Re: Low Vitamin D - 25 hydroxy, should supplement or not?

[Guest guest]

,

I take vitamin D and also recommend you have both levels checked before

and check every 3 months if you decide to take vitamin D.  If you get too much

vitamin D in your system it can become toxic. 

 

Thanks,

Deb

From: <shawn@...>

Subject: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

Date: Sunday, October 26, 2008, 9:33 PM

I just got a back a test result showing low 25 hydroxy. I've read

(Marshall Protocol) that I might check for high 1,25 dihydroxy before

I considering supplementing D3.

Do many of you here supplement D? If so have you had your 1,25 levels

checked prior to?

Thanks

[Guest guest]

I take 5000 iu of vitamin D3. I took it before contracting Lyme because it

is good for bones as well as preventing many cancers. 5000 iu is also on

Dr. C's protocol.

Kenda

> I just got a back a test result showing low 25 hydroxy. I've read

> (Marshall Protocol) that I might check for high 1,25 dihydroxy before

> I considering supplementing D3.

>

> Do many of you here supplement D? If so have you had your 1,25 levels

> checked prior to?

>

> Thanks

>

[Guest guest]

What about the theory of having too much vitamin d? I took some a while back and

got real bad.

Christie Lynn

Re: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

I take 5000 iu of vitamin D3. I took it before contracting Lyme because it

is good for bones as well as preventing many cancers. 5000 iu is also on

Dr. C's protocol.

Kenda

[Guest guest]

Christie,

If you are worried about having too much vitamin D, you could always get the

25-hydroxy-vitamin D checked every 2-3 months.  Per the information below, it

appears you would have to take 100,000 IUs a day for two months in order to get

toxicity symptoms.  I experienced toxicity symptoms many years back because I

was taking 50,000 units a day.  When the dosage was changed to 50,000 a week the

toxicity syptoms went away.  The 50,000 IUs a week averages to about 7,000 IUs a

day.  Kenda mentioned 5000 IUs a day which appears to be  under the 10,000 IUs a

day that is believed to be safe.  See additional information below found

at wikipedia. 

 

Deb Arana

 

=================================================================

 

At wikipedia website http://en.wikipedia.org/wiki/Vitamin_D scroll down until

you get to overdose.  It states...dosages up to 250 micrograms (10,000 IU) /day

in healthy adults are believed to be safe...all known cases of vitamin D

toxicity with hypercalcemia have involved intake of or over 1,000 micrograms

(40,000 IU)/day).  Serum levels of calcidiol (25-hydroxy-vitamin D) are

typically used to diagnose vitamin D overdose.

 

In healthy individuals, calcidiol levels are normally between 32 to 70 ng/mL (80

to 175 nmol/L), but these levels may be as much as 15-fold greater in cases of

vitamin D toxicity. Serum levels of bioactive vitamin D hormone (1,25(OH2)D) are

usually normal in cases of vitamin D overdose.

 

Tolerable Upper Intake Level (UL) of vitamin D for children and adults is

50 micrograms/day (2,000 IU/day), although this is widely presumed to be below

actual physiological daily requirements. In adults, sustained intake of 2500

micrograms/day (100,000 IU) can produce toxicity within a few months.

-- On Mon, 10/27/08, christie <camnchloe@...> wrote:

From: christie <camnchloe@...>

Subject: RE: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

Date: Monday, October 27, 2008, 2:22 PM

What about the theory of having too much vitamin d? I took some a while back and

got real bad.

Christie Lynn

[Guest guest]

Christie,

I have taken 5,000 iu of D3 for over a year and have had no toxicity

symptoms. In fact, when I had lab work done this spring, my level was right

in the middle of the reference range, meaning it could have been much higher

and still been fine.

Dr. C also recommends 5000 iu of D3 in his protocol. I know you were

talking about seeing him when you could afford it. This is one way you

could be a step ahead when you do see him. He also does hormone testing

because low hormones can make you feel poorly. I'd strongly recommend that

you take the hormones your doctor prescribed. You want to do all you can to

feel better. All of these pieces fit into the puzzle that makes you sick,

not just Lyme and co-infections.

