Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 -----Original Message----- From: Insabella, <_Insabella@...> ' ' < > Date: Monday, August 06, 2001 2:36 PM Subject: RE: [] Question >>>You did respond to Sue, I jumped in with a reply too. And I see Sue just replied to you, so you have two toe replies, LOL,,,,,, ~>Becky M. Oh, Becky, I thought I was responding to Sue. Sorry. I guess she'll see my message though. Ross's toes are starting to give him trouble now, the curling is starting to bother him more. It feels like someting is getting stuck in the space his toes are curled, but it's only his toes, if that makes any sense. I've gotten him as far as an orthopedic consultation to straighten them out, but that's as far as I've gotten him to go so far.(He'd have to be off his feet and that might slow him down at work, or, his biggest horror, keep him home! LOL) I've seen the posted discussions on how the husbands of CMT-ers don't elaborate much on their wive's conditions, but my husband is just as bad with his own self! I hate to compartmentalize, but this may be a guy thing! -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Monday, August 06, 2001 3:31 PM Subject: Re: [] Question -----Original Message----- From: Insabella, <_Insabella@...> ' ' < > Date: Monday, August 06, 2001 1:05 PM Subject: RE: [] Question >>>>>, I'm not Sue but I cannot wiggle my toes or move them up/down. They stay pretty much in the same position 24/7. I can force them apart with my hands and a little bit up, but not down. I massage them daily since they don't move on their own, and it feels soooo good, but afterwards sometimes they start cramping. I have seen Sue's website, her legs could be mine. I have no calf muscles at all. Just skin, lots of it! It can be grasped and moved far left/right around the bone of the leg, very yucky looking. When my legs swell, gee I look normal! LOL...... From the sides one can see the hollowness, it runs down the side of the leg, very visable. ~>Becky M. Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Hi Sue, I've said before on this site that my husbands feet are the softest things to footsie with since he never goes barefoot! But he has a hard time getting socks on. No tube socks in our house! -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 3:46 PM Subject: Re: [] Question Hi I can sort of spread my toes but that is it. Although I don't have hammer toes or at least I don't think I have, I was astonished to look at my husbands toes and realise the mobility and movement he had in them. I think the thing is that no case of CMT is exactly the same, bearing in mind that CMT is just an 'umberella' label for a myraid of symptoms and problems. I'm glad you looked at my website because what I tried to do was show pictures that I so longingly needed to see. Feet and legs. And my feet and legs haven't changed since birth. Thank you and I hope that you found the pictures helpful. Love Sue PS They're not very flattering I know but at least you know that someone else has dead sexy feet like your husband. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 7:11 PM Subject: RE: [] Question Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 two toe replies...try to say that 10 times quickly! LOL! -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Monday, August 06, 2001 4:03 PM Subject: Re: [] Question -----Original Message----- From: Insabella, <_Insabella@...> ' ' < > Date: Monday, August 06, 2001 2:36 PM Subject: RE: [] Question >>>You did respond to Sue, I jumped in with a reply too. And I see Sue just replied to you, so you have two toe replies, LOL,,,,,, ~>Becky M. Oh, Becky, I thought I was responding to Sue. Sorry. I guess she'll see my message though. Ross's toes are starting to give him trouble now, the curling is starting to bother him more. It feels like someting is getting stuck in the space his toes are curled, but it's only his toes, if that makes any sense. I've gotten him as far as an orthopedic consultation to straighten them out, but that's as far as I've gotten him to go so far.(He'd have to be off his feet and that might slow him down at work, or, his biggest horror, keep him home! LOL) I've seen the posted discussions on how the husbands of CMT-ers don't elaborate much on their wive's conditions, but my husband is just as bad with his own self! I hate to compartmentalize, but this may be a guy thing! -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Monday, August 06, 2001 3:31 PM Subject: Re: [] Question -----Original Message----- From: Insabella, <_Insabella@...> ' ' < > Date: Monday, August 06, 2001 1:05 PM Subject: RE: [] Question >>>>>, I'm not Sue but I cannot wiggle my toes or move them up/down. They stay pretty much in the same position 24/7. I can force them apart with my hands and a little bit up, but not down. I massage them daily since they don't move on their own, and it feels soooo good, but afterwards sometimes they start cramping. I have seen Sue's website, her legs could be mine. I have no calf muscles at all. Just skin, lots of it! It can be grasped and moved far left/right around the bone of the leg, very yucky looking. When my legs swell, gee I look normal! LOL...... From the sides one can see the hollowness, it runs down the side of the leg, very visable. ~>Becky M. Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 I know the feeling I have a wonderful device to help me put my socks and tights on but there is nothing nicer than my husband putting them on for me. I sometimes get a kiss as well. LOL Love Sue PS A kiss makes mundane things something special. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 9:06 PM Subject: RE: [] Question Hi Sue, I've said before on this site that my husbands feet are the softest things to footsie with since he never goes barefoot! But he has a hard time getting socks on. No tube socks in our house! -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 3:46 PM Subject: Re: [] Question Hi I can sort of spread my toes but that is it. Although I don't have hammer toes or at least I don't think I have, I was astonished to look at my husbands toes and realise the mobility and movement he had in them. I think the thing is that no case of CMT is exactly the same, bearing in mind that CMT is just an 'umberella' label for a myraid of symptoms and problems. I'm glad you looked at my website because what I tried to do was show pictures that I so longingly needed to see. Feet and legs. And my feet and legs haven't changed since birth. Thank you and I hope that you found the pictures helpful. Love Sue PS They're not very flattering I know but at least you know that someone else has dead sexy feet like your husband. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 7:11 PM Subject: RE: [] Question Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 I tried that but I have a lisp - didn't work everyone ended up covered in saliva. Love Sue PS I have never forgiven my parents for calling me Lesley - do you know how many 'ssss' there are in that name. Hence the reason I call my self Sue Horder-Mason The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 9:09 PM Subject: RE: [] Question two toe replies...try to say that 10 times quickly! LOL! -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Monday, August 06, 2001 4:03 PM Subject: Re: [] Question -----Original Message----- From: Insabella, <_Insabella@...> ' ' < > Date: Monday, August 06, 2001 2:36 PM Subject: RE: [] Question >>>You did respond to Sue, I jumped in with a reply too. And I see Sue just replied to you, so you have two toe replies, LOL,,,,,, ~>Becky M. Oh, Becky, I thought I was responding to Sue. Sorry. I guess she'll see my message though. Ross's toes are starting to give him trouble now, the curling is starting to bother him more. It feels like someting is getting stuck in the space his toes are curled, but it's only his toes, if that makes any sense. I've gotten him as far as an orthopedic consultation to straighten them out, but that's as far as I've gotten him to go so far.(He'd have to be off his feet and that might slow him down at work, or, his biggest horror, keep him home! LOL) I've seen the posted discussions on how the husbands of CMT-ers don't elaborate much on their wive's conditions, but my husband is just as bad with his own self! I hate to compartmentalize, but this may be a guy thing! -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Monday, August 06, 2001 3:31 PM Subject: Re: [] Question -----Original Message----- From: Insabella, <_Insabella@...> ' ' < > Date: Monday, August 06, 2001 1:05 PM Subject: RE: [] Question >>>>>, I'm not Sue but I cannot wiggle my toes or move them up/down. They stay pretty much in the same position 24/7. I can force them apart with my hands and a little bit up, but not down. I massage them daily since they don't move on their own, and it feels soooo good, but afterwards sometimes they start cramping. I have seen Sue's website, her legs could be mine. I have no calf muscles at all. Just skin, lots of it! It can be grasped and moved far left/right around the bone of the leg, very yucky looking. When my legs swell, gee I look normal! LOL...... From the sides one can see the hollowness, it runs down the side of the leg, very visable. ~>Becky M. Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 -----Original Message----- From: C1520@... <C1520@...> < > Date: Monday, August 06, 2001 6:44 PM Subject: Re: [] Question In a message dated 8/6/2001 1:14:00 PM Central Daylight Time, _Insabella@... writes: > Can you move your toes? He > can't. Not wiggle or spread them out or anything. > He told them to let him know when they saw me wiggle my toes because he'd like to see that since he hadn't for at least five years! C >>>>>Good one, LOL ~>Becky M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 In a message dated 8/6/2001 4:07:39 PM Eastern Daylight Time, _Insabella@... writes: > But he has a hard time > e Socks drive me crazy. They keep my toes curled under and cause more burning. Have to wear them more now, even with discomfort, to keep the feet warm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Sue, What type of device do you have for getting on socks? -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 5:31 PM Subject: Re: [] Question I know the feeling I have a wonderful device to help me put my socks and tights on but there is nothing nicer than my husband putting them on for me. I sometimes get a kiss as well. LOL Love Sue PS A kiss makes mundane things something special. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 9:06 PM Subject: RE: [] Question Hi Sue, I've said before on this site that my husbands feet are the softest things to footsie with since he never goes barefoot! But he has a hard time getting socks on. No tube socks in our house! -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 3:46 PM Subject: Re: [] Question Hi I can sort of spread my toes but that is it. Although I don't have hammer toes or at least I don't think I have, I was astonished to look at my husbands toes and realise the mobility and movement he had in them. I think the thing is that no case of CMT is exactly the same, bearing in mind that CMT is just an 'umberella' label for a myraid of symptoms and problems. I'm glad you looked at my website because what I tried to do was show pictures that I so longingly needed to see. Feet and legs. And my feet and legs haven't changed since birth. Thank you and I hope that you found the pictures helpful. Love Sue PS They're not very flattering I know but at least you know that someone else has dead sexy feet like your husband. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 7:11 PM Subject: RE: [] Question Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 I have to say, that is a good story. And I can completely see how it would happen! -----Original Message----- From: C1520@... [mailto:C1520@...] Sent: Monday, August 06, 2001 7:51 PM Subject: Re: [] Question In a message dated 8/6/2001 1:14:00 PM Central Daylight Time, _Insabella@... writes: > Can you move your toes? He > can't. Not wiggle or spread them out or anything. > , That reminds me of what happened when I had surgery earlier this month. My husband told the recovery room staff BEFORE I had surgery that I can not wiggle my toes. Of course that didn't register with them apparently because they came out later to tell him that I was not coming out of the anesthesia well and that I was not responding to some verbal commands, like wiggling my toes. He told them to let him know when they saw me wiggle my toes because he'd like to see that since he hadn't for at least five years! C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 - I don't have your email address. If you would let me have it I'll send you a digital photo of my device for putting on socks. It's basically a piece of plastic with two long strings attached to it - very technical. LOL Take care Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Tuesday, August 07, 2001 2:54 PM Subject: RE: [] Question Sue, What type of device do you have for getting on socks? -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 5:31 PM Subject: Re: [] Question I know the feeling I have a wonderful device to help me put my socks and tights on but there is nothing nicer than my husband putting them on for me. I sometimes get a kiss as well. LOL Love Sue PS A kiss makes mundane things something special. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 9:06 PM Subject: RE: [] Question Hi Sue, I've said before on this site that my husbands feet are the softest things to footsie with since he never goes barefoot! But he has a hard time getting socks on. No tube socks in our house! -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 3:46 PM Subject: Re: [] Question Hi I can sort of spread my toes but that is it. Although I don't have hammer toes or at least I don't think I have, I was astonished to look at my husbands toes and realise the mobility and movement he had in them. I think the thing is that no case of CMT is exactly the same, bearing in mind that CMT is just an 'umberella' label for a myraid of symptoms and problems. I'm glad you looked at my website because what I tried to do was show pictures that I so longingly needed to see. Feet and legs. And my feet and legs haven't changed since birth. Thank you and I hope that you found the pictures helpful. Love Sue PS They're not very flattering I know but at least you know that someone else has dead sexy feet like your husband. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 7:11 PM Subject: RE: [] Question Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 Sue, that is so funny, mainly because my dear husband is the king of homemade devices! I bet he builds himself one! My email is insabella@... and thanks! :-) -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Tuesday, August 07, 2001 10:07 AM Subject: Re: [] Question - I don't have your email address. If you would let me have it I'll send you a digital photo of my device for putting on socks. It's basically a piece of plastic with two long strings attached to it - very technical. LOL Take care Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Tuesday, August 07, 2001 2:54 PM Subject: RE: [] Question Sue, What type of device do you have for getting on socks? -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 5:31 PM Subject: Re: [] Question I know the feeling I have a wonderful device to help me put my socks and tights on but there is nothing nicer than my husband putting them on for me. I sometimes get a kiss as well. LOL Love Sue PS A kiss makes mundane things something special. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 9:06 PM Subject: RE: [] Question Hi Sue, I've said before on this site that my husbands feet are the softest things to footsie with since he never goes barefoot! But he has a hard time getting socks on. No tube socks in our house! -----Original Message----- From: Sue Horder-Mason [mailto:sue@...] Sent: Monday, August 06, 2001 3:46 PM Subject: Re: [] Question Hi I can sort of spread my toes but that is it. Although I don't have hammer toes or at least I don't think I have, I was astonished to look at my husbands toes and realise the mobility and movement he had in them. I think the thing is that no case of CMT is exactly the same, bearing in mind that CMT is just an 'umberella' label for a myraid of symptoms and problems. I'm glad you looked at my website because what I tried to do was show pictures that I so longingly needed to see. Feet and legs. And my feet and legs haven't changed since birth. Thank you and I hope that you found the pictures helpful. Love Sue PS They're not very flattering I know but at least you know that someone else has dead sexy feet like your husband. The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer ----- Original Message ----- From: Insabella, ' ' Sent: Monday, August 06, 2001 7:11 PM Subject: RE: [] Question Hi. I looked on your website at yuor legs and feet. My husband's lower legs resemble yours, he has a bit of calf muscle in the back, rather small, his ankles are really small and fragile looking and the muscles on the sides of the calf are completely atrophied. His feet are square-ish and smooth, like yours, but he has pretty bad hammer toes and all but his big toes are curled under due to no muscles to keep them straight. Can you move your toes? He can't. Not wiggle or spread them out or anything. -----Original Message----- From: Maxwell [mailto:rmax@...] Sent: Thursday, August 02, 2001 9:19 PM Subject: Re: [] Question -----Original Message----- From: Sue Horder-Mason <sue@...> < > Date: Thursday, August 02, 2001 4:15 PM Subject: [] Question >>>>Sue, other neuropathies non-hereditary and MD, plus others I can't think of at the moment. Having other family members with symptoms points to hereditary. Why not print lots of information on CMT and take with you to the new Dr's? Print info that is related to your symptoms. Sorry I can't be of more help, ~>Becky M. Hi everyone. Maybe this is a daft question but I do need to know the answer. Is there any disease other than CMT that can cause deformed feet, severe muscle wastage in the lower legs, pain, tremors and weakness in the hands,arms and neck plus pains both sharp and nagging attacking any part of the body. If you want to see my legs (no I'm not joking) but I really need help on this you can see a picture of my feet and legs on my website under CMT. As many of you know I still don't have a diagnosis, despite my symptoms and my families symtoms. I'm due to see Dr Hilton- in the UK very soon and I'm scared because other neurologists have said I don't have CMT but they haven't come up with another diagnosis and I'm afraid Dr Hilton- will join the band-wagon. I'm so sorry about this email because I know you guys can't give me a diagnosis but I really would appreciate your thoughts, comments and experience. Love Sue The important thing is never to stop questioning. Website www.horder-mason.freeserve.co.uk Freelance Writer and CMTer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2002 Report Share Posted September 27, 2002 I looked again and it's not pale yellow it's a darker like yellow. Plus the carpet has color damage too some of it is green. My guess it's more like the golden yellow. My son has been getting weird rashes and the baby has rash too. All this time I thought it was just exezma because it runs in my family. Last night i was up at 1 am washing his skin putting cream and lotion on him. My skin has lots of splotches on it too. I guess maybe we need to re go to the dr and have him send me to a skin dr. i was in mostly for my meds getting refilled and there was a different dr yesterday. he said we didn't have to move they just need to clean the mold up. But there is mold in 3 areas and mildew/mold under my sink so it's bigger thatn just one spot. I'm worried that they won't clean it up properly so we will continue to have problems. I called today and they have no other apt like mine availbale and i don't really want another one. I'm going to try to find someone to come out and do a free inspection of the mold. I can't buy a test kit either. i still can't believe the health dept gave them 10 days to clean this up. Noone has even came to look at it yet:0((( In a message dated 9/27/2002 10:42:17 AM US Mountain Standard Time, barbarac@... writes: Pale Yellow could be Chrysosporium which is a common soil saprophytes, occassionally found in hair & nails, no known toxins. Golden Yellow could be Epicoccum, known allergen and can cause skin infections in humans. There are so many that this is just a pure guess as these are common. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2002 Report Share Posted September 27, 2002 Pale Yellow could be Chrysosporium which is a common soil saprophytes, occassionally found in hair & nails, no known toxins. Golden Yellow could be Epicoccum, known allergen and can cause skin infections in humans. There are so many that this is just a pure guess as these are common. Barbara At 01:19 PM 9/27/02 -0400, dmco362@... wrote: ><PRE>Does anyone know what kind of mold is yellow? We just lifted the rug >from my >son's room closet where the water leak damaged the carpet there and you can >see what looks like maybe a few different kinds of mold. It looks black, then >the grey fuzzy mold and there are spots of something like a powdered yellow >color. I talked to the maintenance guy and am still waiting for someone to >come over here. > > >FAIR USE NOTICE: > >This site contains copyrighted material the use of which has not always >been specifically authorized by the copyright owner. We are making such >material available in our efforts to advance understanding of >environmental, political, human rights, economic, democracy, scientific, >and social justice issues, etc. We believe this constitutes a 'fair use' >of any such copyrighted material as provided for in section 107 of the US >Copyright Law. In accordance with Title 17 U.S.C. Section 107, the >material on this site is distributed without profit to those who have >expressed a prior interest in receiving the included information for >research and educational purposes. For more information go to: >http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use >copyrighted material from this site for purposes of your own that go >beyond 'fair use', you must obtain permission from the copyright owner. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2002 Report Share Posted September 27, 2002 Okay thank you. This si what my neighbor upstairs just wrote Hi Donna, I hope you and kids are ok, it is so sad that we're going through this B.S. I did get a return call from the Dept. of Health, and they said that the apt. complex was under investigation, she took my number down and documented my complaint. I guess more than you and I have complained... Oh, I also called the media, and they need for me to write in with the complaints, so, I have been working on this here at work. Did maintenance finally get there to repair? Donna, you have every reason to break this lease. It is total B.S. Teri We are now wondering if they are under investigation just because of my one call or because of other calls. Regardless I think they still should come and see every apt that calls to file a complaint. How else will they know how deep the problem is. I too am going to join her now with the media crusade. In a message dated 9/27/2002 2:35:24 PM US Mountain Standard Time, barbarac@... writes: My daughter reacted to mold with the skin rash from Stachy and Cladosporium. Another friend reacted with a rash from Aspergillus/pennicilium. My daughter used all kinds of cortisone creams, etc, but the best results came from using tea tree oil. It worked faster and got rid of it. It has antifungal agents and is natural. Be careful putting it on the baby, it is strong and it will burn the eyes. Good luck with the apartment, it doesn't surprise me about the health department they will not test for mold in Texas either. I test for people here who cannot afford it; although I still think no mold is healthy, it is just a matter of how bad. So, if you all are reacting to it, you need to get away from it or get rid of it now no matter what. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2002 Report Share Posted September 27, 2002 My daughter reacted to mold with the skin rash from Stachy and Cladosporium. Another friend reacted with a rash from Aspergillus/pennicilium. My daughter used all kinds of cortisone creams, etc, but the best results came from using tea tree oil. It worked faster and got rid of it. It has antifungal agents and is natural. Be careful putting it on the baby, it is strong and it will burn the eyes. Good luck with the apartment, it doesn't surprise me about the health department they will not test for mold in Texas either. I test for people here who cannot afford it; although I still think no mold is healthy, it is just a matter of how bad. So, if you all are reacting to it, you need to get away from it or get rid of it now no matter what. Barbara At 01:55 PM 9/27/02 -0400, dmco362@... wrote: I looked again and it's not pale yellow it's a darker like yellow. Plus the carpet has color damage too some of it is green. My guess it's more like the golden yellow. My son has been getting weird rashes and the baby has rash too. All this time I thought it was just exezma because it runs in my family. Last night i was up at 1 am washing his skin putting cream and lotion on him. My skin has lots of splotches on it too. I guess maybe we need to re go to the dr and have him send me to a skin dr. i was in mostly for my meds getting refilled and there was a different dr yesterday. he said we didn't have to move they just need to clean the mold up. But there is mold in 3 areas and mildew/mold under my sink so it's bigger thatn just one spot. I'm worried that they won't clean it up properly so we will continue to have problems. I called today and they have no other apt like mine availbale and i don't really want another one. I'm going to try to find someone to come out and do a free inspection of the mold. I can't buy a test kit either. i still can't believe the health dept gave them 10 days to clean this up. Noone has even came to look at it yet:0((( In a message dated 9/27/2002 10:42:17 AM US Mountain Standard Time, barbarac@... writes: Pale Yellow could be Chrysosporium which is a common soil saprophytes, occassionally found in hair & nails, no known toxins. Golden Yellow could be Epicoccum, known allergen and can cause skin infections in humans. There are so many that this is just a pure guess as these are common. Barbara Sponsor ADVERTISEMENT FAIR USE NOTICE: This site contains copyrighted material the use of which has not always been specifically authorized by the copyright owner. We are making such material available in our efforts to advance understanding of environmental, political, human rights, economic, democracy, scientific, and social justice issues, etc. We believe this constitutes a 'fair use' of any such copyrighted material as provided for in section 107 of the US Copyright Law. In accordance with Title 17 U.S.C. Section 107, the material on this site is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www.law.cornell.edu/uscode/17/107.shtml. If you wish to use copyrighted material from this site for purposes of your own that go beyond 'fair use', you must obtain permission from the copyright owner. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2002 Report Share Posted September 28, 2002 From your description, it may be a number of types including Fusarium solani and Aspergillus versicolor. However, this is all conjecture and you would need to have it analyzed by a certified laboratory (i.e., AIHA's EMLAP program)to get a definitive answer. Jack Springston, CIH, CSP > <PRE>Does anyone know what kind of mold is yellow? We just lifted the rug from my > son's room closet where the water leak damaged the carpet there and you can > see what looks like maybe a few different kinds of mold. It looks black, then > the grey fuzzy mold and there are spots of something like a powdered yellow > color. I talked to the maintenance guy and am still waiting for someone to > come over here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2002 Report Share Posted October 23, 2002 Donna, I am scared of that too as ZI am still very sick from the toxic mold I have been exposed to. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2002 Report Share Posted December 27, 2002 ----- Original Message ----- From: " Kathi " <pureheart@...> Sent: Monday, December 23, 2002 7:30 AM Subject: Question > I have a question...I have a good friend who has a condition in her > fingers...it started out like Raynaud's, but now seems more like a type > of > vasculitis. HEr fingers are very sensitive to cold and turn blue and red > with changes of temp. They are also swollen. I know somewhere I have > seen this condition describes, but cant find it now. Any ideas? > > Have a Great > Day! > > > Outlw1@... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 If you have questions for Dr Kolb you need to email her at her address on her website or drkolb@.... I think from my own knowledge that you realy want to try to get all the scar tissue out as much as possible, if it is not possible I think that it can definitly hinder complete healing. In , " Wilkins " <eckymae@b...> wrote: > > Dr, Kolb, What's your take on removal of implants from " under the muscle? " And what is the outcome if not all is removed? > > Wilkins > > > In , Ed Ralston <j_e_ralston@y...> > wrote: > > > > > > *~Patty~* <fdp@l...