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Hello Gayle and all,

In regarding, using Tabasco sauce and cayenne, did y'all experience heartburn

at all??? I can't really tolerate hot sauces.... they really burn me... they

do give me heartburns!!! I do avoid them.

Kozy

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  • 6 months later...

, have you had a doc workup to evaluate you for possible heart

problems?

J

PS Floyd is approaching NJ, already some have wires down and hence no

electricity. Expectining to lose power some time today or tonight.

>From: zjm@...

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>Subject: Re: [ ] Pain relief.

>Date: Thu, 16 Sep 1999 09:25:02 -0400 (EDT)

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> I forgot to mention yesterday that when I get these attacks I

>also feel like I can't breathe. t ia like a steel band is wrapped around

>my chest and back.

>

> Pa.

>

>

>---------------------------

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Take care , my prayers are with you that all will be O.K. Please let

us know if you are allright!! Lori C. AIH liver tx 3~11~97

Re: [ ] Pain relief.

>>Date: Thu, 16 Sep 1999 09:25:02 -0400 (EDT)

>>MIME-Version: 1.0

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>>From: zjm@...

>>

>> I forgot to mention yesterday that when I get these attacks I

>>also feel like I can't breathe. t ia like a steel band is wrapped around

>>my chest and back.

>>

>> Pa.

>>

>>

>>---------------------------

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  • 1 year later...

In a message dated 12/14/00 6:49:39 PM Pacific Standard Time, bccj@... writes:

,

I also have had chest pain, but I am on Medrol. They lowered my dosage and

I have tried to lower my stress level and it seems to have worked. Bloodwork, EKG, and chest x-ray all came out fine. I had a cardiac stress test too. I find out the results soon. Probably all just stress. Has anyone else out there had chest pain assoicated with the steroids? , did you have any cardiac tests run?

Beth, AIH 10/00, 33, Portage, MI

I was diagnosed AIH in May and began taking 80 mg Prednisone, 100 Imuran. In July and August I had two episodes of quite severe chest pains, unlike anything I've ever experienced. My jaw hurt at the same time, which can be an indicator of a heart attack, especially in women.

My gp suggested I use nitroglycerine and to call 911 if it happened a third time. I had a very full battery of heart tests and everything looked quite normal.

I've had no problems at all since August. My Prednisone use is now down to 10 mg, but I can't make any valid cause/effect conclusions from that.

Remember that heart attacks are, contrary to popular opinion, quite common in women. Women's symptoms are not quite the same as men's.

Best wishes

Harper, age 57, Female, AIH as of May 00

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,

I also have had chest pain, but I am on Medrol. They lowered my dosage and

I have tried to lower my stress level and it seems to have worked.

Bloodwork, EKG, and chest x-ray all came out fine. I had a cardiac stress

test too. I find out the results soon. Probably all just stress.

Has anyone else out there had chest pain assoicated with the steroids?

, did you have any cardiac tests run?

Beth, AIH 10/00, 33, Portage, MI

Re: [ ] Digest Number 1277

> I just wanted to thank everyone for sharing their experiences with me.

Jen, I

> am having the procedure because my doc is concerned about my stomach and

> chest pains. He said its probably my body adjusting to the medicine but he

> wants to make sure.

>

>

> AIH, NYC

>

>

>

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thanks for the info on your chest pain, Harper! I have a strong family history of heart problems in my family, so I didn't want to ignore it.... (although they all smoked and I never have).

Beth, AIH 10/00, 33, Portage, MI

Re: [ ] Re: chest pain

In a message dated 12/14/00 6:49:39 PM Pacific Standard Time, bccj@... writes:

, I also have had chest pain, but I am on Medrol. They lowered my dosage and I have tried to lower my stress level and it seems to have worked. Bloodwork, EKG, and chest x-ray all came out fine. I had a cardiac stress test too. I find out the results soon. Probably all just stress. Has anyone else out there had chest pain assoicated with the steroids? , did you have any cardiac tests run? Beth, AIH 10/00, 33, Portage, MII was diagnosed AIH in May and began taking 80 mg Prednisone, 100 Imuran. In July and August I had two episodes of quite severe chest pains, unlike anything I've ever experienced. My jaw hurt at the same time, which can be an indicator of a heart attack, especially in women. My gp suggested I use nitroglycerine and to call 911 if it happened a third time. I had a very full battery of heart tests and everything looked quite normal. I've had no problems at all since August. My Prednisone use is now down to 10 mg, but I can't make any valid cause/effect conclusions from that. Remember that heart attacks are, contrary to popular opinion, quite common in women. Women's symptoms are not quite the same as men's. Best wishes Harper, age 57, Female, AIH as of May 00

