Re: gastro effects, cdiff, white blood cell count and feedback on Alinia

[Guest guest]

I have low white cells too

Cathleen

suzetterdh wrote:

>

> Hello all,

>

> I need to ask if others treated for lyme have had C diff

> infections and how they were able to treat it successfully?

> My C diff was treated in April 08/ July 08 and had left me with

> lasting GI dysfunction. I continue to experience abdominal swelling,

> burning, core pain, and diarrhea/IBS symptoms. I feel like someone has

> beat me up and am in need of networking with others who could help

> give me some hope. Has anyone found excellent gastro doctors in PA, DE

> or NJ??

>

> Following very aggressive lyme/Bart/Babesia treatment

> (IV/orals) and sinus infection med (Augmentin/Zith) , I am still

> suffering from much GI and immunity issues. I developed very bad c

> diff, treated it and am now getting progressively worse in spite of

> negative c. diff tests. The colonoscopy and upper endoscopy were

> normal. I did have a variety of other parasites stool tests and

> bacteria biopsied by the GI doctor and all were negative. My white

> blood cell count keeps lowering to the 2.6 level and the total

> lymphocytes to 518. There are other labs off as well, such as

> globulin,

> albumin/globulin, AST, Low Iron, as well as other deficiencies.

>

> I went for a second opinion and the GI dr diagnosed post

> infectious irritable bowel syndrome. He ordered a cat scan which was

> negative as well.

>

> I take very good probiotics, yet my symptoms are worsening. I am

> exploring that this may have kicked off celiac/crohn's and have

> eliminated as many possible trigger foods as possible. I was negative

> on the celiac test, yet understand it is still possible to test

> negative with the disease. I avoid dairy, fats, alcohol, corn,

> artificial sweetners, etc yet do not notice a difference thus far. I

> did send for various books on how the diet can affect your system.

>

> I seem to keep going back to square one and would like to hear

> if others have been through the same problem with the GI effects.

> I also would like to know if others have had the low white blood cell

> count as well? Are there GI/ Hematologist doctors you would recommend

> in the PA, DE or NJ area?

>

> Off Topic: I also would like to hear if others have had success with a

> newer lyme drug, Alinia? The lyme dr I see suggested the Alinia, but I

> have heard it is very expensive and causes GI effects.

>

> Thank you for any feedback you can offer me.

>

> Suzette

> suzetterdh

>

>

[Guest guest]

Hello,

 

I do not have the C diff infection you spoke of but I have all the lab

abnormalities you mentioned. Low white count, as low as 1.6. Hypo

gammaglobulinemia etc...

 

I think it may all part of the lyme infections toll onthe body. I have been

infected for 15 yrs.

 

Keep looking for answers!!!

From: cathleen rehfeld <crehfeld@...>

Subject: Re: [ ] gastro effects, cdiff, white blood cell count and

feedback on Alinia

Date: Sunday, December 7, 2008, 10:54 PM

I have low white cells too

Cathleen