infections

[Guest guest]

Hi Tami,

Please call your OS!!! & explain your situation!!!!...Before my TKR

last February, I went to a Dentist to get my 'painful tooth' fixed,

and I told him that I was going in for a TKR the next week and was

worried about an 'infection'...

My Dentist did a temporary fix of my mouth...

Antibiotics took care of the rest.....

But please, please, please!!! Make a few phone calls to make sure

that your OS & your Dentist are on the same page...!!!

I think that you'll be fine if you can get your Dentist & OS

together...

But if you can't,,,,Then postpone the TKR!!!...Until you get your

tooth fixed!!!!

Bob

P.S...Maybe I'm wrong????....Other opinions are appreciated,,but Tami

is on a deadline here...

>

> I am having TKR in one week and got up this morning with an

impacted wisdom tooth. They cant pull it yet but put me on

antibiotics.

>

> Tami

> Re: Infections

>

>

>

> In a message dated 9/19/2006 4:48:26 P.M. Central Daylight Time,

Pets007@... writes:

>

> In a message dated 9/19/2006 5:25:12 PM Eastern Standard Time,

rshannonhouse@... writes:

> do I need to

> mildly panic here? Is it dangerous to have any infection in

your body

> with a TKR?

>

> I had my TKR 4 weeks ago and last week I came down with a

urinary tract infection...the Doctor said not to worry, that it will

not spread to the knee and gave me 5 days of antibiotics to

take.....I was the same way you are....I panicked right away!

>

> Hi, I've wondered about all of these things also, they just

haven't happened to me yet.

>

[Guest guest]

You need to talk to your OS about this. They are VERY careful to

protect from bone infection. They may find it necessary to postpone

the surgery.

On Sep 19, 2006, at 3:30 PM, Tami wrote:

> I am having TKR  in one week and got up this morning with an impacted

> wisdom tooth.  They cant pull it yet but put me on antibiotics. 

>  

> Tami

>> Re: Infections

>>

>>

>>

>> In a message dated 9/19/2006 4:48:26 P.M. Central Daylight Time,

>> Pets007@... writes:

>>>

>>>

>>> In a message dated 9/19/2006 5:25:12 PM Eastern Standard Time,

>>> rshannonhouse@... writes:

>>>> do I need to

>>>> mildly panic here?  Is it dangerous to have any infection in your

>>>> body

>>>> with a TKR?

>>> I had my TKR 4 weeks ago and last week I came down with a urinary

>>> tract infection...the Doctor said not to worry, that it will not

>>> spread to the knee and gave me 5 days of antibiotics to take.....I

>>> was the same way you are....I panicked right away! 

>>>   Hi, I've wondered about all of these things also, they just

>>> haven't happened to me yet.  

>>

>>

>

The cross is the only ladder high enough to touch Heaven's threshold.

[Guest guest]

the test results haven't come back yet, just the blood work.

They are still waiting on the report about the fluid they

sucked out of my knee. that had to go to an independent lab in the cities.

I have an appt with my new OS on Thursday. I'm going

to be really mad if I drive all the way to Waconia and

it isn't back yet. They won't tell you anything over the phone...pain in the butt hassle.

You can bet your sweet bippy my old hoity toiti OS

is going to get an earful about not picking up on this

and just giving me cortisone pills which I knew was

the wrong thing...gut instinct I guess.

Today I went to a podiatrist. I've got weird thick broken

toenails and thought I had the problem with a fungus under the nail and that could have been the cause of the

infection but he said no I don't have the fungus just an

inherited problem I have to live with. I remember my

aunt who raised me had to go into a podiatrist monthly

when I was really little but never knew why...to young

to care.

Sherry

Infections

I'm 11 weeks post-TKR surgery and I've got a sinus infection. Since I had to have antibiotics just to get my teeth cleaned, do I need to mildly panic here? Is it dangerous to have any infection in your body with a TKR?It seems to be getting better, but do I need to go see the doctor anyway? What's the risk here?Robbie

[Guest guest]



Yep, that is why I have to have the prosthesis removed for a few weeks

and reinstalled. I can't wait, it sounds like such fun..snarl, growl.