> wrote: My implants were under the muscle..... > > > > *** Patty, I was just fixing to post a question about this issue > which you mentioned in replying to . My implants were placed > under the muscle as well, and I cannot seem to find very much > information about this regarding the explant procedure. > > > > Mine have been under the muscle 26 years. Do you know if it is a > more difficult procedure to get them/capsule out because of that and > if the healing is more difficult. I guess I am wondering if my > muscle is going to be damaged from this as well. All comments are > welcome. Rita **** > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 What dose and what time are you taking it? To be safe, year round, it should be taken after 10:00PM and before 3AM. ----- Original Message ----- From: pamridge49 low dose naltrexone Sent: Tuesday, March 23, 2004 08:09 Subject: [low dose naltrexone] Question Hi all,Am in week six of LDN...still having good results, but am having confusion about when I should be taking it. I find that I have tried many different "times", and am still having difficulty with finding a good time for me. I am sleeping through the night, but feel as though I am not getting enough sleep, or good-enough sleep, and have been "groggy" in the morning---the initial "energy" that I felt just isn't there lately; am also noticing that some of the spasms in my right leg have returned. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Arleen, -------- I felt pretty 'high' for two or three days until my body adjusted. I think it is a GOOD sign that things are working. It will pass, I promise. I didn't feel completely normal for a week or two, but by that time I was so thrilled with all the other improvement that I was happy no matter what! Keep on taking LDN. Lynda ----- Original Message ----- From: Amsmmiii@... low dose naltrexone Sent: Friday, April 23, 2004 2:39 PM Subject: [low dose naltrexone] Question Hi! I took my first dose of LDN last night (3mg) and was unable to sleep. I know that is common. However, it also made me feel quite high (stoned) and I was wondering if this is normal. It is very uncomfortable for me to feel this way. Thanks, ...Arleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Thanks, Lynda!! I won't give up! ...Arleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 Arlene, The sleep problems should pass in a few days but I never felt high from LDN. I think I've felt high from MS for a few years and it's not a good high. I used to say that the song " Comfortably Numb " by Pink Floyd should be the theme song for MS but it really isn't comfortable. LDN hasn't helped me as much as I hoped it would but it has helped so there's no reason to stop taking it. I really think that the medical world downplays LDN because it's not a money maker. I'm surprised that a generic drug manufacturer hasn't picked up on this and started making it in 1.5, 3.0 and 4.5 mg capsules. That would make it easy for us to experiment to find which dosage works best for ourselves. Keep taking LDN. Your body and brain will adjust to it. Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 --- In , Marsha Becco <beccous@y...> wrote: > In General: > When I was in the Army, the doctors told me that my lowered body temp--usually 97.5 to 7 was a bad thing. > They said that the lowered temp was why I couldn't lose weight on normal amounts of food for other people but had to have less calories. > I see people in this group who seem to imply that lowered temp is a " good thing. " Have I missed their meaning or is lower body temp really a good thing? > Just curious, mjb > Some time ago knew an Aerospace worker, who happened to be 1/2 Cherokee Indian by ancestry. Had his basal metabolism checked at NASA, while working there one summer, and claimed that he had set the record for the slowest metabolism rate ever recorded at that NASA center (Kennedy I think). He also happened to be quite overweight. From a survival point of view this would be quite an advantage during times of famine. Unfortunately not today with all the plentiful foods available. Sorry if this recollection is too aprocryphal for some. Not meant to be a scientific observation, just an interesting aside. A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2004 Report Share Posted June 11, 2004 >>From a survival point of view this would be quite an advantage during times of famine. Unfortunately not today with all the plentiful foods available. This is the " theory " of the " thrifty gene " that is often discussed amongs the explanations for the weight problem today. It seems to be more evident in certain cultures, native americans being one of them, and there seems to be some history of these groups having to survive some periods of " famine " over the years. Thereby, those with the thriftiest genese, the ones who could adapt to the lowered food supply and survive are the ones that did and reproduced. As you said, in todays world, it is crippling these " survivors " . It is still a theory and his some info on it http://www.pbs.org/saf/1110/features/fighting.htm http://www.joslin.harvard.edu/news/obesity02.shtml Quote Link to comment Share on other sites More sharing options...
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