Urgent....Lyme Legislation

[Guest guest]

Permission to repost. 

 

 I agree with . We have been told over and over that we have to work

together. Working together is a good idea but it doesn't mean we all have to be

under one organization. One organization equals MONOPOLY. Monopolies can be

dangerous as they often do not represent everyone . When anything gets too big,

the machine takes over, people are not informed and are not included in the

decision making process. Actions are taken in secret.

 

Please read what has to say below and if you doubt what she is saying, we

all have the right to learn about the Bills ourselves. Let's investigate and

study the legislation that involves our own lives and the lives of

unsuspecting ill people around the country .  In the past I have never involved

myself with the legislation part of it all because I thought it was too

complicated and I didn't know who to listen to. I am going to try and change

that now by reading the Bills, thinking about them carefully to see if they make

sense and go with my own gut feelings. I know I don't want to trust government

with millions of dollars for Lyme if we don't have oversight

 

Marjorie Tietjen

 

 

****** ** URGENT ACTION *********

-We MUST stop the last-minute secret dealings to pass the two Lyme bills

stalled in Congress. These bills give MORE power and money to an already

unresponsive and bloated gov't. HR 741IH (), S 1708S (Dodd)

Call, & fax, & email to the following stating you are:

1. NOT in favor of the current Lyme bills and want them stopped because

they give TOO MUCH power and money to an already un-responsive &

bloated government that has already failed to meet the needs of the

community!

AND

2. Lyme is too serious to leave in the hands of a few people in the

community who conduct secret behind-the-scenes deals - such as the

current bad legislation. Ask for a hearing that includes the FULL Lyme

community, including you, to have input into any future legislation

*before* it is crafted and *before* it is introduced.

End with your name, address, & phone number so you can be contacted when

Congress starts up again.

------- Call the following people right away. Go email to them off their

websites, fax where you can.

• - p 202-225-3765 f 202-225-7768

(Prime offender who keeps submitting the tired old legislation, without

input from the full Lyme community, that

increases the unfunding and power of an already unresponsive government.

• Dodd - (202) 224-2823. Senate supporter of the companion bill.

• Rep. Wolf - 202-225-5136. Tell him you do NOT want more power and

money for the gov't. NO Lyme bill!!

------ Also give the same message to these people if you can . . . (Key

committee members).

• Sen. Tom Harkins - 202-224-3254. (you can email him off his site).

• Sen. Arlen Spector - 202-224-4254 (you can email him off his site).

• Rep. Pallone - 202-225-4671

• Your own Senator & Your Representative.

BACKGROUND:

Anyone reading this must now stand up to any bully who attacks our right

to know what is going on! The current legislation does NOT have the

support of the over half of the Lyme community and people only now have

the chance to call their Senator and House member to stop the

steamrolling of the same old obsolete and dangerous legislation into a

bill. While life has evolved over the last 10 years, we are only getting

a rehash of old legislation. Well, we all deserve better! Some better

ideas should have come forward, but are not even given a chance to be

heard because THIS legislation is being conducted in secret

behind-the-scenes actions. If  the life of someone you know depends

on a cure to Lyme . . . then you can not afford to be on the sideline,

watching while others blunder through a well-intended but poorly

constructed legislation. You need to fight for your own rights to be

heard and control your own destiny!

I have watched as " petitions " in favor of this tired legislation have

included names of groups who were never asked for inclusion of their

name, could not get their name(s) removed from the list, were not real

groups but individuals masquerading under assumed names, and the like.

This falsely represents the community's support and it is time it stops!

It is time our community stands up and demands its own multiple voices!

It seems that just a few internet-bound individuals are the gatekeeping

spin-doctors to what Lyme-concerned citizens are allowed to know and

think. NO MORE! Patients, doctors, family members and others must now

get fully engaged and demand input into the next round of legislation.

This also means that " Lyme literate " non-ILADS medical providers must be

included too!

If you want to be part of the solution then call Chis AND Chris

Dodd and demand they stop reintroducing the same bill and solicit ideas

from us all! No one should be putting dangerous anti-Lyme wording into

legislation introduced into Congress!

And, you should demand that any Lyme group that thinks it controls the

federal Lyme legislation stop putting the rest of us in jeopardy!

I have been in the community for over 20 years and find we need many

more diverse voices in order to find the answers to the many problems

with tick-borne diseases. Please stand up and take back control of your

and our destiny!

My best,

Dr. K. V-Forschner