Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Madly digging through my bucket of vitamins to find my MSM....ahhhh just took one. Thanks Tats. Carol Re: need feedback In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Madly digging through my bucket of vitamins to find my MSM....ahhhh just took one. Thanks Tats. Carol Re: need feedback In a message dated 7/10/2004 4:39:22 AM Eastern Daylight Time, tatezi@... writes: MSM (a supplement which is the natural sulfer our bodies create and is in no way related to sulpha drugs) helps a lot with brain fog. It needs to be taken twice daily because it only stays in your system for 12 hours This stuff is a miracle worker and so is Milk Thistle.......... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi, Judith, This forum focuses on using many different methods of Energy Psychology - self-help methods. There are also many practitioners who you could work with. Would you like to learn something that might help ease out your stress? If so, please download the free EFT manual in the files section and at www.emofree.com We are here to help. Warmly, Dayu > > I am using fictious initials for the two people i am talking about below. K is an female and J is a male..He is 56 and she is 42 and i am 38. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 The reason i sent this to the group was so that you could show me how it would work in this situation. I need to see it in action before I can do anything with it Judiths > > > > I am using fictious initials for the two people i am talking about > below. K is an female and J is a male..He is 56 and she is 42 and i am > 38. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 In a message dated 6/10/07 11:47:54 AM, mommalovesherboys@... writes: > s it possible to bring your bp to normal with life style changes if > you truly have Conn's? And also can your potassuim go up and down > within a day? Thanks for any help:) > DASHing is the secret. Get the book by T and do the 14 day trial. See our links. Get you Dr. to test you for Conns first. Simple blood test for aldosterone and renin. May your pressure be low! Clarence E. Grim, BS, MS, MD Senior Consultant to Shared Care Research and Consulting, Inc. (sharedcareinc.com) Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI Clinical Professor of Nursing, Univ. of WI, Milwaukee Specializing in Difficult to Control High Blood Pressure and the Physiology and History of Survival During Hard Times and Heart Disease today. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2007 Report Share Posted June 10, 2007 Just switched my account to .mac to see if this works better that trying to stay connected to aol. On Jun 10, 2007, at 11:58 AM, lowerbp2@... wrote: > > In a message dated 6/10/07 11:47:54 AM, mommalovesherboys@... > writes: > > > s it possible to bring your bp to normal with life style changes if > > you truly have Conn's? And also can your potassuim go up and down > > within a day? Thanks for any help:) > > > > DASHing is the secret. Get the book by T and do the 14 day > trial. See > our links. > Get you Dr. to test you for Conns first. Simple blood test for > aldosterone > and renin. > > May your pressure be low! > > Clarence E. Grim, BS, MS, MD > Senior Consultant to Shared Care Research and Consulting, Inc. > (sharedcareinc.com) > Clinical Professor of Internal Medicine and Epidemiology Med. Col. WI > Clinical Professor of Nursing, Univ. of WI, Milwaukee > > Specializing in Difficult to Control High Blood Pressure > and the Physiology and History of Survival During > Hard Times and Heart Disease today. > > ************************************** > See what's free at http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 Hey group: I just recently had a lyme titer which was negative and a western blot which was also negative but still have chronic lyme symptoms that every doc out there diagnoses as fibromyalgia, such as numbness, muscle/joint pain, depression, insomnia, anxiety, photosensitivity, etc. I was told that western blot is most reliable diagnostic tool, especially for a bite that was most likely more than 13 years ago. Does anyone know of another diagnostic approach, or false negatives coming from titers and/or western blot protocols? The situation is out of hand and is chronic with no end in sight. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2008 Report Share Posted October 27, 2008 The standard tests are notoriously, flamingly inaccurate. There are upwards of 40 different subspecies of Lyme; most tests are only geared to finding one or two. If your doc or lab uses the wrong test (which is likely, especially if you were infected in one part of the country and are now living in another), they'll miss it entirely. Beyond that, the tests are only really effective in the first couple months after you're bit. Once it goes chronic, there's a very high rate of false negatives. The one you want is the Igenex test, offered by a lab in Palo Alto. It tests for most of the known forms of Lyme in North America, and is sensitive enough to pick it up even if you've been sick a very long time. The downside is that the results can be hard to interpret if you're not working with an LLMD who's familiar with the lab report. Also, be forewarned: insurance companies will usually only cover the standard western blot, and will often balk at paying out for the much more expensive Igenex test, which they don't consider necessary. You really need to find a