Guest guest Posted June 3, 2005 Report Share Posted June 3, 2005 Although my Hep is not as advanced as many of you, and I don't have as many other health problems as many of you, I do have my own set of life problems that are a constant attack on me, as you all know. My reality is that I often wish I would die, but it is a passive thing ("God, please take me now") that is a much different feeling or desire than the one that allows us to actually take action on that thought or feeling to do ourselves harm. Faith is the ability to not panic. -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of Allan W Anger JrSent: Thursday, June 02, 2005 2:34 PMHepatitis CSupportGroupForDummies Subject: Re: Re: To Everyone - and Jon - Thank You Buddy Deb, I, for one, very much greatly appreciate your posts I am a veteran of multiple support groups and have always tried to be as open as I can. Sometimes it has backfired on me because I think that many DO NOT want to hear reality. A couple of years ago I sought refuge in hard drugs and wound up in a well known rehab program in NYC. It was my first experience of this type and my first experience in any kind of "group therapy". They encouraged me to open up and I did. Unfortunately they weren't ready for my thoughts and it wound up in a big to-do with the director of the program. I completed the program but in the end it was only a front end for AA. Three days after I left the program I OD'd. Since that time I searched for other programs that addressed my needs to no avail. I had a meeting with the head of another very well known program in NYC (he being a psych doc) along with 6 of his psych docs. To preface my story let me say that the only thing I have found that takes away all of my pain is heroin. Further, I must state that I AM NOT an addict, nor was I ever, nor am I a regular user. I put forth the notion that "support" programs rely on a person remaining clean, counting the days clean, etc., etc. I stated, given my life situation, should I take this route, until the very end of my existence when the only care would be palliative, i.e. all the morphine I wanted, was this to be my "reward"? Seven blank faces was the result. I further stated that if and when the time came that I could no longer "wipe my butt" with either hand that I felt nothing was wrong with the "Hemingway solution". Same seven blank faces. So much for "support". Your posts are the ONLY words I have seen (or heard) in the 13 years since I have been diagnosed that are "real". Real in the since that they come from the heart and they show an insightful understanding of our life situation with all that it entails. I remember coming to in ICU 4 days after my last attempt and my first thought was, "s**t, I'm still alive". Next week it will be 2 years since that day. Truthfully, I cannot say that I don't have thoughts from time to time. At this point, I'm at the stage where I don't think about wanting to die but I'm not yet at a point where I can say I have a strong "reason to live". I'm still here and that's it. I'm working on it. If people have a problem with that, oh well. It's not about giving up hope yada yada yada, it's about reality. So, if you're looking for people that will be open and real, you found one. I'm "as real as a heart attack" like it or not. "Real" people are rare and sometimes scary. Deal with it world. Keep up the good work, please. Allan with 2 L's Fasten Your Seat Belts Please Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 I never tried to do that because I forget that I have HC just when I see in the mirror or due to my age I prfer not to see me too close and too often LOL but it's a good idea to try and I'll let you know On 8/17/05, -varies- <metalix77@...> wrote: Theres something that has been nibbling away at my mind for the past few days, and I only just got the idea to post it and see what you guys and girls have to say about it.We all know that HC is genetic, usually inherited, and usually aquired at birth, but do we know exactly what HC is physically? I've read and heard a lot about pigmentations in the eye and refraction of light, but I think there might be a little bit more.We've been saying sometimes how our eyes sometimes changes colours, depending on our mood (which let me just figure out how my eyes work - green = serene/calm, orange = emotional), so maybe there is something more to that.I cannot know for sure, as I am no medical specialist nor do I have any means to test myself, but I think all HC is, is a variation in the pigmentation dispersion over the iris, which only becomes more apparant as the muscles in our eyes and the layer just over the eye change shape to refract light differently (whether its born in that shape or changed due to mood).Basically, what I'm trying to say is that I think that some of us with HC have the ability to change our own eye colours, which is kinda extraordinary to me. All we have to do is feel in a different mood, and our eyes change slightly to reflect on the mood, and the refraction in our eye causes a different colour to appear on our iris.Well that's my theory, Angel's theory of Variable Heterochromia. Let's see what you think. ;pAngel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 It is probably true that the angle at which light reflects off the surfaces of our irises does have something to do with how dark or light our eye color is, and because even a " normal " iris has, for example, a slightly darker shade around the ring of the pupil than around the edges or vice versa, even people without Heterochromia get different reactions as to what color their eyes are at different times. My boyfriend's eyes are both a beautiful smokey blue, for example, but I've seen them be a fairly obvious green, as well. My right eye is blue to me most of the time but others have said they see a light green too. Another thing that changes our perception of eye color is the presence of other colors nearby. This is why some people with light blue eyes may appear to have grey eyes when they are wearing a vibrant blue, or their eyes look greenish when they have green or yellow on. As an extension of this, when you are mad, upset, angry, sad, etc, sometimes the whites of your eyes become pink or red, especially if we cry. I have known this to make my differences in eye color stand out and make it impossible to overlook. For women, eye makeup tends to make Heterochromia more noticeable as well. Anything that emphasises and draws attention to the eyes, such as mascara or eyeliner makes them more noticible. This could relate to the perception of the color of the irises, just as wearing a different colored shirt or dress would, as i stated above. I would be interested to find out if the women who wrote to the list several months ago looking for suggestions on makeup that would help their eyes be *less* noticeable ever found anything that worked for them, as my experience with eye makeup is that it emphasises eyecolor instead of hiding it. Anyway, these are just my thoughts. Feel free to discuss and/or dissagree. I'm not sure it fits as a medical or scientific term, but I do like the phrase Variable Heterochromia, Angel. ______________________________________ Kathleen Quoting -varies- <metalix77@...>: > Theres something that has been nibbling away at my mind for the past > few days, and I only just got the idea to post it and see what you > guys and girls have to say about it. > > We all know that HC is genetic, usually inherited, and usually > aquired at birth, but do we know exactly what HC is physically? I've > read and heard a lot about pigmentations in the eye and refraction > of light, but I think there might be a little bit more. > > We've been saying sometimes how our eyes sometimes changes colours, > depending on our mood (which let me just figure out how my eyes > work - green = serene/calm, orange = emotional), so maybe there is > something more to that. > > I cannot know for sure, as I am no medical specialist nor do I have > any means to test myself, but I think all HC is, is a variation in > the pigmentation dispersion over the iris, which only becomes more > apparant as the muscles in our eyes and the layer just over the eye > change shape to refract light differently (whether its born in that > shape or changed due to mood). > > Basically, what I'm trying to say is that I think that some of us > with HC have the ability to change our own eye colours, which is > kinda extraordinary to me. All we have to do is feel in a different > mood, and our eyes change slightly to reflect on the mood, and the > refraction in our eye causes a different colour to appear on our > iris. > > Well that's my theory, Angel's theory of Variable Heterochromia. > Let's see what you think. ;p > > Angel > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2005 Report Share Posted August 17, 2005 That can be true too, so we just hav to try to change our mood in front of the mirror and see what happens waring the same colour, not to make changes . So it's worth to try and if it don't work so it will depend as you say of the light and colours we were On 8/17/05, <amianda@...> wrote: It is probably true that the angle at which light reflects off the surfaces ofour irises does have something to do with how dark or light our eye color is, and because even a " normal " iris has, for example, a slightly darker shadearound the ring of the pupil than around the edges or vice versa, even peoplewithout Heterochromia get different reactions as to what color their eyes are at different times. My boyfriend's eyes are both a beautiful smokey blue, forexample, but I've seen them be a fairly obvious green, as well. My right eyeis blue to me most of the time but others have said they see a light green too.Another thing that changes our perception of eye color is the presence of othercolors nearby. This is why some people with light blue eyes may appear to havegrey eyes when they are wearing a vibrant blue, or their eyes look greenish whenthey have green or yellow on.As an extension of this, when you are mad, upset, angry, sad, etc, sometimes thewhites of your eyes become pink or red, especially if we cry. I have known this to make my differences in eye color stand out and make it impossible tooverlook.For women, eye makeup tends to make Heterochromia more noticeable as well.Anything that emphasises and draws attention to the eyes, such as mascara or eyeliner makes them more noticible. This could relate to the perception of thecolor of the irises, just as wearing a different colored shirt or dress would,as i stated above. I would be interested to find out if the women who wrote tothe list several months ago looking for suggestions on makeup that would helptheir eyes be *less* noticeable ever found anything that worked for them, as myexperience with eye makeup is that it emphasises eyecolor instead of hiding it.Anyway, these are just my thoughts. Feel free to discuss and/or dissagree.I'm not sure it fits as a medical or scientific term, but I do like the phraseVariable Heterochromia, Angel. ______________________________________ Kathleen Quoting -varies- <metalix77@...>: > Theres something that has been nibbling away at my mind for the past> few days, and I only just got the idea to post it and see what you> guys and girls have to say about it.>> We all know that HC is genetic, usually inherited, and usually > aquired at birth, but do we know exactly what HC is physically? I've> read and heard a lot about pigmentations in the eye and refraction> of light, but I think there might be a little bit more.> > We've been saying sometimes how our eyes sometimes changes colours,> depending on our mood (which let me just figure out how my eyes> work - green = serene/calm, orange = emotional), so maybe there is > something more to that.>> I cannot know for sure, as I am no medical specialist nor do I have> any means to test myself, but I think all HC is, is a variation in> the pigmentation dispersion over the iris, which only becomes more > apparant as the muscles in our eyes and the layer just over the eye> change shape to refract light differently (whether its born in that> shape or changed due to mood).>> Basically, what I'm trying to say is that I think that some of us > with HC have the ability to change our own eye colours, which is> kinda extraordinary to me. All we have to do is feel in a different> mood, and our eyes change slightly to reflect on the mood, and the > refraction in our eye causes a different colour to appear on our> iris.>> Well that's my theory, Angel's theory of Variable Heterochromia.> Let's see what you think. ;p>> Angel >>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 Truly, 4.5 mg LDN nightly should be out of the system fairly quickly once in the hospital and no longer taking it. My husband began to respond very well to morphine around 2 p.m. after taking LDN at 10:00 p.m. the night before. While in hospital, he took no LDN and responded to morphine normally. Now, that said... If the doctors decided NOT to give someone on LDN any pain medications -- out of plain ignorance that the meds wouldn't work because of the LDN -- that could be the reason the person had to experience a lot of pain! ~ d >>come now I have just got off a site where the lady had to go through great pain with a stroke,(she was taking LDN) I guess because they couldn't stop the pain, because of LDN in her system there must be a way of letting people know or other drugs to be issued by a medi alert braclet or similar this is an important issue i can't understand why you are blocking this as it is deceitful I think My husband is on this drug and yes I think it is great if it does work but I really don't like flirting with his life Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2011 Report Share Posted April 24, 2011 If I need a pain med in the late afternoon (norco) it works fine. I think the ldn clears by noon for me. Just personal experience.On Sun, Apr 24, 2011 at 10:32 AM, go_greenie09 <go_greenie09@...> wrote: Truly, 4.5 mg LDN nightly should be out of the system fairly quickly once in the hospital and no longer taking it. My husband began to respond very well to morphine around 2 p.m. after taking LDN at 10:00 p.m. the night before. While in hospital, he took no LDN and responded to morphine normally. Now, that said... If the doctors decided NOT to give someone on LDN any pain medications -- out of plain ignorance that the meds wouldn't work because of the LDN -- that could be the reason the person had to experience a lot of pain! ~ d >>come now I have just got off a site where the lady had to go through great pain with a stroke,(she was taking LDN) I guess because they couldn't stop the pain, because of LDN in her system there must be a way of letting people know or other drugs to be issued by a medi alert braclet or similar this is an important issue i can't understand why you are blocking this as it is deceitful I think My husband is on this drug and yes I think it is great if it does work but I really don't like flirting with his life -- Amy Paliwoda213.249.5861amypaliwoda.com Quote Link to comment Share on other sites More sharing options...
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