot more) than that, but that is where we are now. I have been completly drained by what they have done to him, SO it is stories like this that keep me from giving into mental exhaustion. It's what helps me to endure. Thank you for sharing! Connie interesting hi all, this seems to be the right place to share this... i've been on 300mg venlafaxine and 300mg quetiapine for a little while. 6 or 7 weeks ago i halved both of them. i spent a week puking and ended up in hospital with palpitations. then it calmed down and i've been ok since then. yesterday my gp commented on this " inexplicable " improvement in me for the last 6 weeks (i see her weekly) and basically said whatever i'm doing, keep on doing it!!!! if only she knew! well, she soon will... encouraged by what she had said, once our appointment finished i left her a note telling her what i'd done. i haven't heard back from her so she either hasn't got the note yet or she doesn't mind... i'll let you konw what happens, but interesting to know whether she'd have commented on how much better i was doing if she'd known it was a result of half doses of my drugs! pippa x ==== http://www.geocities.com/purplestar1uk/journey.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Pippa, LOLOLOL! YES! Appropriate place indeed. I'm really sorry though, because of all the pain you have had to go through to get there. 50% decrease really isn't safe. It may work for some, but unbearable and or horindus reaction in others. I hope you are educating yourself in order to be successful in getting completly off this garbage they call medicine. Does your family understand? You may eventually need them. The lower you go the more difficult it will become for you. Take care and PLEASE keep us posted on your progress. We live eat and breath to hear success stores. My son is still on 7.5 mg's Zyprexa. He's been on the crap for 2 years now. Well, he's been on more (a lot more) than that, but that is where we are now. I have been completly drained by what they have done to him, SO it is stories like this that keep me from giving into mental exhaustion. It's what helps me to endure. Thank you for sharing! Connie interesting hi all, this seems to be the right place to share this... i've been on 300mg venlafaxine and 300mg quetiapine for a little while. 6 or 7 weeks ago i halved both of them. i spent a week puking and ended up in hospital with palpitations. then it calmed down and i've been ok since then. yesterday my gp commented on this " inexplicable " improvement in me for the last 6 weeks (i see her weekly) and basically said whatever i'm doing, keep on doing it!!!! if only she knew! well, she soon will... encouraged by what she had said, once our appointment finished i left her a note telling her what i'd done. i haven't heard back from her so she either hasn't got the note yet or she doesn't mind... i'll let you konw what happens, but interesting to know whether she'd have commented on how much better i was doing if she'd known it was a result of half doses of my drugs! pippa x ==== http://www.geocities.com/purplestar1uk/journey.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2003 Report Share Posted November 30, 2003 Pippa, I'm sorry, i was reading my post and thought that you may not have understood my laughter. Let me clarify. I work as a tech in a mental hell hospital and i see it every day. These doc's are over medicating and it is just appaling to see what they are doing on a DAILY basis to fellow human beings, SO it thrills me to hear about stories where a VICTIM can actually recover in spite of their doc. It's great to hear that you have told your doc that your better and it's because you have cut back on their poison. GOOD FOR YOU Pippa!!! WAY TO GO!!!!!!!!! I LOVE IT!!! Take care, Connie interesting hi all, this seems to be the right place to share this... i've been on 300mg venlafaxine and 300mg quetiapine for a little while. 6 or 7 weeks ago i halved both of them. i spent a week puking and ended up in hospital with palpitations. then it calmed down and i've been ok since then. yesterday my gp commented on this " inexplicable " improvement in me for the last 6 weeks (i see her weekly) and basically said whatever i'm doing, keep on doing it!!!! if only she knew! well, she soon will... encouraged by what she had said, once our appointment finished i left her a note telling her what i'd done. i haven't heard back from her so she either hasn't got the note yet or she doesn't mind... i'll let you konw what happens, but interesting to know whether she'd have commented on how much better i was doing if she'd known it was a result of half doses of my drugs! pippa x ==== http://www.geocities.com/purplestar1uk/journey.