Sherry

Re: Infections

The reason they give you antibiotics is to prevent you from bone infection not infections in the body.On Sep 19, 2006, at 12:42 PM, Robin house wrote:

I'm 11 weeks post-TKR surgery and I've got a sinus infection. Since I had to have antibiotics just to get my teeth cleaned, do I need to mildly panic here? Is it dangerous to have any infection in your body with a TKR?It seems to be getting better, but do I need to go see the doctor anyway? What's the risk here?Robbie"If you are all wrapped up in yourself, you are overdressed."

[Guest guest]

When my OS found out I was more or less scheduled to get 2 crowns replaced, he said do it before the operation. However, it was elective -- I don't have an infection -- so he said it was OK to wait (otherwise it would have put off the surgery, which I didn't want to do). But if I'd had a toothache or something, and I'm thinking even gum disease (but I just made that up), it would be important to get it fixed before the surgery.

I think we're lucky that they know now that dental work can cause infection in implants. Imagine how many people got infections before they knew that.

Ann

Re: Infections> > > > In a message dated 9/19/2006 4:48:26 P.M. Central Daylight Time, Pets007@... writes:> > In a message dated 9/19/2006 5:25:12 PM Eastern Standard Time, rshannonhouse@... writes:> do I need to > mildly panic here? Is it dangerous to have any infection in your body > with a TKR?> > I had my TKR 4 weeks ago and last week I came down with a urinary tract infection...the Doctor said not to worry, that it will not spread to the knee and gave me 5 days of antibiotics to take.....I was the same way you are....I panicked right away! > > Hi, I've wondered about all of these things also, they just haven't happened to me yet. >

[Guest guest]

---My OS didn't want me to have any dental work done for 6 weeks

prior to or after my hip resurfacing. ..... Maxine

In Joint Replacement , " know_jack "

<know_jack@...> wrote:

>

> Hi Tami,

>

> Please call your OS!!! & explain your situation!!!!...Before my

TKR

> last February, I went to a Dentist to get my 'painful tooth'

fixed,

> and I told him that I was going in for a TKR the next week and was

> worried about an 'infection'...

>

> My Dentist did a temporary fix of my mouth...

>

> Antibiotics took care of the rest.....

>

> But please, please, please!!! Make a few phone calls to make sure

> that your OS & your Dentist are on the same page...!!!

>

> I think that you'll be fine if you can get your Dentist & OS

> together...

>

> But if you can't,,,,Then postpone the TKR!!!...Until you get your

> tooth fixed!!!!

>

> Bob

>

> P.S...Maybe I'm wrong????....Other opinions are appreciated,,but

Tami

> is on a deadline here...

>

>

> >

> > I am having TKR in one week and got up this morning with an

> impacted wisdom tooth. They cant pull it yet but put me on

> antibiotics.

> >

> > Tami

> > Re: Infections

> >

> >

> >

> > In a message dated 9/19/2006 4:48:26 P.M. Central Daylight

Time,

> Pets007@ writes:

> >

> > In a message dated 9/19/2006 5:25:12 PM Eastern Standard

Time,

> rshannonhouse@ writes:

> > do I need to

> > mildly panic here? Is it dangerous to have any infection

in

> your body

> > with a TKR?

> >

> > I had my TKR 4 weeks ago and last week I came down with a

> urinary tract infection...the Doctor said not to worry, that it

will

> not spread to the knee and gave me 5 days of antibiotics to

> take.....I was the same way you are....I panicked right away!

> >

> > Hi, I've wondered about all of these things also, they just

> haven't happened to me yet.

> >

>

[Guest guest]

My OS said that bone infections are very hard to get rid of and some

don't get rid of them and it could mean loosing a limb.On Sep 19, 2006,

at 5:17 PM, know_jack wrote:

> Hi Tami,

>

> Please call your OS!!! & explain your situation!!!!...Before my TKR

> last February, I went to a Dentist to get my 'painful tooth' fixed,

> and I told him that I was going in for a TKR the next week and was

> worried about an 'infection'...

