sleeping

[Guest guest]

In a message dated 1/21/2002 11:10:27 PM Eastern Standard Time,

cindysue@... writes:

> ..has he had a sleep study done? Does he get services through Riley's

> DS clinic? I'd call and ask about this..sounds like he could have sleep

> apnea.

>

Hi,

Just a note. From personal experience, Methodist Hospital ( In Indianapolis )

provided the best place to have a sleep study done. They have a lab separate

from other areas, are willing to make special accomodations for younger

patients, have better equiptment to include having alarms outside of sleeping

room ( unlike Riley ) & many other better features. We have had studies done

at both places. We got no sleep at Riley, their equiptment was archaic, there

are many children/babies done at same time & you can hear them

crying/screaming, alarms/lights went off constantly & the lab folks are there

turning them off at bedside, it was VERY noisy & scary...... & tests were

inconclusive due to that.

I also would be looking into a sleep study, IMHO.

~Sandy O.

[Guest guest]

..has he had a sleep study done? Does he get services through Riley's DS

clinic? I'd call and ask about this..sounds like he could have sleep apnea.

Re: Sleeping

I often am a lurker, but I have a question for everyone. Ben is 8 and every

night about 12:00 to 2:00 he wakes up. He always ends up in bed with us, which

isn't bad, but he is so restless. He rolls all over, wakes up a lot, sleeps

sitting up bent over, lays on top of us etc. He even talks in his sleep.

Does anyone else have this problem with their child not sleeping all night and

sleeping so poorly. I have tried everything that I can think of and the

pediatrician doesn't seem to be too concerned.

Thanks,

M.

[Guest guest]

Sorry you are having some bad nights.

I find I have to be very careful not to drink anything too near to bed time , sleep with a back rest supporting my pillows ( some suggest electric beds and others don't , see previous postings !!!) Do you use any medication such as GTN ( 'nitrate family')? ( again it helps some and not others but has side effects which some cannot tolerate)

Other than that sorry to not be much help practically ........ just rest when you can as too many bad nights like that leave you exhausted whihc makes the whole thing even harder to tolerate and manage.

Are you due for any appointments with medical staff soon or any treatment ? Have you had any treatment ? If things are getting worse please tell somebody soon .

Heres hoping your next night will be much better . I have to say that as I don't know where you are and its 16.16 here in the UK . It feels later as I too am fairly exhausted at this time .

Bye for now

Chris

[Guest guest]

I find the best thing to do to help the sleepless nights waking up choking and having to run to the bathroom is to MAKE yourself bring any contents that may be left in the Esophagus back up just before you go to bed.i.e.Make yourself sick.Remember this is only MY own personal way of dealing with this annoying part of having"A".But I have found this helps me have a reasonable night sleep(except when my 1year old son has teething problems)

Re: Sleeping

Sorry you are having some bad nights.I find I have to be very careful not to drink anything too near to bed time , sleep with a back rest supporting my pillows ( some suggest electric beds and others don't , see previous postings !!!) Do you use any medication such as GTN ( 'nitrate family')? ( again it helps some and not others but has side effects which some cannot tolerate) Other than that sorry to not be much help practically ........ just rest when you can as too many bad nights like that leave you exhausted whihc makes the whole thing even harder to tolerate and manage. Are you due for any appointments with medical staff soon or any treatment ? Have you had any treatment ? If things are getting worse please tell somebody soon .Heres hoping your next night will be much better . I have to say that as I don't know where you are and its 16.16 here in the UK . It feels later as I too am fairly exhausted at this time . Bye for now

[Guest guest]

The only thing that will help you once you start choking is to get your

esophagus fixed! Don't drink anything before bedtime, either, as

saliva/water can also be stuck above your sphincter and come up to haunt

you! You'll feel so much better when you get your " fix " . Until then,

you can count on rude awakenings, unfortunately. At least that is how

it was for me....once it started it only got worse.

[Guest guest]

so far....I'm just tired like I've worked all day and it's hours past my

bedtime. A little twinge here and there of an ache.........mostly just feel

like I could sleep forever.