Lyme-literate doctor to work with you on this. Once the western blot comes back negative, you've pretty much hit the knowledge limits of most GPs. At that point, it's time to find a specialist. Sara On Oct 27, 2008, at 2:08 PM, yp_deron_algoma wrote: > Hey group: > > I just recently had a lyme titer which was negative and a western blot > which was also negative but still have chronic lyme symptoms that > every doc out there diagnoses as fibromyalgia, such as numbness, > muscle/joint pain, depression, insomnia, anxiety, photosensitivity, > etc. > > I was told that western blot is most reliable diagnostic tool, > especially for a bite that was most likely more than 13 years ago. > > Does anyone know of another diagnostic approach, or false negatives > coming from titers and/or western blot protocols? > > The situation is out of hand and is chronic with no end in sight. > > Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Have you seen an LLMD? Kenda > Hey group: > > I just recently had a lyme titer which was negative and a western blot > which was also negative but still have chronic lyme symptoms that > every doc out there diagnoses as fibromyalgia, such as numbness, > muscle/joint pain, depression, insomnia, anxiety, photosensitivity, > etc. > > I was told that western blot is most reliable diagnostic tool, > especially for a bite that was most likely more than 13 years ago. > > Does anyone know of another diagnostic approach, or false negatives > coming from titers and/or western blot protocols? > > The situation is out of hand and is chronic with no end in sight. > > Thanks > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Were any of the Western Blot bands positive or indeterminant? An LLMD may call the test positive if certain bands are positive. On Mon, Oct 27, 2008 at 5:08 PM, yp_deron_algoma <deronbaker1968@...>wrote: > Hey group: > > I just recently had a lyme titer which was negative and a western blot > which was also negative but still have chronic lyme symptoms that > every doc out there diagnoses as fibromyalgia, such as numbness, > muscle/joint pain, depression, insomnia, anxiety, photosensitivity, > etc. > > I was told that western blot is most reliable diagnostic tool, > especially for a bite that was most likely more than 13 years ago. > > Does anyone know of another diagnostic approach, or false negatives > coming from titers and/or western blot protocols? > > The situation is out of hand and is chronic with no end in sight. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 My understanding is most LLMDs will diagnose clinically and not via testing. Also did you get the results of your test. Were ALL bands negative or did it just not meet the IDSA ridiculous 5 and 3 guidelines? You are entitled to the results, ask for them! Feel free to share the bands here or go to http://www.anapsid.org/lyme/wb.html to read it. > [ ] Need Feedback > > Hey group: > > I just recently had a lyme titer which was negative and a > western blot > which was also negative but still have chronic lyme symptoms that > every doc out there diagnoses as fibromyalgia, such as numbness, > muscle/joint pain, depression, insomnia, anxiety, photosensitivity, > etc. > > I was told that western blot is most reliable diagnostic tool, > especially for a bite that was most likely more than 13 years ago. > > Does anyone know of another diagnostic approach, or false negatives > coming from titers and/or western blot protocols? > > The situation is out of hand and is chronic with no end in sight. > > Thanks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2008 Report Share Posted October 28, 2008 Western blots and ELISAs detect FREE antibody. That means the sickest patients are more likely to be falsely negative, since their antibodies are all bound in immune complexes (i.e. doing their job of taking out the bugs). A significant percentage of patients (about 30%) with negative tests convert to positive after 6 weeks of antibiotic treatment. Phyllis Mervine CALDA -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2009 Report Share Posted November 2, 2009 Suzy, I am a nurse too. Weight lifting restrictions at work helped me ,as well as supporting my neck with the head rest when I was driving. I also was allowed to use my high back supportive desk chair in the office, so my neck was well supported, when I was doing my documentation, & using the computer. In order to work, I was bed bound resting when I came home from work, & I had so much pain ,that I couldn't even eat. I also wore a soft cervical collar at night, & used ice to ease my neck pain. My 1st series of cervical cortisone injections were given in a series of 3, every 6 weeks. I didn't have to take 3 injections, if I found that one or 2 worked well to decrease my pain. I found that I had to rest, & not drive for 24 hours after the injection, as if I didn't, the injection was useless. The pain intensified for 2 days, & then in a couple of weeks I had much less pain than before the injections. In an 18 year span, since I have been 1st diagnosed with neck DDD, I have a series of injections, 4 xs in the series of 3. The 1st injection lasted 7 years. It has been 3 years since I had my last injection. I never had any symptoms ,but increased neck soreness, & pain for a couple days. My friend gets flu like symptoms, after her lumbar injections. June Quote Link to comment Share on other sites More sharing options...
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