>

> My Dentist did a temporary fix of my mouth...

>

> Antibiotics took care of the rest.....

>

> But please, please, please!!! Make a few phone calls to make sure

> that your OS & your Dentist are on the same page...!!!

>

> I think that you'll be fine if you can get your Dentist & OS

> together...

>

> But if you can't,,,,Then postpone the TKR!!!...Until you get your

> tooth fixed!!!!

>

> Bob

>

> P.S...Maybe I'm wrong????....Other opinions are appreciated,,but Tami

> is on a deadline here...

>

>

> >

> > I am having TKR in one week and got up this morning with an

> impacted wisdom tooth. They cant pull it yet but put me on

> antibiotics.

> >

> > Tami

> > Re: Infections

> >

> >

> >

> > In a message dated 9/19/2006 4:48:26 P.M. Central Daylight Time,

> Pets007@... writes:

> >

> > In a message dated 9/19/2006 5:25:12 PM Eastern Standard Time,

> rshannonhouse@... writes:

> > do I need to

> > mildly panic here? Is it dangerous to have any infection in

> your body

> > with a TKR?

> >

> > I had my TKR 4 weeks ago and last week I came down with a

> urinary tract infection...the Doctor said not to worry, that it will

> not spread to the knee and gave me 5 days of antibiotics to

> take.....I was the same way you are....I panicked right away!

> >

> > Hi, I've wondered about all of these things also, they just

> haven't happened to me yet.

> >

>

>

" If God brings you to it He will bring you through it. "

[Guest guest]

I have no idea. The doctor said it happens about one in

every 300 surgeries but usually a short time after the surgery not 9 months out like this. I wonder if the prosthesis is broken or something. I haven't fallen but

I've read a few horror stories about them coming apart

for no known reason also cases where the cement

doesn't bond. none of this shows up on X-ray ...

odd. I'll find out and if the prosthesis is faulty yes I will

sue. This has taken another year out of my life. I had

planned to have TG here this year as I assumed I'd feel

great...this is great allright.

Sherry

Re: Infections

In a message dated 9/19/2006 6:38:42 PM Eastern Standard Time, blueopalhutchtel (DOT) net writes:

at home then back to the hospital

for surgery to replace knee again. Mine isn't due to dental

however.

How did you get an infection???

[Guest guest]

My family has very poor teeth. I've always wanted to

get all my filling removed and replaced with something

without mercury. I think if I won the lottery that is

what I would do. It takes a special DDS though and

your DDS will not tell you that silver fillings are loaded

with mercury. Lots of people have had this done and

relieved a lot of health problems among them arthritis.

Sherry

Re: Infections> > > > In a message dated 9/19/2006 4:48:26 P.M. Central Daylight Time, Pets007@... writes:> > In a message dated 9/19/2006 5:25:12 PM Eastern Standard Time, rshannonhouse@... writes:> do I need to > mildly panic here? Is it dangerous to have any infection in your body > with a TKR?> > I had my TKR 4 weeks ago and last week I came down with a urinary tract infection...the Doctor said not to worry, that it will not spread to the knee and gave me 5 days of antibiotics to take.....I was the same way you are....I panicked right away! > > Hi, I've wondered about all of these things also, they just haven't happened to me yet. >

[Guest guest]

My band wasn't affected, just the port. And, actually, the port wasn't infected, the infection was just under the skin but the we discovered the port was damaged by the doctor when she attempted the unfill. Because the infection would not clear up over several months and after taking numerous rounds of antibiotics, Dr. Aceves felt it best to remove the port temporarily, let the infection heal, and then put in a new port. He was right. He removed the port and the infection/drainage is completely gone and healed. I will get a new port put in early this summer. My band is fine. Jennirenoalaska <renoalaska@...> wrote: I can understand how a person could get an infection from a needle poke but would someone explain to me how this could possibly affect the band since even it some bacteria got injected into the lapband it would not matter since it would be just sitting in the saline solution & can't get out to the rest of your body. Steve

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

It doesn't, since the band has no blood flow of its own infection around the band is extremely hard to get rid of sometimes. The band or part of it (depending on if the infection travels up the band) has to be removed so the infection can heal.