Hope this eases up by work:30 monday morning!!!!!

[Guest guest]

so far....I'm just tired like I've worked all day and it's hours past my

bedtime. A little twinge here and there of an ache.........mostly just feel

like I could sleep forever.

Hope this eases up by work:30 monday morning!!!!!

[Guest guest]

Tim...same problem although I am not at all interested in getting up to hunt and fish...but to shop and hang with my kids...you bet. I take lorazepam to relieve the anxiety...but still have a hard time getting to sleep. Like you Bob, I am up late sometimes 2 or 3...and then can't focus my eyes till noon...then want to nap in the afternoon...which i sometimes do. Always tired, never rested...the internist I go to says i need to regulate myself..she also thinks it mihgt be realted to depression. But if you all are experiencing the same symptoms....ohhhh, what do I know...what do you guys think?

love,

[Guest guest]

hi tim,,

same problem here in pa.....

i go to bed at 11 or midnight every night and end up staying in bed til

noon, one and sometimes later.....im tired all the time.....docs seem to

think it is sleep apnea doing it.....and it problably is but i cant

tolerate the mask they want you to wear to correct it.

i have a fishing boat docked less than a mile from my home, a 2002 license

and new gear this year...even a fish finder, and o'dark thirty is an

imposiblitly for me.

bob in pa

[Guest guest]

Tim,

I don't think I have gone to bed without

artificial aids since the alien implant. Came

from the hospital with a roaring case of

bronchitis, and the over the counter stuff was

the only mess I could take that knocked it down,

but mostly it knocked me out. Now, I take it

because the thought of waking up at 2 or 3 in the

morning, and not being able to drop back off, is

more frightening to me than eating a pill every

night. I occasionally steal one of Geo's Ambiens,

but I know the boy counts them so I have to watch

that. I have decided though not to beat myself up

if I feel like a nap in the afternoon. It makes

me feel better, and I am just not going to fight

it. Becca from NC

--- Bonnie & Tim Bjork <bjork10@...>

wrote:

> Turk,

>

> I went through the same thing you did with the

> sleeping business. Couldn't get to sleep to

> save my soul and, of course, I was always

> tired. When I did, I slept fitfully and

> couldn't get my butt out of bed in the morning.

> I was taking Ambien, Prozac and Xanax for a

> while and nothing did any good. Quit the Xanax

> and the Ambien and went to my local internist

> for help. He put me on Trazodone (100mg) just

> before bedtime and I take a couple Melatonin

> (over the counter sleeping pills) if I feel the

> need. The Trazondone is a mild anti-depressant

> which makes you drowsy. Now I sleep like a

> rock, don't wake up worrying about the ICD (not

> that I don't think about my bionic abilities

> every day) but I still can't get out of bed.

> For someone used to working 40-60 hours a week,

> this is a real drag. In fact, I even have a

> very hard time getting out of bed at

> zero-dark-thirty for hunting and fishing. Now

> there's a problem! Anybody else experience

> this problem? I sure would be fun to be wide

> awake and part of each day.

>

> Thanks for your help

>

> Tim in South Dakota

>

__________________________________________________

[Guest guest]

Hey Tim;

I still have Clonopin which are anxiety pills. Everyonce in a while i take a

half a mg. to calm down. If those times close to 10 or 11 pm then i sleep

like a baby but the next day all of my energy and desires(not S..) are gone.

I feel horrible. So i can't take those pills for that purpose and i am going

to my internist and he said he will take care of it we'll see i guess. Love

TURK

>From: " Bonnie & Tim Bjork " <bjork10@...>

>Reply-

>< >

>Subject: Sleeping

>Date: Mon, 5 Aug 2002 20:58:47 -0500

>

>Turk,

>

>I went through the same thing you did with the sleeping business. Couldn't

>get to sleep to save my soul and, of course, I was always tired. When I

>did, I slept fitfully and couldn't get my butt out of bed in the morning.

>I was taking Ambien, Prozac and Xanax for a while and nothing did any good.