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I thankfully have not one ina couple moths, but they will hit hardw ehn they

do like someone punched me withknives between thier knuckles. and

unfortuntaly I can't take a bath right now, Iam too worried about my UTI's

and if you saw my tib you wouldn't want to take a bath either. i have some

kind of carbon or something growning on it it seems, i have tried bleach,

clorox, bon ami, ajax, tub cleaners, iam goinbg to try Glisten next. It did

wonders for my dishwasher we'll see how it

works on the tub, but thanks for the suggestion.

S.

I may get stuck a lot in life, but at least I stick with it:)

Chest pain

Stuck - I've had that since I was a child as well. I've been told it's a

combination of my heart murmur and muscle pain due to anxiety.

It's horrible and scary, but it's not caused too many problems. My

homeopath says that pain behind the breastbone can indicate the

thymus working overtime, a sign of infection, so I guess the

candida's contriburing to the pain as well! Relaxation techniques

such as meditation or a warm candle-lit bath with lavender oil, work

absolute wonders for me, but they're not always conventient!

How often do you get these pains? If they're really debilitating,

maybe you need to talk to your doctor about them again.

Ann

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Hi Stuck, and everyone,

Chest pain could also be mitral valve prolapse, a condition often seen in

tandem with candida troubles. Crook talks about mitral valve

prolapse in The Yeast Connection, too...it's very common for sufferers of

m.v.p. to have yeast, and vice versa. I know several people who have had

this, but I've never heard of a treatment given for it. So I assume its

not too serious or permanent, just uncomfortable.

Best wishes,

Marabel

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On 18 Dec 2000, at 16:25, globe_amaranth@... wrote:

> Chest pain could also be mitral valve prolapse, a condition often seen

> in tandem with candida troubles.

Is there really a link??! Never knew that - that's what my heart

murmur is.

Curiouser and curiouser.....

Ann

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  • 1 year later...
Guest guest

Only a doctor can diagnose problems with aortic insufficiency.

Most people with Reactive Arthritis (Reiters Syndrome) will

experience chest pain due to the inflammation of the tendons

connected to the tiny joints and the sternum of the chest skeleton.

This kind of inflamation is called " chostochondritis. " Many on

this list have suffered from it and have discussed it frequently in

past years.

Weight loss usually goes along with a flare-up of ReA/RS for most

men, and also many women, though I would have to say that more men

than women have reported weight losses during flareups than have

women. Three years ago I lost 50 pounds in little more than a

week. At age 27 I lost 40 pounds in two weeks. Both time were

intense flareups of symptoms from ReA.

Ray, moderator, male, age 53, HLA-B27 negative, Reactive Arthritis,

Sjogrens Syndrome, Raynauds Phenomena, Fibromyalgia.

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Your Aorta Valve deteriorates in some cases with R.S. ... In 1986 , I had a

replacesment valve put in @ s Hopkins in Baltimore ...I had one of the

originals and now it is a STANDARD Valve that is used World Wide ... I had a

choice between that or a Pigs Valve that must be replaced after 8 + or -

years or the mechanical valve ...

My sign's where my B.P. was that the high was too high and the low was too

low ... Among wiith all the usual test ...

Professionally , if your Doctor has any Questions you could talk to a

Proffesor of Medicine @ s Hopkins by the name Traill and mention

my name and he will give your Doctor all the INFO ...

Back then and now I was used in teaching doctors from all over the world in

the symtoms to look for ... I would volenteer my services in front of any

where from 4 to 300 (in an auditorium with head phones ) doctors with

amplified head phones in what to look for ...

In 98 I needed a redo because it always had a small leak do to something I

did out of surgery on the 3rd day ...too much ...

