Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Hi Afsi, I seem to recall that our Dr. had said no vaccinations. I believe that children who are immunosuppressed may not benefit from the vaccination (and that refers to dead virus- they certainly wouldn't give anything live) But I know that it is an issue even for siblings. Elliot's younger sister had the dead polio vaccine, and the ped. rheum even told me not to give her the chicken pox vaccine, and Elliot had had chicken pox. The truth is- most children are getting their vaccines so the lilkelyhood that your child will be exposed to these diseases are very small. Elliot was diagnosed at 22 months and had his early vaccinations. I do know that we didn't do his 5 yr old booster. Rena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 IM On combo myself going on three months. I know its terrible But the response rate is a lot higher with combo than with the interferon alone thats the best imfo i can give you Good luck keep in touch Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 NO im just another patient with hep c strugling along. Joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 No Problem Conshohocken Pa. 10 miles west of Phil My son lives in fla in Gainesville Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Barbara: No, I'm not a doc or in the medical profession at all. He does respond to questions when he can though. The support group you joined has a master list and everybody gets a copy of your questions, comments, and answers and you get a copy of our stuff too. Hopefully there will be some information that you can use! I guess you could always e-mail whoever you wanted to, without everybody getting a copy. Here's the doc's e-mail address (gidoc@...) if you feel more comfortable corresponding with just him. Of course, we're happy to have you along also! I'm in the group because I have Hep C also. Your husband was lucky that he could tolerate the combo therapy, because after two months on it I sure couldn't. I'm hoping that eventually I'll be able to tolerate a new drug in the future. Hugs, Hollie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Ok yor near jacksonville Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 So you're close to Cedar Key? That's where the husband and I usually go for special occassions (birthdays, anniversaries). Nice area! Hollie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 your chat emails are going out to thousands of people. can you guys chat privately. your loading up everyones mailbox's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Thank you for answering my e-mail.I just joined ..Please forgive my ignorance..Are you a member the doc. ? Thank you again...Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 i am sorry I forgot to send the original letter from you..Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 o.k.Joe..thanks..we live in Fla. do you mind if I ask where you live? And how are you doing? barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Gainesville is about an hour west of here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 I am sorry..I just joined and was not aware of this.Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 I also live in Central Florida, and I am a provider of health care. If I can help, let me know. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 In a message dated 1/10/2000 1:14:50 PM Pacific Standard Time, AABASSO@... writes: << rom: AABASSO@... your chat emails are going out to thousands of people. can you guys chat privately. your loading up everyones mailbox's I fail to see where your problem is with the " chat " emails. For some, this list is the only support they have. Yes, we definitely rely on >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 For Barbara, Here is the info of your interest: Approximately 5%-10% of sustained responders will relapse with HCV infection over the next 5-10 years All HCV patients who achieve a sustained response to interferon monotherapy have been shown to have a " durable " response. Ninety-five percent of such patients continue to have undetectable virus when followed for 3-5 years. Whether this finding holds true for patients receiving combination interferon/ribavirin therapy has not previously been addressed but results one such study are available now. A subset of 316 sustained responders have now been followed for more than 6 months to determine whether the response to treatment is durable. Ninety-seven percent of patients demonstrated a durable response (defined as the absence of detectable HCV RNA when followed a further 12 to 36 months after cessation of therapy). Thus, the late relapse rate was < 3% and the durability of the response appeared to be equivalent for combination interferon/ribavirin and interferon monotherapy. These findings indicate that irrespective of treatment strategy, a sustained virologic response 6 months after cessation of treatment will most likely be maintained in the majority of patients. This study will continue with a total follow-up of 5 years. However, A subset of 316 sustained responders have now been followed for more than 6 months to determine whether the response to treatment is durable. Ninety-seven percent of patients demonstrated a durable response (defined as the absence of detectable HCV RNA when followed a further 12 to 36 months after cessation of therapy). Thus, the late relapse rate was < 3% and the durability of the response appeared to be equivalent for combination interferon/ribavirin and interferon monotherapy. These findings indicate that irrespective of treatment strategy, a sustained virologic response 6 months after cessation of treatment will most likely be maintained in the majority of patients. This study will continue with a total follow-up of 5 years. However results of previous studies have shown that individuals with hepatitis C and advanced fibrosis or cirrhosis respond less well to antiviral therapy. The viral genotype also has an effect on treatment outcome. 