Re: alternative to actos (for herx reactions)

[Guest guest]

> Also, would love to hear from anyone that found relief in other

forms

> from herx reactions. After my last rife treatment I had such severe

> herx reactions, I probably needed to go to the ER but was not

> confident they could help. How do you know whether to go and what

do

> you tell them? Nobody at Scripps seems to know anything about TBD's

> so what could they do to help? Due for another treatment tomorrow so

> I'm trying to prepare. Any suggestions would be most welcome.

Thanks!

>

My doctor recommended Singulair for herxing. I take it twice a day

and it definitely helps.

As far as your rife sessions, try a shorter session this time and

build up slowly, even spacing the sessions out more days.

Remember, you want the herx to be gentle and gradual, not

overpowering.

As far as the ER, they are CLUELESS about Lyme and will probably try

and give you a steroid, liquid benadryl and zantax through an IV. Do

NOT allow the steroid! It will make things worse. Unfortunately,

I've learned to not go to the ER unless you think some thing else

major is wrong.

Steve

[Guest guest]

Hi,

I have used actos for the herxing and found it to help tremendously.

When I did not take it I had more reactions from herxing. I know the

metformin is generic for glucophage but I don't know if it will work.

Some people have mentioned chitosan does well but I haven't tried it. I

did try benedryl at night and found it helped also.

Hope you are feeling better soon.

>

> Hi Everyone- Does anyone in the group have any experience with actos?

> I was prescribed it for herx reactions and went to fill it and found

> it to be very expensive (over $400). My insurance won't authorize it

> but said that they would cover " metformin glipizide " instead. I know

> actos is used for something else (diabetes, i think). I'm wondering

> if this other drug would necessarily work as well for herx reactions.

> Curious if anyone knew.

>

> Also, would love to hear from anyone that found relief in other forms

> from herx reactions. After my last rife treatment I had such severe

> herx reactions, I probably needed to go to the ER but was not

> confident they could help. How do you know whether to go and what do

> you tell them? Nobody at Scripps seems to know anything about TBD's

> so what could they do to help? Due for another treatment tomorrow so

> I'm trying to prepare. Any suggestions would be most welcome. Thanks!

>

[Guest guest]

I posted this recently, but I've appointed myself the list's ad hoc

keeper of herx cures. (Anybody got any to add to this list? I'm glad

to keep it going, because everybody seems to need this info.)

So far, it looks like this:

Quercetin (my LLMD has me take 1000 mg with every abx dose)

Activated charcoal supplements

Magnesium citrate supplements

Vitamin C

Sarsparilla drops

Epsom salt baths (hot as you can stand)

FIR saunas

Everyday Detox herbal tea from Traditional Medicinals

Lots of water

Avoid additional B12 until things calm down, because this may

accelerate the herx process.

All this stuff is available at any decent health food store, or Whole

Foods.

My own herxes always hit hardest in the morning -- I wake up paralyzed

and achey from head to toe, and often a little nauseous as well. Two

aspirin and a big glass of water do a lot to help me get started. I

have " sticky blood " or hypercoagulation problems that make it harder

for my blood to clear the crap (and a lot of us do; this is part of

the methylation collapse). Aspirin is nature's favorite blood thinner,

and so it really helps get the crud moving out.

Sara

On Nov 20, 2008, at 10:55 AM, nippernine09 wrote:

>

>> Also, would love to hear from anyone that found relief in other

> forms

>> from herx reactions. After my last rife treatment I had such severe

>> herx reactions, I probably needed to go to the ER but was not

>> confident they could help. How do you know whether to go and what

> do

>> you tell them? Nobody at Scripps seems to know anything about TBD's

>> so what could they do to help? Due for another treatment tomorrow so

>> I'm trying to prepare. Any suggestions would be most welcome.

> Thanks!

>>

> My doctor recommended Singulair for herxing. I take it twice a day

> and it definitely helps.

