Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 That's kind of interesting. I had to google it to figure out what you were talking about. I'm especially intrigued because I just happen to have a drill and a drill press in my work area, I usually use it as a place to hang my goggles, but now I see that may be useful for other things. All things considered, that's not a bad price, and Kitchenaid mixers are a lot more than that! The more I think about it, the more I like it, but I know I don't need it right now. Traci NEED FEEDBACK > I have been talking with the manufacturers of the ProSteel Squirrel > Mixer that you can find at any Home Depot that is great for mixing > batches of anything with a hand drill and they have finally agreed to > make a 5 -10 gallon stainless steal Squirrel Mixer so that soap and > toiletry makers can use it with any 5 gallon bucket. Unlike the > smaller versions that are galvanized, this mixer is approved for > cosmetic manufacturing and would be great for soapmaking too. > > They want to know if there is any interest at all. They expect it to > retail around $50 which is not bad for a stainless steal lifetime > mixer. > > Let me know so I can pass on any comments to them. > > Regards, > > Dennis > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 In a message dated 7/9/2004 12:57:33 PM Eastern Daylight Time, goddesspv@... writes: His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Hi, I wouldn't discourage your husband. The only reason that I have hesitated to go back on treatment up until now is because of the hemalytic anemia. My platelet numbers still aren't great, but they are in the normal range for the first time since treatment. Fatigue........as odd as this sounds a small amount of slow exercise sometimes helped me. My other problem tends to be dehydration. I learned late to watch my K levels, now that I'm a banana eater, along with spinach, etc. I suffer much less than I used to from muscle spasms and cramps. That was a REALLY horrible problem during the alpha-Interferon/ribavirin treatment. I started with alpha-Interferon alone, so this will be my third round. I responded somewhat to the that, but in the middle of the year, the FDA approved the combo treatment, so that changed my protocol. I am 1a. If the creek doesn't rise, etc. I'll start the peg-Interferon/ribavirin in late September/early October. Hope this helps. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 In a message dated 7/9/2004 12:57:33 PM Eastern Daylight Time, goddesspv@... writes: His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Hi, I wouldn't discourage your husband. The only reason that I have hesitated to go back on treatment up until now is because of the hemalytic anemia. My platelet numbers still aren't great, but they are in the normal range for the first time since treatment. Fatigue........as odd as this sounds a small amount of slow exercise sometimes helped me. My other problem tends to be dehydration. I learned late to watch my K levels, now that I'm a banana eater, along with spinach, etc. I suffer much less than I used to from muscle spasms and cramps. That was a REALLY horrible problem during the alpha-Interferon/ribavirin treatment. I started with alpha-Interferon alone, so this will be my third round. I responded somewhat to the that, but in the middle of the year, the FDA approved the combo treatment, so that changed my protocol. I am 1a. If the creek doesn't rise, etc. I'll start the peg-Interferon/ribavirin in late September/early October. Hope this helps. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 HI.I.am (was geno type 1a???)Ihad three treatments and two trials.The first two treatmemts were with the now old fashion interferon,3 times a week and Ribavarine.Both unsuccesfull.I had two trials with very high doses of interferon and ribavarine,forgot howmuch,if you want I can look it up,and Ribavarine.The third Tx was with the Peginterferon from scheering plough and ribavarine.This one hit the jackpot,not in Las Vegas but in Amsterdam.If you want more info,just ask.Willem. need feedback Philip is continuing to feel fatigued and have some brain fog. This is the first time he has experienced ongoing fatigue (before it was more occasional-if he overdid it) other than when he was on the treatments (he did 2-the traditional interferon/ribavirin & Shering Plough interferon/ribavirin). He is seeing his Dr. on Tuesday and could really use some feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Willem, I read that you did 3 treatments before getting the SVR. Would you share with me what your genotype is and what treatments you did? Thanks everybody. I'm really working at not panicking today. I so much appreciate everyone's feedback and help. Love & blessings, Pamela Venus Love is all there is Peace is all there is Joy is all there is Om Shanti Shanti Shanti Om Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 HI.I.am (was geno type 1a???)Ihad three