On 4/12/07, renoalaska <renoalaska@...> wrote:

I can understand how a person could get an infection from a needle poke but would someone explain to me how this could possibly affect the band since even it some bacteria got injected into the lapband it would not matter since it would be just sitting in the saline solution & can't get out to the rest of your body. Steve

[Guest guest]

My girlfriend has an infection in the ankle bone that has been there

for many years. It flares up once in awhile, about every few months,

then she uses godzilla on it and it's gone overnight. She used to

have surgery for it every few years when antibiotics did not work,

and afterwards she would have to use crutches for weeks. She gets

free healthcare, but even so this was a bad situation. Hers is

called osteomyelitis, meaning a bone infection basically. They never

quite go away. But the godzilla controls it easily and the attacks

are getting less frequent.

The way I look at it, no pain.... no pain!

bG

>

> I just had dinner with a lady who recently lost her husband, due to

an infection in a knee that had been replaced some years ago. I was

not aware that replaced joints attract infections, even many years

later. It was evidently not an infection from the surgery. She said

that he had been treated for an infection in the same knee two years

ago.

>

> Too bad that they did not know about Godzilla, which is very good

for treating localized infections. Could have saved his life. We'll

never know.

>

> Dick

>

>

>

[Guest guest]

I do not know about that. There are some metal (I think titanium) parts in that

replaced joint and you can not apply current/heat pads over it.I am ,almost,

positive that was one of the questions on a board exam.

Someone should be very careful to apply current to patients with heart

condition,pacemakers and any other medical implants. We do not know what can

happenned, there is not enough data on this subject and as far as I know it vary

from case to case. But you do not want to be blamed if something goes wrong.

fred

> From: Dick Rochon <rrochon13@...>

> Subject: infections

>

> Date: Monday, June 23, 2008, 1:45 PM

> I just had dinner with a lady who recently lost her husband,

> due to an infection in a knee that had been replaced some

> years ago. I was not aware that replaced joints attract

> infections, even many years later. It was evidently not an

> infection from the surgery. She said that he had been

> treated for an infection in the same knee two years ago.

>

> Too bad that they did not know about Godzilla, which is

> very good for treating localized infections. Could have

> saved his life. We'll never know.

>

> Dick

>

>

>

[Guest guest]

Our experience as with many others is that it will take 6-12 months to get her

immune system to a better state. Her body has to rebuild after years of lacking.

My son still gets sinus infections after 9 years on Gamma globulin but they now

clear up with a good course of antibiotics and he does not get as sick either.

Also a rash is not normal but if it is like a redness or irritation that can be

normal until the body gets use having the Vivoglobin infused. But you might want

to think about whether it is from something you might have put on it like Emla

or a cleanser or what. Or even possibly soap from her bath after her infusion. I

would put a bit of cortisone cream on it ( OTC) and see if it goes away. We have

always used the lower back and love handles area and it has more fat so have had

almost no problems with infusions. We also use Gammunex rather than Vivoglobin.

BARBIE

________________________________

From: le Mina <daniellemina@...>

Sent: Tuesday, October 28, 2008 12:28:08 AM

Subject: Infections

Tristen has had 4 sub q infusions now, she was " healthy " for 2 months after

having sinus cleaning surgery and being on augmentin prophylaxis. She now

has her first sinus infection being on vivaglobin, just wondering how many

infections is " normal " while doing sub q and do they last as long as they

used to? She was put on Biaxin for 10-20 days, depending on how long it

takes her to clear up, but it's been 6 days and she still seems to be the

same. I'm new to all of this and still trying to figure it out.

And my other question.Tristen picked her infusion on her thigh the past 2

weeks, this week she seemed to have a large red rash on her leg that lasted

for about 4 days. Is that normal?

