New group member, placed first order of LDN

[Guest guest]

Hello all,

I am a fairly new member on the group and this is my first post after lurking

and reading for a month or so. I just placed my first order for naltrexone

through River Pharmacy and I am so happy to have finally done it.

I have had autoimmune issues since I was 2 yrs old, I am 44 now. I suffer from

Crohn's, Graves/Hashimoto's thyroid, primary sclerosing cholangitis, and various

skin autoimmune ailments. I have some numbness in my toes which they say may be

the beginnings of MS, as my grandfather died of MS years ago so I am genetically

predisposed. He also had Crohn's and liver problems. I have not undergone the

spinal tap at this point so I do not know if I have MS.

I am hopeful that I may get some relief from LDN. Even if it just took care of

one thing I would be thrilled. I am keeping an open mind about everything and

trying not to have too high of expectations. I will post my experiences as I go

along.

When I tried to get even one of my docs to prescribe it for me in the US, it was

as if they were literally afraid to discuss it. I have a great GI doc who in the

past helped me to get non FDA drugs through Canada/compounders, however he

refused to do the same with LDN. However, he told me that if I got naltrexone

" through other means " , he would be very interested in my experiences and felt it

would not hurt my liver or anything else to try it. He also said that it would

not impact my ability to get on a transplant list if/when my liver fails.

Apparently docs are afraid of being reported by each other to the FDA. This is

ridiculous! My endocrinologist wouldn't discuss it at all, until I told her that

I wanted to try and get on a clinical trial for naltrexone. Then she was

interested in seeing how I did on a trial and 'would I keep her informed of my

results?'. Seems the docs want to know about it but can't prescribe. Big pharma

is watching. I guess we're back in 1984.