treatments and two trials.The first two treatmemts were with the now old fashion interferon,3 times a week and Ribavarine.Both unsuccesfull.I had two trials with very high doses of interferon and ribavarine,forgot howmuch,if you want I can look it up,and Ribavarine.The third Tx was with the Peginterferon from scheering plough and ribavarine.This one hit the jackpot,not in Las Vegas but in Amsterdam.If you want more info,just ask.Willem. need feedback Philip is continuing to feel fatigued and have some brain fog. This is the first time he has experienced ongoing fatigue (before it was more occasional-if he overdid it) other than when he was on the treatments (he did 2-the traditional interferon/ribavirin & Shering Plough interferon/ribavirin). He is seeing his Dr. on Tuesday and could really use some feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Willem, I read that you did 3 treatments before getting the SVR. Would you share with me what your genotype is and what treatments you did? Thanks everybody. I'm really working at not panicking today. I so much appreciate everyone's feedback and help. Love & blessings, Pamela Venus Love is all there is Peace is all there is Joy is all there is Om Shanti Shanti Shanti Om Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Is he a geno 1b? There are some people who just won't respond at all. However, if he is determined to give Peg a try, then go for it. (if his health can handle it and if his liver is bad enough to warrant the risk of doing treatment). Even on Peg, geno 1b's are less than 50%. Remember, it isn't the treatment that is actually attacking the virus. The medication is boosting your immune system, and your immune system is doing the work. So the treatment is actually an indirect method of attack. I have heard of some patients using Ritalin for energy. Good luck. Let us know what you decide. Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Is he a geno 1b? There are some people who just won't respond at all. However, if he is determined to give Peg a try, then go for it. (if his health can handle it and if his liver is bad enough to warrant the risk of doing treatment). Even on Peg, geno 1b's are less than 50%. Remember, it isn't the treatment that is actually attacking the virus. The medication is boosting your immune system, and your immune system is doing the work. So the treatment is actually an indirect method of attack. I have heard of some patients using Ritalin for energy. Good luck. Let us know what you decide. Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Pegasys is the name of Roche's peg. In studies, Pegasys had higher percentages of response in genotype 1s and they are now doing studies (called REPEAT) on people who responded to Scherings peg, responded and relapsed or didn't respond at all. Being a 1b, I've never paid a lot of attention to response rates with the other genotypes... Claudine has studies tucked away that show treatment (even rebetron before they came out with the pegs) has reversed fibrosis whether or not one responds to treatment. And as I recall, there are even some cases where it reversed cirhhosis. I've forgotten, does have cirhossis? It's very important to take as much load off your liver as possible. Enzymes can help with that, as can lecithin which also breaks down fats. Diet is very important. Get off sugars...switch to honey or zylitol (a natural sweetener), eliminate red meat and other fatty foods...eat skinless white meat of chicken or turkey and fish (especially salmon as it has essential omega 3 fats and they are all best steamed to eliminate the fat. Cut out soda pop (that was the hardest thing I had to do...I was a pepsi addict). Eat lots of grains which are easy for the liver to process. (I pretty much steam everything...I hate cooking...I eat a lot of brown rice with veges and fish or chicken steamed in it). Water...drink water all the time. Your urine should always be a pale yellow...that's a sign you are getting enough water. When you don't drink enough water and your urine gets dark yellow, you will be able to smell the ammonia in it. Ammonia is a contributing factor in brain fog. I can not say enough how important water is...I drink at least 3 quarts of water or decaf green tea a day...and it's not easy...I've also learned where every public bathroom is my part of town. If possible, take as few over the counter drugs as possible...a lot of homeopathic medicines work quite well. Avoid iron...take iron free multiple vitamins. Give up those spinach salads <g> MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours. In our file section at I've uploaded two documents with some of my research on both MSM and Xylitol.(Hepatitis C/files/) I hope some of this helps. Which I could suggest something for the fatique. I've found when I cheat (eat fatty foods, etc.) my fatigue level increases...I've always chalked it up to overworking my liver with foods that are hard for it to process. But sometimes I just have to have something I enjoy even if it isn't liver healthy. Tatezi need feedback Philip is continuing to feel fatigued and have some brain fog....