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Hi everyone I haven't written in a while. My adult daughter who has Lyme, has just finished 3 months of oral tetracycline. She sees her LLMD in 2 weeks, but she feels that her symptoms, while much better are not gone. He will probably continue her on some antibiotic. She would like to start some non antibiotic therapies to help build her immune system. Any suggestions on what has actually worked. I know there has been much discussion on so many things, especially Samento, which at first looked promising, but now seems not too. Any help is very appreciated. Libby ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2003 Report Share Posted December 3, 2003 Dear Ann, No, you're NOT the only one! lol. In fact, I'm postponing breakfast at this very moment, but not much longer! Blessings, > > " Sometimes, I postpone breakfast simply because of the vast > amount of pills I have to swallow with it! But without them, I am much > worse. " > > Jen, > Thank you for saying this - I'm not the only one! > Ann > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Good luck mfb. I thought you were out of the woods. Just a side note of caution and maybe something to discuss. I have heard of visual problems occurring with some of the guys who have been taking it for a few months. It some cases it can be permanent. I don't mean to cause you angst as I do not know the details but something to mention to your Doc perhaps. snowking Interesting Even though my T levels are still in the 600's my Dr wants me to go back on Clomid (which I have) starting with 50mg/day and adjusting the dose based on response, he said he would like to see an 800 level with just a slight increase in E2. I had never heard this before but he told me that even though my T levels went up to 1,000 I'm still considered Primary because my E2 went up so high (77). The high E2 he said is common in Primary Hypo as the leydig cells are struggling to produce T. He wants me to stay on the Clomid for 6 months again, he's been right so far so I'm going to do it. He also told me that if I had to ( I hope i don't) I could stay on a low dose of Clomid indefinately. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 MFB, I've been thru a lot of doctors lately Uro, Endo, GP, Antiaging you name it. And the more I hear about your doctor's approach, the more I like him. He seems to have a practical knowledge and is not going blindly by AACE guidlines. > I've been on double the dose for 3 months with no vision problems. I > think my Dr is just being safe as my t levels are fine but he thinks > they may crash and the only reason he took me off so early was > because of surgery. So i guess it comes down to I go against my Dr > and see what happens or listen to him, he warned me that if my levels > do crash it may take longer (like the first time) to get back up > > > > Good luck mfb. > > > > > > > > I thought you were out of the woods. > > > > > > > > Just a side note of caution and maybe something to discuss. I have > heard of > > visual problems occurring with some of the guys who have been > taking it for > > a few months. It some cases it can be permanent. I don't mean to > cause you > > angst as I do not know the details but something to mention to your > Doc > > perhaps. > > > > > > > > > > > > > > > > snowking > > > > > > > > Interesting > > > > > > > > Even though my T levels are still in the 600's my Dr wants me to go > > back on Clomid (which I have) starting with 50mg/day and adjusting > > the dose based on response, he said he would like to see an 800 > level > > with just a slight increase in E2. > > I had never heard this before but he told me that even though my T > > levels went up to 1,000 I'm still considered Primary because my E2 > > went up so high (77). The high E2 he said is common in Primary > Hypo > > as the leydig cells are struggling to produce T. He wants me to > stay > > on the Clomid for 6 months again, he's been right so far so I'm > going > > to do it. > > He also told me that if I had to ( I hope i don't) I could stay on > a > > low dose of Clomid indefinately. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 He may have a point there. When I was on Clomid 50mg/day my T went up to 1210, but E2 went to 42 only and LH was still only 12. And btw, I felt like shit. That last part about LH I do not understand. Does that mean that T 1210 was not such a big deal for my balls and they did not need sky high LH to produce all that T? . > > > I've been on double the dose for 3 months with no vision > problems. > > I > > > think my Dr is just being safe as my t levels are fine but he > > thinks > > > they may crash and the only reason he took me off so early was > > > because of surgery. So i guess it comes down to I go against my > > Dr > > > and see what happens or listen to him, he warned me that if my > > levels > > > do crash it may take longer (like the first time) to get back up > > > > > > > > > > Good luck mfb. > > > > > > > > > > > > > > > > I thought you were out of the woods. > > > > > > > > > > > > > > > > Just a side note of caution and maybe something to discuss. I > > have > > > heard of > > > > visual problems occurring with some of the guys who have been > > > taking it for > > > > a few months. It some cases it can be permanent. I don't mean > > to > > > cause you > > > > angst as I do not know the details but something to mention to > > your > > > Doc > > > > perhaps. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > snowking > > > > > > > > > > > > > > > > Interesting > > > > > > > > > > > > > > > > Even though my T levels are still in the 600's my Dr wants me > to > > go > > > > back on Clomid (which I have) starting with 50mg/day and > > adjusting > > > > the dose based on response, he said he would like to see an 800 > > > level > > > > with just a slight increase in E2. > > > > I had never heard this before but he told me that even though > my > > T > > > > levels went up to 1,000 I'm still considered Primary because my > > E2 > > > > went up so high (77). The high E2 he said is common in Primary > > > Hypo > > > > as the leydig cells are struggling to produce T. He wants me > to > > > stay > > > > on the Clomid for 6 months again, he's been right so far so I'm > > > going > > > > to do it. > > > > He also told me that if I had to ( I hope i don't) I could stay > > on > > > a > > > > low dose of Clomid indefinately. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I am on Clomid even now 12.5mg/eod.After 6 weeks my T/E is 566/25. I will bump up the dose to 25mg every 3 days. It is supposed to give me T ~ 750, because 12.5mg/day gives me T ~1000 The longest I've been on 50mg/day was 8 weeks, all 8 weeks I felt like crap. My SHBG was always normal and my free T is always around 2% of total T, which is perfectly normal only my Progesterone runs high on Clomid. 1 week after my T/E was 766/35 5 weeks after 213/10, LH 0.9 > > > > > I've been on double the dose for 3 months with no vision > > > problems. > > > > I > > > > > think my Dr is just being safe as my t levels are fine but he > > > > thinks > > > > > they may crash and the only reason he took me off so early > was > > > > > because of surgery. So i guess it comes down to I go > against > > my > > > > Dr > > > > > and see what happens or listen to him, he warned me that if > my > > > > levels > > > > > do crash it may take longer (like the first time) to get back > up > > > > > > > > > > > > > > > > Good luck mfb. > > > > > > > > > > > > > > > > > > > > > > > > I thought you were out of the woods. > > > > > > > > > > > > > > > > > > > > > > > > Just a side note of caution and maybe something to > discuss. > > I > > > > have > > > > > heard of > > > > > > visual problems occurring with some of the guys who have > been > > > > > taking it for > > > > > > a few months. It some cases it can be permanent. I don't > > mean > > > > to > > > > > cause you > > > > > > angst as I do not know the details but something to mention > > to > > > > your > > > > > Doc > > > > > > perhaps. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > snowking > > > > > > > > > > > > > > > > > > > > > > > > Interesting > > > > > > > > > > > > > > > > > > > > > > > > Even though my T levels are still in the 600's my Dr wants > me > > > to > > > > go > > > > > > back on Clomid (which I have) starting with 50mg/day and > > > > adjusting > > > > > > the dose based on response, he said he would like to see an > > 800 > > > > > level > > > > > > with just a slight increase in E2. > > > > > > I had never heard this before but he told me that even > though > > > my > > > > T > > > > > > levels went up to 1,000 I'm still considered Primary > because > > my > > > > E2 > > > > > > went up so high (77). The high E2 he said is common in > > Primary > > > > > Hypo > > > > > > as the leydig cells are struggling to produce T. He wants > me > > > to > > > > > stay > > > > > > on the Clomid for 6 months again, he's been right so far so > > I'm > > > > > going > > > > > > to do it. > > > > > > He also told me that if I had to ( I hope i don't) I could > > stay > > > > on > > > > > a > > > > > > low dose of Clomid indefinately. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I like your doctor mfb, I think he's extremely knowledgeable and I've learned a lot from your posts and your visits with him. My E2 is sky high for some reason, with low T caused by propecia... Im thinking about just using arimidex at the moment. What are your current E2 levels now that you been off the drug for while. If its just your E2 that's high and your T levels are at 600+ would just using arimidex work, instead of using clomid? As it should increase your T and lower your E... > > > I've been on double the dose for 3 months with no vision > problems. > > I > > > think my Dr is just being safe as my t levels are fine but he > > thinks > > > they may crash and the only reason he took me off so early was > > > because of surgery. So i guess it comes down to I go against my > > Dr > > > and see what happens or listen to him, he warned me that if my > > levels > > > do crash it may take longer (like the first time) to get back up > > > > > > > > > > Good luck mfb. > > > > > > > > > > > > > > > > I thought you were out of the woods. > > > > > > > > > > > > > > > > Just a side note of caution and maybe something to discuss. I > > have > > > heard of > > > > visual problems occurring with some of the guys who have been > > > taking it for > > > > a few months. It some cases it can be permanent. I don't mean > > to > > > cause you > > > > angst as I do not know the details but something to mention to > > your > > > Doc > > > > perhaps. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > snowking > > > > > > > > > > > > > > > > Interesting > > > > > > > > > > > > > > > > Even though my T levels are still in the 600's my Dr wants me > to > > go > > > > back on Clomid (which I have) starting with 50mg/day and > > adjusting > > > > the dose based on response, he said he would like to see an 800 > > > level > > > > with just a slight increase in E2. > > > > I had never heard this before but he told me that even though > my > > T > > > > levels went up to 1,000 I'm still considered Primary because my > > E2 > > > > went up so high (77). The high E2 he said is common in Primary > > > Hypo > > > > as the leydig cells are struggling to produce T. He wants me > to > > > stay > > > > on the Clomid for 6 months again, he's been right so far so I'm > > > going > > > > to do it. > > > > He also told me that if I had to ( I hope i don't) I could stay > > on > > > a > > > > low dose of Clomid indefinately. > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I took Clomid for only a few days two months ago. Ever since, I've had problems with floaters. So snowking is correct. Clomid can cause long-term/permanent visual problems. TE > Good luck mfb. > > > > I thought you were out of the woods. > > > > Just a side note of caution and maybe something to discuss. I have heard of > visual problems occurring with some of the guys who have been taking it for > a few months. It some cases it can be permanent. I don't mean to cause you > angst as I do not know the details but something to mention to your Doc > perhaps. > > > > > > > > snowking > > > > Interesting > > > > Even though my T levels are still in the 600's my Dr wants me to go > back on Clomid (which I have) starting with 50mg/day and adjusting > the dose based on response, he said he would like to see an 800 level > with just a slight increase in E2. > I had never heard this before but he told me that even though my T > levels went up to 1,000 I'm still considered Primary because my E2 > went up so high (77). The high E2 he said is common in Primary Hypo > as the leydig cells are struggling to produce T. He wants me to stay > on the Clomid for 6 months again, he's been right so far so I'm going > to do it. > He also told me that if I had to ( I hope i don't) I could stay on a > low dose of Clomid indefinately. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 I am 45 and until last year was fine. But 6 months of hairloss poison brought me into all this mess. 12.5mg/day raise my T/E into 900-1000/28 which I think is a bit too high, 6mg/day gave me 566/25. So I figured that 9mg/day or half pill every 3 days will bring me into 700-800, which I think is the optimum. But I see your point about half life of Clomid. Yes, my Lh seems to be always low, even on 50mg/day did not go too high, probably my pituitary really screwed. And doses above 12.5mg/day make me feel awful, much worse than with just low T. With low doses of Clomid I feel OK and have only light ED, low sex drive to be correct. Going thru many MDs I lost all trust in them and selfmedicating for the last 8 months. But I am going to contact your doctor, he seems to be the best so far (at least I agree with how he treats you). > > > > > > > I've been on double the dose for 3 months with no vision > > > > > problems. > > > > > > I > > > > > > > think my Dr is just being safe as my t levels are fine > but > > he > > > > > > thinks > > > > > > > they may crash and the only reason he took me off so > early > > > was > > > > > > > because of surgery. So i guess it comes down to I go > > > against > > > > my > > > > > > Dr > > > > > > > and see what happens or listen to him, he warned me that > if > > > my > > > > > > levels > > > > > > > do crash it may take longer (like the first time) to get > > back > > > up > > > > > > > > > > > > > > > > > > > > > > Good luck mfb. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I thought you were out of the woods. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Just a side note of caution and maybe something to > > > discuss. > > > > I > > > > > > have > > > > > > > heard of > > > > > > > > visual problems occurring with some of the guys who > have > > > been > > > > > > > taking it for > > > > > > > > a few months. It some cases it can be permanent. I > > don't > > > > mean > > > > > > to > > > > > > > cause you > > > > > > > > angst as I do not know the details but something to > > mention > > > > to > > > > > > your > > > > > > > Doc > > > > > > > > perhaps. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > snowking > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Interesting > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Even though my T levels are still in the 600's my Dr > > wants > > > me > > > > > to > > > > > > go > > > > > > > > back on Clomid (which I have) starting with 50mg/day > and > > > > > > adjusting > > > > > > > > the dose based on response, he said he would like to > see > > an > > > > 800 > > > > > > > level > > > > > > > > with just a slight increase in E2. > > > > > > > > I had never heard this before but he told me that even > > > though > > > > > my > > > > > > T > > > > > > > > levels went up to 1,000 I'm still considered Primary > > > because > > > > my > > > > > > E2 > > > > > > > > went up so high (77). The high E2 he said is common in > > > > Primary > > > > > > > Hypo > > > > > > > > as the leydig cells are struggling to produce T. He > > wants > > > me > > > > > to > > > > > > > stay > > > > > > > > on the Clomid for 6 months again, he's been right so > far > > so > > > > I'm > > > > > > > going > > > > > > > > to do it. > > > > > > > > He also told me that if I had to ( I hope i don't) I > > could > > > > stay > > > > > > on > > > > > > > a > > > > > > > > low dose of Clomid indefinately. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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