Kenda

> Christie,

> If you are worried about having too much vitamin D, you could always get the

> 25-hydroxy-vitamin D checked every 2-3 months.  Per the information below, it

> appears you would have to take 100,000 IUs a day for two months in order to

> get toxicity symptoms.  I experienced toxicity symptoms many years back

> because I was taking 50,000 units a day.  When the dosage was changed

> to 50,000 a week the toxicity syptoms went away.  The 50,000 IUs a week

> averages to about 7,000 IUs a day.  Kenda mentioned 5000 IUs a day

> which appears to be  under the 10,000 IUs a day that is believed to be safe. 

> See additional information below found at wikipedia. 

>  

> Deb Arana

>  

> =================================================================

>  

> At wikipedia website http://en.wikipedia.org/wiki/Vitamin_D scroll down until

> you get to overdose.  It states...dosages up to 250 micrograms (10,000 IU)

> /day in healthy adults are believed to be safe...all known cases of vitamin D

> toxicity with hypercalcemia have involved intake of or over 1,000 micrograms

> (40,000 IU)/day).  Serum levels of calcidiol (25-hydroxy-vitamin D) are

> typically used to diagnose vitamin D overdose.

>  

> In healthy individuals, calcidiol levels are normally between 32 to 70 ng/mL

> (80 to 175 nmol/L), but these levels may be as much as 15-fold greater in

> cases of vitamin D toxicity. Serum levels of bioactive vitamin D hormone

> (1,25(OH2)D) are usually normal in cases of vitamin D overdose.

>  

> Tolerable Upper Intake Level (UL) of vitamin D for children and adults is

> 50 micrograms/day (2,000 IU/day), although this is widely presumed to be below

> actual physiological daily requirements. In adults, sustained intake of 2500

> micrograms/day (100,000 IU) can produce toxicity within a few months.

>

> -- On Mon, 10/27/08, christie <camnchloe@...> wrote:

>

> From: christie <camnchloe@...>

> Subject: RE: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

>

> Date: Monday, October 27, 2008, 2:22 PM

>

> What about the theory of having too much vitamin d? I took some a while back

> and got real bad.

>

> Christie Lynn

[Guest guest]

In a message dated 10/28/2008 3:49:14 AM Pacific Daylight Time,

writes:

_Re: Low Vitamin D - 25 hydroxy, should supplement or not? _

( /message/79612;_ylc=X3oDMTJvcDRhMjZkBF9TA\

zk3MzU5NzE1BGdy

cElkAzczODQEZ3Jwc3BJZAMxNzA1MTA2MDEyBG1zZ0lkAzc5NjEyBHNlYwNkbXNnBHNsawN2bXNnBH

N0aW1lAzEyMjUxOTA5MjQ-)

Posted by: " Deborah Arana " _darana0218@... _

(mailto:darana0218@...?Subject=

Re:%20Low%20Vitamin%20D%20-%2025%20hydroxy,%20should%20supplement%20or%20not?)

_darana0218 _ (darana0218)

Mon Oct 27, 2008 7:40 pm (PDT)

Christie,

If you are worried about having too much vitamin D, you could always get the

25-hydroxy-vitamin D checked every 2-3 months. Per the information below,

it appears you would have to take 100,000 IUs a day for two months in order to

get toxicity symptoms. I experienced toxicity symptoms many years back

because I was taking 50,000 units a day. When the dosage was changed to 50,000

a

week the toxicity syptoms went away. The 50,000 IUs a week averages to

about 7,000 IUs a day. Kenda mentioned 5000 IUs a day which appears <WBR>

under the 10,000 IUs a day that is believed to be safe. See additional

information below found at wikipedia.

Deb Arana

I want to point out that this article, from a group of vitamin D experts

Summary of roundtable discussion on vitamin D research needs

Brannon et al. Am J Clin Nutr.2008; 88: 587S-592S .

They are concerned about even the levels given in most NIH trials (usually

1000 IU or less daily). So, I think it is risky taking levels above the RDA.

Long term safety has not been established. (A study Payne 2008 at Duke

Univ. on neurological calcification and D, also raises concern).

says: Nature of the concerns

The roundtable participants discussed the need to identify the

form of vitamin D most likely to produce toxic effects. They

suggested that 25(OH)D might be more toxic than is vitamin D.