So if you do need to know I'm sure Doctor Traill will lead you in the Right

Direction ...

Walter essexhaus@...

P.S. due to a stroke in 95 , My memory isn't very good ...

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  • 3 months later...

Dear ,

Thank you so much for your response. When you say " if it is difficult " to

breathe, do you mean that it is actually hard to get breaths? I ask because

I don't have shortness of breath, but sometimes the breathing hurts. (Please

don't think I'm giving you the 3rd degree! I'm just trying to get a handle

on how important this is for me to call my doctor!) For example, do you know

how it feels if you go swimming at a beach? Then later your breathing

somtimes hurts. That is the kind of pain I am having at the moment. Also,

taking deep breaths definitely hurts and sometimes is hard to do (I seemed to

feel it was necessary to try this little extra experiment).

I also have been having chest pains caused by inflammation of the sternum.

But the doctor upped my prednisone for 5 days and it seems to be helping that

a lot.

If you have any additional advice, please feel free to advise!!! Thanks

again,

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Dear ,

When my arthritis flared (the worst I've ever experienced) about 4

1/2 years ago I was also having problems with my chest. After testing is

was found that is was both the sternum and the lining of my heart that was

inflamed. Since then, there has always been some abnormalities regarding my

heart on EKGs. But the sternum returned to " normal " . I still experience

swelling in my sternum from time to time, and the only way to get rid of it

is to take some pain medication and try to relax. If it interferes with

breathing in any way get to the hospital, you don't want it to get out of

control. If it's not interfering with breathing, let your doctor know next

time you see him/her and get his/her advice. If you do need to go to the

hospital, try to get someone to take you, if possible don't take yourself.

Breathing problems will interfer with your ability to drive. And it's nice

to have a friend with you to help. Sorry it's taken so long to respond, my

computer's been trying to say that I can't send e-mail. I think I got it

fixed though.

pigeon92@...

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Dear ; you should call and tell the doctor the symptoms you are

having if he doesn't know. I don't want you to be afraid it's just

that he needs to know if it is inflamation or a possible infection.

I hope the Prednisone being upped helps very soon. You are not alone

and we send our love for you to feel better real soon, good day, Melt

I'm just trying to get a handle

> on how important this is for me to call my doctor!) > [Non-text

portions of this message have been removed]

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Dear ,

I agree with everyone else. I wouldn't take the chest pain lightly. I have

experienced really bad chest pain where moving and my breathing made it

worse. I would sit on the floor curled up in a ball and I tried not to move

or breathe too much. I thought I was having a heart attack. It ended up

that the lining surrounding my heart was inflamed. I was quite frightened

especially since it was so painful.

I should take my own advice. Since this disease can effect are organs it is

important to seek medical attention or at least call your Doc. and tell him

about this. I have an irregular heart beat and the Doc's don't know if I

had this before the Stills or not. Although when I was last tested, with

exercise it returns to normal so not much to worry about. I do wish I knew

if this was a development that occurred after I was diagnosed with Stills.

I didn't mean to ramble. I hope you feel better. I hope you have a good

Doc. Let us know what happens.

Love,

jatw@...

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How about if I hire you Angie to do my fighting? I know I have to be more on

top of my doctors at times. I had just seen him last week with chest pain

but he just pressed on my chest and said it was probably inflamed.

It feels a bit better today, but if stays or gets worse, I promise to call

him back. I know (somewhere deep inside) that I have to take control and not

feel like I'm being a pain. But sometimes i need reminding!

Thanks to you all for looking out for me. I am so sorry that you all have to

go through this stuff too.

Love,

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Hi,

Chest pain is my key pointer that tells me im about to have a flare. Not

trying to freak you out or anything just thought i would add my little bit. I

have systemic athritis and so it usually does effect my breathing. The pain

you talk about is exactly what i get-kind of like youve run a marathon.

anyway please get back to me if you want to talk more about this.

Vicky

p.s im so glad to be back on the mailing list-ive had a struggle getting back

on.

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Hi, all. Vicky, I'm sorry you were of the mailing list, but am glad you have

returned! it is nice to " meet " you. Thanks for your info. I do seem to

more more worn out when I have the chest pain.