> Quit the Xanax and the Ambien and went to my local internist for help.

>He put me on Trazodone (100mg) just before bedtime and I take a couple

>Melatonin (over the counter sleeping pills) if I feel the need. The

>Trazondone is a mild anti-depressant which makes you drowsy. Now I sleep

>like a rock, don't wake up worrying about the ICD (not that I don't think

>about my bionic abilities every day) but I still can't get out of bed. For

>someone used to working 40-60 hours a week, this is a real drag. In fact,

>I even have a very hard time getting out of bed at zero-dark-thirty for

>hunting and fishing. Now there's a problem! Anybody else experience this

>problem? I sure would be fun to be wide awake and part of each day.

>

>Thanks for your help

>

>Tim in South Dakota

_________________________________________________________________

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[Guest guest]

Dear ,

I just don't schedule anything before about noon, then I don't h:ave to worry. I've been taking my Ambien and Paxil at about 7pm and when I remember to do that, I get to sleelp more on a regular schedule. I have friends who take 5mg of Ambien and they are out within 10 minutes but I take 10 and it still takes a few hours for it to get to my system! I've never been one to do things in a normal way any way...Just so you get some good sleep so you have a chance of functioning!

Amy

[Guest guest]

It took me about a month before I was able to sleep on my implant side.

[Guest guest]

In a message dated 3/9/2004 8:21:47 PM Eastern Standard Time,

writes:

I am wondering how long it takes some people to start sleeping on the side

of the implant after surgery. It has been 2 weeks since my surgery and I

haven't laid on my left side yet.

Hi !

I used to be a left side sleeper, before my CI surgery. Since my surgery,

I have become a right side sleeper. It has now been almost 16 months since

my surgery and I am still not comfy sleeping on my implanted side. I just

started getting the feeling back in my head about 3 months ago and I can now lay

on my implanted side for a short bit; but still can't go to sleep on it.

Give it time.

Have a good day!

Velma

N24C 11/25/02 (What A Day!)

Hook Up Day BWP 1/2/03 (A Happy Day!)

3G 1/31/03 (An Even Happier Day!)

[Guest guest]

Hi there,

I think there is a general consensous amoung surgens and patients

that when the pain occurs at rest and interferes with sleep then its

time to do something about it.

For me it was waking up sore that did it, and also hardly sleeping.

Between that and the pain it can become a terrible strain. I guess

if you wake up pain free then you could try stronger pain killers at

night and positioning pillows to make yourself more comfortable.

If you are waking sore or still losing sleep then it is time to stop

postponing THR. That was the factor for me anyway. It is very common

to be unable to sleep comfortably with arthritis. Possibly a pillow

between the knees may help, but if your still sore I would say get

the hip sorted. Sleep deprivation and pain wears you down!

Leigh

[Guest guest]

Cheryl ,

I live in Hannibal Missouri just about 100 miles north of you. I

had my hip replaced 9 months ago It was the best decision I ever

made. I hurt less the day after surgery than I did the day before

surgery. Good luck to you

Larry

At 04:48 PM 10/2/2004 -0500, you wrote:

I

am in the same boat, so please let me know what your Doctor in

Philadelphia advises. I am 56 years old and was surprised when they

told me I needed a Total hip replacement. (I thought I had

continuing muscle problems.) I am in pain when I walk, but so far

can sleep on one side with a pillow. Id like to wait as long as

possible, but am worried about recovery time if my muscles are not as

strong as they are now. Anxious to hear your results. I live

in St. Louis, MO

Cheryl

[Guest guest]

Hi Cheryl

I was excited when I read that you are Hannibal. I

was raised in Quincy, just the big river apart. I

lived near Chicago most of my life and still miss

QUINcy. LOVE RUTH

--- cheryl schlegel <schlegel@...> wrote:

> What were the circumstances leading up to your hip

> replacement? I can't

> decide if I should wait until I can't sleep or

> drive, as some of the

> others have done. Right now - I feel good - a good

> day- and I wonder if

> it was the right diagnosis.