The roundtable participants were particularly concerned about

the need to evaluate the safety of vitamin D within the context of

long-term exposures, because we need intake recommendations

for exposures throughout the life span. The 5-y timeframe of

most National Institutes of Health grants is not sufficient to

assess safety across a lifetime. Most currently available evidence

is based on short-term exposure (6 mo), so generalizations

from these data to long-term exposures are problematic. In addition,

most current evidence is limited to adult populations, and

few data are available on infants, children, and other potentially

vulnerable groups.

Traditionally, clinical trials may lack systematic procedures

and protocols for collecting and reporting information on adverse

effects. As a result, safety evaluations based on trial data might

be biased against finding adverse effects. We can and should

considerably improve the collection of information on adverse

events in ongoing and future vitamin D trials.

Another concern expressed by the roundtable participants is

the need for more data on potential nonskeletal effects of longterm,

high doses of vitamin D. Bone-focused approaches to toxicity

evaluations might be short-sighted, given the host of other

potential adverse outcomes, such as aortic calcification. Many

studies have not rigorously examined soft tissue calcification and

other adverse outcomes.

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[Guest guest]

Kenda,

Actually what I meant by too much D was the whole theory behind the marshall

protocol. I know for me, being in the heat, and in the sun makes my symptoms

worse.

Does progesterone cream raise testosterone levels? The doctor told me from my

history that im estrogen dominant.

Did Dr. C put you on Bolouke or Heparin? I've just started taking NAC and ALA.

And im having some sort of chest congestion. Anyone know if NAC could cause

that?

Christie Lynn

Re: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

Christie,

I have taken 5,000 iu of D3 for over a year and have had no toxicity

symptoms. In fact, when I had lab work done this spring, my level was right

in the middle of the reference range, meaning it could have been much higher

and still been fine.

Dr. C also recommends 5000 iu of D3 in his protocol. I know you were

talking about seeing him when you could afford it. This is one way you

could be a step ahead when you do see him. He also does hormone testing

because low hormones can make you feel poorly. I'd strongly recommend that

you take the hormones your doctor prescribed. You want to do all you can to

feel better. All of these pieces fit into the puzzle that makes you sick,

not just Lyme and co-infections.

Kenda

[Guest guest]

Hi, Christie,

Progesterone can convert into testosterone but it is more likely that DHEA

will make the conversation into testosterone if you take it. Do you get

migraines during your cycle at all? I always did before supplementing with

progesterone.

Dr. C ran the lab test to see if I need Heparin. I'm still waiting on the

results.

As far as NAC causing chest congestion, it wouldn't cause it directly but if

it is causing toxins in your body to be dumped, that could cause illness but

consider it a good thing.

Kenda

> Kenda,

>

> Actually what I meant by too much D was the whole theory behind the marshall

> protocol. I know for me, being in the heat, and in the sun makes my symptoms

> worse.

>

> Does progesterone cream raise testosterone levels? The doctor told me from my

> history that im estrogen dominant.

>

> Did Dr. C put you on Bolouke or Heparin? I've just started taking NAC and ALA.

> And im having some sort of chest congestion. Anyone know if NAC could cause

> that?

> Christie Lynn

>

> Re: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

>

> Christie,

>

> I have taken 5,000 iu of D3 for over a year and have had no toxicity

> symptoms. In fact, when I had lab work done this spring, my level was right

> in the middle of the reference range, meaning it could have been much higher

> and still been fine.

>

> Dr. C also recommends 5000 iu of D3 in his protocol. I know you were

> talking about seeing him when you could afford it. This is one way you

> could be a step ahead when you do see him. He also does hormone testing

> because low hormones can make you feel poorly. I'd strongly recommend that

> you take the hormones your doctor prescribed. You want to do all you can to

> feel better. All of these pieces fit into the puzzle that makes you sick,

> not just Lyme and co-infections.

>

> Kenda

>

[Guest guest]

Chest congestion from taking NAC is a classic sign of die-off of a Cpn

infection.

