Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hi Fellow Lyme Patients! I have written a letter to CDC's Dr. Lyle sen. I received a letter from him earlier this year. My letter is dated October 19, 2006, but I will be mailing it next Wednesday, October 25, 2006. I am giving everyone the chance to sign on to this letter. By mailing it next Wednesday, it gives you 6 days to sign on. For years the CDC has received many, many phone calls and letters from patients. Individually, our letters and calls are answered with repititious pacifying language that serves to quiet us. They fail to address the important issues. TOGETHER, we can demand that they respond appropriately to our problems. This letter is quite strong and confronts the CDC and IDSA Treatment Guidelines on a number of pertinent issues. It is strong, yet professional. Personally, I do not believe that timidly and politely asking for help is going to get us anywhere. I do believe that the squeaky wheel gets the grease, and we need to start squeakin'! I am NOT worried about gaining THEIR respect; what I want is for them to HEAR what we are saying and the fact that we are SUFFERING WITHOUT ANY HELP! They won't know this until we start squeaking in their faces really, really loud! So, I have attached the letter for you to read and print out. This is the final letter; no changes will be made. I hope you will join me and sign on to this letter. Email the following blurb to me at tinajgarcia@... with your name and state: I SUPPORT AND SIGN ON TO THE OCTOBER 19, 2006 LETTER WRITTEN BY TINA J. GARCIA TO DR. LYLE PETERSEN AT THE CDC REGARDING PROBLEMS WITH LYME DISEASE AND THE IDSA TREATMENT GUIDELINES. TYPE NAME AND STATE For each person who signs on, I will print their statement of support, name and state onto a piece of lime green paper. The letter will also be printed on lime green paper. IMAGINE THE LOOK ON HIS FACE WHEN ONE THOUSAND OR MORE LIME GREEN PAPERS LAND ON HIS DESK!!!! Friends, I will pay for the paper and mailing cost to send this big package. To me, it is well worth the time and money. So, PLEASE join me and sign on right away!! A copy of the letter and names will also be sent to Arizona Senators McCain and Jon Kyl. I will also send a copy to the Fox 45 Baltimore investigative reporter, Steve Levine. THANKS FOR ALL YOUR SUPPORT!! With Love and Best Wishes for Your Health and Happiness, Tina J. Mesa, Arizona 480-219-6869 --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
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