> As far as your rife sessions, try a shorter session this time and

> build up slowly, even spacing the sessions out more days.

> Remember, you want the herx to be gentle and gradual, not

> overpowering.

> As far as the ER, they are CLUELESS about Lyme and will probably try

> and give you a steroid, liquid benadryl and zantax through an IV. Do

> NOT allow the steroid! It will make things worse. Unfortunately,

> I've learned to not go to the ER unless you think some thing else

> major is wrong.

> Steve

>

>

> ------------------------------------

>

> The book, Cure Unknown: Inside the Lyme Epidemic by Pamela Weintraub

> is now

> available for purchase. Please visit the official website at

> http://cureunknown.com/index.html for more information.

>

[Guest guest]

Thanks Steve; will check out the singulair; and for anyone interested,

I did find actos for $87 through a canadian pharmacy vs. the $495 here.

>

>

> > Also, would love to hear from anyone that found relief in other

> forms

> > from herx reactions. After my last rife treatment I had such severe

> > herx reactions, I probably needed to go to the ER but was not

> > confident they could help. How do you know whether to go and what

> do

> > you tell them? Nobody at Scripps seems to know anything about TBD's

> > so what could they do to help? Due for another treatment tomorrow so

> > I'm trying to prepare. Any suggestions would be most welcome.

> Thanks!

> >

> My doctor recommended Singulair for herxing. I take it twice a day

> and it definitely helps.

> As far as your rife sessions, try a shorter session this time and

> build up slowly, even spacing the sessions out more days.

> Remember, you want the herx to be gentle and gradual, not

> overpowering.

> As far as the ER, they are CLUELESS about Lyme and will probably try

> and give you a steroid, liquid benadryl and zantax through an IV. Do

> NOT allow the steroid! It will make things worse. Unfortunately,

> I've learned to not go to the ER unless you think some thing else

> major is wrong.

> Steve

>

[Guest guest]

My best advice is to use over the counter Benadryl. You are having an

alergic reaction to the toxins when you are herxing so this takes the edge off

of

it. It its really bad I add one xanax with the Benadry. This may make you

sleepy but it beats the suffering. My best to all of you. I'm in my 13th

year.

Bev

In a message dated 11/22/2008 2:44:54 P.M. Eastern Standard Time,

srobinson@... writes:

I posted this recently, but I've appointed myself the list's ad hoc

keeper of herx cures. (Anybody got any to add to this list? I'm glad

to keep it going, because everybody seems to need this info.)

So far, it looks like this:

Quercetin (my LLMD has me take 1000 mg with every abx dose)

Activated charcoal supplements

Magnesium citrate supplements

Vitamin C

Sarsparilla drops

Epsom salt baths (hot as you can stand)

FIR saunas

Everyday Detox herbal tea from Traditional Medicinals

Lots of water

Avoid additional B12 until things calm down, because this may

accelerate the herx process.

All this stuff is available at any decent health food store, or Whole

Foods.

My own herxes always hit hardest in the morning -- I wake up paralyzed

and achey from head to toe, and often a little nauseous as well. Two

aspirin and a big glass of water do a lot to help me get started. I

have " sticky blood " or hypercoagulation problems that make it harder

for my blood to clear the crap (and a lot of us do; this is part of

the methylation collapse). Aspirin is nature's favorite blood thinner,

and so it really helps get the crud moving out.

Sara

[Guest guest]

Thanks, Sara, for your list of herx helpers.

My doctor also has me taking quercetin 500 mg 3 times a day, plus a

supplement called " FibroBoost " which is a powerful antioxidant

(SEANOL-F) based on seaweed. I take the FibroBoost 2 capsules 2 times a

day.

I am currently getting glutathione infusions for the severe neurological

herxing I have and am shortly going off of these. My doc has recommended

that when I stop the infusions I should add another supplement called

" Glutathione precursors " which is a mix of NAC, Glutamic acid and

Alpha-lipoic acid. I also take 2 tablespoons of glutamine and 3-4

tablespoons of whey protein once a day which is supposed to help the

body boost it's own production of glutathione.