>

>

>

> Cheryl

>

>

>

> RE: sleeping

>

>

>

> Cheryl ,

> I live in Hannibal Missouri just about 100 miles

> north of you. I had my

> hip replaced 9 months ago It was the best decision I

> ever made. I hurt

> less the day after surgery than I did the day before

> surgery. Good luck

> to you

>

> Larry

>

> At 04:48 PM 10/2/2004 -0500, you wrote:

>

>

>

>

> I am in the same boat, so please let me know what

> your Doctor in

> Philadelphia advises. I am 56 years old and was

> surprised when they

> told me I needed a Total hip replacement. (I

> thought I had continuing

> muscle problems.) I am in pain when I walk, but so

> far can sleep on one

> side with a pillow. Id like to wait as long as

> possible, but am worried

> about recovery time if my muscles are not as strong

> as they are now.

> Anxious to hear your results. I live in St. Louis,

> MO

>

>

>

> Cheryl

>

>

>

>

[Guest guest]

Oops – sorry you misunderstood –

I live in St. Louis and was writing to someone from Hannibal. I think that

Chicago is a great city - hope all is well.

Cheryl

RE:

sleeping

>

>

>

> Cheryl ,

> I live in Hannibal Missouri just about 100

miles

> north of you. I had my

> hip replaced 9 months ago It was the best

decision I

> ever made. I hurt

> less the day after surgery than I did the day

before

> surgery. Good luck

> to you

>

> Larry

>

> At 04:48 PM 10/2/2004 -0500, you wrote:

>

>

>

>

> I am in the same boat, so please let me know

what

> your Doctor in

> Philadelphia advises. I am 56 years old

and was

> surprised when they

> told me I needed a Total hip

replacement. (I

> thought I had continuing

> muscle problems.) I am in pain when I

walk, but so

> far can sleep on one

> side with a pillow. Id like to wait as

long as

> possible, but am worried

> about recovery time if my muscles are not as

strong

> as they are now.

> Anxious to hear your results. I live in

St. Louis,

> MO

>

>

>

> Cheryl

>

>

>

>

[Guest guest]

Hi ,

When I got out of hospital, I just slept on my back, it just seemed

like it was the only way I could,and as sleep was so hard to come

by, I was always awake if I needed to turn.. and if I needed to

turn, which at the beginning was sooooo hard, I got out of bed and

crawled back on so I could lie on my tummy..I couldnt actually turn.

Now however, I can turn over with no pain whatsover..I still have to

think tho..Towards the end with my old Hip I preferred to lie on my

tummy, with my feet over the end of the bed, it seemed to relieve a

bit of pain.

Mark

>

> I slept in a chair for 24 hours a day for about the first 3 weeks;

> mostly because I was afraid of laying incorrectly or crossing my

legs

> and doing something I wasn't supposed to; now I sleep in bed but am

> careful still about leg crossing or lying on my hip side; I haven't

> slept more than 2 hours in a row since high school and now I'm

finally

> getting about 3-4 hours in a row(I'm 51)so its fantastic....about

> Curves , my wife goes there(she hasn't had surgery but is

overweight

> and has bad knees/feet and says its low impact and she likes the

program.

[Guest guest]

In a message dated 11/27/2005 11:57:28 AM Pacific Standard Time,

SSRI medications writes:

I wonder if poor nutrition can also lead to sleep disturbance, and then

to depression.

Look at the people who consume 10- 12 cups of coffee a day, or drink a six

pack of some poisonous diet soda, or eat tons of sugar, and other foods loaded

with chemicals -- I doubt those people get a good night's sleep. How could

they??

[Guest guest]

In a message dated 11/27/2005 11:57:28 AM Pacific Standard Time,

SSRI medications writes:

I wonder if poor nutrition can also lead to sleep disturbance, and then

to depression.

Look at the people who consume 10- 12 cups of coffee a day, or drink a six

pack of some poisonous diet soda, or eat tons of sugar, and other foods loaded

with chemicals -- I doubt those people get a good night's sleep. How could

they??

