Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Hi, I am newly diagnosed with Lyme, although believe I have been suffering at least 20 years ( I am 26). I am seeing a infectious disese doctor in Lansdowne, VA. I live in Reston. I am having trouble finding Lyme doctors or natural even. If anyone has information regarding either of these that you would feel comfortable in sharing please PM me. I would really like to find people more specialized. I am willing to travel. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 Hi jenny! I'm sosorry to hear that you have been having a hard time. I have attached a MS word document that has some LLMD's (Lyme Literate Medical Doctors/Naturopaths) listed by the Lyme Disease Association. You can also do your own search by clicking on the link below and registering with the LDA's doctor referral service. I hope this helps. This way you can search for LLMD's that you may be satisfied with. I can tell you from personal experience that just because they may be on the list, it doesn't mean that the doctor/naturopath is truly a good Lyme disease specialist. I had seen one, that was on the list, in Mobile AL and he was against using Igenex, the Lyme disease specialty testing lab, and he did not believe in treating Lyme, especially chronic Lyme, for more than 60-90 days. I have written a complaint to the LDA regarding my experience with this doctor and hopefully they will take that doctor off their referral list. I hope this helps! Let me know what you find out. http://www.lymediseaseassociation.org/referral/LogIn.php?setcookie=yes I'm 35 y.o. and I've had Lyme and the co-infection Babesia since September 2006. I am now having to treat with IV Rocephin. My LLMD is in Louisiana and I live in FL. I usually keep in touch with my LLMD via phone/fax. My primary doctor is working with my LLMD in getting me my IV meds, etc. You want a LLMD that uses Igenex to test for Lyme disease and co-infections. Whatever you do, do NOT use Labcorp, they are the worst lab I have ever had experience with. Don't even use Labcorp for any of the other tests such as the CD57, EBV, CMV, etc that your LLMD may order. Let me know if you need any assistance in what tests you should ask for. Keep me informed of how you are doing! Sincerely, Barbara ---- fallingleaves_81 <fallingleaves_81@...> wrote: > Hi, > > I am newly diagnosed with Lyme, although believe I have been suffering > at least 20 years ( I am 26). I am seeing a infectious disese doctor > in Lansdowne, VA. I live in Reston. I am having trouble finding Lyme > doctors or natural even. If anyone has information regarding either of > these that you would feel comfortable in sharing please PM me. I would > really like to find people more specialized. I am willing to travel. > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
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