Thanks,

le

[Guest guest]

Hi le,

It does take some time to get infections under control. We found that things

just slowly got better over time and didn't even realize it until we looked back

at the number of illnesses. It might be helpful to note illnesses on the

calendar so that you can see if the pattern decreases. Obviously she will still

get sick, just as people with a normal immune system do, but hopefully they will

become much easier to treat and less often.

As for the rash, I would say that is not normal. I would talk to the immuno

about it.

Hang in there!

(NEMO carrier)

Mom to Hayden (14-unknown PID)

Evan (14-unknown PID)

Conner (14-NEMO; transplanted 8/17/07)

Kelsey (12-unknown PID and NEMO carrier)

Wife to (unknown PID)

www.caringbridge.org/visit/smithkids

[Guest guest]

I think that it is relatively unusual.

First, is his neutrophil count very low? If so, there are things you can do to remedy that.

Second, IvIG might help.

Third, I hate to say this, but maybe the hospital and the nurses are being sloppy.

Fourth, what chemo is he getting, and where?

In a message dated 8/13/2009 2:30:46 P.M. Eastern Daylight Time, db65109@... writes:

My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all this very abnormal or it is just part of the process?

Thanks for the info.bsmith

[Guest guest]

His lg level is 598 they say they do not infuse unless lot lower. His chemo was what they call {chrop} i think he was only able to have one dose. I'm not sure all the drug names. I'll have to ask about neutrophil count.

From: "jb50192@..." <jb50192@...> Sent: Thursday, August 13, 2009 4:35:18 PMSubject: Re: infections

I think that it is relatively unusual.

First, is his neutrophil count very low? If so, there are things you can do to remedy that.

Second, IvIG might help.

Third, I hate to say this, but maybe the hospital and the nurses are being sloppy.

Fourth, what chemo is he getting, and where?

In a message dated 8/13/2009 2:30:46 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all this very abnormal or it is just part of the process?

Thanks for the info.bsmith

[Guest guest]

Your husband's situation is peculiar in several respects. First, all the infections you mentioned. Second, it is unusual to be diagnosed with and be given RCHOP one month later. Cllsll is usually treated otherwise, certainly at the beginning of the disease. Where is he being treated? Did you get competent opinions? Would you consider a second opinion? I can't help thinking that either the treatment is peculiar, or that there is more involved than you or we know.

In a message dated 8/13/2009 7:08:09 P.M. Eastern Daylight Time, db65109@... writes:

His lg level is 598 they say they do not infuse unless lot lower. His chemo was what they call {chrop} i think he was only able to have one dose. I'm not sure all the drug names. I'll have to ask about neutrophil count.

From: "jb50192aol" <jb50192aol> Sent: Thursday, August 13, 2009 4:35:18 PMSubject: Re: infections

I think that it is relatively unusual.

First, is his neutrophil count very low? If so, there are things you can do to remedy that.

Second, IvIG might help.

Third, I hate to say this, but maybe the hospital and the nurses are being sloppy.

Fourth, what chemo is he getting, and where?

In a message dated 8/13/2009 2:30:46 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all this very abnormal or it is just part of the process?

Thanks for the info.bsmith

[Guest guest]

Hello again - hard to say without more info

CHOP is a fairly harsh treatment and I would think it possible to get infections as it interferes with your immune system

I still think that IvIG might help

But the whole sequence of events is difficult to understand. Diagnosed with in April, CHOP in May....

Ask your doc about what he thinks about using FCR (fludarabine, cyclophosphamide, rituxan) of FR (no cyclophosphamide)

In a message dated 8/14/2009 10:24:06 A.M. Eastern Daylight Time, db65109@... writes:

I will have to make sure on the treatment it might be chop. He is stage 4 and he has a spot on his lung that they hope is lymphoma that has went to his lung . He has not had it biopsied yet because of the location of the tumor, his blood work is not showing signs of lung cancer. The reason I'm not sure about the treatment is that he only had one treatment before all the infections started, treatments can not be started again till clear by infection doctor.

month lapse was due to seeing the new doctor and getting pet scan before treatment.

