Guest guest Posted May 27, 2000 Report Share Posted May 27, 2000 I have had to go with my youngest daughter for SSI. I also have a friend who just went recently. DO NOT GO ALONE!! It helps to have a witness, plus there is someone else there to help make sure you understand what is going on and can help you in communicating with the SS doctor. P ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < egroups> Sent: Saturday, May 27, 2000 1:44 PM Subject: [ ] SS > I was wondering if anyone else has ever had to go to a Social Security > doctor. I am thinking maybe I should not go alone. Any > suggestions!!!!!!!!! > > > ------------------------------------------------------------------------ > Best friends, most artistic, class clown Find 'em here: > 1/4054/6/_/478567/_/959452590/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 I think this is very good advice from to ! ----- Original Message ----- From: " Price " <linda@...> < egroups> Sent: Saturday, May 27, 2000 4:30 PM Subject: Re: [ ] SS > I have had to go with my youngest daughter for SSI. I also have a friend > who just went recently. DO NOT GO ALONE!! It helps to have a witness, plus > there is someone else there to help make sure you understand what is going > on and can help you in communicating with the SS doctor. > > P > ----- Original Message ----- > From: Valued Compaq Customer <ruf-caimi@...> > < egroups> > Sent: Saturday, May 27, 2000 1:44 PM > Subject: [ ] SS > > > > I was wondering if anyone else has ever had to go to a Social Security > > doctor. I am thinking maybe I should not go alone. Any > > suggestions!!!!!!!!! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2000 Report Share Posted May 28, 2000 , While I've never had to go myself, I would definitely suggest bringing someone with you! Take care, Donna Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2000 Report Share Posted May 29, 2000 I'm feeling pretty good today, . The divorce is coming along as smoothly as can be hoped. Thank you! Hope you are feeling good today, too. I'm glad your friend will be going with you to the SS doctor. That is a relief for you and all of us here. I think you are very much entitled to be proud of your accomplishments at school. You really are achieving something which will be a very powerful model for your children. It's wonderful. Keep up the good work. Hope you will have some fun today. ----- Original Message ----- From: " Valued Compaq Customer " <ruf-caimi@...> < egroups> Sent: Sunday, May 28, 2000 7:58 AM Subject: [ ] SS > Hi , > How are you today? I agree 's advise was very good, I have someone > going with me. I guess I am in a flare, but I know the stress of the last > few weeks is not helping anything. I wish that dark cloud over my head > would move and go away. > I guess it is silly to be excited about SPK, but I never went to school > with the thought of doing well, or even liking it. I originally started at > school to show my kids that you can loss everything but you have to get > back up and find something else. I hope I have accomplished this. It was > fun the other night. > How are things with you? I know how stressful a divorce can be but it > will pass. The sun does shine again. Have a nice day!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2000 Report Share Posted May 30, 2000 I talked to my friend and she told me that she did have this other person with her and this person did help her by speaking up when she forgot something. This is here in Minnesota - I don't know why it wouldn't be the same else where. P ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < egroups> Sent: Monday, May 29, 2000 7:24 AM Subject: [ ] SS > Hi , > I was curious because I know someone who just went to a SS doctor and he > wouldn't let her sister come in with her. I would appreciate you asking > your friend. I would have to wonder if they wouldn't let someone in, what > are they trying to hide. I hope I can get in touch with my attorney > tomorrow, he has been on vacation, plus he is not good at returning phone > calls. These papers have to be done, My son said he would come over and > help me. > Hope your holiday is nice. > > > ------------------------------------------------------------------------ > Failed tests, classes skipped, forgotten locker combinations. > Remember the good 'ol days > 1/4053/6/_/478567/_/959602699/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 Good luck ! I think it is a very good idea to write down everything you want to say. I know I would not remember things if I don't write them down. P ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < egroups> Sent: Tuesday, May 30, 2000 2:33 PM Subject: [ ] ss > Hi , > Thank you for all your help and for asking your friend. My friend is > going with me, and I am going to write down everything I want them to know. > I know I will forget, the whole will rattle me. > Hope you have a good day!! > > > > ------------------------------------------------------------------------ > Failed tests, classes skipped, forgotten locker combinations. > Remember the good 'ol days > 1/4053/6/_/478567/_/959715153/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2000 Report Share Posted June 11, 2000 > I was wondering if anyone who has had to go to a social security doctor > gave them everything you have been diagnosed with. I guess ss has given > him the information but I was just thinking if they don't do that than how > would he know that I have carpal tunnel or the neck injury. I can tell > him, it is very obvious that I have the RA. I have written up a list of > all the drugs I take. Should I give him a list of all the doctors I have > seen? > Thanks for any help. > Yes! Anything that will help prove your case. When I had to go through a disability review 3 years ago they wanted to send me to their doctor. About an hour away! And to take a taxi! My car wasn't running at the time. They said they would pay " part " of the taxi ride. I said, " No. I have a rheumatologist I see. I am not going to see a different doctor who doesn't know my case. " I told them I can get copies of all my medical records and x-rays of the last 16 years. And you can talk to my doctor. She declined that info, but had my doctor fill out papers. I am now in my 19th year, and still going strong. It has worsened, not gotten better. =) So, I fought going to their doctor. But the girl I talked to was really nice. She asked if I had an appointment with him anytime soon, and I said yes, I see him every 2 months. That made a huge difference. Seeing him on a regular basis. Because then they knew I wasn't fooling around. Not only that the doctor they were going to send me to wasn't a rheumatologist. What a joke! When I finally got the review back determining my disability, they said they would have to do another review in a few years because they felt my disability will " go away. " I laughed my ass off and so did Ryder. And I said I hope they're right! Are my fingers and legs going to miraculously go back to their original position and not be all bent up and crooked? Am I going to grow new bone and cartilage in every joint over night?? LOL. Will I be going jogging?? I could barely walk. I told them I had to be carried to the bathroom. I told them I have RA in all my joints, and how long I had had it at the time and how very active it was and uncontrolled. A panel of judges made their decision without seeing me. They were about 3 hours away! Give them everything. Make lists of all your appointments you have gone to, get medical records. Everything. They are such fill in the blank! ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 Hi , Thanks for your help. A lot of the test I do not have and tomorrow is the visit. I put down all the drugs I have been on. I put in my current doctors plus all the other doctors I have seen on my own. I also put the hospitals I have gone too, either for test, physical or aquatic therapy. I put down all the test I have had and what hospital they where done at. Finally, I put in everything I have been diagnosed with from the beginning. It funny my friend who is dear, told me not to give them anything. This doesn't make sense to me. I don't know if he has even been told what is wrong. The last time I went I only took a list of the drugs I take. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 It sure sounds like it went well. I hope this is the end of your SS doctors. Since he called SS, maybe you will get a quick answer and WC will also get off your back. School is going great, I really love it thanks. a ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < egroups> Sent: Tuesday, June 13, 2000 6:37 PM Subject: [ ] ss > Hi a, > I went this morning, I got there a half hour early and they took me right > away. It took all of 5 minutes. He was impressed with all the information > I gave him. He ask me why I had trouble getting on the table, and I said > what did they tell you I had. He was told Fibro, I believe that was all > they told him. I am very glad I took advise and wrote it all down, > he told me when my daughter typed it up, she was very efficient. He spent > less than 5 minutes with me, ask me to wait he wanted to read what I gave > him. He didn't, he called ss but I couldn't hear much. I did hear him > say, she has had extensive medical treatment, and something about the > table. He did read off the drugs but that was all I could hear. He came > back and shook my hand and said that is all, painless huh. End of visit. > I do know he knew the neurologist I had seen and told me he is a very good > doctor. He would not let my friend come in, and after the last doctor I > didn't want to rock the boat. I know two people who had to do this and > those doctors would not let the friend in either. > So I don't know, I guess we just wait and see. I am beginning to feel you > have to be near death for anything good to come out of this. If I was > married, had a second income I would just forget it all. However, that is > not the case. > How is school going, I miss it so much? Hope you have a good night. > > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/6/_/478567/_/960935443/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 , I guess he was checking to see if the RA affected your toes. The hands and feet are the most commonly affected joints in RA. Since my hands and feet are not affected, the doctor doesn't think I have RA. a ----- Original Message ----- From: Valued Compaq Customer <ruf-caimi@...> < egroups> Sent: Tuesday, June 13, 2000 6:41 PM Subject: [ ] ss > a, > Sorry a, I forgot. > The ss doctor ask me move my toes up. They don't move up so well anymore, > hardly move at all? What is the deal with that? I am thinking he was > just making an effort at earning his pay????????/ > > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/6/_/478567/_/960935736/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 a, Funny you say that about the toes. 's toes are affected alot. The toes on his left foot (the club foot are greatly affected) so bad that i can't even cut his toe nails which him crying. But the Enbrel has done wonders for him. I can't keep him home anymore. lol God i love it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Thanks right now jesse feels so good he cuts his own toe nails. lol. He is only 11 and it was killing him to have " mommy " cut his toe nails. Puberty in a JRA child is very interesting but he is handling it well. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 , It is so wonderful to hear you can't keep down since being on Enbrel!!!! I know how great it must feel to see him able to be so much more active. If he has swelling in his toes, it would be painful to cut his nails or do anything involving the toes. RA likes the small bones in the hands and feet, so unfortunately it's our fingers and toes that are affected first. But there are a few like me, that it hasn't affected the hands or feet. This disease is so strange the way it affects us all differently. a ----- Original Message ----- From: <12372101@...> < egroups> Sent: Wednesday, June 14, 2000 1:14 PM Subject: Re: [ ] ss > a, > > Funny you say that about the toes. 's toes are affected alot. The toes > on his left foot (the club foot are greatly affected) so bad that i can't > even cut his toe nails which him crying. But the Enbrel has done wonders for > him. I can't keep him home anymore. lol God i love it. > > > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/6/_/478567/_/961002978/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 I have a Pediatrist (sp) do my nails..I have extreme hammer toes due to CMT and Medicare will pay the bill.....just FYI ----- Original Message ----- From: <12372101@...> < egroups> Sent: Wednesday, June 14, 2000 12:14 PM Subject: Re: [ ] ss > a, > > Funny you say that about the toes. 's toes are affected alot. The toes > on his left foot (the club foot are greatly affected) so bad that i can't > even cut his toe nails which him crying. But the Enbrel has done wonders for > him. I can't keep him home anymore. lol God i love it. > > > > ------------------------------------------------------------------------ > Was the salesman clueless? Productopia has the answers. > 1/4633/6/_/478567/_/961002978/ > ------------------------------------------------------------------------ > > URL to change your membership options: /group/ > RA-support website: http://www.rasupport.webprovider.com/ > Our chat room: www.delphi.com/RheumatoidArth1/start > > Quote Link to comment Share on other sites More sharing options...
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