(he...did 2-the traditional interferon/ribavirin & Shering Plough interferon/ribavirin)...feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Pegasys is the name of Roche's peg. In studies, Pegasys had higher percentages of response in genotype 1s and they are now doing studies (called REPEAT) on people who responded to Scherings peg, responded and relapsed or didn't respond at all. Being a 1b, I've never paid a lot of attention to response rates with the other genotypes... Claudine has studies tucked away that show treatment (even rebetron before they came out with the pegs) has reversed fibrosis whether or not one responds to treatment. And as I recall, there are even some cases where it reversed cirhhosis. I've forgotten, does have cirhossis? It's very important to take as much load off your liver as possible. Enzymes can help with that, as can lecithin which also breaks down fats. Diet is very important. Get off sugars...switch to honey or zylitol (a natural sweetener), eliminate red meat and other fatty foods...eat skinless white meat of chicken or turkey and fish (especially salmon as it has essential omega 3 fats and they are all best steamed to eliminate the fat. Cut out soda pop (that was the hardest thing I had to do...I was a pepsi addict). Eat lots of grains which are easy for the liver to process. (I pretty much steam everything...I hate cooking...I eat a lot of brown rice with veges and fish or chicken steamed in it). Water...drink water all the time. Your urine should always be a pale yellow...that's a sign you are getting enough water. When you don't drink enough water and your urine gets dark yellow, you will be able to smell the ammonia in it. Ammonia is a contributing factor in brain fog. I can not say enough how important water is...I drink at least 3 quarts of water or decaf green tea a day...and it's not easy...I've also learned where every public bathroom is my part of town. If possible, take as few over the counter drugs as possible...a lot of homeopathic medicines work quite well. Avoid iron...take iron free multiple vitamins. Give up those spinach salads <g> MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours. In our file section at I've uploaded two documents with some of my research on both MSM and Xylitol.(Hepatitis C/files/) I hope some of this helps. Which I could suggest something for the fatique. I've found when I cheat (eat fatty foods, etc.) my fatigue level increases...I've always chalked it up to overworking my liver with foods that are hard for it to process. But sometimes I just have to have something I enjoy even if it isn't liver healthy. Tatezi need feedback Philip is continuing to feel fatigued and have some brain fog....(he...did 2-the traditional interferon/ribavirin & Shering Plough interferon/ribavirin)...feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/9/2004 2:48:42 PM Eastern Daylight Time, lands142@... writes: HI.I.am (was geno type 1a???) Thanks for reminding me of that Willem. I want to be able to say was next year.........Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/9/2004 2:48:42 PM Eastern Daylight Time, lands142@... writes: HI.I.am (was geno type 1a???) Thanks for reminding me of that Willem. I want to be able to say was next year.........Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: If possible, take as few over the counter drugs as possible...a lot of homeopathic medicines work quite well. Avoid iron...take iron free multiple vitamins. Give up those spinach salads <g> unless you develop anemia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: If possible, take as few over the counter drugs as possible...a lot of homeopathic medicines work quite well. Avoid iron...take iron free multiple vitamins. Give up those spinach salads <g> unless you develop anemia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: If possible, take as few over the counter drugs as possible...a lot of homeopathic medicines work quite well. Avoid iron...take iron free multiple vitamins. Give up those spinach salads <g> unless you develop anemia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: If possible, take as few over the counter drugs as possible...a lot of homeopathic medicines work quite well. Avoid iron...take iron free multiple vitamins. Give up those spinach salads <g> unless you develop anemia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 some feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Hi Pam, I can't get treatment here in Canada, my liver enzymes aren't high enuff for free funding. I have cirrhosis, am the dreaded 1b genotype. In my experiences, if I feel tired I just sleep it away. I'm too lazy to exercise LOL....but I know that helps so I just do some extra cleaning around the house. I'm taking Milk Thistle, Vitamins b50, C, E, calcium, zinc, selenium, and I have a prescription for potassium cuz I take a diuretic for swelling in my ankles and feet. I have other vitamins, lecithin, and a few others that I don't take on a regular basis, like I don't take the B50 everyday either cuz I think niacin is iron. I did buy green tea but haven't drank any yet. I want to find out more about what Tatezi takes and I'm going to try essential enzymes too. MSM, I have that too and it's supposed to help brain fog which I have to but it's not bad. Some days I feel totally normal, other days I feel like sh!t. I also need to lose weight, that would help if I didn't love ice cream so much ;-) Hope this helped. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 some feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Hi Pam, I can't get treatment here in Canada, my liver enzymes aren't high enuff for free funding. I have cirrhosis, am the dreaded 1b genotype. In my experiences, if I feel tired I just sleep it away. I'm too lazy to exercise LOL....but I know that helps so I just do some extra cleaning around the house. I'm taking Milk Thistle, Vitamins b50, C, E, calcium, zinc, selenium, and I have a prescription for potassium cuz I take a diuretic for swelling in my ankles and feet. I have other vitamins, lecithin, and a few others that I don't take on a regular basis, like I don't take the B50 everyday either cuz I think niacin is iron. I did buy green tea but haven't drank any yet. I want to find out more about what Tatezi takes and I'm going to try essential enzymes too. MSM, I have that too and it's supposed to help brain fog which I have to but it's not bad. Some days I feel totally normal, other days I feel like sh!t. I also need to lose weight, that would help if I didn't love ice cream so much ;-) Hope this helped. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 some feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Hi Pam, I can't get treatment here in Canada, my liver enzymes aren't high enuff for free funding. I have cirrhosis, am the dreaded 1b genotype. In my experiences, if I feel tired I just sleep it away. I'm too lazy to exercise LOL....but I know that helps so I just do some extra cleaning around the house. I'm taking Milk Thistle, Vitamins b50, C, E, calcium, zinc, selenium, and I have a prescription for potassium cuz I take a diuretic for swelling in my ankles and feet. I have other vitamins, lecithin, and a few others that I don't take on a regular basis, like I don't take the B50 everyday either cuz I think niacin is iron. I did buy green tea but haven't drank any yet. I want to find out more about what Tatezi takes and I'm going to try essential enzymes too. MSM, I have that too and it's supposed to help brain fog which I have to but it's not bad. Some days I feel totally normal, other days I feel like sh!t. I also need to lose weight, that would help if I didn't love ice cream so much ;-) Hope this helped. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 some feedback re. treatment alternatives and/or effectiveness of going on the other pegylated interferon (I can't remember the brand name) after not having successful response to the Shering Plough. His doctor discouraged his going on it when we discussed it before saying that there was little to no likelihood that he would respond to it. I could really use whatever helpful/hopeful feedback people have at this time-re. helping with energy levels, treatment alternatives, what supplements are working for people, etc. Hi Pam, I can't get treatment here in Canada, my liver enzymes aren't high enuff for free funding. I have cirrhosis, am the dreaded 1b genotype. In my experiences, if I feel tired I just sleep it away. I'm too lazy to exercise LOL....but I know that helps so I just do some extra cleaning around the house. I'm taking Milk Thistle, Vitamins b50, C, E, calcium, zinc, selenium, and I have a prescription for potassium cuz I take a diuretic for swelling in my ankles and feet. I have other vitamins, lecithin, and a few others that I don't take on a regular basis, like I don't take the B50 everyday either cuz I think niacin is iron. I did buy green tea but haven't drank any yet. I want to find out more about what Tatezi takes and I'm going to try essential enzymes too. MSM, I have that too and it's supposed to help brain fog which I have to but it's not bad. Some days I feel totally normal, other days I feel like sh!t. I also need to lose weight, that would help if I didn't love ice cream so much ;-) Hope this helped. Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Madly digging through my bucket of vitamins to find my MSM....ahhhh just took one. Thanks Tats. Carol Re: need feedback In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Madly digging through my bucket of vitamins to find my MSM....ahhhh just took one. Thanks Tats. Carol Re: need feedback In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
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