From: "jb50192aol" <jb50192aol> Sent: Friday, August 14, 2009 8:48:03 AMSubject: Re: infections

Your husband's situation is peculiar in several respects. First, all the infections you mentioned. Second, it is unusual to be diagnosed with and be given RCHOP one month later. Cllsll is usually treated otherwise, certainly at the beginning of the disease. Where is he being treated? Did you get competent opinions? Would you consider a second opinion? I can't help thinking that either the treatment is peculiar, or that there is more involved than you or we know.

In a message dated 8/13/2009 7:08:09 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

His lg level is 598 they say they do not infuse unless lot lower. His chemo was what they call {chrop} i think he was only able to have one dose. I'm not sure all the drug names. I'll have to ask about neutrophil count.

From: "jb50192aol (DOT) com" <jb50192aol (DOT) com>groups (DOT) comSent: Thursday, August 13, 2009 4:35:18 PMSubject: Re: infections

I think that it is relatively unusual.

First, is his neutrophil count very low? If so, there are things you can do to remedy that.

Second, IvIG might help.

Third, I hate to say this, but maybe the hospital and the nurses are being sloppy.

Fourth, what chemo is he getting, and where?

In a message dated 8/13/2009 2:30:46 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all this very abnormal or it is just part of the process?

Thanks for the info.bsmith

[Guest guest]

There are several reasons why CLL patients develop recurrent infections.

Chemotherapy and low antibody levels in the blood are the two most common. In

patients who have recurrent infections, or a life-threatening infection, IV Ig

infusions are indicated. IV Ig (gammaglobulin) are antibodies taken from blood

donors meant to replace the antibodies missing in patients. They need to be

administered on an on-going basis and do a great deal to help prevent further

infections.

Rick Furman

>

> My husband was diagnosed with cll sll in April had his first chemo in mid may

on a Tues. was in the hospital by Sun with a blood infection . He has had 3

blood infections, bladder infection, double pneumonia, now an infection of

surgically placed iv line. Is all this very abnormal or it is just part of the

process?

> Thanks for the info.bsmith

>

[Guest guest]

I will have to make sure on the treatment it might be chop. He is stage 4 and he has a spot on his lung that they hope is lymphoma that has went to his lung . He has not had it biopsied yet because of the location of the tumor, his blood work is not showing signs of lung cancer. The reason I'm not sure about the treatment is that he only had one treatment before all the infections started, treatments can not be started again till clear by infection doctor.

month lapse was due to seeing the new doctor and getting pet scan before treatment.

From: "jb50192@..." <jb50192@...> Sent: Friday, August 14, 2009 8:48:03 AMSubject: Re: infections

Your husband's situation is peculiar in several respects. First, all the infections you mentioned. Second, it is unusual to be diagnosed with and be given RCHOP one month later. Cllsll is usually treated otherwise, certainly at the beginning of the disease. Where is he being treated? Did you get competent opinions? Would you consider a second opinion? I can't help thinking that either the treatment is peculiar, or that there is more involved than you or we know.

In a message dated 8/13/2009 7:08:09 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

His lg level is 598 they say they do not infuse unless lot lower. His chemo was what they call {chrop} i think he was only able to have one dose. I'm not sure all the drug names. I'll have to ask about neutrophil count.

From: "jb50192aol (DOT) com" <jb50192aol (DOT) com>groups (DOT) comSent: Thursday, August 13, 2009 4:35:18 PMSubject: Re: infections

I think that it is relatively unusual.

First, is his neutrophil count very low? If so, there are things you can do to remedy that.

Second, IvIG might help.

Third, I hate to say this, but maybe the hospital and the nurses are being sloppy.

Fourth, what chemo is he getting, and where?

In a message dated 8/13/2009 2:30:46 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all this very abnormal or it is just part of the process?

Thanks for the info.bsmith

[Guest guest]

His lg level was 598 at what level would someone get infused? I was told that the level would have to get alot lower. Is this not true?

From: rrfman <rrfurman@...> Sent: Friday, August 14, 2009 6:48:49 AMSubject: Re: infections

There are several reasons why CLL patients develop recurrent infections. Chemotherapy and low antibody levels in the blood are the two most common. In patients who have recurrent infections, or a life-threatening infection, IV Ig infusions are indicated. IV Ig (gammaglobulin) are antibodies taken from blood donors meant to replace the antibodies missing in patients. They need to be administered on an on-going basis and do a great deal to help prevent further infections.Rick Furman>> My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all

this very abnormal or it is just part of the process?> Thanks for the info.bsmith>

[Guest guest]

Sorry to say I was wrong about what treatment he was given in May. My husband was given crop Cytoxan,Rituxan,Oncovin,Prednisone. He is being treated at Capitol Comprehensive Cancer Clinic & Research Institute. He is being treated at St 's Hospitol in Jefferson City ,MO for his infections.He had a bad UTI infection a couple of weeks before this treatment and was not retested before this treatment. I think it is possible it had already went to his blood before the treatment and the it just made every thing go crazy.

From: "jb50192@..." <jb50192@...> Sent: Friday, August 14, 2009 10:37:50 AMSubject: Re: infections

Hello again - hard to say without more info

CHOP is a fairly harsh treatment and I would think it possible to get infections as it interferes with your immune system

I still think that IvIG might help

But the whole sequence of events is difficult to understand. Diagnosed with in April, CHOP in May....

Ask your doc about what he thinks about using FCR (fludarabine, cyclophosphamide, rituxan) of FR (no cyclophosphamide)

In a message dated 8/14/2009 10:24:06 A.M. Eastern Daylight Time, db65109 (DOT) com writes:

I will have to make sure on the treatment it might be chop. He is stage 4 and he has a spot on his lung that they hope is lymphoma that has went to his lung . He has not had it biopsied yet because of the location of the tumor, his blood work is not showing signs of lung cancer. The reason I'm not sure about the treatment is that he only had one treatment before all the infections started, treatments can not be started again till clear by infection doctor.

month lapse was due to seeing the new doctor and getting pet scan before treatment.

From: "jb50192aol (DOT) com" <jb50192aol (DOT) com>groups (DOT) comSent: Friday, August 14, 2009 8:48:03 AMSubject: Re: infections

Your husband's situation is peculiar in several respects. First, all the infections you mentioned. Second, it is unusual to be diagnosed with and be given RCHOP one month later. Cllsll is usually treated otherwise, certainly at the beginning of the disease. Where is he being treated? Did you get competent opinions? Would you consider a second opinion? I can't help thinking that either the treatment is peculiar, or that there is more involved than you or we know.

In a message dated 8/13/2009 7:08:09 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

His lg level is 598 they say they do not infuse unless lot lower. His chemo was what they call {chrop} i think he was only able to have one dose. I'm not sure all the drug names. I'll have to ask about neutrophil count.

From: "jb50192aol (DOT) com" <jb50192aol (DOT) com>groups (DOT) comSent: Thursday, August 13, 2009 4:35:18 PMSubject: Re: infections

I think that it is relatively unusual.

First, is his neutrophil count very low? If so, there are things you can do to remedy that.

Second, IvIG might help.

Third, I hate to say this, but maybe the hospital and the nurses are being sloppy.

Fourth, what chemo is he getting, and where?

In a message dated 8/13/2009 2:30:46 P.M. Eastern Daylight Time, db65109 (DOT) com writes:

My husband was diagnosed with cll sll in April had his first chemo in mid may on a Tues. was in the hospital by Sun with a blood infection . He has had 3 blood infections, bladder infection, double pneumonia, now an infection of surgically placed iv line. Is all this very abnormal or it is just part of the process?

Thanks for the info.bsmith

[Guest guest]

Probably yes. But it is up to you and your doctor.

In a message dated 8/14/2009 8:41:52 P.M. Eastern Daylight Time, db65109@... writes:

[Guest guest]

"His lg level is 598 they say they do not infuse unless lot lower"

When I was undergoing treatment with Campath/HDMP I had IgIV every 3 weeks, the doctors did not like to see my levels of IgG come under 900. Sometimes we would delay the IV if numbers were ok, but others they would phone me to ask me to come if the results were lower.

regards

Chonette