Maureen

[Guest guest]

Bev,

I am a bit new to Lyme and I have a question for you...you say you are

in your 13th year, but are you still herxing? I have the impression that

the term herxing is for the flare that occurs when the antibiotics are

killing off the lyme. Or is it that if you can't beat the lyme and you

continue to have lyme symptoms, do you call that herxing too?

Maureen

[Guest guest]

Maureen,

Over the years I have felt good with a wonderful LLMD but last December I

stopped my drugs when I had my knee replaced. During the following 4-5 months

I was on pain killers during the healing and daily therapy. When I stopped

the pain pills my symptoms came back with a vengence. I tested positive so my

new Dr who is in the Hospital System put me on IV's. I'm in my 5th month

and its been rough. Guess the bacteria had a field day in my tissue's. I

also survived breast and lympnode cancer in " 82 with a year of Chemo so the

chemo probably totally distroyed my immune system. So.......... I'm a tough

patient to treat for doctors.

Yes, I am herxing again quite frequently. But I remember when those days

got better over time.

My faith is what keeps me going now. Stay strong and it will get better.

Bev in Michigan

In a message dated 11/23/2008 7:38:59 P.M. Eastern Standard Time,

havenner@... writes:

Bev,

I am a bit new to Lyme and I have a question for you...you say you are

in your 13th year, but are you still herxing? I have the impression that

the term herxing is for the flare that occurs when the antibiotics are

killing off the lyme. Or is it that if you can't beat the lyme and you

continue to have lyme symptoms, do you call that herxing too?

Maureen

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[Guest guest]

Hi everyone; I did find actos cheap at a canadian pharmacy (hope i can

trust them); does anyone know if I am supposed to take them everyday

or just as needed when herxing; my appt my with LLMD isn't for another

month so I thought I'd ask all you experts out there. Here's another

(really stupid) question: how do you know for sure if it's a herx or

not just the disease progressing? After my last rife treatment I was

so severely ill, I have no doubt it was a herx, but since I've learned

to take the treatments a little slower, I have bad days and really

bad days; just like before the treatments; is it herxing or just lyme?

>

> My best advice is to use over the counter Benadryl. You are having an

> alergic reaction to the toxins when you are herxing so this takes

the edge off of

> it. It its really bad I add one xanax with the Benadry. This may

make you

> sleepy but it beats the suffering. My best to all of you. I'm in

my 13th

> year.

> Bev

>

>

>

> In a message dated 11/22/2008 2:44:54 P.M. Eastern Standard Time,

> srobinson@... writes:

>

>

> I posted this recently, but I've appointed myself the list's ad hoc

> keeper of herx cures. (Anybody got any to add to this list? I'm glad

> to keep it going, because everybody seems to need this info.)

>

> So far, it looks like this:

>

> Quercetin (my LLMD has me take 1000 mg with every abx dose)

> Activated charcoal supplements

> Magnesium citrate supplements

> Vitamin C

> Sarsparilla drops

> Epsom salt baths (hot as you can stand)

> FIR saunas

> Everyday Detox herbal tea from Traditional Medicinals

> Lots of water

> Avoid additional B12 until things calm down, because this may

> accelerate the herx process.

>

> All this stuff is available at any decent health food store, or Whole

> Foods.

>

> My own herxes always hit hardest in the morning -- I wake up paralyzed

> and achey from head to toe, and often a little nauseous as well. Two

> aspirin and a big glass of water do a lot to help me get started. I

> have " sticky blood " or hypercoagulation problems that make it harder

> for my blood to clear the crap (and a lot of us do; this is part of

> the methylation collapse). Aspirin is nature's favorite blood thinner,

> and so it really helps get the crud moving out.

>

> Sara

>