Cpn is chlamydia pneumoniae, not the more well known STD, but a nasty

bacteria

that many people have. As the name implies, it can cause pneumonia and

other

respiratory issues. You can have a chronic Cpn infection without many

obvious

symptoms. NAC is able to cause the elementary bodies of Cpn to burst open

before they have a change to infiltrate a cell.

There's lots of info about Cpn, NAC, antiobiotic use (many folks there take

doxy

with Flagyl and other antibiotics all at the same time), etc., on

www.cpnhelp.org.

Best wishes.

On Tue, Oct 28, 2008 at 10:57 AM, christie <camnchloe@...> wrote:

> Kenda,

>

> Actually what I meant by too much D was the whole theory behind the

> marshall protocol. I know for me, being in the heat, and in the sun makes my

> symptoms worse.

>

> Does progesterone cream raise testosterone levels? The doctor told me from

> my history that im estrogen dominant.

>

> Did Dr. C put you on Bolouke or Heparin? I've just started taking NAC and

> ALA. And im having some sort of chest congestion. Anyone know if NAC could

> cause that?

> Christie Lynn

>

[Guest guest]

Kenda,

I get headaches all the time, im not sure if they are worse at that time.

Be careful of the Heparin, there have been advertisements all over about it

causing sudden death! Tell him you want Bolouke instead, its an enzyme made from

earthworms that does the same thing. He sells it online on his website.

Christie Lynn

Re: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

Hi, Christie,

Progesterone can convert into testosterone but it is more likely that DHEA

will make the conversation into testosterone if you take it. Do you get

migraines during your cycle at all? I always did before supplementing with

progesterone.

Dr. C ran the lab test to see if I need Heparin. I'm still waiting on the

results.

As far as NAC causing chest congestion, it wouldn't cause it directly but if

it is causing toxins in your body to be dumped, that could cause illness but

consider it a good thing.

Kenda

[Guest guest]

Christie,

You might watch this video about the subject of Vitamin D:

>

> What about the theory of having too much vitamin d? I took some a

while back and got real bad.

>

> Christie Lynn

>

> Re: [ ] Low Vitamin D - 25 hydroxy, should

supplement or not?

>

> I take 5000 iu of vitamin D3. I took it before contracting Lyme

because it

> is good for bones as well as preventing many cancers. 5000 iu is

also on

> Dr. C's protocol.

>

> Kenda

>

[Guest guest]

Thanks for that info, ill check out the website.

Christie Lynn

Re: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

Chest congestion from taking NAC is a classic sign of die-off of a Cpn

infection.

Cpn is chlamydia pneumoniae, not the more well known STD, but a nasty

bacteria

that many people have. As the name implies, it can cause pneumonia and

other

respiratory issues. You can have a chronic Cpn infection without many

obvious

symptoms. NAC is able to cause the elementary bodies of Cpn to burst open

before they have a change to infiltrate a cell.

There's lots of info about Cpn, NAC, antiobiotic use (many folks there take

doxy

with Flagyl and other antibiotics all at the same time), etc., on

www.cpnhelp.org.

Best wishes.

[Guest guest]

Hi, Christie,

I took heparin injections on and off for years for IC and had no side

affects at all. He uses very small doses. I'll ask him about Bolouke if my

test is positive.

Kenda

> Kenda,

>

> I get headaches all the time, im not sure if they are worse at that time.

> Be careful of the Heparin, there have been advertisements all over about it

> causing sudden death! Tell him you want Bolouke instead, its an enzyme made

> from earthworms that does the same thing. He sells it online on his website.

> Christie Lynn

>

> Re: [ ] Low Vitamin D - 25 hydroxy, should supplement or not?

>

> Hi, Christie,

>

> Progesterone can convert into testosterone but it is more likely that DHEA

> will make the conversation into testosterone if you take it. Do you get

> migraines during your cycle at all? I always did before supplementing with

> progesterone.

>

> Dr. C ran the lab test to see if I need Heparin. I'm still waiting on the

> results.

>

> As far as NAC causing chest congestion, it wouldn't cause it directly but if

> it is causing toxins in your body to be dumped, that could cause illness but

> consider it a good thing.