[Guest guest]

I agree with what Dr. Ann says about

hypoglycemia being the cause of some insomnia. It's

just logical that if you eat sugary junk before

bedtime that during the night you will experience low

blood sugar which would then wake you up. We try and

eat a handful of raw almonds before bedtime. It sure

seems to help and it was Ann that suggested it.

Jay

--- glitterari@... wrote:

>

> In a message dated 11/27/2005 11:57:28 AM Pacific

> Standard Time,

> SSRI medications writes:

>

>

> I wonder if poor nutrition can also lead to sleep

> disturbance, and then

> to depression.

>

>

>

>

> Look at the people who consume 10- 12 cups of coffee

> a day, or drink a six

> pack of some poisonous diet soda, or eat tons of

> sugar, and other foods loaded

> with chemicals -- I doubt those people get a good

> night's sleep. How could

> they??

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

Music Unlimited

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[Guest guest]

As you know...

We now know that (despite some psych experts' claims to the

contrary) sleep dreaming (and associated involuntary rapid eye

movement) have real physical benefits and that REM deprivation can

come as a result of numerous causes (alone or in combination), the

question more clearly becomes as follows...

Does the combination of REM deprivation causes result

in " unrelenting " REM deprivation during sleep?

If REM deprivation is not " unrelenting " , then the body/brain has a

way of allowing unusually vivid/active dreaming and rapid eye

movement during " breakthrough " REM sleep dreaming.

>

>

> In a message dated 11/27/2005 11:57:28 AM Pacific Standard Time,

> SSRI medications writes:

>

>

> I wonder if poor nutrition can also lead to sleep disturbance,

and then

> to depression.

>

>

>

>

> Look at the people who consume 10- 12 cups of coffee a day, or

drink a six

> pack of some poisonous diet soda, or eat tons of sugar, and other

foods loaded

> with chemicals -- I doubt those people get a good night's sleep.

How could

> they??

>

>

>

[Guest guest]

As you know...

We now know that (despite some psych experts' claims to the

contrary) sleep dreaming (and associated involuntary rapid eye

movement) have real physical benefits and that REM deprivation can

come as a result of numerous causes (alone or in combination), the

question more clearly becomes as follows...

Does the combination of REM deprivation causes result

in " unrelenting " REM deprivation during sleep?

If REM deprivation is not " unrelenting " , then the body/brain has a

way of allowing unusually vivid/active dreaming and rapid eye

movement during " breakthrough " REM sleep dreaming.

>

>

> In a message dated 11/27/2005 11:57:28 AM Pacific Standard Time,

> SSRI medications writes:

>

>

> I wonder if poor nutrition can also lead to sleep disturbance,

and then

> to depression.

>

>

>

>

> Look at the people who consume 10- 12 cups of coffee a day, or

drink a six

> pack of some poisonous diet soda, or eat tons of sugar, and other

foods loaded

> with chemicals -- I doubt those people get a good night's sleep.

How could

> they??

>

>

>

[Guest guest]

As you know...

We now know that (despite some psych experts' claims to the

contrary) sleep dreaming (and associated involuntary rapid eye

movement) have real physical benefits and that REM deprivation can

come as a result of numerous causes (alone or in combination), the

question more clearly becomes as follows...

Does the combination of REM deprivation causes result

in " unrelenting " REM deprivation during sleep?

If REM deprivation is not " unrelenting " , then the body/brain has a

way of allowing unusually vivid/active dreaming and rapid eye

movement during " breakthrough " REM sleep dreaming.

>

>

> In a message dated 11/27/2005 11:57:28 AM Pacific Standard Time,

> SSRI medications writes:

>

>

> I wonder if poor nutrition can also lead to sleep disturbance,

and then

> to depression.

>

>

>

>

> Look at the people who consume 10- 12 cups of coffee a day, or

drink a six

> pack of some poisonous diet soda, or eat tons of sugar, and other

foods loaded

> with chemicals -- I doubt those people get a good night's sleep.

How could

> they??

>

>

>