Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in series. This was best thing I ever read explaining in " dummy " terms what is going on. Good luck. Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2000 Report Share Posted January 15, 2000 To GI-World-Hepatitisonelist Please take me off this list. I " m flooded with to much mail signed marey@... VJannell@... wrote: > From: VJannell@... > > Hi-see if you can download Layman's Guide to Hep C Viral Load - part 2 in > series. This was best thing I ever read explaining in " dummy " terms what is > going on. Good luck. Vickie > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2000 Report Share Posted March 2, 2000 That would be incredibly sad should anyone on this list or in the dwarf community discriminate against someone because of their height. However, with any crowd of people their will be a few. I can only speak for myself when I say, height doesn't matter. Helen's quote about the package speaks volumes. Karin (who gained an inch and a quarter with her hip surgery and is now 4'4 1/8 " ). >From: ABritt1041@... > > I have a question for anyone who is willing to help set my mind at ease. my >son who is now 17 months old has been diagnosed as being hypochondroplasia >and I wonder about something. Didn't I read that the LPA is for 4`10 " and >under? If so where does this leave him if he were to be on the taller end of >the growth scale? Will he not fit in with the people of LPA and also not fit >in with the average size folks? I just fear the possibility of him falling >between the cracks so to speak. Also anyone who is hypo ,any input you can >give me about your experience growing up as far as ant medical problems would >really hepl me know should a problem come up that I may not be aware of that >would need attention. We are still new to LPA and are trying to learn all we >can. >Thanks >Angie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2000 Report Share Posted March 2, 2000 Many years ago LPA starte rephasing the membership height issue for the very reason you are asking. Most of the time the current literature and thinking goes something like this. .. . .4' 10 " or less or a medical diagnosis of dwarfism. Marge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 Dear Hoppy, There is supposedly a certain percentage of people who get it and it does NOT turn chronic. What bothers me about this is that there can be an undetectable viral load, and really there is still virus lying dormant in the liver and eventually it will start multiplying. This is still such a " new " disease and so much is still being learned about it. I don't think it is safe for anyone to consider themselves cured, not at this point. It is safer to assume you might be contagious and it could turn active/chronic. (My opinion) CC >From: " Weiss " <hoppyweiss@...> >Reply-Hepatitis Conelist >Hepatitis Conelist >Subject: Question >Date: Fri, 17 Mar 2000 20:48:11 PST > >Asking for your thoughts. My mother was told a month ago she had hepatitis >C. Now she is telling me her doctor told her she fought off the virus and >no longer has it. I am concerned that she has shut us off from her >problem. > If it is possible for the virus to be eliminated by the immune system >please let me know. > >Hoppy >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2000 Report Share Posted March 17, 2000 <<I don't think it is safe for anyone to consider themselves cured, not at this point>> I agree alley/ ICQ 12631861 alleypat@... http://micromagic.net/~alleypat <center> <a href= " /subscribe/DFW_Liver_Disease " > <img src= " /images/join.gif " border=0><br> Click to subscribe to DFW_Liver_Disease</a> </center> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hi , I was told the exact same thing from my doctor. They told me that sometimes happens. I don't buy that unless I have proof supporting that. I need to get a second opinon w/ tests supporting their findings whatever they may be. I just haven't done that yet. For some reason I just keep putting it off. I would probably get a second opinion. For at least to put hers and your own mind at rest. Good luck to you and keep us posted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2000 Report Share Posted March 18, 2000 Hoppy yes it is possible to fight it off... about 15% of people do with hep c.. the only way to know that is to have a PCR (viral load) test and if it is negative she MAY have fought it off (the test measures at best down to 200). Has she had a pcr and liver biopsy yet? those are to me the absolute minimum for hep c antibody pos person. alley/ ICQ 12631861 alleypat@... http://micromagic.net/~alleypat <center> <a href= " /subscribe/DFW_Liver_Disease " > <img src= " /images/join.gif " border=0><br> Click to subscribe to DFW_Liver_Disease</a> </center> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Hoppy............that could definitely be true...for some reason some people CAN fight off HCV. She will probably be watched and tested every so often (RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If her PCR is undetectable