Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 Thank you for posting this, Janet. I share your concern about the lack of response to this opportunity for national attention. I believe that Dr. Oz is specifically wanted to hear stories about those who have received treatment and are still having treatment. Hence, we can impact the current apathy and ignorance about chronic lyme disease within the medical community. My best, Jen > > I received this message on my local Lyme email list and wanted to post it > here. I wrote to Dr. Oz. Please do so if you are reading this! > > > > Forwarded: > > I am concerned that not enough people have commented on Oprah's Dr. Oz > forum page. I just visited the site to make sure that the comment I > wrote last night was approved by the monitor and posted - and their are > only 34 comments! I remember someone saying that Dr. Oz wanted to see > how many emails or letters he would get about the topic after his radio > show to base whether or not he would try to get Oprah to do an TV show > on Lyme. > > Maybe people are writing letters/emails directly to Dr. Oz and/or Oprah, > but if the low number of comments on Oprah's " community forum " is any > indication of the number of letters going directly to them, then we are > in trouble... I personally wrote a direct letter to Dr. Oz and then > posted almost the same letter on the community forum page. > > There are thousands of us chronic Lyme patients! This is our biggest > and best opportunity to get massive media attention, but I feel we have > to convince them with numbers - that this is a huge problem that > deserves their attention. As we all know, Oprah and her show is no > stranger to personal tragedies, but I believe it is the number of our > tragedies that will most influence their willingness to give us a forum. > I don't want to see this opportunity pass us by - as there probably > won't be another train coming by like Oprah's for a long time... > > Here is the link to email Dr. Oz directly: > <https://www.oprah.com/plugform.jsp?plugId=495 & referer> > https://www.oprah.com/plugform.jsp?plugId=495 & referer > < <https://www.oprah.com/plugform.jsp?plugId=495 & referer> > https://www.oprah.com/plugform.jsp?plugId=495 & referer> > > Here is the link to post a comment on Oprah's community forum > specifically about the Dr. Oz radio on Lyme: > <http://www.oprah.com/community/thread/92112> > http://www.oprah.com/community/thread/92112 > > Thank you! Here's to Oprah! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 I forgot to tell you, I did write, connie, mi [ ] Re: Please write to Dr. Oz > Thank you for posting this, Janet. > > I share your concern about the lack of response to this opportunity for > national attention. > I believe that Dr. Oz is specifically wanted to hear stories about those > who have received > treatment and are still having treatment. Hence, we can impact the current > apathy and > ignorance about chronic lyme disease within the medical community. > > My best, > Jen > > >> >> I received this message on my local Lyme email list and wanted to post it >> here. I wrote to Dr. Oz. Please do so if you are reading this! >> >> >> >> Forwarded: >> >> I am concerned that not enough people have commented on Oprah's Dr. Oz >> forum page. I just visited the site to make sure that the comment I >> wrote last night was approved by the monitor and posted - and their are >> only 34 comments! I remember someone saying that Dr. Oz wanted to see >> how many emails or letters he would get about the topic after his radio >> show to base whether or not he would try to get Oprah to do an TV show >> on Lyme. >> >> Maybe people are writing letters/emails directly to Dr. Oz and/or Oprah, >> but if the low number of comments on Oprah's " community forum " is any >> indication of the number of letters going directly to them, then we are >> in trouble... I personally wrote a direct letter to Dr. Oz and then >> posted almost the same letter on the community forum page. >> >> There are thousands of us chronic Lyme patients! This is our biggest >> and best opportunity to get massive media attention, but I feel we have >> to convince them with numbers - that this is a huge problem that >> deserves their attention. As we all know, Oprah and her show is no >> stranger to personal tragedies, but I believe it is the number of our >> tragedies that will most influence their willingness to give us a forum. >> I don't want to see this opportunity pass us by - as there probably >> won't be another train coming by like Oprah's for a long time... >> >> Here is the link to email Dr. Oz directly: >> <https://www.oprah.com/plugform.jsp?plugId=495 & referer> >> https://www.oprah.com/plugform.jsp?plugId=495 & referer >> < <https://www.oprah.com/plugform.jsp?plugId=495 & referer> >> https://www.oprah.com/plugform.jsp?plugId=495 & referer> >> >> Here is the link to post a comment on Oprah's community forum >> specifically about the Dr. Oz radio on Lyme: >> <http://www.oprah.com/community/thread/92112> >> http://www.oprah.com/community/thread/92112 >> >> Thank you! Here's to Oprah! >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2008 Report Share Posted December 5, 2008 So I'm confused about where to post. I sent an email to the site that is called plugform, where you can have up to 2000 characters. I also posted on another site that only allows about 160 characters. This other site that counts now 72 replies does not have my email, so which one are they checking? If they're checking all the sites, then they probably have a lot more than 72 replies... Do I have to post on this last site (community thread)also? It's a little annoying. > > I am concerned that not enough people have commented on Oprah's Dr. Oz > forum page. I just visited the site to make sure that the comment I > wrote last night was approved by the monitor and posted - and their are > only 34 comments! I remember someone saying that Dr. Oz wanted to see > how many emails or letters he would get about the topic after his radio > show to base whether or not he would try to get Oprah to do an TV show > on Lyme. > > Maybe people are writing letters/emails directly to Dr. Oz and/or Oprah, > but if the low number of comments on Oprah's " community forum " is any > indication of the number of letters going directly to them, then we are > in trouble... I personally wrote a direct letter to Dr. Oz and then > posted almost the same letter on the community forum page. > > There are thousands of us chronic Lyme patients! This is our biggest > and best opportunity to get massive media attention, but I feel we have > to convince them with numbers - that this is a huge problem that > deserves their attention. As we all know, Oprah and her show is no > stranger to personal tragedies, but I believe it is the number of our > tragedies that will most influence their willingness to give us a forum. > I don't want to see this opportunity pass us by - as there probably > won't be another train coming by like Oprah's for a long time... > > Here is the link to email Dr. Oz directly: > <https://www.oprah.com/plugform.jsp?plugId=495 & referer> > https://www.oprah.com/plugform.jsp?plugId=495 & referer > < <https://www.oprah.com/plugform.jsp?plugId=495 & referer> > https://www.oprah.com/plugform.jsp?plugId=495 & referer> > > Here is the link to post a comment on Oprah's community forum > specifically about the Dr. Oz radio on Lyme: > <http://www.oprah.com/community/thread/92112> > http://www.oprah.com/community/thread/92112 > > Thank you! Here's to Oprah! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2008 Report Share Posted December 7, 2008 The thing is that if they would do the show then and only then would tons of people know what disease they have - he needs numbers well do the show and see what happens after the show - people would start coming out of the woodwork - If I would of seen a show about lyme disease years ago I would of know what was distroying my family......... millions of people that he wants to hear from have no idea what they have because doctors have no idea what they have. I pray they will do a show on this - Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2008 Report Share Posted December 7, 2008 The thing is that if they would do the show then and only then would tons of people know what disease they have - he needs numbers well do the show and see what happens after the show - people would start coming out of the woodwork - If I would of seen a show about lyme disease years ago I would of know what was distroying my family......... millions of people that he wants to hear from have no idea what they have because doctors have no idea what they have. I pray they will do a show on this - Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2008 Report Share Posted December 7, 2008 The thing is that if they would do the show then and only then would tons of people know what disease they have - he needs numbers well do the show and see what happens after the show - people would start coming out of the woodwork - If I would of seen a show about lyme disease years ago I would of know what was distroying my family......... millions of people that he wants to hear from have no idea what they have because doctors have no idea what they have. I pray they will do a show on this - Diane Quote Link to comment Share on other sites More sharing options...
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