>

> Kenda

>

>

[Guest guest]

did anything finally " cure " you of the IC?

cathleen

Kenda Skaggs wrote:

>

> Hi, Christie,

>

> I took heparin injections on and off for years for IC and had no side

> affects at all. He uses very small doses. I'll ask him about Bolouke if my

> test is positive.

>

> Kenda

>

[Guest guest]

I wouldn't say I was ever cured but my symptoms have decreased by 90%. I

had IC long before Lyme, since my early 20's.

Kenda

> did anything finally " cure " you of the IC?

>

> cathleen

>

> Kenda Skaggs wrote:

>>

>> Hi, Christie,

>>

>> I took heparin injections on and off for years for IC and had no side

>> affects at all. He uses very small doses. I'll ask him about Bolouke if my

>> test is positive.

>>

>> Kenda

>>

[Guest guest]

is there anything that you took, that you feel helped cure your IC? any

sort of pills, herbs etc?

thank you,

cathleen

Kenda Skaggs wrote:

>

> I wouldn't say I was ever cured but my symptoms have decreased by 90%. I

> had IC long before Lyme, since my early 20's.

>

> Kenda

>

[Guest guest]

Definitely. The best non-drug treatment I ever took was whole leaf Aloe

Vera capsules from Desert Harvest. On their website, desertharvest.com,

there is a section for IC patients. I took their aloe for many months and a

lot of improvement. Heparin injections three times per week also helped a

lot. One final treatment is a product by the name of U-Tract, which is

D-Mannose, made by Progressive Laboratories.

For a major flare, I'd go with the aloe over a few months time. For minor

burning, try D-Mannose.

Hope that helps.

Kenda

> is there anything that you took, that you feel helped cure your IC? any

> sort of pills, herbs etc?

>

> thank you,

> cathleen

>

> Kenda Skaggs wrote:

>>

>> I wouldn't say I was ever cured but my symptoms have decreased by 90%. I

>> had IC long before Lyme, since my early 20's.

>>

>> Kenda

>>

[Guest guest]

Thanks Kenda,

I will try to focus seriously on the Aloe pills. I took some Dmannose

once and I thought I was going to have to go to the hospital because it

inflamed my uretha or bladder so much I almost stopped being able to

urinate.

cathleen

Kenda Skaggs wrote:

>

> Definitely. The best non-drug treatment I ever took was whole leaf Aloe

> Vera capsules from Desert Harvest. On their website, desertharvest.com,

> there is a section for IC patients. I took their aloe for many months

> and a

> lot of improvement. Heparin injections three times per week also helped a

> lot. One final treatment is a product by the name of U-Tract, which is

> D-Mannose, made by Progressive Laboratories.

>

> For a major flare, I'd go with the aloe over a few months time. For minor

> burning, try D-Mannose.

>

> Hope that helps.

>

> Kenda

>

[Guest guest]

Kenda,

did you take the Glucosamine / Chondroitin With Whole-Leaf Aloe Vera

(120 capsules) or the Quercetin With Whole-Leaf Aloe Vera (90 capsules) ??

Thanks, Cathleen

Kenda Skaggs wrote:

>

> Definitely. The best non-drug treatment I ever took was whole leaf Aloe

> Vera capsules from Desert Harvest. On their website, desertharvest.com,

> there is a section for IC patients. I took their aloe for many months

> and a

> lot of improvement. Heparin injections three times per week also helped a

> lot. One final treatment is a product by the name of U-Tract, which is

> D-Mannose, made by Progressive Laboratories.

>

> For a major flare, I'd go with the aloe over a few months time. For minor

> burning, try D-Mannose.

>

> Hope that helps.

>

> Kenda

>

[Guest guest]

I hope it works for you Cathleen. I have taken all the drugs there are for

IC, been in double-blind studies for drugs and amino acids at UCSD and

Desert Harvest aloe really helped more than any drug other than Heparin. If

you don't mind injecting yourself, Heparin works really well and fairly

quickly. Aloe works nearly as well but it does take some time.

Interesting problem with the D-Mannose. I wonder what caused it.