70%-80% of those infected with genotypes 2 and 3 will be sustained responders to therapy compared with only 10%-20% of patients with genotype 1. He also noted that approximately 5%-10% of sustained responders will relapse with HCV infection over the next 5-10 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 Dear Barbara, What was/is his PCR level when he ended treatment? And why was he on it for only 6 months? Love, Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 Dear Barbara, What was/is his PCR level when he ended treatment? And why was he on it for only 6 months? Love, Bren Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 <A HREF= " http://www.carbonbased.com/cbcblood.htm " >CBC Blood Chemistry Definitions</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 <A HREF= " http://www.carbonbased.com/cbcblood.htm " >CBC Blood Chemistry Definitions</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 In a message dated 1/11/2000 8:55:01 PM Pacific Standard Time, Papaspridg@... writes: << RNA, is that the viral load? >>RNA stands for " Rbionuclear acid " What does that mean? ha ha I'll try to explain it as best I can without further confusing you. HCV is a single stranded RNA virus. And yes, you could say it is your viral load although the correct term for your viral load is PCR RNA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 In a message dated 1/11/2000 8:55:01 PM Pacific Standard Time, Papaspridg@... writes: << RNA, is that the viral load? >>RNA stands for " Rbionuclear acid " What does that mean? ha ha I'll try to explain it as best I can without further confusing you. HCV is a single stranded RNA virus. And yes, you could say it is your viral load although the correct term for your viral load is PCR RNA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2000 Report Share Posted January 14, 2000 Hi Afsi, Josh got sick during the last month of kindergarden, so he had already had all of his vaccinations. And he had no apparent side effects from any of them. Last year the schools sent home papers to all parents, telling us that all of the 4th and 5th graders were to get the series of 3 hepatitis vaccines and that it would be provided free by the schools and the public health department. There was a little form to fill out and if you didn't want your child to receive it, there was a space to fill out the reasons why. So, I filled it out and said my son is taking immunosuppressing drugs (methotrexate and prednisone) and that I didn't feel it was appropriate for him. The school had no problem at all with that and he was one of the only kids that didn't get scheduled in. Nearly everybody else got it. I volunteered to help out on the days it was given. After this notice, I called the pediatrician. He told me I should ask the rheumatologist. I did. He said he didn't foresee any problems with it. And that since josh's immune system is suppressed, it might be better for him to get the vaccines than to possibly risk exposure. I made an appt for both kids at the pediatricians and told them I'd be really, really upset if anything happened after the immunization. They couldn't be sure. We went ahead and did the first one. Nothing terrible happened, so the next month we did the 2nd one. Again, no side effects at all. Three months later we did the last one and everything was fine. So, even though he's on MTX he got the shots. Our kitten reacted worse when she got her first shots. She was really tired and didn't want to eat that day. The children, even Josh, were absolutely fine. That's just our experience, though. Take Care, Georgina Afsi Goodarzpoor wrote: > > Hello everyone: > > I have a question about vaccination of kids with JRA. My daughter is going to > turn 4 in june and I guess all kids have to get certain vaccinations such as > MMR, Polio, etc at that age. Has anyone's kid who has had JRA ever been through > vaccination while they were still taking Methotrexate? Did they have another > flare up as a result of any vaccination. I know for Polio, we will need to get > the kind with the dead virus but as for the rest of them I am not sure what we > would need to do. I am very scared of the upcoming vaccination for my daughter. > I will ask this question from our Rhuematologist as well. But I wanted to see > if anyone has had any experience in this area. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2000 Report Share Posted January 14, 2000 Hi , I know how you must feel about this whole issue, of vaccinations and the consequences of them. In my case, it's a little different. I feel very strongly that the trigger for my son's systemic JRA activity was (or is somehow related to) his case of the chicken pox. He was a perfectly healthy child until right after he caught the chicken pox from me. I caught them from my daughter, who caught them from her little friend. I wonder sometimes, now, if things might have been very different if the chicken pox vaccine was available back then and if when it started going around in our neighborhood, I could have had myself and the kids vaccinated before we got it. I wondered more about this after the recent messages about a child here on the list with JRA who was given the vaccine when her sister got cp, and got a really bad case that needed hospitalization. But Josh wasn't sick yet back then, so I still think it might have prevented his JRA. I'll never know for sure, I guess, but it's something I do think about. I thought it was great that he was getting exposure to them as a child, since I never did till my 30's and it's worse for adults. Instead, it seems to have triggered his immune system in ways i never imagined. If I had quaranteened him from his sister and me, maybe he'd be just fine today? Take care, Georgina SHANNON MARTINO wrote: > > I am sorry to say I am no help to you there will never have a > vaccination again had her last shots on June 30th 1998 she started > with afever and a rash on July 2ed and from there she was treates fot J.R.A > so I hope you get your answers.There is info about that kind of stuff on > the web that might help you some good luck . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2000 Report Share Posted January 14, 2000 yes they do: http://www.myamigo.com/ Question >From: Daugherty <brian@...> > >Hello, > > Does anyone know if the company " Amego " has a web page. They sale >electric mobility Carts. Thank You, > >brian, > > >--------------------------- Quote Link to comment Share on other sites More sharing options...
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