Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 In a message dated 1/17/00 12:44:11 AM Eastern Standard Time, bferguso@... writes: << From: " Ferguson " <bferguso@...> I have written all the congressman and women in Ohio on the subject, and asked them to support the bills against the vaccine. The only response I have received is the reply that they got my email and will try to get back to me. >> My advice is to call or write your Congressman and skip the e-mail. When you write your Congressman/woman, (cc) send a copy to another Congressman such as (R-NC) or Gilman (NY). New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2000 Report Share Posted January 17, 2000 Hi, Two things: 1. When you send email to Govt officials/offices, nine times out of ten (if not more) it isn't read by anyone other than a staffer who discards (deletes) most mails. Primarily you will receive a computer generated generic response, and have a nice day! 2. The best methods are phone calls and snail mail. Most web sites have the phone numbers for both the DC and regular state offices. I call and can hear the audible " sigh " on the other end (they know it's me again :-). aka DSNurse will tell you the same thing...canvass them with phone calls/faxes/ and snail mail. You can still send email...if you like talking to a computer, but the other methods are more productive. Finally: If you can do it...go to their offices and meet with them! J Meck USN (ret) User102241@... wrote: > From: User102241@... > > In a message dated 1/17/00 12:44:11 AM Eastern Standard Time, > bferguso@... writes: > > << From: " Ferguson " <bferguso@...> > > I have written all the congressman and women in Ohio on the subject, and > asked them to support the bills against the vaccine. The only response I > have received is the reply that they got my email and will try to get back to > me. >> > > My advice is to call or write your Congressman and skip the e-mail. When you > write your Congressman/woman, (cc) send a copy to another Congressman such as > (R-NC) or Gilman (NY). > > > New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 To All, Even going to their offices isn't a sure fire thing but it's a start. I have done that with my elected official. I took the other route also and that got me no were. " What problems, we don't have a problem! " Go figure. Just stay positive and continue to " Do the Right Thing! " More need to comer out from behind closed doors and report their symptoms if they are having problems. Call the Persian Gulf Registry and if your have been to the Gulf, call the Deployment health Clinic at Walter . 202-782-6563 DSN 662. They are looking for Gulf Vets that have problems. I would even suggest writing to AVEC. Many of the self refereed VAERS forms are not being included in their numbers they post. Be well! Wishing everyone improved health and happiness. In Christ, Bob Re: Ohio > From: daniel j meck <danielmeck@...> > > Hi, > Two things: > 1. When you send email to Govt officials/offices, nine times out of ten (if not > more) it isn't read by anyone other than a staffer who discards (deletes) most > mails. Primarily you will receive a computer generated generic response, and > have a nice day! > 2. The best methods are phone calls and snail mail. Most web sites have the > phone numbers for both the DC and regular state offices. I call and can hear the > audible " sigh " on the other end (they know it's me again :-). > > aka DSNurse will tell you the same thing...canvass them with phone > calls/faxes/ and snail mail. You can still send email...if you like talking to a > computer, but the other methods are more productive. > > Finally: If you can do it...go to their offices and meet with them! > > J Meck USN (ret) > > > User102241@... wrote: > > > From: User102241@... > > > > In a message dated 1/17/00 12:44:11 AM Eastern Standard Time, > > bferguso@... writes: > > > > << From: " Ferguson " <bferguso@...> > > > > I have written all the congressman and women in Ohio on the subject, and > > asked them to support the bills against the vaccine. The only response I > > have received is the reply that they got my email and will try to get back to > > me. >> > > > > My advice is to call or write your Congressman and skip the e-mail. When you > > write your Congressman/woman, (cc) send a copy to another Congressman such as > > (R-NC) or Gilman (NY). > > > > > > New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 , You spelled Willowick correctly. We live in Mentor. About 15 minutes from willowock. Stefanie was first dx at age 2 years and started on IVIG at about 3 and 1/2 years old. How old was when he was first dx? Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2002 Report Share Posted April 7, 2002 , You spelled Willowick correctly. We live in Mentor. About 15 minutes from willowock. Stefanie was first dx at age 2 years and started on IVIG at about 3 and 1/2 years old. How old was when he was first dx? Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 was dx when he was 7. He received IVIG every 4 weeks until 3 infusions ago when it was changed in every 3 weeks; what a difference it has made in his health. Re: Ohio > , > > You spelled Willowick correctly. We live in Mentor. About 15 minutes from > willowock. > Stefanie was first dx at age 2 years and started on IVIG at about 3 and 1/2 > years old. > How old was when he was first dx? > > Rose > > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Stefanie was getting IVIG every 3 weeks until 2 weeks ago now she is on sub Q infusions 3 times a week. She has very bad veins. Are you getting home infusions or are you going to the doctor's office? What doctor is treating your child? Stefanie sees Dr. Berger at Rainbow babies and children's Hospital. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Pam. Dr. Berger is the hero in our family we had to fly 3,000 miles to meet him and he is the one responsible for Chelsea finally getting treatment of IVIG almost three and half years ago! He is an incredible Doctor and I wish we could see him regularly. Marlo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Pam, Dr. Berger is 's regular doctor; he is who broke the bad news to us about him probably not outgrowing this deficiency. I am very sad about the diagnosis but I am very glad to have such a knowledgeable doctor. His bed side manner has improved. For over a year he did not see patients due to focusing on research; however, the immun. or was seeing moved to another state so now Dr. Berger is back to seeing patients. ( CVID/ IGG deficient; Hope Cystinuria) Re: Ohio > Pam. > > Dr. Berger is the hero in our family we had to fly 3,000 miles to meet him > and he is the one responsible for Chelsea finally getting treatment of IVIG > almost three and half years ago! He is an incredible Doctor and I wish we > could see him regularly. > > > Marlo > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Right now receives IVIG every three weeks with a pediatric home health nurse whom I love to death. She has the best bed side manner of any home nurse I've met. My son has terrific veins so I won't have to worry about changing the route for awhile (cross my fingers). RB & C is the place to be for an illness such our children's. Re: Ohio > Stefanie was getting IVIG every 3 weeks until 2 weeks ago now she is on sub Q > infusions 3 times a week. She has very bad veins. Are you getting home > infusions or are you going to the doctor's office? What doctor is treating > your child? Stefanie sees Dr. Berger at Rainbow babies and children's > Hospital. > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 Rose, I also wanted to tell you that my daughter was dx with IGG deficiency when she was 13 mos old. She was started on IVIG immediately because she was soooo sick. She received IVIG for 2 years and was successfully trialed off in the summer. She is now 10 and is as healthy as any of her peers. She was even lucky enough to contract the chicken pox last year; thankfully did not get them. I still find it amazing how my children's presentation with PID was so different. Hope was acutely ill from about 8 months until her diagnoses at 13 months. on the other hand just had constant ear infections and pneumonia's; his illnesses were more in number and less severe than Hope's but his tended to last longer. Re: Ohio > , > > You spelled Willowick correctly. We live in Mentor. About 15 minutes from > willowock. > Stefanie was first dx at age 2 years and started on IVIG at about 3 and 1/2 > years old. > How old was when he was first dx? > > Rose > > > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2002 Report Share Posted April 9, 2002 I'm glad to here that Dr. Berger is such a great Dr. We have only been with him for about a month. We were seeing Dr. Hostoffer before but because of Stef's vein situation we switched to Dr. Berger for sub Q infusions. So far we have been very happy with Dr. Berger. He also told us he does not believe Stef will get any better but we had kind of already accepted that. Please feel free to email me directly at spamsucks9@... Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2003 Report Share Posted July 14, 2003 state animal whitetailed deer reptile black racer snake i keep remembering these things the more i think of them.....probably should just go on the net and get them all....sorry I got carried away love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 HEY ERIC, I AM FROM OHIO, SPENT NEARLY ALL MY LIFE THERE. MARGE He lives! Are you in Ohio? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 No but I have a sister in New Wilmington, PA - as I recall that's pretty close to Youngstown, Ohio. I'm in Virginia. > HEY ERIC, I AM FROM OHIO, SPENT NEARLY ALL MY LIFE THERE. > MARGE > He lives! > > Are you in Ohio? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2008 Report Share Posted September 29, 2008 Well, there's one somewhat new case in Ohio and if my husband's blood work comes back positive there are 2 new cases in Ohio so if that helps anyone or if we can help anyone let me know. Phyl Quote Link to comment Share on other sites More sharing options...
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