One problem I have today (and anyone can please feel free to offer their

thoughts) is that I know I'm having a flare up. But my kids are off of

school this week and my husband took off today so we could go " do something

as a family. " All I really want to do is sleep all day and let him take the

kids out so I can be alone for once, put my feet up, try and sleep since I

can't at night, etc. BUT, I feel like a selfish mother for wanting to do

this!! Can someone please remind me that it is ok to just take care of

me?!?!@?!?

OK, just venting about this makes me feel better and I think I'm going on my

own mini-vacation today.

Feel good,

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Hi, all. Vicky, I'm sorry you were of the mailing list, but am glad you have

returned! it is nice to " meet " you. Thanks for your info. I do seem to

more more worn out when I have the chest pain.

One problem I have today (and anyone can please feel free to offer their

thoughts) is that I know I'm having a flare up. But my kids are off of

school this week and my husband took off today so we could go " do something

as a family. " All I really want to do is sleep all day and let him take the

kids out so I can be alone for once, put my feet up, try and sleep since I

can't at night, etc. BUT, I feel like a selfish mother for wanting to do

this!! Can someone please remind me that it is ok to just take care of

me?!?!@?!?

OK, just venting about this makes me feel better and I think I'm going on my

own mini-vacation today.

Feel good,

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Hi, all. Vicky, I'm sorry you were of the mailing list, but am glad you have

returned! it is nice to " meet " you. Thanks for your info. I do seem to

more more worn out when I have the chest pain.

One problem I have today (and anyone can please feel free to offer their

thoughts) is that I know I'm having a flare up. But my kids are off of

school this week and my husband took off today so we could go " do something

as a family. " All I really want to do is sleep all day and let him take the

kids out so I can be alone for once, put my feet up, try and sleep since I

can't at night, etc. BUT, I feel like a selfish mother for wanting to do

this!! Can someone please remind me that it is ok to just take care of

me?!?!@?!?

OK, just venting about this makes me feel better and I think I'm going on my

own mini-vacation today.

Feel good,

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I know how you feel. Yesterday was my Daughters 2nd Birthday party

and unfortunately I was having one of the worst days that I've had in

a long time. I still went, but I might as well have stayed home since

I didn't really feel like I helped that much.

We still try to do stuff as a family as much as possible and on my

good days I will take the kids to the zoo and let them play in the

Children's area for as long as possible and sit down on a bench and

watch them, or ride the train.

My true retreat is going on a camping or Jeeping trip where we're in

no hurry and can just lay a cover down under a tree, next to a lake

or something and watch the kids play and talk to my wife....

Ahhh, I think I just got a little less stressed thinking about

that.... :-)

So yes, take some time for yourself, but also talk them into

something that isn't hard on you...

> Hi, all. Vicky, I'm sorry you were of the mailing list, but am

glad you have

> returned! it is nice to " meet " you. Thanks for your info. I do

seem to

> more more worn out when I have the chest pain.

>

> One problem I have today (and anyone can please feel free to offer

their

> thoughts) is that I know I'm having a flare up. But my kids are

off of

> school this week and my husband took off today so we could go " do

something

> as a family. " All I really want to do is sleep all day and let him

take the

> kids out so I can be alone for once, put my feet up, try and sleep

since I

> can't at night, etc. BUT, I feel like a selfish mother for wanting

to do

> this!! Can someone please remind me that it is ok to just take

care of

> me?!?!@?!?

>

> OK, just venting about this makes me feel better and I think I'm

going on my

> own mini-vacation today.

>

> Feel good,

>

>

>

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  • 4 months later...

Bonnie, do you still have your gallbladder? I had mine removed before my mgb

but I clearly remember that those pains were in the middle of my chest and

made me nauseous. I thought I was having a heart attack and even went to the

ER one night. Turned out that I had numerous gallstones. Could that be it?

Alisha

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  • 2 months later...
Guest guest

Alisha, are there any other symptoms with it? Nausea/vomiting? Even though

you don't have your gallbladder, you can get stones in the bile ducts, that's

why we have to take the Actigall. It could also be indigestion or gas.

Definitely get it checked out.

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