Kenda

> Thanks Kenda,

>

> I will try to focus seriously on the Aloe pills. I took some Dmannose

> once and I thought I was going to have to go to the hospital because it

> inflamed my uretha or bladder so much I almost stopped being able to

> urinate.

>

> cathleen

>

> Kenda Skaggs wrote:

>>

>> Definitely. The best non-drug treatment I ever took was whole leaf Aloe

>> Vera capsules from Desert Harvest. On their website, desertharvest.com,

>> there is a section for IC patients. I took their aloe for many months

>> and a

>> lot of improvement. Heparin injections three times per week also helped a

>> lot. One final treatment is a product by the name of U-Tract, which is

>> D-Mannose, made by Progressive Laboratories.

>>

>> For a major flare, I'd go with the aloe over a few months time. For minor

>> burning, try D-Mannose.

>>

>> Hope that helps.

>>

>> Kenda

>>

[Guest guest]

Hi, Cathleen,

Neither, I ordered the regular aloe, further down on the page. There is a

section with the caption " new customers " where you can order 4 bottles for

the price of 3. The aloe has 600 mg per capsule with nothing else in it.

Kenda

> Kenda,

> did you take the Glucosamine / Chondroitin With Whole-Leaf Aloe Vera

> (120 capsules) or the Quercetin With Whole-Leaf Aloe Vera (90 capsules) ??

>

> Thanks, Cathleen

>

> Kenda Skaggs wrote:

>>

>> Definitely. The best non-drug treatment I ever took was whole leaf Aloe

>> Vera capsules from Desert Harvest. On their website, desertharvest.com,

>> there is a section for IC patients. I took their aloe for many months

>> and a

>> lot of improvement. Heparin injections three times per week also helped a

>> lot. One final treatment is a product by the name of U-Tract, which is

>> D-Mannose, made by Progressive Laboratories.

>>

>> For a major flare, I'd go with the aloe over a few months time. For minor

>> burning, try D-Mannose.

>>

>> Hope that helps.

>>

>> Kenda

>>

[Guest guest]

I did the Heparin, it wasn't helpful for me. The main thing that has

helped me is when my dr started treating me for Bartonella. She thinks

that most people with IC actually have bartonella.

thanks for the info,

cathleen

Kenda Skaggs wrote:

>

> I hope it works for you Cathleen. I have taken all the drugs there are for

> IC, been in double-blind studies for drugs and amino acids at UCSD and

> Desert Harvest aloe really helped more than any drug other than

> Heparin. If

> you don't mind injecting yourself, Heparin works really well and fairly

> quickly. Aloe works nearly as well but it does take some time.

>

> Interesting problem with the D-Mannose. I wonder what caused it.

>

> Kenda

>

[Guest guest]

Interesting! I didn't have Bartonella when I was diagnosed, or any other

tick disease.

Kenda

> I did the Heparin, it wasn't helpful for me. The main thing that has

> helped me is when my dr started treating me for Bartonella. She thinks

> that most people with IC actually have bartonella.

>

> thanks for the info,

> cathleen

>

> Kenda Skaggs wrote:

>>

>> I hope it works for you Cathleen. I have taken all the drugs there are for

>> IC, been in double-blind studies for drugs and amino acids at UCSD and

>> Desert Harvest aloe really helped more than any drug other than

>> Heparin. If

>> you don't mind injecting yourself, Heparin works really well and fairly

>> quickly. Aloe works nearly as well but it does take some time.

>>

>> Interesting problem with the D-Mannose. I wonder what caused it.

>>

>> Kenda

>>

[Guest guest]

Bartonella is hard to diagnose, as well as Lyme.

cathleen

Kenda Skaggs wrote:

>

> Interesting! I didn't have Bartonella when I was diagnosed, or any other

> tick disease.

>

> Kenda

>

[Guest guest]

,

So you agree about having too much vitamin D? All I know is I a doctor put me on

vitamin D and I got real bad. I have vibrations in my body, and when I took that

they got really bad inside my head. Its hard to explain, very scary.

Christie Lynn

[ ] Re: Low Vitamin D - 25 hydroxy, should supplement or not?

Christie,

You might watch this video about the subject of Vitamin D: