Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 Hi Bonner, The truth is I'm something of a rule breaker when it comes to supplements, and thyroid replacement hormone. I loved your disclaimer, though. The amino acid dl-phenylalanine can boost endorphin levels in the brain and improve depressive states. The Life Extension Foundation suggests 1000 mg capsules in the morning and again in the afternoon on an empty stomach. If this doesn't work, they recommend taking tyrosine at the same dose. Both of these amino acids contribute to cancer cell proliferation so people with cancer shouldn't take them. They can also raise blood pressure. They're also supposed to help weight loss. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2000 Report Share Posted November 14, 2000 What is phenylalanine? I think I missed the e-mail regarding this. Elaine, I thought you were a "guru" who knows all and does all. I'm disillusioned to learn that you've ever had a compliance problem <BG> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2000 Report Share Posted November 15, 2000 Hi Bonner, Considering your hypo-ish symptoms, I'd think phenylalanine would help as long as you don't have blood pressure problems. It seems that, as with phenylpropanolamine the drug that was just pulled, some people are sensitive to such compounds, but most people aren't. Depending on the relationship you have with your doctor, you could ask about reducing your ATD's, or just taper down a little. Some docs like to call all the shots and some respect your judgment and some you just have to tell them what they want to hear. When I was hypo and my doc wouldn't believe my high cholesterol was the cause, I had to take things in my own hands. On the graves_support board, there were a few patients whose docs let them adjust their ATD dose (by small increments) in an as needed basis. I'm glad you've been talking to Mike. I learned a lot from both him and his web site, particular in regards to aspartame. Since, I've met many people whose GD symptoms reversed when they quit drinking diet soda. Let us know what you decide to do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2000 Report Share Posted November 15, 2000 Elaine, is phenylalanine safe for HyperTs, on meds, or do we have to wait for remission? My doctor's office advises me I'm within normal ranges with 75 mgs of PTU twice a day. I haven't gotten the printed results, so I can't compare them with the last ones. Tomorrow, I'm going to ask the nurse to fax me copies of all results so I can enter them into the Excel spreadsheet to be able to evaluate my progress, or lack thereof. When I go for my appointment on December 29th, should I ask that we start reducing the level to see if I remain within the normal ranges? Somehow, I feel as though I'm going a bit HypoT, gaining weight and having really puffy eyes, not just in the early A.M. Dr. Sacks has been out of the country and has a really booked schedule, so I can't get in to see him before the 29th unless there's some type of emergency. You're a risk-taker ... do I dare cut back on the PTU without first checking with him? Can phenylalanine be purchased in a health food store? I suppose I need to get to the Life Extension Foundation site and check this out for myself. I KNOW it must be tiresome when I ask for information which has already been posted, but some days it's all I can do to get myself to work, put in 8 hours and remember to feed the cats before I fall into bed after checking out our e-group mail! Sorry, but I AM on the road to recovery and maybe one day soon will be able to offer more advice and ask less questions. Our friend, Mike Peddle, in Canada, is responsible for my education in e-mail emoticoms and lingo and was responsible for my adding a "disclaimer" to my last posting. I remember some e-mails, early in my experience, when people took things, or themselves, too seriously and failed to see the implied humor in certain transmissions or thought they were being "dissed" by a reply. HyperTs are NOT the most patient persons AND are sometimes hypersensitive, so we probably should all re-read our responses to make certain they convey our intent. Our e-mail group has been a GREAT resource for me and while we're all on a journey to recover our health, we MUST keep a sense of humor to help us through. Again, thanks for ALL you do to educate us. In the interim, I'll try, on occasion, to entertain us! <BG> and TWYL (Talk with ya'll later ... Southern twist on talk with you later! - Bonner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 In a message dated 11/15/00 8:10:21 PM Eastern Standard Time, daisyelaine@... writes: << Some docs like to call all the shots and some respect your judgment and some you just have to tell them what they want to hear. >> I understand what you're saying about doctors, but I believe the concept of patients' rights is redefining the patient's relationships with doctors. In the dynamic you describe, the doctor has all the power, the way men used to have over women when we had no rights, e.g., " some men like to call all the shots, and some you just have to tell them what they want to hear. " Doctors are our employees--we are paying them to help us to get well. WE are in charge of our own bodies and health, and we are the ones who have to live out any mistakes we or the doctor might make regarding treatment decisions. A doctor works for you, and not the other way around. WE will have power in these relationships when WE TAKE POWER. If a doctor likes to call the shots, I let him know who calls the shots in our relationship--not in an obnoxious way, just by the way I frame my conversations with him and my questions. I will not tell them what they want to hear--I am paying them, not the other way around! Elaine, I am not implying this is what you meant--I think you are wonderful in every way, and marvel at your wisdom and knowledge. I am just trying to reframe the thinking re doctor/patient relationships so that we are all empowered to demand the care and treatment we deserve, even if the poor doctor gets a bruised ego in the process! (Let him or her cry all the way to the bank!) AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 I agree, Joan, but I've found that there are some, not many, but some doctors, who refuse to give an inch when it comes to self-care, especially if one mentions holistic leanings. As long as the patient stays on top of things and feels empowered, the time spent arguing with one's doctor just ends up being counterproductive. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Thank You so very much. I really need the help for anyone who has information. I know this is not going to be a positive subject with everyone, but I really feel this is the right direction. Thank you so very much again. Take Care and God Bless, Beverly Weakley Mom of Jen and Kim Re: phenylanine & chemicals > > > > > > > It was somewhat humerous to read about parents wanting to > suppliment their > > > kids diet with a proven cancer causing substance, phenylanine, and > in the > > > same digest someone talking about the preservatives, additives, > > pesticides, > > > etc.. our bodies and our childrens deal with every day. Before > you take > > > someones advice on supplements or diets, please research it > carefully. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2008 Report Share Posted June 10, 2008 In a message dated 6/10/08 5:03:34 PM Eastern Daylight Time, gubisara@... writes: > DLPA (phenylalanine) was discussed here in the distant past, as a substance > that can help cancer patients overcome pain. > D-Phenylalaine is the only thing that's helped my fibromyalgia. Be sure to get the " D " kind. ************** Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2011 Report Share Posted April 12, 2011 Hi to everyone, Thanks all who contribute and have the time to respond. Your ability to share any information/advice from your own personal experience is welcomed. Thank you. I am confused about something and am hoping someone has any information to shed some light on please. I am researching phenylalanine. In doing so, I understand that aspartame and phenylalanine are in diet products. What is the difference between phenylalanine in diet products and LD-Phenylalanine???? Is it the same? Quote Link to comment Share on other sites More sharing options...
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