and remains that way..she has indeed been able to fight HCV with her own immune system. It happens. She is most likely being honest with you....and in case she's not, you'll have to respect how she has decided to deal with this...love, mzg " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Hoppy............that could definitely be true...for some reason some people CAN fight off HCV. She will probably be watched and tested every so often (RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If her PCR is undetectable and remains that way..she has indeed been able to fight HCV with her own immune system. It happens. She is most likely being honest with you....and in case she's not, you'll have to respect how she has decided to deal with this...love, mzg " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Hoppy............that could definitely be true...for some reason some people CAN fight off HCV. She will probably be watched and tested every so often (RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If her PCR is undetectable and remains that way..she has indeed been able to fight HCV with her own immune system. It happens. She is most likely being honest with you....and in case she's not, you'll have to respect how she has decided to deal with this...love, mzg " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2000 Report Share Posted March 19, 2000 Hoppy............that could definitely be true...for some reason some people CAN fight off HCV. She will probably be watched and tested every so often (RNA PCR Qunatitative) to make sure she DOES NOT have circulating virus. If her PCR is undetectable and remains that way..she has indeed been able to fight HCV with her own immune system. It happens. She is most likely being honest with you....and in case she's not, you'll have to respect how she has decided to deal with this...love, mzg " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 Give the Prozac time to work, it can take several weeks, and you may need a dose increase too if it is only a small dose. My son was on both Wellbutrin and Prozac together for a while and it worked great for him. Don't give up on it yet. I stopped treatment for 2 weeks once before starting high dose, and I was going camping in a very remote location where refrigeration/ice would be a problem. The depression was worse those 2 weeks, not better. I actually felt better when I came home (early due to my extreme grouchiness) and went ahead and got started on the high dose! Maybe it was the anticipation making me feel so awful, I don't know. But I don't think stopping for a week will help at all. The medication wouldn't even work out of your system that fast I don't think. It would give the virus a chance to rebound though! I know how you feel, the depression was so awful. I was either crying or bitching. I would go around looking for something to complain about! I even knew I was doing it, and I wanted to stop, but I just couldn't! So that made me feel even worse. I was miserable, and sometimes all I wanted to do was wallow in my misery! I had a perpetual pity party going for a while there! I am so lucky my family put up with me, because I sure took a lot out on them. My husband would walk around saying 'it's just the medicine, it's just the medicine', like some kind of chant! He must have wanted to strangle me, and looking back, I don't blame him! I still have my down days even though I'm not on combo any more. One thing that I've found that really helps is writing to friends I've made on my e-mail support groups like this one. It doesn't even really matter what response I get, I think it's more just that writing it all out seems to take it OUT of me, and ON (in?) to the computer! Hopefully the Prozac will start to kick in soon. I'm almost positive it took about 3 - 4 weeks for it to really be helping my son. I hope things get better for you soon. Take care, and you can write to me anytime if you want to. Claudine ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 The Wellbutrin and Prozac will cause you to have no interest in sex. I was on antidepressants and I quit them and did not tell Dr I felt more depressed on them. By any chance did you get Fibromyalgia also? I have it and it makes you ache bad....Connie I also have insomnia. They prescribed 100 mgs a night of Amitryptilimine (Elavil) for the Fibromyalgia. --- kalidurga@... wrote: > I am in my eight month of the combo and most of the > physical side > affects are gone, except being tired, and having > sore arms if i sleep > too long on one side at night. I was on Interferon > alone in 1993 and i > did it for six months, so i didnt know what to > expect after the six > month mark this time. > well beside having NO interest in sex, which is fine > with me, I have > been getting depressed alot. I am on Wellbutrin, > because of my history > of depression, and now my psychiatrist just started > me on a low dose of > Prozac also. I havent told me specialist or primary > care, because they > said they would never have put me on it, unless was > on meds for the > depression. now that the depression seems to be > hitting me stronger, i > dont want them to pull me off the meds. My viral > load and labs are good. > Im genotype 1b and need to stay on for 48 weeks. > My question; > > is it wise to take a week or so off to take a rest > from the drugs? will > that take away from the depression if i do take a > week or so off? Or > would that be dumb, and not be good for my liver? > > The depression just was starting to bother me the > day after the shot, i > do mine at 9 pm, so the next morning i am pretty > wiped out and down. but > now it seems to have a mind of its own. it just hits > me. i could be > laughing with a friend, or watching tv, or someone > might say something > and 'pow', i literally feel myself falling into a > depression. i hate it, > because i reminds me of when i was a child. > > i know a side affect is depression from the combo, > but as anyone else > actually stoped the combo for a short while? and if > so, did it help? > > i am 31 years old and have not been this depressed > since my teenage > years. i have always worked ALOT and i am known for > my energy, which > bothers me now since i have none, i am a vegetarian > and eat healthy, > dont drink or smoke or do drugs. i am not working, > which i think makes > me feel isolated, but sometimes i am wiped out, i do > get out and walk my > dog 1 to 3 hours a day, i live near a fenced dog > park in the city and i > socialize alot there, that helps. > but i a so sick of the ups and downs. this is how i > know its the combo. > > i hate to vent, i dont post much. i have joined many > onelist groups, > ones for; hep, depression, loneliess and i was > hoping that would help. > > the two hep support groups here in boston are once a > month, and i was > told they are basically medically orientated, and > not like a support > group to talk about emotions. > > if anyone has any suggestions PLEASE get back to me. > i want to fight > this awful disease. i just had a frend who had a > kidney transplant, his > sisters gave him one, WOW!!!, and it really hit home > to what may lie > ahead. > > im open for suggestions. > Thanks. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2000 Report Share Posted April 15, 2000 kalidurga@... wrote: > > . . . is it wise to take a week or so off to take a rest from the drugs? will > that take away from the depression if i do take a week or so off? Or > would that be dumb, and not be good for my liver? I'm so sorry that you are having such a rough time, darling. Please just try to hang in there. I do know that after four weeks on the combo, my Big Sis was pulled off because her system was crashing. She had two transfusions, and after a week of rest, jumped in there again -- starting with just the Interferon. Ten days of just Interferon, and she is just now easing into the ribarivin (2 pills a day -- not 5, as is recommended). She was telling me that it is much rougher in some ways adjusting after taking a week or two off. But again, everyone responds differently. It may be that you need a week or so off. But just be prepared for the fact that if you do take off, getting back on may take you back to the place you were at when you first started the combo. If it wasn't that bad for you (and God willing, it wasn't), then it may not be too bad. I'm anxious to read the others responses. I'm curious. Warm hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 I don't know much about treatment except what I read and what others have said. It is known that interferon causes depression. I know what you mean tho about not telling gp. My gp told me to do aerobics last time I mentioned I was so tired and could he help with it. <sigh> My gastro put me in Celexa (after trying zoloft which made me rather blah all the time) and asked if I could have my gp start writing the scripts for that and the Celebrex. I said yes I'll ask, but he isn't up on hep and I try to educate him as much as I can. So I go in to see doc yesterday (sat) and he had the day off, his doc assistant was there. I may just fax him a letter as I can never talk to him on the fone, he's a great guy, at least he listens when I make him listen hahaha. Anyway, big hugs to you and I'm not sure you should stop a week on the combo. I hope you can just to take a break. Let us know what happens Best to ask your specialist/gastro. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 I don't know much about treatment except what I read and what others have said. It is known that interferon causes depression. I know what you mean tho about not telling gp. My gp told me to do aerobics last time I mentioned I was so tired and could he help with it. <sigh> My gastro put me in Celexa (after trying zoloft which made me rather blah all the time) and asked if I could have my gp start writing the scripts for that and the Celebrex. I said yes I'll ask, but he isn't up on hep and I try to educate him as much as I can. So I go in to see doc yesterday (sat) and he had the day off, his doc assistant was there. I may just fax him a letter as I can never talk to him on the fone, he's a great guy, at least he listens when I make him listen hahaha. Anyway, big hugs to you and I'm not sure you should stop a week on the combo. I hope you can just to take a break. Let us know what happens Best to ask your specialist/gastro. alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 Kalidurga - try lifting small (1 or 2 lbs. weights) everyday. It really works. And definitely the walking is great, keep it up after tx. Make it your addiction for the rest of your life - LOL! I've had good success with Celexa. I know everyone is different...but I'm just throwing in my 2 cents. Do rent funny movies and stay away from tragic health movies. Go for slash and burn, also adventure stuff. Take your mind off things. Peace, Jane << , except being tired, and having > sore arms if i sleep > too long on one side at night. I was on Interferon > alone in 1993 and i > I have > been getting depressed alot. I am on Wellbutrin, > because of my history > of depression, and now my psychiatrist just started > me on a low dose of > Prozac also >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2000 Report Share Posted May 27, 2000 Dear Micky, No one, of course, can really say what to do, we don't know the particulars of his situation, exactly how low his platelets are, and we're not doctors. But, I do know that there is new evidence out that interferon can help those with cirrhosis, even moving those with decompensated cirrhosis into compensated cirrhosis. If interferon is something he chooses, he will definitely need careful monitoring. He may choose a low dose of interferon, hoping more for an improvement in his liver condition than for a cure. Something else he may look into would be ursodeoxycholic acid (UDCA) treatment. This has been found to help liver function, especially in cirrhotics. I have some info on it somewhere, I'll try to find it and post it. I do agree with all you were saying about improving lifestyle and diet, but I think he need more than just that, if all he has to look forward to at this point is a transplant. Let's face it, there just aren't enough livers for all who need them, so I know I'd rather try just about anything to avoid getting to that point. A naturopath may help with ideas also. I will try to send whatever info I have on this. Good luck to you and your friend. Claudine >From: " micky woolf " <micky@...> .. >He has a coagulation problem, ascites and low platelets and cirrhosis >(I don't know what stage). His doctor told him that he couldn't give >him any treatment due to his situation and said that in 5 years he >will probably be on the transplant list. >This man is desperate and really wants to try the combo, even though >he was advised not to. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 jeannine wrote: > Hi every one, I would like to rid my bowel of all the undigested stuff in > it, but I would like to know if it is possible to do so without colonics > (not sure what that is anyways...) or enemas. My bowels are very irritable > and I am affraid to hurt them with enemas and such things. Is there a fast > or diet that will rid them of all the scum and is it possible to identify > that stuff in the stool??? I'm sure that there are people better qualified to answer that than I, and I will defer to their answers, but as a start, usually gentle enemas will provide some relief to bowel, irritability. The key word is gentle, using just warm water with baking soda, 1 tsp. per quart. Warm is a comfortable bath temperature, warmer than body temperature. Start with a full bag, but only take as much as is comfortable, probably a pint or two, but maybe a cup or less the first time. A " colonic " is a continuous enema or a series of enemas with the nozzle kept in place. One method has the " patient " lying over a drain, a small nozzle is used but kept in place by a bracket; the patient expels around the nozzle whenever he/she feels enough pressure to want to. The other method uses a larger nozzle and a machine with valves so that alternately clean water is injected and the effluent is drained through the same nozzle. Either method can qualify as gentle. Hope this helps. Aquarius Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 >Thanks aquarius. the thing is, I have some sort of hemophilia. It's not very bad but my blood vessels are more delicate than most people and my tissues tear easily. That's why I am looking for a diet/fast rather than an enema type of thing. I am afraid the pressure will tear my intestins and make me bleed. (This type of hemophilia is called Von Willebrand after the guy who found it) thanks. Janie >I'm sure that there are people better qualified to answer that than I, and I will defer to their answers, but as a start, usually gentle enemas will provide some relief to bowel, >irritability. The key word is gentle, using just warm water with baking soda, 1 tsp. per quart. Warm is a comfortable bath temperature, warmer than body temperature. Start with a full bag, >but only take as much as is comfortable, probably a pint or two, but maybe a cup or less the first time. > >A " colonic " is a continuous enema or a series of enemas with the nozzle kept in place. One method has the " patient " lying over a drain, a small nozzle is used but kept in place by a bracket; >the patient expels around the nozzle whenever he/she feels enough pressure to want to. The other method uses a larger nozzle and a machine with valves so that alternately clean water is >injected and the effluent is drained through the same nozzle. Either method can qualify as gentle. > >Hope this helps. > >Aquarius > > >------------------------------------------------------------------------ >Old school buds here: >1/4057/1/_/478268/_/959534578/ >------------------------------------------------------------------------ > >Subscription email: bowel cleanse-subscribeegroups > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 You can do the Arise & Shine program without enema's. You will increase the number of shakes and pills on the last week of the three week cleanse. Bernadette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 You can use the salt water cleanse which will rid your colon pronto of its contents. You put one and a half teaspoons of sea salt (NOT iodized salt) in a quart of warm water and drink it first thing in the morning, all at once. Be prepared for toilet duty. Alternatively, you can buy one or two bottles of magnesium citrate from the grocery store for about $1.35 each and drink it all down. (If you use both bottles, do it about 2 hours apart.) This will also clean out your system. Patty question > Hi every one, I would like to rid my bowel of all the undigested stuff in > it, but I would like to know if it is possible to do so without colonics > (not sure what that is anyways...) or enemas. My bowels are very irritable > and I am affraid to hurt them with enemas and such things. Is there a fast > or diet that will rid them of all the scum and is it possible to identify > that stuff in the stool??? > > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/1/_/478268/_/959527146/ > ------------------------------------------------------------------------ > > Subscription email: bowel cleanse-subscribeegroups > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2000 Report Share Posted May 29, 2000 Dear Claudine Thank you for your input. It is very hard to tell someone to wait, when he knows about the odds. But I told him what I thought and hope he takes the best decision. There is now a low form of interferon by Amarillo, have you heard about it? Apparently it's still in a study but I know someone who is taking it. No one really knows the long term effects, but it would be an option, I guess.. Take care Micky > Dear Micky, > No one, of course, can really say what to do, we don't know the > particulars of his situation, exactly how low his platelets are, and we're > not doctors. But, I do know that there is new evidence out that > interferon can help those with cirrhosis, even moving those with > decompensated cirrhosis into compensated cirrhosis. If interferon is > something he chooses, he will definitely need careful monitoring. He may > choose a low dose of interferon, hoping more for an improvement in his liver > condition than for a cure. Something else he may look into would be > ursodeoxycholic acid (UDCA) treatment. This has been found to help liver > function, especially in cirrhotics. I have some info on it somewhere, I'll > try to find it and post it. I do agree with all you were saying about > improving lifestyle and diet, but I think he need more than just that, if > all he has to look forward to at this point is a transplant. Let's face it, > there just aren't enough livers for all who need them, so I know I'd rather > try just about anything to avoid getting to that point. A naturopath may > help with ideas also. I will try to send whatever info I have on this. > Good luck to you and your friend. > Claudine > > > >From: " micky woolf " <micky@w...> > . > >He has a coagulation problem, ascites and low platelets and cirrhosis > >(I don't know what stage). His doctor told him that he couldn't give > >him any treatment due to his situation and said that in 5 years he > >will probably be on the transplant list. > >This man is desperate and really wants to try the combo, even though > >he was advised not to. > > > > ______________________________________________________________________ __ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 << Is there a test that a naturalpath (or even a GP) would do to find out if you're a candidate for Candidiasis? >> There's a stool sample test for candida; however, most naturopaths advise that if it walks like a duck and quacks like a duck, it's probably a duck (read: if you've got health complaints X, Y, and Z, you could benefit from treatment for candida.) There are candida questionaires in many popular books about candida. In my opinion, that's the easiest and least expensive way to find out if you have candida. *Jami Quote Link to comment Share on other sites More sharing options...
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